Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gastritis Part Of The Fun Celiac Package...

JenKuz

Recommended Posts

JenKuz Explorer
JenKuz
Posted

So I had my upper GI endoscopy on Tuesday. The doc said my duodenum looked healthy, my bile duct was sound, esophagus just fine, but I had inflammation in the stomach.

He's still worried about the D, so we're doing a colonoscopy on Monday. But he seemed like he thought many of my symptoms could be explained by this.

I was just wondering, did anyone show gastritis? Is this common with celiac, or should I keep looking for a non-gluten cause (knowing of course that gluten is exacerbating if there is an outside cause....)

I've tested negative for all the usual suspects, parasite-wise, including H. pylori, though the doc took a biopsy and will test it again.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Canadian Karen Community Regular
Canadian Karen
Posted

Me.

My last endo in August showed several ulcers in the stomach. He put me on Losec. The h-pylori came back negative.

I can't really tell you if the Losec is helping or not, because quite frankly, I didn't have a clue I had ulcers in the first place! My abdominal pain and troubles are diarrhea related and cramping etc., not really anything like heartburn or GERD or reflux or anything like that......

Weird, I know....... :huh:

Hugs.

Karen

2kids4me Contributor
2kids4me
Posted

This is a great site on gastritis:

Open Original Shared Link

There is a form of autoimmune gastritis. In that sense - it is not caused by celiac and the only relation is that both conditions are immune mediated and if you have one autoimmune condition, you are more likely to have another.

ArtGirl Enthusiast
ArtGirl
Posted

For years I'd get gastritis at the drop of a hat. Seemed something was always setting it off and then it would take 3 weeks to 3 months to heal up. I still had problems for a while with heartburn after going gluten-free, but about 2 months into the diet the problem eased up and for the last few weeks I've not had any problem with it. So, was my gastritis problem brought on by gluten? - I'm sure of it. (I don't go to doctors so didn't have any tests to officially diagnose anything.)

JenKuz Explorer
JenKuz
Posted
  • Author
Me.

My last endo in August showed several ulcers in the stomach. He put me on Losec. The h-pylori came back negative.

I can't really tell you if the Losec is helping or not, because quite frankly, I didn't have a clue I had ulcers in the first place! My abdominal pain and troubles are diarrhea related and cramping etc., not really anything like heartburn or GERD or reflux or anything like that......

Weird, I know....... :huh:

Hugs.

Karen

He put me on aciphex. I think it's similar.

I guess, I have had really awful heartburn. But it only appeared a couple of months ago; the D and malabsorption have been going on well over a year. So I would suspect that the gastritis is a response to other trouble. There are a lot of causes of gastritis, though, so goodness only knows what it means...

I just don't think it could be *causing* all my symptoms. I hope the colonoscopy is informative, b/c I don't want the docs to send me home with a "Well, sometimes a little bit of clinical damage can cause a lot of pain and discomfort, so just keep taking your aciphex and you'll be juuuuuuuuuust fiiiiiiiiiiiiiiiine."

shai76 Explorer
shai76
Posted

My son (2) and I both have gastritis and we both have food allergies. I don't know if the two are related though. He had a biopsy and so did I, and now he takes prilosec 2 times a day, and I take nexium.

JenKuz Explorer
JenKuz
Posted
  • Author
My son (2) and I both have gastritis and we both have food allergies. I don't know if the two are related though. He had a biopsy and so did I, and now he takes prilosec 2 times a day, and I take nexium.

Yikes. I don't know if it's related, either; what I've read on gastritis says it passes on it's own, but like I said, I think it's a symptom of other inflammation going on...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest cassidy
Guest cassidy
Posted

I went to the health food store and they said aloe was the best thing to take. You drink it - don't get the plain - they have cherry flavored or mango flavored, and it really helped. I also take digestive enzymes and probiotics.

For heartburn I take vinegar capsules. I was on aciphex twice a day and still had very bad heartburn. That was before I was gluten-free and I have now realized that I get heartburn for about 3 weeks after being glutened. I read something and decided to try drinking vinegar when I had heartburn - it went away in 10 minutes. From what I read that meant that I had too little stomach acid. So, now I take vinegar capsules (they taste much better) and it works very well for any heartburn that I get.

