Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Biopsy On Wednesday


wonkabar

Recommended Posts

wonkabar Contributor

I'm scheduled for my biopsy Wednesday morning. I'm not sure why, but I'm actually a little nervous. Maybe it's because I've had time to think about it.

I'm also starting to go through my cabinets to rid my house of whatever gluten is left in it! :P Even if the biopsy comes back negative, we're going to make the entire house gluten free. My son is gluten free and subsequently so is my daughter. It's just going to be a lot easier (and healthier) if there isn't any gluten in the house. Now I'm really curious to see how I feel *and* if I loose weight once I stop eating gluten. The only time I've been able to loose weight and keep it off is when I've been on WW...I ate very limited carbs and they were usually in the form of a potato or rice.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BostonCeliac Apprentice

Hey Wonka --

Don't be nervous! It's not bad.. I just had mine recently and it was really a piece of cake (gluten free cake that is!). I was really out of it for most of the day due to the anesthesia, I think they gave me alot. But I don't remember any of it, and I had a slightly sore throat afterwards which felt better with some tea & honey. No sweat!

Also, in my case, when I started the diet I quickly began loosing weight, even though I was eating alot (as normal) but now it seems to have leveled out... I guess I've been gluten-free about 2 months or so... Good luck!!

jerseyangel Proficient

Hi Kristy,

I was completely out for mine--I remember nothing from shortly after they put in the IV until I woke up in recovery. I didn't even have a sore throat after.

Really, it's nothing to worry about, and it's over pretty quickly. Good luck on Wednesday :)

dlp252 Apprentice

Yep, I've had THREE endoscopes since April! Really, it's not bad at all. I don't remember anything after they administered the sedatives until I woke up in the recovery area. The worst part was the pin prick for the IV and even that wasn't too bad. I was fairly groggy for a while afterwards on the first scope, maybe because they also did a colonoscopy at the same time, but the second and third scope I came out pretty quickly. By the time my mom dropped me off at home I was completely coherent, lol. After each scope I had a VERY SLIGHT sore throat...hardly noticable really, which went away by the next day.

Oh, and about losing weight...that depends I think. I didn't need to lose or gain, but I gained 10 pounds, but in my case it was because I went CRAZY on gluten-free foods like cookies, brownies, cakes, etc. I hardly ever ate that stuff before, but something clicked in my head and I ate them like a fiend, lol. So be careful of the junk food, lol. :P

DingoGirl Enthusiast

You'll do fine, it's a nice nap :) , I, too did not have a sore throat at all afterwards, couldn't feel a thing.

wonkabar Contributor

Thanks! I'm sure it'll be over before I know it. If my throat hurts it'll give me a reason to eat icecream...gluten-free of course! :P

Canadian Karen Community Regular

The closest I have gotten to heaven is the five seconds between them administering the sedative and when you go out like a light! Aaaahhhhh, that feeling...... :rolleyes: I would go through another endoscopy just to get that feeling again! LOL! :lol:

You will do just fine. It's no sweat, really........

Hugs!

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice
Thanks! I'm sure it'll be over before I know it. If my throat hurts it'll give me a reason to eat icecream...gluten-free of course! :P

See, there ya go, lol!

wonkabar Contributor
The closest I have gotten to heaven is the five seconds between them administering the sedative and when you go out like a light! Aaaahhhhh, that feeling...... :rolleyes: I would go through another endoscopy just to get that feeling again! LOL! :lol:

You will do just fine. It's no sweat, really........

Hugs!

Karen

That's an absolute riot!!! :lol: It's probably the most peace and quiet I'll get all day...my kids are 3 1/2 and 21 months. It's amazing what one does for a little bit of solitude, isn't it??!! :lol:

wonkabar Contributor

So it's 210am, and I'm wide awake! :blink: I slept sound for four hours and here I am!! I, of course, am dying of thirst b/c I know I can't have anything to drink. My stomach is also churning which is probably the result of the Applebee's dinner I ate........I was going with the whole "last meal hoorah" angle. Applebee's is always good at the moment but makes me feel like s@%$ in the end. I can't wait for the bipsy to be done; I'm really nervous about it which is so out of character for me. My husband is even surprised by how "twitchy" I am over it.

dlp252 Apprentice
So it's 210am, and I'm wide awake! :blink: I slept sound for four hours and here I am!! I, of course, am dying of thirst b/c I know I can't have anything to drink. My stomach is also churning which is probably the result of the Applebee's dinner I ate........I was going with the whole "last meal hoorah" angle. Applebee's is always good at the moment but makes me feel like s@%$ in the end. I can't wait for the bipsy to be done; I'm really nervous about it which is so out of character for me. My husband is even surprised by how "twitchy" I am over it.

