Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Idea What's Going On Anymore

Chrisser

By Chrisser
in Coping with Celiac Disease

Recommended Posts

Chrisser Explorer
Chrisser
Posted

OK, my body has gone absolutely haywire since going gluten-free. Things sort of leveled out for a little bit after several weeks of being on the diet. I was still kind of tired and constantly eating, but at least I was getting into somewhat of a regime and my blood sugar levels had leveled out a bit. But all of a sudden, the last few weeks, I'm a mess. My blood sugar will not get high enough. Yesterday I ate 10 meals. 10 MEALS. I was eating like every hour and a half. And after every meal my blood sugar would drop into the 70s. Late last night it dropped into the 60s. The last week or two my blood sugar hasn't gone above the 80s after a meal. And obviously with low blood sugar comes low energy levels. I've been keeping a food diary. It's like eating doesn't really make a difference. I hate it now. I hate food. I'm so tired of eating. I'm held captive by food. I had to come back to NY to live with my mother so I could try to get back on my feet and get this all figured out. I had seem my PCP and endocrinologist in Dallas, and no one had any answers. Everyone keeps telling me my blood sugar levels are normal. This is ridiculous. I saw an internal medicine dr here in NY, and I'm waiting on the bloodwork results from her, but I have to wait until the 23rd to see an endo to get anything more extensive done.

Several weeks ago I had not slept for 4 days straight, I had a horrible throat infection, and I ended up in the ER getting fluids and pain medication and antibiotics for my throat. It seems like after that everything went haywire. But it just keeps getting worse, and I don't know why. It's turned into a vicious circle...the more stressed out I get, the worse it gets...the worse it gets, the more stressed out I get. I've been practically living on Xanax, which I normally don't take.

Ugh. Anyone have any similar experiences?? Or any clues as to what in the world may be going on??

I"m so tired of fighting this.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted
It's turned into a vicious circle...the more stressed out I get, the worse it gets...the worse it gets, the more stressed out I get. I've been practically living on Xanax, which I normally don't take.

This stood out to me because I suffer adrenal fatigue. Blood sugar is tied to adrenals, so it could be part of your problem. Google it and see.

Shalia Apprentice
Shalia
Posted

I'd suggest seeing your endo about adrenal failure. I have a good friend who also couldn't get her blood sugar at anywhere near a decent level for quite a while until she got her adrenals taken care of.

It sucks, because now she needs to be prepped with more shots, but it'll save her life. The last thing you'd want is to find out you actually have adrenal failure when you need them to work.

Good luck to you.

CarlaB Enthusiast
CarlaB
Posted

Remember, when they check your adrenals, you may not necessarily be all the way to failure, and if you're not, then their tests won't show a problem. It would be like catching celiac before it actually damages your intestine. Most docs won't diagnose adrenal fatigue in much the same way that they don't diagnose celiac until your intestines are damaged.

jesscarmel Enthusiast
jesscarmel
Posted
OK, my body has gone absolutely haywire since going gluten-free. Things sort of leveled out for a little bit after several weeks of being on the diet. I was still kind of tired and constantly eating, but at least I was getting into somewhat of a regime and my blood sugar levels had leveled out a bit. But all of a sudden, the last few weeks, I'm a mess. My blood sugar will not get high enough. Yesterday I ate 10 meals. 10 MEALS. I was eating like every hour and a half. And after every meal my blood sugar would drop into the 70s. Late last night it dropped into the 60s. The last week or two my blood sugar hasn't gone above the 80s after a meal. And obviously with low blood sugar comes low energy levels. I've been keeping a food diary. It's like eating doesn't really make a difference. I hate it now. I hate food. I'm so tired of eating. I'm held captive by food. I had to come back to NY to live with my mother so I could try to get back on my feet and get this all figured out. I had seem my PCP and endocrinologist in Dallas, and no one had any answers. Everyone keeps telling me my blood sugar levels are normal. This is ridiculous. I saw an internal medicine dr here in NY, and I'm waiting on the bloodwork results from her, but I have to wait until the 23rd to see an endo to get anything more extensive done.

Several weeks ago I had not slept for 4 days straight, I had a horrible throat infection, and I ended up in the ER getting fluids and pain medication and antibiotics for my throat. It seems like after that everything went haywire. But it just keeps getting worse, and I don't know why. It's turned into a vicious circle...the more stressed out I get, the worse it gets...the worse it gets, the more stressed out I get. I've been practically living on Xanax, which I normally don't take.

Ugh. Anyone have any similar experiences?? Or any clues as to what in the world may be going on??

I"m so tired of fighting this.

I'm sorry i have no good advice or insight into whats happening to you but i really hope you feel better soon. i will keep you in my thoughts. its so awful to feel so sick and not know whats causing it. i really hope you feel good soon!!!

