Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recommend A Doctor In You State

Guest celiacbuzzroom

By Guest celiacbuzzroom
in Doctors

Recommended Posts

loraleena Contributor
loraleena
Posted

Dr. Peter Park - general practitioner

Wilmington, Vermont (Deerfield Valley Health Center)

He is willing to test me for anything I want and lets me call the shots. Is willing to work with any other doc I see (either western or natural medicine).

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 113
  • Created
  • Last Reply
FinsUp Rookie
FinsUp
Posted

A second vote for Dr. Stefano Guandalini for pedi GI in the Chicago area. I would assume you could also find a good grown-up GI at the University of Chicago. Check their website at www.celiacdisease.net.

In the western suburbs of Chicago (Naperville), I would recommend Dr. Stephen Holland for grown ups. His website www.napervillegi.com has a lot of good information.

Our pediatrician, Dr. Linda Hamilton of Pediatric Health Assoc. in Naperville, did not hesitate to test our son for celiac disease. His only symptom was "failure to thrive". He did not have any diarrhea, stomach pain, stomach distention, or other "obvious" symptoms. She has been very supportive since his positive diagnosis via biopsy by Dr. Guandalini.

mcoop911 Newbie
mcoop911
Posted
Dr. Gale Cookingham- Allergist and she has celiac disease herself and was tested and suppourtive of enterolab. Flint, michigan office on fridays and port huron office monday through thursday.

AutumnE,

I live in Grand Rapids, MI and wonderful if you feel she is worth the drive? I'm not sure of any of the allergists in my area.

Thanks,

Melissa

penguin Community Regular
penguin
Posted

Another vote for Craig Lubin in Austin

DingoGirl Enthusiast
DingoGirl
Posted

Dr. Pau. Hanchett, Fresno, California....I LOVE him, had never heard of Celiac until he mentioned it and said he'd test me for it.

And another thing, I told him months ago that if he had any new bewildered Celiac patients that needed support, they could call me. I got my second one just today, and we're meeting for coffee later this week. :)

Guest AutumnE
Guest AutumnE
Posted

Melissa, She is lovely and well educated. Her and her husband both work there along with her dad. Dr Gail cookingham (the one with celiac) is there on fridays. Dr. Beane her husband is on mondays and saturdays. She doesnt do biopsy like an average GI. But she could help with dietary problems, intolerances, or allergies since it generally goes along with celiac disease in alot of cases.

Both of them are good at working with children also. But I dont recommend the dad (Dr Cory Cookingham) as he is very old, kinda grouchy, not patient, and Im not sure if he is familiar with enterolab. She did have to miss my sister's appt a few weeks ago so dr beane her husband saw her. She was glutened and it takes her approximately three days to recover enough to work.

4260 South Linden Road,

Flint, Michigan (MI)

810-733-3200

Toll free is 800-962-6751

Her regular office is in clarkston which is listed below. When I originally called to set up an appointment they said she didnt work there (error with a new medical assistant) because she wasnt a regular dr but she is there on fridays. Enterolab sent out her name with the genetic testing.

Open Original Shared Link

Nantzie Collaborator
Nantzie
Posted
Great topic! I was just thinking I need to find a new doc, because of recurring kidney pain.

Does anyone have a suggestion for Portland, OR?

Thanks for any help you can give.

Josh.

If you post this as a new topic you'll have more of a chance of most people seeing it. A lot of people wouldn't necessarily visit this topic, and stories of bad or rude doctors in your area can be valuable as well.

Nancy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Amanda L Rookie
Amanda L
Posted

Dr. Ziad Younis in Memphis, TN.

Corinnedawn Newbie
Corinnedawn
Posted

Dr. Bradley Borsari

Fullerton, California (Southern California)

Can’t say enough about him!

After listening to my symptoms, he suspected celiac right away (I had never heard of it). Blood test and referral to a specialist for endoscopy = celiac diagnosis.

Very patient, younger doctor who knows his medicine!

  • 2 weeks later...
mouse Enthusiast
mouse
Posted

Dr. Leff

6553 E. Baywood Ave.

Mesa, AZ 85206

480-324-0999

Gastroenterologist

Tests all of his IBS patients for Celiac; believes that it is not necessary to do the endo, if the blood test is positive. Believes a positive diatary response is an answer in itself. Also believes that Celiac and gluten intolerance are the same thing. Also puts some patients without Celiac on the gluten-free diet if he thinks they will benefit from the diet.

A compasionette, caring doctor. *****

Robina Contributor
Robina
Posted

Dr. Doherty (naturopathic doctor) here in NH who also suffers from celiac's herself and specializes in the disease:

Open Original Shared Link

grannynanny Rookie
grannynanny
Posted

Didn't see anybody mention Dr. Fassano at the Univ of Maryland Medical Center in Baltimore. He is one of the best known celiac experts in the country and is usually quoted or featured in any articles you see in the popular press. He is a pediatric gastro (?) and only does the celiac clinic on Fridays, but I made an appointment with him for this Friday, months ago!

  • 1 year later...
April in KC Apprentice
April in KC
Posted

Old thread, but a positive shout for Dr. Craig Friesen in Kansas City, MO (Missouri), a pediatric GI. He made the connection between my son's reported proprioception / sensory problems and the possibility of vitamin E deficiency. Sure enough, he tested low, and we are about to begin supplementation. My son also has very small muscles (was suspected of possibly having a myopathy) - I have done some reading and it looks like vitamin E deficiency can sometimes cause symptoms like this.

debmidge Rising Star
debmidge
Posted
After listening to my symptoms, he suspected celiac right away (I had never heard of it). Blood test and referral to a specialist for endoscopy = celiac diagnosis.

Very patient, younger doctor who knows his medicine!