This is absolutely the worst part...I hate being hungry, lol. I think I did the same thing on my first scope...didn't sleep at all, but don't worry, they'll give you some nice drugs soon. :lol: I actually took a Cliff Nectar bar with me and on the ride home wolfed that sucker down, lol. :ph34r:

wonkabar Contributor

So, I was sent off to a very nice place this morning, however I have no recollection of where it was! :) Right now I feel like I have a hang-over but missed the party!! :lol: (bummer!) I slept in recovery for two hours, during the ride home and for another 3 when I got home...and I'm still groggy. No wonder it's a controlled substance. :P

The doctor told my husband that there was no visible damage but that he took biopsies--I think 6. I have a f/u appointment in four weeks. In the mean time, our house will be gluten free as of tomorrow and we'll take it from there. If the biopsy is negative, there really isn't anything else to do but remove gluten from my diet to see how I feel.

Forgive my grogginess, but what are the names of some good books that you all have read as adults dealing with gluten issues? I know I've read some titles on here in the past. I just don't have the mental energy (or ability) to do that kind of a search right now! Thanks!

dlp252 Apprentice
Forgive my grogginess, but what are the names of some good books that you all have read as adults dealing with gluten issues? I know I've read some titles on here in the past. I just don't have the mental energy (or ability) to do that kind of a search right now! Thanks!

Dangerous Grains was a good one. Hum, what others did I read...the brain fog hasn't completely left me yet, lol.

One of my doctors just recommded "Going Against the Grain", but I haven't read it to comment.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,836
    • Most Online (within 30 mins)
      7,748

