Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Keep Breastfeeding?


maddycat

Recommended Posts

maddycat Contributor

I was just diagnones with celiac about a month ago (some of you may have seen my other post about pregnany triggering celiac, in my case it did).

I am currently breastfeeding my 6 1/2 month old son. I don't have supply issues at all, he eats well and is gaining weight well. I enjoy breastfeeding and it is really going well for both of us. I have lost all of the 35lbs I gained when pregnant but am doing well, I've been eating gluten-free for about 2 months now and feel good.

I just found out that I have osteopenia and mild anemia (folate, magnesium, vitamin d and calcium blood levels are all ok). My general dr wants me to start taking fosamax for the osteopenia- I don't know if I should while breastfeeding (they haven't done much research on it since it is mostly prescribed to post-menopausal women).

My mother is trying to convince me that I should wean my son right away to focus on my health and recovery. She thinks that breatfeeding deprives my body of nutrients becase so much of what I get goes into the breatmilk. Also she thinks that the supressed hormones while breastfeeding may play a role in the otseopenia (like when women have problems in menopause/decreased hormones with osteporosis).

On the other hand, everything I read says breastfeeding is very good for babies of celiacs.

I'm so torn and don't know what to do?! Any thoughts are appreciated.

-Marcia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Andrea, bumping this to you. :)

CarlaB Enthusiast

This is probably something you should discuss with your doctor. I can only tell you what I'd do .... I'd breastfeed for a year to give my child the best start and hope that my son had added protection against triggering his possible celiac gene. I would figure that the gluten-free diet was helping me and that I could take the meds in a few more months. But that is just me. I have never heard of breastfeeding being a cause of osteoporosis. Cutting down on sugar and simple carbs, plus weight bearing exercise is good for your bones in the meantime.

Good luck with your decision.

AmandaD Community Regular

I was diagnosed with Celiac last September, with very mild osteopenia in my hips and lower back and lower vit D levels. I continued breastfeeding and am almost finished. My daughter is over 2 now. My doc seemed fine with me breastfeeding. So, essentially, I nursed for 2 years (probably all of those I had Celiac).

I'd keep doing it until you're ready to stop. You're probably preventing a future little Celiac...AmandaD

AndreaB Contributor

Lisa.... :)

I don't know about osteopenia. I second Carla on talking to your doctor and getting some weight bearing excercise.

My initial response is to continue breastfeeding as long as you can....unless the doctor thinks it will put your health at further risk. It would seem as long as you got your nutrients in, both of you would benefit. Make sure you take a good prenatal. I take freeda pre-natals. You would also want to make sure you were getting your calcium. If you are still on dairy you would probably want to cut it out for 6 months to give your villi some time to heal. Nutrition now make a good children's calcium, Freeda has calcium mint, and Nature's Way has a good calcium with magnesium and vitamin D which is what I now take. I've read a lot of stuff that dairy actually contributes to bone density loss. Obviously not everyone has problems with dairy but it seems to be more of a problem among celiacs, firstly due to damaged intestines. From what I've read gluten, dairy and soy can all cause intestinal damage. If you can swing it I would highly recommend removing the other two to help with the healing process.

As you know, baby will get nutrients before you so it is very important to take vitamins. Have you been taking any?

maddycat Contributor
As you know, baby will get nutrients before you so it is very important to take vitamins. Have you been taking any?

I was on prenatals before the celiac diagnosis but then took a while off while finding one that was gluten free. I just started taking a prenatal that is gluten free a couple weeks ago (it is a 4 a day with over 100%dv on most essentaial nutrients) NOW brand from a local health/natural pharmacy.

I am also looking into calcium and vitamin d suppliments- anyone have any good gluten-free reconmendations for that?

I think I will talk to my ob as well as my dietician next week about their thoughts on bf'ing and deficiencies/osteopenia meds.

AndreaB Contributor

The calciums I listed are gluten free.

Are the meds necessary? What do they do?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



de caps Contributor

I was dx with celiac disease while breast feeding my daughter. My celiac disease was triggered by this pregnancy. A bone density did show that I had osteoporosis. I continued to bf my daughter but did not start actonel until I weaned her at 18 months. I did however increase my calcium and vit d ( I was deficient). I have now been on the actonel for three months. I chose to continue bf for its benefits for my daughter. You will have to choose what YOU feel is best for you. I was told that you can not bf and take osteoporosis meds. Good luck.

I take the nature's made brand they are gluten-free and state it on the bottle. If you go to their web site you can print out a coupon. naturemade.com

ylimaf Rookie

Breast feeding is good for babies. Most illness's are less harmful while breastfeeding. You need to get in touch with La Leche League!!! They are your best hope for answeres. They have listings of harmfull medicins that will go through the breast milk. They have a list of doctors practiced in breastfeeding that can answer questions for you. Tell mummy to hush. Theyre was a time when the medical profession thought is was healthier to bottle feed. Before that they thought that breast feeding was better. Now they are back to breast feeding again. If you believe in God, why would you tell him that he didnt know what he was doing? Yet theyre are people who continue to do just that. God knew what he was doing when he made us to breast feed. If you dont believe in God well this is just what our bodies do. This is how they function. La Leche League can help alot.

Michi8 Contributor
Breast feeding is good for babies. Most illness's are less harmful while breastfeeding. You need to get in touch with La Leche League!!! They are your best hope for answeres. They have listings of harmfull medicins that will go through the breast milk. They have a list of doctors practiced in breastfeeding that can answer questions for you. Tell mummy to hush. Theyre was a time when the medical profession thought is was healthier to bottle feed. Before that they thought that breast feeding was better. Now they are back to breast feeding again. If you believe in God, why would you tell him that he didnt know what he was doing? Yet theyre are people who continue to do just that. God knew what he was doing when he made us to breast feed. If you dont believe in God well this is just what our bodies do. This is how they function. La Leche League can help alot.

