Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

You Gotta Be Careful!


catfish

Recommended Posts

catfish Apprentice

I have had pretty good success eating out at most places, although some restaurants I have just learned to avoid. But this amusing incident made me realize that a lot of the people working in the kitchen aren't chefs, or even cooks for that matter. Just because they're cooking your food that doesn't mean that they know anything about food!

I went to an Italian restaurant and went over the menu. Almost everything was served with pasta, so I thought I'd ask the waiter whether I could get the rosemary chicken with potatoes instead of pasta. I explained that I could not eat any wheat and asked him if he would check with the cook staff to ensure that there would be no wheat sources in this. He came back with a smile and said it would be fine! So I asked for the chicken with potatoes rather than pasta and he replied, "You can have the pasta if you like."

To which I replied, "I can't have any wheat, remember?"

To which he replied, "There isn't any wheat in it. We checked"

Which of course made me sit up a bit and ask, "If there isn't any wheat in it, then what is it made of?"

He said he would go and get the ingredient list for me if I wanted to see for myself. I said that I would like that, and he went and got the list for me. Sure enough, as I expected, the first ingredient was "durum".

So I had to explain that this means wheat. I guess I assumed that anyone cooking pasta in an Italian restaurant would know that durum is wheat, but this showed me never, ever to assume anything of that sort!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFdoc Apprentice

I had to laugh when I read your post! I've had that happen to me so many times. I had someone say to me once that a food didn't have any wheat, just flour! Hello, are people that uninformed? It makes you laugh and cry at the same time....

It also makes me more scared to eat out (although I do it all the time)

Sara

jaimek Enthusiast

I also ran into that once. I told the waitress that I could not eat anything with gluten in it, and followed it up with an explanation of what gluten was. Her reply was, "We don't cook with any gluten. You don't have to worry about it." I asked her if they used pasta,hamburger buns, etc. She said "yes, of course." People are just so ignorant.

Carol Farmholtz Newbie

I have worked in resturants and I can't agree more that most of the staff, servers cooks and even managers are very clueless when it comes to any ingredients. I have heard a cook tell a server that fries were cooked in shortening when they are actually cooked in lard. When I mentioned that the fries were cooked in lard his response was "shortening - lard, same thing". I informed him that shortening was a plant based product and lard was an animal product and they are not the same thing!! The managers I had knew some about gluten as I had tried to educate everyone who worked there however one of the managers actually thought rice was a form of pasta!

sunflower Newbie

I never take anyone's knowledge about ingredients for granted anymore. I once told a waitress I cannot have anything containing wheat ingredients, such as wheat flour, or any dairy ingredients and asked for any dishes I could have. She then suggested a meat and potato dish, but I still preferred to double-check: is there any flour or cream based sauce? She said no. Is the meat covered in flour? She said no. So this is just plain fried meat without any batter or sauce? She said no, the meat has batter made of breadcrumbs. :o:lol: I used to think that anybody would know that you make breadcrumbs from bread, and bread is made from flour, but this girl did not seem to be able to make this connection. So I have learned to say that I am allergic to wheat and milk (from my experience, this works better in restaurants than saying "I can't have..." or "I have celiac disease"), and to ask for food that does not contain (and here goes a list of food ingredients which are obvious to me but might not be obvious to someone).

What serendipitystreet wrote is scary. I always thought they don't know about gluten, because many people don't, but other ingredients also... It's unbelievable. For someone like me, who has learned to read food labels almost since I knew how to read, it's hard to imagine that someone working in food industry can be so clueless.

  • 2 months later...
glen4cindy Apprentice

Yes, I too have ran into the statement, NO WHEAT, but, YES we use FLOUR. FLOUR isn't WHEAT is it?

I also find that people just don't realize how dangerous it is for us to consume wheat! I have the same problem with Equal sweetener. It will give me a massive migraine headache. I cannot tell you how many times we have gone to SONIC (not much anymore sice I discovered celiac disease) and ordered:

1 Diet Strawberry LimeAde &

1 Regular Strawberry LimeAde

and they mix them up. My wife is diabetic, and as I said above the equal gives me a massive headache. They act like mixing them up is not a big deal. I only wish that the poeple who will tell us something is safe without knowing what they are talking about could experience just what I do when I consume gluten unknowingly!

tarnalberry Community Regular

I usually just go with the "I'm gluten intolerant, so I can't have anything with wheat like croutons, bread, or pasta."


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sashabetty Explorer

this is an old thread but I wanted to add something. I had almost the opposite experience of the other posts.

I had a server who checked the ingredients in a Thai food dish and said it all seemed ok except there was "rice flour" in the noodles and that would be wheat. I tried to explain that I thought that "rice flour" was made of rice, but she could not comprehend that flour came from something besides wheat, and she was so concerned that it wouldn't be ok that I didn't think I could convince her to let me order it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    2. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    3. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    4. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      34

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,315
    • Most Online (within 30 mins)
      7,748

    RickT
    Newest Member
    RickT
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
    • knitty kitty
      Vitamin and mineral deficiencies can make TMJ worse.  Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain.  Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease.  It's important to eat healthy nutrient dense diets like the Autoimmune Protocol Diet, a Paleo diet that has similarities to the Mediterranean diet mentioned in one of the studies.   Is there a link between diet and painful temporomandibular disorders? A cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC12442269/   Nutritional Strategies for Chronic Craniofacial Pain and Temporomandibular Disorders: Current Clinical and Preclinical Insights https://pmc.ncbi.nlm.nih.gov/articles/PMC11397166/   Serum nutrient deficiencies in the patient with complex temporomandibular joint problems https://pmc.ncbi.nlm.nih.gov/articles/PMC2446412/  
    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.