    RyanOB
    Newest Member
    RyanOB
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Manaan2,  I'm so happy to hear you're going to try thiamine and magnesium!  Do let us know the results!   You may want to add a B 50 Complex with two meals of the day to help boost absorption.  Thiamine interacts with each of the other B vitamins which are all water soluble.   When supplementing magnesium, make sure to get sufficient calcium.  Calcium and magnesium need to be kept in balance.  If you choose a calcium supplement, take two hours apart from magnesium as they compete for absorption.  Take Calcium with Vitamin D.  Vitamin D helps calm the immune system.   For pain, I use a combination of thiamine, B12 Cobalamine, and Pyridoxine B6.  These three vitamins together have analgesic effects.  My preferred brand is "GSG 12X Takeda ALINAMIN EX Plus Vitamin B1 B6 B12 Health Supplementary from Japan 120 Tablets".  Alinamin is another form of thiamine.  It really is excellent at relieving my back pain from crushed vertebrae without side effects and no grogginess.   Look into the low histamine version of the Autoimmune Protocol Duet (Dr. Sarah Ballentyne, a Celiac herself, developed it.)  It really helps heal the intestines, too.  It's like a vacation for the digestive system.  Add foods back gradually over several weeks after feeling better.   I'm so happy to have pointed the way on your journey!  Let us know how the journey progresses! P. S. Add a Potassium supplement, too.  Potassium is another electrolyte, like magnessium, that we need.
    • Manaan2
      @knitty kitty I can't thank you enough!  My husband and I already started looking into those supplements.  We definitely plan to give it a try.  We've been against the Miralax since it was originally advised by PCP, but because of the level of pain she experienced on a daily basis, we decided to try it.  We've made many attempts to gradually decrease but due to her pain and related symptoms, we've kept her on it while trying all sorts of other dietary adjustments pre and post diagnosis specific to food; so far none of those efforts have made a significant difference.  I will definitely share how she's doing along the way!
    • BIg Nodge
      Hi, I have recently embarked on the gluten-free journey. I have what to me seems like a somewhat confusing set of test results and symptoms. I have been impressed by the accumulated knowledge and thoughtfulness as I browse this forum, so I figured I'd make a post to see if anyone can offer any insight. I know there are many posts like this from new users, so I have tried to do my baseline research first and not ask super obvious questions.  I'm 43, overall very healthy. No history of gluten sensitivity or really any of the classic GI symptoms. About three years ago I started to experience intermittent bouts of fatigue, chills/cold intolerance, and shortness of breath/air hunger (sometimes feels like a hollowness in my chest, hard to describe). The symptoms over time have become fairly significant, though not debilitating, I am able to exercise regularly and am fairly physically active, continue to perform well at work. But for example I have gone from someone who consistently ran hot, was always cranking the a/c, to someone who wears a down vest inside at work in winter and get chills if the a/c even blows on me in summer. I get tired and lose energy even when getting decent amounts of sleep, and have to have my wife take over on long drives that I could previously handle with no problems. More generally when I am experiencing these symptoms they seem to crowd out space in my mind for focusing on my family, my hobbies/activities etc, I sort of withdraw into myself.   I happened to be experiencing these symptoms during an annual physical with my PCP a few years ago, he observed post nasal drip and suggested it was allergies and that I treat it with claritin. At first it seemed to respond to claritin (though not zyrtex), but over time I became unsatisfied with that answer. There didn't seem to be any seasonal rhyme or reason to my symptoms, and I felt like I was on an endless loop of taking claritin, then stopping, not being sure if it was even making a difference. I did eventually get allergy tests and found modest allergies to dust and pollen, which didn't feel like a smoking gun.  I then started seeing a natural medicine doctor who was much more willing to explore my symptoms via testing. The first thing that came back abnormal was elevated thyroid peroxidase antibodies/TPOs, 137 IU/mL vs a reference range of <9. At the same time my thyroid panel showed normal thyroid hormone levels. So it appears my immune system is attacking my thyroid even though it is working fine. I got a thyroid ultrasound at the time, it was clear, but with some abnormalities such that they suggested I get is scanned again in a year. These are certainly risk factors for a thyroid autoimmune disease, though my thyroid seems to be working fine for now.  From here my doctor considered celiac due to the murky thyroid/celiac links, so we did a panel. Results were as follows: TT IGA <1 U/ml, TT IGG <1 U/ml, deamidated gliadin IGA 24.6 U/ml, deamidated gliadin IGG <1 U/ml, IGAs 170 mg/dL. Readings greater than 15 considered high by my lab for the first four, my IGAs are within reference range. So basically just the deamidated IGA popped, but my IGAs are normal. I also notice on the tests that my thyroglobulin was high, 86.7 ng/ml vs a range of 2.8 - 40.9.  My doctor suggested that it certainly wasn't conclusive for celiac, but it was possible, and likely that I have some sort of gluten sensitivity. She suggested going gluten free and seeing how I felt as opposed to doing a biopsy. The best theory I can come up with is perhaps I am a silent celiac or just have a gluten sensitivity that doesn't produce immediate GI symptoms, but is still doing damage and over time has caused leaky gut. So now gluten is getting into my blood, and my immune system is attacking it but also mistakingly attacking my thyroid.  So that's what I did, went gluten free in October. It's been about four months, and I am really not feeling any difference. I still get the same symptoms that come and go. My bowel movements may be a bit more regular, but it was never a major issue before so I would consider that a minor improvement. I know that it can take a while to see improvements, and I am going to remain gluten-free and see how I feel. But I am definitely questioning whether I really understand what is going on, and am open to any thoughts or suggestions from the forum. Sometimes I wish I just went ahead with the biopsy before going gluten-free. While I would certainly be down to start drinking IPAs again ahead of a biopsy, you know, for science, I feel like at this point I would be throwing away four months of work and am better off staying the course and seeing what happens. But I'm really not sure.  I know there is a lot of thyroid knowledge on these boards, along with the celiac expertise, so I'm curious if this resonates with anyone's experience. And I'm interested in what sort of timelines people have experienced in terms of feeling improvements for some of these non-GI symptoms like chills, SOB, brain fog etc. Thanks in advance. 
    • cameo674
      Does it taste like black licorice?  It said it was chewable.  I do not like that flavor.     Since the burn at the back of my throat is there everyday, I usually only take something when it is unbearable and keeping me from ADL especially sleep.  
    • Scott Adams
      Your concerns about Nando's cross-contamination practices are valid and important for the celiac community. It's disappointing that Nando's does not have stricter protocols for children's portions, especially given the risk of cross-contact with gluten-containing items like garlic bread. Cooking gluten-free items on shared surfaces, even if cleaned, is not safe for individuals with celiac disease, as even trace amounts of gluten can cause harm. While the adult butterfly chicken may be a safer option, the inconsistency in practices for children's meals is concerning. It's frustrating that Nando's headquarters did not take responsibility, but sharing your experience raises awareness and may encourage them to improve their protocols. Consider reaching out to celiac advocacy organizations to amplify your concerns and push for better standards. Always double-check with staff and emphasize the importance of avoiding cross-contamination when dining out.
×
×
  • Create New...