Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Sleep & Much Pain!


chris mig

Recommended Posts

chris mig Newbie

I have been on a gluten free diet for over five years. In my 2nd year gluten free I was

diagnosed with rectal cancer. I had a tempory bag for 11 months and was on baby food during

most of that time. I have since been diagnosed with MAI in my lungs which they thought

was lung cancer! I have been on an antibiotic cocktail for over a year with not great

results. The medication has at times casued such diarrhea for 20 hours a day. So I have

to stop the meds and start over again. I take 6 to 8 Immodiam a day, citricel fiber pills,

asciphex for reflux and tylenol arthritis and last but not least claritin for allergies. My sleep

patterns are so bizzare as to be laughable and the pain sometime is an 8 (on a 1 to 10 scale)

I was fascinated to see other people have sleep problems and pain. I'm tired of talking about

it, not even my internist has suggestions and all of my doctors blame it on the celiac! Any thoughs!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Anne AMP Apprentice

Chris,

I am new and am doing poorly also but learning so much from this forum. I think this web site is fantastic. I had no idea what was going on or that others had the same strange symptoms. Keep reading this web site and you hopefully will find some answers.

You can also search a topic using the format at the top.

Anne

CarlaB Enthusiast

If you have been on antibiotics for over a year, I would suspect candida. Are you still on the antibiotics? Have you been taking probiotics to rebuild the beneficial bacteria? Coconut oil is also good for candida problems as are garlic and onions.

I would definately google candida infection and see what other recommendations are out there. I bet you'll see that you have a lot of the symptoms.

There have been threads on candida here before that have great recommendations, you might specifically google candida and this forum.

Welcome!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Sicilygirl replied to Sicilygirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      Enegy level extremely low

    2. - trents replied to SamClaire's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      How long can symptoms take to appear?

    3. - SamClaire replied to SamClaire's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      How long can symptoms take to appear?

    4. - trents replied to SamClaire's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      How long can symptoms take to appear?

    5. - SamClaire posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      How long can symptoms take to appear?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,521
    • Most Online (within 30 mins)
      7,748

    Polycarp
    Newest Member
    Polycarp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Sicilygirl
      Hello Scott, I did lose weight at the beginning of diagnosis and I know that it will take time to put on the weight I did lose. I think I have no appetite because this has been a roller coaster of emotions and a Big change on my body and its out of whack mentally and pysically. I think I am just depressed to be honest.  
    • trents
      It's easy to forget that it's not only the concentration of gluten in a given food item that's significant but also the total amount of gluten we consume over a period of time. This thing and that thing may meet the gluten-free requirement of not exceeding 20 ppm but if we eat enough of those things in a reasonably short amount of time it can have a cumulative effect because our bodies aren't given enough time to clear the gluten we have already consumed. Just curious. Did you know the fries were wheat breaded when you ate them?
    • SamClaire
      Hi! I try to steer clear of dairy and I cut out oats at the same time I did gluten products. It may be that something I had recently that was labeled as gluten-free contained oats. I am just so confused as to why I didn’t react when I know I ate wheat flour (breaded fries) but then reacted to something else 9 days later. Maybe you’re right and that it was the accumulation of things. 
    • trents
      Welcome to the forum, @SamClaire! I am reasonably sure that after 9 days any danger of a single gluten exposure reaction would have been long gone. If in fact the reaction you are speaking of is due to gluten, it is more likely a cumulative effect of small amounts of gluten having crept into your diet over time. Perhaps some food product you have been using that was once gluten free is no more. Companies can and do change their formulations over time so it may be wise to take inventory of what is in your cupboard and what your are purchasing and check closely the ingredient labels and the allergen statements. It is also possible that the reaction you mention is caused by something else that resembles a gluten reaction. Are you still consuming oats and dairy?
    • SamClaire
      Hi, I’m brand new to this website but I was diagnosed 14 years ago. I am just now getting over a particularly bad flare up that lasted a full 7 days. I’ve been trying to figure out what caused it and all I can think of is I know I accidentally ate gluten (specifically wheat flour) 9 days before my symptoms started. Could it have taken 9 days for my symptoms to start? I can’t think of any other culprit it could’ve been. Thank you!
×
×
  • Create New...