I want to say same as above about:

Pavan Sachan, MD (gastro)

NJ - affiliated with Trinitas Hospital

Offices in Union, Union County

Linden, Union County

Center for Digestive Diseases

My gastro, Steven Fiske, MD of West Orange NJ, knows about celiac as well. Affiliated with St. Barnabas Medical Center

JennyC Enthusiast
JennyC
Posted

Wow this is a great thread, and still very valuable. I finally found an outstanding pediatric gastro for my son. I was so happy I was almost overwhelmed. I was beginning to think I would never find a ped. gastro. for my son, and those from Portland know it does not get much better than Doernbecher's.

Dr. Terry

Doernbecher Childrens Hospital

3181 Sw Sam Jackson Park Rd

Portland, OR 97239

She was outstanding! She listened to my son's history for 30 minutes and accepted his previous blood work and dietary response to the gluten free diet as diagnosis, provided his tTG was going down. I am happy to report he went from 21 (<7 is normal) to 4.3 in eight months.

mamabear Explorer
mamabear
Posted

Dr. Anca Pop in Memphis, TN. Unbelievably thorough, kind and compassionate.

loraleena Contributor
loraleena
Posted

Dr. Peter Park in Wilmington, VT. (half hour west of Brattleboro).

Deerfield Valley Health Center

He is a regular MD. Open to natural alternatives. Willing to let me research and will test or try anything I suggest. Willing to correspond with other docs both holistic and traditional.

celiac-mommy Collaborator
celiac-mommy
Posted

For us, we had 2 local saviors--(in Portland, OR)

Dr. Kelvin Snyder, Sunset Pediatrics

Dr. William Marshall, peds GI, Emanuel Hospital

For the adults out there in PDX, I see a GREAT internal medicine Dr who happens to specialize in nutrition and Celiac Disease (and I don't have celiac disease). Her name is Char Glenn at the Nob Hill Internal Medicine Clinic.

I'm glad Jenny finally found a great Dr at OHSU. I did my internship there and my best friend works at Doernbechers. I have a love/hate relationship with that hospital. I learned a lot there, they do a lot of great things there, but I was somewhat butchered during a surgery there when I was 8 and have had to learn to live with some difficult respiratory abnormalities since then. Working at a hospital, I know things happen no matter where, it just sucks when it happens personally!!

TanKatLuvr Newbie
TanKatLuvr
Posted

CENTRAL FLORIDA

Dr. Henry Levine

1817 N. Mills Avenue

Orlando, FL 407-896-1726

After being blown off by my GP, my internist ('if you had celiac disease, you would be underweight, not overweight' AND that rash is foliculitis, not DH"), and my allergist not having a clue until I begged him for some type of gluten/celiac testing and coming back elevated...........I found a great GI doc on my very first try (after lots of research on docs).

I saw him today and he was wonderful, open-minded and actually listened. Base on my bloodwork, symptoms and the chronic DH rash that won't go away (he recognized immediately) he is almost 100% sure that I have celiac disease.

I am having two more tests and he scheduled a biopsy ahead of time. I also found out that I am newly Diabetic...what a shock!!! I also have Hashimoto's disease which seems to have quite a bit of crossover of patients into gluten sensitivity.

What a caring man. He told me I was NOT crazy and that he would get me feeling better very soon. He was very supportive of the dietician I told him I was going to be working with too.

Rebecca

tiffjake Enthusiast
tiffjake
Posted

I haven't seen her personally, but she works with the local support group:

Dr. Iqbal in Longmont, CO

jarrett5292 Newbie
jarrett5292
Posted

In wisconsin there is a Celiac Disease Clinic!

I live in IL. and they still take us in WI.

It is off the Children's Hospital of Wisconsin in Milwaukee!

Dr. Grzegrz Telega MD

frec Contributor
frec
Posted

Dr. Noel Peterson, naturopath

560 First Street

Lake Oswego, OR 97034

503 636 2734

very intelligent and up on all the research, listens well

  • 4 weeks later...
NoSugarShell Explorer
NoSugarShell
Posted

Any recommedations for a pediactric gastro in the Dallas-Fort Worth Area?

Jodi Mills Apprentice
Jodi Mills
Posted

any suggestions for insurance-less person in NC, or Utah, since I will be moving there shortly?? I know I need to get insurance, it is just not affordable right now, and i def need to get in to see the DR. to see what all is going on with me..

zenmama Newbie
zenmama
Posted

Children's Pediatric Gastroenterology, PC

Knoxville, Tn affiliated with East Tennessee Childrens Hospital

Our ARNP Teresa Renner in London , KY referred us and is very understanding and easy to work with about Celiac.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,936
    • Most Online (within 30 mins)
      7,748
    Sary Diab
    Newest Member
    Sary Diab
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Nicbent35
      3 year old gluten intolerance?

      By Nicbent35 · Posted

      Well I had a moment yesterday morning where I accidentally gave her gluten. She wanted what I was eating and I forgot and let her have a few bites of toast. It was a really bad night last night with her behavior. Will a few bites of bread influence their behavior that much or could it just be a coincidence?
    • Scott Adams
      How many grams is there in one slice of wheat bread?

      By Scott Adams · Posted

      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
      Confused with test results

      By Scott Adams · Posted

      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
    • MaryMJ
      Water filters and gluten

      By MaryMJ · Posted

      I called zero water and they state their filters do not contain gluten or gluten containing ingredients. 
    • trents
      What should I do with these test results?

      By trents · Posted

      I agree. Doesn't look like you have celiac disease. Your elevated DGP-IGG must be due to something else. And it was within normal at that after your gluten challenge so it is erratic and doesn't seem to be tied to gluten consumption.
×
×
  • Create New...