Also, I know you said that you tested negative for parasites. I got parasites by taking all those antacids. They make your stomach less acidic (obviously, since it is their job) and parasites that are normally killed by the acid barrier can get through. I had an amoeba (common in Florida) and some nasty bacteria. I had to take several antibiotics that I thought were going to kill me. So, I would go easy on the aciphex if I was you. I will never take that stuff again and doctors hand it out like it is no big deal.

Hope you feel better.

ArtGirl Enthusiast
ArtGirl
Posted
I read something and decided to try drinking vinegar when I had heartburn - it went away in 10 minutes. From what I read that meant that I had too little stomach acid. So, now I take vinegar capsules (they taste much better) and it works very well for any heartburn that I get.

I did the same - although I like the taste of vinegar so I stuck with just drinking some with my meals (a tsp. diluted in water with Stevia to cut the sharpness). Worked like a charm. Although, like I said before, being gluten-free (and corn-free 'cause I'm intolerant to corn) has cleared up all my stomach problems.

JenKuz Explorer
JenKuz
Posted
  • Author
I went to the health food store and they said aloe was the best thing to take. You drink it - don't get the plain - they have cherry flavored or mango flavored, and it really helped. I also take digestive enzymes and probiotics.

For heartburn I take vinegar capsules. I was on aciphex twice a day and still had very bad heartburn. That was before I was gluten-free and I have now realized that I get heartburn for about 3 weeks after being glutened. I read something and decided to try drinking vinegar when I had heartburn - it went away in 10 minutes. From what I read that meant that I had too little stomach acid. So, now I take vinegar capsules (they taste much better) and it works very well for any heartburn that I get.

Also, I know you said that you tested negative for parasites. I got parasites by taking all those antacids. They make your stomach less acidic (obviously, since it is their job) and parasites that are normally killed by the acid barrier can get through. I had an amoeba (common in Florida) and some nasty bacteria. I had to take several antibiotics that I thought were going to kill me. So, I would go easy on the aciphex if I was you. I will never take that stuff again and doctors hand it out like it is no big deal.

Hope you feel better.

Hey there,

I've worried about the parasite thing, because my symptoms started after travelling in Africa for three months. Back then I wasn't taking any stomach stuff, although I did go through a round of ciprofloxacine, a round of flagyl, and a round of mebendazole, in addition to malarone, and also three days of quinine and doxycycline when they thought I had malaria, but I didn't. I imagine all of those antibiotics could have really messed things up.

The antacids I just started taking with some frequency in the last two months. So I don't really think I've picked up a parasite from taking them, but I worry about that now because I travel so much.

I started taking the digestive enzymes last week, and they help alot. I'm also going to try the aloe. It sounds like it would be soothing :)

Guest cassidy
Guest cassidy
Posted

If you took all those antibiotics you probably killed most of the good bacteria as well. I would highly recommend taking a strong probiotic for a month or so. I got the best one my doctor had after my antibiotics. Now I drink kefir everyday because good bacteria are so important.

Glad the digestive enzymes are helping.

JenKuz Explorer
JenKuz
Posted
  • Author
If you took all those antibiotics you probably killed most of the good bacteria as well. I would highly recommend taking a strong probiotic for a month or so. I got the best one my doctor had after my antibiotics. Now I drink kefir everyday because good bacteria are so important.

Glad the digestive enzymes are helping.

