Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Results Are In---confused!

*Donna*

Recommended Posts

*Donna* Newbie
*Donna*
Posted

I posted a couple weeks back wondering how long blood tests take...well I went to see my dr. today and I was told my bloodwork was negative for Celiac. He said something about my number was 17 and anything below 20 was normal. From what I read on here anything below 10 is normal??!! I am in Canada and I am assuming it is different here than the states? Anyone from Canada have the bloodwork done and what are the ranges? I was so sure it would be positive as I have almost every symptom possible! I am thinking of trying the gluten-free diet anyways to see if it helps. Are there any other diseases that would have all the celiac symptoms the same? I had my thyroid checked and it was normal. The only other thing I can think of is lactose intollerance. My dr. is telling me it is IBS--but I'm not buying that! <_<

~Donna

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

Donna,

Each lab is different. Enterolab, Prometheus, LabCorp, etc etc etc. Each has different ways and different scores. You'll need to get the full copy of the tests (not just have them read them...physically go pick them up!). That will help, because you'll see the reference ranges. Plus, if you have questions, you can post your results/ranges here and we can help. Definitely get a hold of them ASAP!

You may not have Celiac and may be gluten intolerant. Or it could be a host of other things (including other food intolerances). I would suggest trying the gluten free diet and seeing what happens.

As soon as you get your tests, let us know!

Laura

2kids4me Contributor
2kids4me
Posted

Symptoms for celiac are extensive and yes they can mimic other diseases, food allergies and intolerances. You can be gluten intolerant and/or have lactose intolerance, or food allergies that would create malabsorbtion.

Each lab has its own set of normal values - it varies from lab to lab depending on the type of test and equipment used.

My daughter was borderline for her blood results - yet positive on endoscopy for damage.

Try the gluten-free diet if you would like and see how your symptoms respond. If they persist - then eliminate casein or lactose..... experiment to see which elimination results in the most improvement.

Ask your doctor about testing for food allergies as a possible cause for your symptoms

LKelly8 Rookie
LKelly8
Posted
...well I went to see my dr. today and I was told my bloodwork was negative for Celiac. He said something about my number was 17 and anything below 20 was normal. From what I read on here anything below 10 is normal??!! ~Donna

Just to echo what others have said - ranges differ lab to lab, there are so many (over 200) possible symptoms with celiac that it's been called "the great chameleon", and get a copy of that bloodwork.

I had negative bloodwork twice, years apart, before being dx by biopsy. <_<

celiacgirls Apprentice
celiacgirls
Posted

My daughter had negative blood tests 3 or 4 times over the years but responds positively to the diet. I did have her tested by Enterolab which was positive but dietary response is just as definitive.

Terch Apprentice
Terch
Posted

Hi Donna,

My doctor didn't even do the bloodwork he just did an endoscopy. By the way I am Canadian as well. I know that our cholesteral numbers are very different than The United States so I think maybe that these tests might be as well.

I am going to see my GI on friday and I am terrified that it won't be celiacs, that it will be negative or worse that it will be something much more serious. Who ever thought I would want to have this illness...it seems that if it isn't celiacs they will go back to the ibs diagnosis and quite frankly I know it's not what I have.

Anyway after Friday depending on what I hear I will likely being going the enterolab route, you may want to think of that.

Good Luck

Helena Contributor
Helena
Posted

Hi Donna, well, I can't tell you much about the numbers . . .but I'm Canadian and I was tested in Toronto. It would matter too which test you are talking about---there is the EMA one and the tTG one and tests for antigliadin antibodies. My GI doctor ran all of them for me, but my sister was tested for EMA antibodies only. If you only had one test, you might want to ask about getting others done.

My doctor told me that my anti tTG antibody test was "slightly positive" so I guess that confirms what you've said---it isn't a black and white test. There's a range that is considered "normal" apparently.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Terch Apprentice
Terch
Posted
Hi Donna, well, I can't tell you much about the numbers . . .but I'm Canadian and I was tested in Toronto. It would matter too which test you are talking about---there is the EMA one and the tTG one and tests for antigliadin antibodies. My GI doctor ran all of them for me, but my sister was tested for EMA antibodies only. If you only had one test, you might want to ask about getting others done.

My doctor told me that my anti tTG antibody test was "slightly positive" so I guess that confirms what you've said---it isn't a black and white test. There's a range that is considered "normal" apparently.

Hi,

I was wondering when you started to feel better on your gluten free diet. I have been 4 weeks without any real improvement.

Many thanks.

Helena Contributor
Helena
Posted

Well, it's hard to say because I've been on a "gluten light" diet for several years. (For the past couple of years, all the gluten I was getting was in oats which I ate on the rare occasion. I did have barley and rye a few times too.) But I did have to go back on gluten for the purposes of the biopsy (until my doctor suggested we cancel for various reasons) . . . I don't react as severely as a lot of people on these boards do. I have mild GI symptoms. Plus I feel kind of tired after eating gluten---I'm over that in about a day I'd say, so I noticed a difference right away. But I've heard that it takes some people awhile. Maybe you should start a new thread on this topic---I'm probably not the best person to ask.

