Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Bother With My Hmo


JerryK

Recommended Posts

JerryK Community Regular

Howdy,

Don't know if I've said this before, but I belong to the lovely Kaiser Permanente...

Should I bother my gatekeeper/GP with my gluten sensitivity, or should I

go directly to Enterolab?

Frankly I've never gotten much from my HMO except when I've had strep

throat. Other than that it's pretty much a waste of my time to go.

Should I bother my GP about an antibody test or should I just to to Enterolab?

Is Enterolab reputable? Does anyone ever test negative? Will my wife think I'm

insane when I mail my poo off to be analyzed??

Jerry


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

No one can answer these questions for you. You just have to go for it. Maybe they'll turn you down, but no one can say for sure. Not only is Kaiser different in different locations, but it varies by the doctor as well. Don't worry about what people will think about you, worry about how your health! :)

aikiducky Apprentice

If you can afford it, I'd do everything - have your doctor do the blood tests, send some poo off to Enterolab :) , and after all testing is done, try the diet.

Make sure your doctor orders the correct blood tests though, they're often clueless about which ones you need.

Pauliina

debmidge Rising Star

What indication did Kasier make that made you feel not to bother them?

There is an appeal process....

JerryK Community Regular

About three years ago, in the throes of a depression, I had Kaiser check my testosterone levels.

My level on two separate tests was 240 ng/dl and 255 ng/dl. While barely within the accepted normal

limits, it's also the level of an 80 year old man...(I'm 46).

Any other doctor would have given me a trial of Testosterone supplementation, but not Kaiser.

I pushed it. I submitted an appeal, I went to three different endocrinologists. They were just

humoring me. They had no intention of treating me, because, although they know my levels are

low, if they admit that low testosterone is a treatable condition, then they have to pay for it.

Now, if you think about it, it seems that someone who's Celiac or Gluten intolerant could certainly

have hormonal problems. I mean our bodies manufacture hormones out of the foods we eat and

absorb. Testosterone is manufactured from cholesterol...if you're pooping out all your fat, you

probably aren't going to feel like a jackrabbit on a date.

So anyway, it was at this point I realized that Kaiser isn't there to make me feel better. They are there to help(hopefully) if something catastrophic happens....they aren't interested in your quality of life, especially if it costs them money. Sorry for my cynical attitude, but it is what it is.

So this is why I've put off going to Kaiser and having the Celiac Panel done, I think Kaiser is worthless, although I could probably get them to run the correct tests, if I showed them what they are.

Jerry

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,878
    • Most Online (within 30 mins)
      7,748

    Lbf
    Newest Member
    Lbf
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bebee
      I have been diagnosed with Microscopic Colitis (LC) for quite a few years, so I have been gluten-free and DF.  I would like to get tested for Celiac Disease because of the possibility of cross contamination and colon cancer.  And if you were hospitalized and didn't have a celiac diagnosis you could not get gluten-free food, I don't know if that is true or not.  Also because there is chance of colon cancer so I want to know if I have Celiac Disease and need to be on very restrictive diet.  The only testing I did was a sigmoid scope and Enter Lab but no gene testing.  I know I can go back to eating gluten for a few months, but I would worry you would have to stay home for the few months while getting gluten.  What other options do I have?  Should I do the gene testing?  Maybe through Entero Lab?  Any other tests?  How important is it to have Celiac diagnosed? Thank you! Barb
    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
×
×
  • Create New...