You've had lots of good responses so far. I also recommend to continue to breastfeed. There are too many benefits for your child, and for you own body (eg reduced risk of breast cancer) not to. It's hard when well meaning family and friends try to pressure you with their opinions, but remember that a lot of their fear comes from general misinformation. Do get in contact with a lactation consultant and/or La Leche League for support!

Also, try contacting an organization like Open Original Shared Link. They can provide you with information to determine the safety of drugs during breastfeeding and pregnancy. This is a Canadian-based organziation (don't know the equivalent in the US), but you may find some useful info through their website.

Michelle :)

  • 2 weeks later...
prinsessa Contributor

Along with taking more Calcium, I would also take extra Magnesium and Vit D (or get a little more sun if you don't get enough). I think someone already suggested this. Personally I would continue bfing, but I think that is something you should talk about with your doctor.

Suzie-GFfamily Apprentice

Marcia,

I was diagnosed with celiac disease in June and my bone density scan shows osteoporosis.

My baby is almost a year old, and like you, I am uncertain what to do. I would really prefer to continue breastfeeding- but I am concerned that this could cause further deterioration of my bone density. This baby is my last one, and I had breastfed each of my older children for a couple of years. I had really hoped to do the same with this child.

Under normal circumstances, it has been shown that bone density decreases during breastfeeding- although research seems to suggest that there is recovery after weaning (and the recovery can actually begin once the mother's menstrual periods resume). Apparently, this bone resorption will occur even if the mother takes additional calcium supplements.

So far, I've been unable to find any research studies on the bone health of breastfeeding women who have osteopenia or osteoporosis. So I have lots and lots of questions, but no answers yet - will breastfeeding cause a greater deterioration of my bone density? will weaning help? would the osteoporosis meds be contraindicated while nursing? can I improve my bone density through exercise and diet? do I actually have osteoporosis or is it osteomalacia (which apparently can look the same on a bone density scan)?

Sometimes at night I get really scared when I imagine my bones deteriorating in order to provide calcium for the breastmilk. The middle of the night is the time that it all seems very frightening, especially since I recently read that more bone resorption takes place at night due to inactivity (in the book "Stand Tall") and my child has recently started to nurse more frequently at night.

I haven't decided what I will do - I'm waiting for an appointment with an osteoporosis specialist and will discuss these concerns.

The research that I have found on osteoporosis and celiac disease does suggest that a gluten-free diet can lead to some increases in bone density over the first year- so this is a plus and reason enough for me to never cheat on the diet.

Suzie

Kody Rookie
I was just diagnones with celiac about a month ago (some of you may have seen my other post about pregnany triggering celiac, in my case it did).

I am currently breastfeeding my 6 1/2 month old son. I don't have supply issues at all, he eats well and is gaining weight well. I enjoy breastfeeding and it is really going well for both of us. I have lost all of the 35lbs I gained when pregnant but am doing well, I've been eating gluten-free for about 2 months now and feel good.

I just found out that I have osteopenia and mild anemia (folate, magnesium, vitamin d and calcium blood levels are all ok). My general dr wants me to start taking fosamax for the osteopenia- I don't know if I should while breastfeeding (they haven't done much research on it since it is mostly prescribed to post-menopausal women).

My mother is trying to convince me that I should wean my son right away to focus on my health and recovery. She thinks that breatfeeding deprives my body of nutrients becase so much of what I get goes into the breatmilk. Also she thinks that the supressed hormones while breastfeeding may play a role in the otseopenia (like when women have problems in menopause/decreased hormones with osteporosis).

On the other hand, everything I read says breastfeeding is very good for babies of celiacs.

I'm so torn and don't know what to do?! Any thoughts are appreciated.

-Marcia

Okay, I'm aware that I'm a guy and all, and I hope I'm not freaking you out or anything <_< jk

anyways, if I were you, I'd keep breastfeeding. As for the nutrients, I'd take supplements and keep eating healthy.

I just found out then when I was barely a year old my Mom put me on dairy milk (she didn't know any better back then) so that she could breastfeed my 1 year younger brother. Anyways, she said my forehead like got all swollen and it didn't go away until she changed my diet. That's one reason I know I'm allergic to dairy as well.

Also, everywhere I read it seems like breastfeeding is the healthy thing to do for your baby. Which makes sense to me. Seems to me like all kinds of problems happen when women don't breastfeed their babies/don't do it long enough.

As you probably guessed tho, I've never tried it. So I wouldn't know. :P

Jestgar Rising Star

Hi, I just did a quick search on PubMed for you. Pregnancy and lactation can cause a bone loss of up to 5%. I didn't read the articles, so I don't know how long the women were breast feeding. It reportedly returns to normal once you stop.

It seems to me that just correcting your diet by going gluten-free will begin to help your bone density, and will a few more months really make all that much difference in terms of your bones responding to a drug?

I agree with the others, take your vitamins, eat well, take calcium supplements appropriately so you absorb as much as possible, and talk to your doctor about delaying the Fosamax. There are many benefits to continuing breast feeding.

Jestgar Rising Star

I just read through a section of an article that reviewd many studies on bone loss in lactating women. Most of them were after 6 months of breast feeding, and all of them returned to normal after weaning. It also said that calcium supplements didn't help, but that was in women with normal absorption, so you are kind of a wild card for this one.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.