KarenLee Rookie
KarenLee
Posted
Just to echo what others have said - ranges differ lab to lab, there are so many (over 200) possible symptoms with celiac that it's been called "the great chameleon", and get a copy of that bloodwork.

I had negative bloodwork twice, years apart, before being dx by biopsy. <_<

My GI Dr. said that if my Prometheus blood test comes back normal(I hope to get results back tomorrow), then there's no need for a biopsy, that we will assume that I don't have Celiac. If it comes back normal should I insist on a biopsy, too? I have read that so many people have neg. blood tests, but had pos. biopsy results. Oh, I also sent in the test to Enterolab a few weeks ago...

Thanks

Mayflowers Contributor
Mayflowers
Posted
You may not have Celiac and may be gluten intolerant. Or it could be a host of other things (including other food intolerances). I would suggest trying the gluten free diet and seeing what happens.

According to Dr Fine at Enterolab, it's all celiac disease. If you're gluten intolerant, you have celiac disease. There are just varying degrees of gluten intolerance.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,192
    • Most Online (within 30 mins)
      7,748
    Beatle Jane
    Newest Member
    Beatle Jane
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • WednesdayAddams13
      Alpine Brand Spiced Cider

      By WednesdayAddams13 · Posted

      Hello,   I contacted the makers of Alpine Original Spiced Cider Drink Mix and they sent me this email.....   Subject: [EXTERNAL] Fw: Ref. ID:1335211 Alpine Original Spiced Cider Drink Mix.               On Friday, December 6, 2024, 1:04 PM, Consumer <baking@continentalmills.com> wrote: December 06, 2024   Dear Janie, Thank you for taking the time to contact us regarding our Alpine Original Spiced Cider Drink Mix. We appreciate your interest and are happy to provide you with additional information. This product does not contain gluten. However, it is not manufactured in a gluten free facility. If I can be of further help, please contact me at 1 (800) 457-7744, weekdays 7:00 a.m. to 4:00 p.m. (PT), or visit www.alpinecider.com and select "Contact Us." Sincerely, Kristin Kristin Consumer Relations Specialist Ref # 1335211   I hope this helps everyone.  I am currently looking for a spiced hot apple cider drink and have yet to find one that is not made in a plant that manufactures other gluten products.  It's so frustrating. 
    • trents
      Family education

      By trents · Posted

      @Rogol72, dermatitis herpetiformis occurs in a minority of celiac patients and if the OP hasn't developed it yet I doubt it will show up in the future. I think it unwise to use a scare tactic that probably won't materialize in the OP's experience. It has a good chance of backfiring and having the opposite effect.
    • Rogol72
      Family education

      By Rogol72 · Posted

      Hi @trents, You're correct. The OP mentioned fatigue and vitamin deficiencies as the only symptoms at the time of diagnosis. Since the family are not taking him/her seriously and find them to be too fussy, I suggested showing them pictures of dermatitis herpetiformis as one of the consequences of not taking the gluten-free diet seriously ... would make life easier for him/her, and the family might begin to take his/her strict gluten-free diet more seriously. A picture says a thousand words and the shock factor of dermatitis herpetiformis blisters might have the desired effect. The OP did say ... "How do you deal with people close to you who just refuse to understand? Are there any resources anyone could recommend for families that are short and easy to read?".  @sillyyak52, It might also help mentioning to your family that Coeliac Disease is genetic and runs in families. Any one of them could develop it in the future if they have the HLA DQ 2.5 gene. Here's a Mayo Clinic study calling for screening of family members of Coeliacs ... https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-celiac-disease-screening-for-family-members/ https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-calls-for-screening-of-family-members-of-celiac-disease-patients/ I got glutened a few months ago because I missed the may contains statement on a tub of red pesto. It was my own fault but it happens.
    • peg
      Supplements for those Diagnosed with Celiac Disease

      By peg · Posted

      Thank you, Scott!  This is just what I needed.  Appreciate your site very much and all of your time and energy that goes into it! Kind Regards, Peg
    • Hopeful1950
      Cycle of dermatitis herpetiformis

      By Hopeful1950 · Posted

      Oh yes.  I would never recommend taking it for an extended period of time.  When 70% of my body was covered in blistering itchy sores, an amazing doctor prescribed it diagnostically because I was unwilling to do a gluten challenge after already going strictly gluten-free in desperation after 10 years of suffering and being poo pooed by dermatologist after dermatologist. The fact that it stopped the itch and mostly cleared the rash after about 2 months was diagnostic for him.  I stopped it and have remained strictly gluten-free with very few flares since that time (over 10 years ago).  So the fact that it cleared the rash was diagnostic for me.     
×
×
  • Create New...