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English People


g3 kate

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g3 kate Newbie

im a english 20 year old with celiac disease and im looking for people that are from england to talk to

does anyone know of any english people here?

thanks


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Chris E Rookie
im a english 20 year old with celiac disease and im looking for people that are from england to talk to

does anyone know of any english people here?

thanks

Im English, but not officially diagnosed celiac. Had identical celiac symptoms but all tests have came back negative.

Chris

nikki-uk Enthusiast

Welcome!!

I'm English (I live in London)

My husband was diagnosed 2 yrs ago,-and my son today!!!

I'm sure you'll find this board very informative and everyones very supportive.!! :)

Fire away with any questions (if you have any!?) or just need to vent !!!

:):)

covsooze Enthusiast

Hi! I live in Coventry. there are a few of us lurking around here somewhere :D

Have you joined Coeliac UK? They will provide a book which lists gluten free products.

How far down the road are you with going gluten-free?

g3 kate Newbie
Hi! I live in Coventry. there are a few of us lurking around here somewhere :D

Have you joined Coeliac UK? They will provide a book which lists gluten free products.

How far down the road are you with going gluten-free?

no i dont think i have but i will now thanks

ive been glutine free since january 2004 but im still finding it hard to cope exspecially when the people i live with and the people i associate with eat regular food around me but they understand if i get upset sometimes

im slowly putting on weight, ive gained about 2 stone since ive been on this diet which is good

ive got some problems with soya as well which is in most glutine free foods

i manage to get my food from tescos, sainsburys and a health food shop down the road

does anyone know of anywhere to get other glutine free foods from insted of supermarkets?

i live on the isle of wight and its a pretty small island with not many resources that the mainland has

thanks

nikki-uk Enthusiast
i manage to get my food from tescos, sainsburys and a health food shop down the road

does anyone know of anywhere to get other glutine free foods from insted of supermarkets?

i live on the isle of wight and its a pretty small island with not many resources that the mainland has

thanks

I don't think that there would be anywhere else to get gluten free foods from other than the ones you've mentioned.(especially as you are on a such a small isle)

Once you join Coeliac UK you will receive a book-listing all main brand foods that are ok to eat-so it's worth joining for the book!

Here's a link to CUK

Open Original Shared Link you can apply online.

You don't mention how you were diagnosed,but if you were diagnosed by biopsy you are entitled to some gluten free foods on prescription from your G.P (bread,pasta and flour)

:):)

  • 2 months later...
ravenselene Rookie
im a english 20 year old with celiac disease and im looking for people that are from england to talk to

does anyone know of any english people here?

thanks

Hi Kate, I'm a 27 year old vegetarian coeliac living in Milton Keynes, 40 miles north of London. I'm writing a book on coeliac disease now. I highly recommend fresh foods, cooking from scratch etc... Always handy to have gluten free foods on standby but it really is easier to adopt a gluten-free lifestyle if you are prepared to take a different view on what you cook...

Emma :)


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GLYNB Newbie

Hi

I am new here and I am from England (Northumberland),Have seen specialist today,previous bloods test was positive for ceoliacs, having endoscope tomorrow,. so going to go gluten free from friday :(:(

The NHS have been brilliant and are doing there upmost to get me sorted asap. Have been ill for approx 3-4 months, first whent to GP mid november.

Glyn

  • 2 months later...
pav Newbie

Hi Kate,

Im 23 and from essex, just joined the forum - so pretty new to this, but have been a coeliac since i was about 13 so if u want any help or advice you can always email me - pav.dheansa@btopenworld.com