Jess

oceangirl Collaborator
oceangirl
Posted
I'm sorry i have no good advice or insight into whats happening to you but i really hope you feel better soon. i will keep you in my thoughts. its so awful to feel so sick and not know whats causing it. i really hope you feel good soon!!!

Jess

I would like to echo what Jess said. I have to say, after doing much better for awhile, I have not been doing very well since a nasty throat infection for which I did 3 ROUNDS of antibiotics in August and which has recurred 4 times! I hope you get to the bottom of this and start to feel better soon!

lisa

kbtoyssni Contributor
kbtoyssni
Posted

I don't have any suggestions for you, but I hope you find out the root of your problem and start feeling better soon.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


daffadilly Apprentice
daffadilly
Posted

Are you eating dairy? soy? eggs? corn? Those are the other common problems.

Chrisser Explorer
Chrisser
Posted
  • Author
Are you eating dairy? soy? eggs? corn? Those are the other common problems.

I haven't been eating corn. I have soy in whatever products it may be in. But I don't see how any of those would contribute to low blood sugars, especially if I'm eating 6-8 meals a day.

ilovechocolate Explorer
ilovechocolate
Posted

my thoughts and prayers are with you, i'm so sorry that you arent finding any answers.

HANG IN THERE!!! hey it finally got cooler here in dallas! we are in the low 70's! its a total miracle:) let me know if i can do anything for ya :rolleyes:

emily

lindalee Enthusiast
lindalee
Posted

Chrisser, when I first went on the diet , some things got worse and I think it had a lot to do with getting rid of toxins and fungus. I had a lot of sinus issues (used sinus cleanser and cleared that up so it didn't get to the throat).

I ate all the time also. I think that had to do with malabsorption.

Never checked the sugar levels but I do know it took a while for my energy levels to go up. I figured I had been eating the gluten so long it would just take a while and needed rest and a healing diet.

Sleep was also a problem and I started melatonin so I could sleep (body cannot heal without sleep).

I had been on antibotics previously for a dental issue which I believe put me in a disbiosis state in the gut. I started eating lots more yogurt (per SCD) to kill the bad bacteria. This is a long process and any sugar,etc. can contribute to these nasty bacterias.

All the best to you and hope you get some answers and let us know. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,743
    • Most Online (within 30 mins)
      7,748
    Abbie Radtka
    Newest Member
    Abbie Radtka
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Sandi20
      Gluten Free Daily Vitamins for Kids w/ Celiac

      By Sandi20 · Posted

      I really like Thorne!  I've researched thier products.  Thank you so much.
    • trents
      Newly gluten free… withdrawal?

      By trents · Posted

      Welcome to the forum, @K6315! Gluten withdrawal typically lasts for a period of a few weeks. But there is a real learning curve involved in actually attaining to a gluten free dietary state. Much more is involved than just cutting out major sources of gluten such as bread and pasta. It's all the places that gluten is hidden in the food supply that is difficult to ferret out, like soy sauce and canned tomato soup, canned chili and canned pork n' beans, some "lite" pancake syrups, potato salad, flavorings, etc., etc. Gluten-containing grain products are hidden through alternate terminology and found in places you would never expect.  There is also "cross contamination" where naturally gluten free foods come into contact with gluten-containing grains during farming, transportation, storage and manufacturing processes. Then there is the issue of "cross reactivity" whereby you may be having gluten-like reaction to food proteins whose structure is similar to gluten. Chief among these are dairy, oats (even gluten-free oats), soy, corn and eggs. I am including this article that you might find helpful:   
    • K6315
      Newly gluten free… withdrawal?

      By K6315 · Posted

      Prior to being diagnosed, I had a gluten heavy diet. I stopped all gluten exactly a week ago and have continued to feel sick in the ways I did prior to going gluten free - primarily on and off nausea, brain fog, and fatigue. Wondering if this is normal and, if so, how long can I expect to feel this way?
    • Scott Adams
      Gluten Free Daily Vitamins for Kids w/ Celiac

      By Scott Adams · Posted

      Some of the largest contract manufacturers in the U.S. include companies like NutraScience Labs, Capsugel (part of Lonza), and Thorne Research. These companies produce supplements for a wide range of brands, from small startups to well-known names.
    • Sandi20
      Gluten Free Daily Vitamins for Kids w/ Celiac

      By Sandi20 · Posted

      Thank you for your feed back and knowledge.  Scott do you know the names of the BIG manufactures who produce most supplements?  Love to research them all and decide on their principles and manufacturing certifications who I want to spend my dollars with if they provide other non private label supplements that are good. 
×
×
  • Create New...