Yeah, I've taken the high-end, enteric-coated, three-species, totally refrigerated probiotics for a year. Also drink a pint of kefir a day....hasn't helped, so I suspect something more...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,157
    • Most Online (within 30 mins)
      7,748
    Lisa Katcher
    Newest Member
    Lisa Katcher
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Testing

      By trents · Posted

      Did your symptoms improve after going on a gluten-free diet?
    • Scott Adams
      Testing

      By Scott Adams · Posted

      Thank you for sharing your genetic test results and background. Your results indicate you carry one half of the DQ2 heterodimer (DQA1*05), which is associated with a very low celiac disease risk (0.05%). While most celiac patients have either DQ2 or DQ8, these genes are also present in people without celiac disease, so the test alone doesn’t confirm a diagnosis. Since you’ve been gluten-free for 10 years, traditional diagnostic methods (like endoscopy or blood tests) would not be reliable now. If an official diagnosis is important to you, consider discussing a gluten challenge with your doctor, where you reintroduce gluten for a period before testing. Alternatively, you could focus on symptom management and dietary adherence, as your gluten-free diet seems to be helping. Consulting a gastroenterologist or celiac specialist could provide further clarity.  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Celiac or Addison's complications? Can someone share their experience?

      By Scott Adams · Posted

      @cvz Thank you for sharing your daughter’s story. It sounds like she is managing multiple complex conditions with great care and diligence. It’s encouraging to hear that she is compliant with her gluten-free diet and that her Addison’s disease symptoms are under control. The addition of electrolytes seems like a thoughtful suggestion, especially given her fluid intake. It’s also reassuring that she hasn’t shown noticeable symptoms from accidental gluten exposure, though it’s understandable how challenging it can be to monitor for such incidents. The unexplained high lipase levels are intriguing—perhaps further investigation or consultation with a specialist could provide more clarity. Wishing you both continued strength and success in managing her health. Please keep us updated on her progress!
    • Kj44
      Testing

      By Kj44 · Posted

      Hello I received this in a genetic lab test I requested from my provider.    The patient is positive for DQA1*05, one half of the DQ2 heterodimer. The celiac disease risk from the HLA DQA/DQB genotype is approximately 1:1842 (0.05%). This is less than the 1% risk in the general population. Allele interpretation for all loci based on IMGT/HLA database version 3.55 HLA Lab CLIA ID Number 34D0954530 Greater than 95% of celiac patients are positive for either DQ2 or DQ8 (Sollid and Thorsby, (1993) Gastroenterology 105:910-922). However these antigens may also be present in patients who do not have Celiac disease.   Some background, I have been eating gluten free for about 10 years now. I have never had an official celiac diagnosis due to endoscopy and labs tested after I had already been eating gluten free for over 1 year. I was constantly sick and told you slowly remove foods and see what effects my symptoms. I have also come to realize that I have other symptoms of celiacs and recently requested the genetic testing shown above.    I am looking to see if anyone has other recommendations for testing or just to clarify the results for me as I feel the official diagnosis could be helpful but I am not positive that it is even true for me. 
    • cvz
      Celiac or Addison's complications? Can someone share their experience?

      By cvz · Posted

      My daughter, age 48, has Down syndrome, hypothyroidism, Addison's disease, and Celiac disease, which was diagnosed based on blood tests last July.  After a small intestine biopsy last fall, we were told that she has severe celiac disease.  She is taking both levothyroxine and leothyronine for her hypothyroidism and both hydrocortisone and fludrocortisone for Addison's disease.  She also takes Folic acid, magnesium, vitamin B-12, DHEA (DAGA), and a multivitamin.  In July, she started on a gluten-free diet and is very compliant.  She has had constipation and diarrhea issues all her life and now controls the constipation with Miralax, prunes, and apricots.  Shel has only very occasional syncopes or vasovagal events and muscle aches in her upper back and neck.  She drinks 4-6 or more 12 oz bottles or of liquid per day.  Her doctor has just suggested adding electrolytes to one of those bottles daily.   We are sorry to learn about the issues you are having and would like to stay in touch.  We do not know anyone else with both Addison's disease and celiac disease.  So far, she has no recognizable symptoms.  We are doing our best to keep her gluten-free, but have no way of knowing if she has had an exposure to it unless we catch it ourselves.  For example, a few weeks ago, a restaurant mistakenly breaded her fish, and I did not notice it until she had eaten most of it.  She had no identifiable symptoms of the exposure then or days later. By the way, the reason she was screened for Celiac disease was that her blood lipase levels were unexplainably high.  They still are.  We have no idea why.    
×
×
  • Create New...