Pav

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    • FayeBr
      Hi all. I was diagnosed 3 years ago after suffering for many years of misdiagnosis. There are a couple of things I’d like to ask. The first is about corn. Do you react to it like gluten. My dietician told me that corn should never be a problem for me and suggested probiotics with corn starch and other corn ingredients in. I had stayed away from corn for 2 years beforehand and should have trusted my gut (no pun intended) because after 2 capsules, I have had the worst reaction for a long time. All the usual gut problems (pain and D) migraine, fatigue, aches and pain, tinnitus etc etc. (I could go on) Does anyone else react to corn like this?  Also, for years now I have been going downhill with my health neurologically. I have to now walk with a stick as I have big  balance issues, I fall, I have numbness in legs and pins and needles. I feel like I can’t control my body with movements. They have said possible MS, fibromyalgia, ME etc etc. But my dietician has said it’s classic gluten ataxia symptoms and to see a professor here in the UK who specialises in this field. Does anyone else have this and what symptoms do you have? Thank you 
    • knitty kitty
      Lectins are carbohydrate storage proteins.  Different plants have different lectins.  Gluten is a lectin, but not all lectins are gluten.   Lectins are made up of a protein "spine" with a bunch of carbohydrate molecules stuck to it.  During digestion, the carbohydrates get pulled off, but that protein "spine" can get stuck to cell membranes.  In Celiac, our immunity kicks on when exposed to gluten.  Gluten is made up of a string of polypeptides.  One particular segment in that string, the 33-mer segment, triggers our built-in celiac immunity to produce antibodies against it when it sticks to HLA DQ genes.  Unfortunately, our body makes tissue transglutaminase, used in cell membranes as support structures, which also contains segments of that 33-mer polypeptide.  The anti-tissue transglutaminase antibodies (ttg antibodies) attack the tissue transglutaminase on our cell surfaces, as well as the gluten in celiac disease.   In acquired immunity - our body gets sick once, learns to produce antibodies against the thing causing the illness, and "remembers" so it can make more antibodies against it if it's encountered again.   Our body can "learn" to attack those protein "spines" of lectins that may be stuck to cell surfaces.  To lessen the probability that the body will "learn" to attack other lectins in addition to the gluten lectin, avoiding all grains while the immune system is reacting to gluten is a great idea.   Lectins can be irritating to the gastrointestinal system.   Lectins can stimulate IgE (allergic) reactions.  Lectins can cause mast cells to release histamine. Lectins can be difficult to digest.  Lectins can be fermented by gastrointestinal bacteria and yeasts, causing gas, bloating and diarrhea or constipation.  Small Intestinal Bacterial Overgrowth and Candida overgrowth both have symptoms similar to Celiac Disease.  Corn lectins are more apt to be problematic than most other lectins.   Avoiding lectins in the early stages of going gluten free can help reduce other gastrointestinal symptoms and speed up recovery. I have a horrible response to corn, maize, zein.  I break out with Dermatitis Herpetiformis blisters if I consume corn or products made with corn derivatives.   But, there's no gluten in corn or other grains.  Gluten and that 33-mer polypeptide are only in barley, wheat and rye.  And some breeds of oats.   Try a low histamine, low carbohydrate, low Fodmap, grain free, Paleo diet like the Autoimmune Protocol Diet to see how much better you can feel.   It's not always gluten; the immune response is just going crazy.   https://pmc.ncbi.nlm.nih.gov/articles/PMC1115436/
    • knitty kitty
      Lectins are carbohydrate storage proteins.  Different plants have different lectins.  Gluten is a lectin, but not all lectins are gluten.   Lectins are made up of a protein "spine" with a bunch of carbohydrate molecules stuck to it.  During digestion, the carbohydrates get pulled off, but that protein "spine" can get stuck to cell membranes.  In Celiac, our immunity kicks on when exposed to gluten.  Gluten is made up of a string of polypeptides.  One particular segment in that string, the 33-mer segment, triggers our built-in celiac immunity to produce antibodies against it when it sticks to HLA DQ genes.  Unfortunately, our body makes tissue transglutaminase, used in cell membranes as support structures, which also contains segments of that 33-mer polypeptide.  The anti-tissue transglutaminase antibodies (ttg antibodies) attack the tissue transglutaminase on our cell surfaces, as well as the gluten in celiac disease.   In acquired immunity - our body gets sick once, learns to produce antibodies against the thing causing the illness, and "remembers" so it can make more antibodies against it if it's encountered again.   Our body can "learn" to attack those protein "spines" of lectins that may be stuck to cell surfaces.  To lessen the probability that the body will "learn" to attack other lectins in addition to the gluten lectin, avoiding all grains while the immune system is reacting to gluten is a great idea.   Lectins can be irritating to the gastrointestinal system.   Lectins can stimulate IgE (allergic) reactions.  Lectins can cause mast cells to release histamine. Lectins can be difficult to digest.  Lectins can be fermented by gastrointestinal bacteria and yeasts, causing gas, bloating and diarrhea or constipation.  Small Intestinal Bacterial Overgrowth and Candida overgrowth both have symptoms similar to Celiac Disease.  Corn lectins are more apt to be problematic than most other lectins.   Avoiding lectins in the early stages of going gluten free can help reduce other gastrointestinal symptoms and speed up recovery. I have a horrible response to corn, maize, zein.  I break out with Dermatitis Herpetiformis blisters if I consume corn or products made with corn derivatives.   But, there's no gluten in corn or other grains.  Gluten and that 33-mer polypeptide are only in barley, wheat and rye.  And some breeds of oats.   Try a low histamine, low carbohydrate, low Fodmap, grain free, Paleo diet like the Autoimmune Protocol Diet to see how much better you can feel.   It's not always gluten; the immune response is just going crazy.   https://pmc.ncbi.nlm.nih.gov/articles/PMC1115436/
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