Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Severely Glutened By My Cht... What Can I Do?


Robina

Recommended Posts

Robina Contributor

So I went in for my monthly colonic yesterday... and after my session my CHT gave me the usual probiotic cocktail... I noticed that the color of the cocktail was different... but I didn't think anything of it... and then within an hour of drinking it... all the familiar symptoms came on with a vengeance... severe bloating, cramping, back pain and mucousy poop...

I knew I had been glutened but I couldn't figure out by what... and then I went to her website last night to review the ingredients of the probiotic supplement she gave me... sure enough... barley grass, wheat grass, oats, etc... but I couldn't imagine that she would give this to me knowing I have celiac's (she's also a nutritionist and the one who helped diagnose me)... so I emailed her to ask... sure enough she emails me back this morning apologizing profusely for accidentally glutening me... she said she didn't even consider the ingredients because it was a hypoallergenic formula which typically means that it doesn't contain any of the usual offenders... UGH!!! She recommended that I take some charcoal... but truthfully after being glutened by her I'm not sure I want to try what she suggests... lol...

Anyway I hardly slept a wink last night due to the pain... is there anything I can do to "flush" my system or comfort my intestines? Or do I just simply wait it out like I did when I went gluten free?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



spunky Contributor

Ugh. Sorry to hear this happened.

I have found that if I take Digestive Advantage for IBS when I feel gluten symptoms, it alleviates them. I take this only for about one week and then I get back to normal on my own from there.

You can buy that stuff at places like Walgreens or order through Amazon.

It might not help everybody, I'm not even sure about it for myself, since I haven't been gluten free for even a whole year yet, and I'm never sure exactly what's going on. But when I do feel symptoms coming on, this stuff helps me feel better in a day or two.

Hope it's better soon!

Guest cassidy

Sorry you got glutened - and by someone you trust. My mom has celiac too and she glutened me once - it is hard to trust people to give you food after that happens.

Sorry to say it, but time is really the only thing that makes it better. You can take things for the symptoms - like immodium (check which kinds are gluten-free), tylenol for headaches, etc, but nothing makes it go away.

I'm not familiar with what the poster above mentioned. I haven't heard anyone mention it before so I don't know what it is or how it works.

I usually try to eat bland foods, drink a lot of water and take care of myself. I was at a work meeting on Tuesday and despite alerting everyone that I needed gluten-free food, I was still glutened by my "special" meal. I'm pregnant now and my symptoms were actually not as bad as they usually are, but it still hasn't been fun. Running to the bathroom in a meeting is not enjoyable.

I hope you feel better soon and that doesn't happen again. I don't know how new you are to all of this, but it usually takes me a few weeks to feel 100% better. I just say that because I don't want you to be surprised if it takes a while.

Feel better soon!

CarlaB Enthusiast

Sorry you're glutened ... I just wait it out and be sure to stay hydrated.

Be sure you check everything you eat/drink -- even from someone you trust!! Everyone makes mistakes, so let it be your own mistake that glutens you next time!!

Robina Contributor

Thanks so much for your support and knowledge...

I would truly be lost without this forum!!!

I feel better today... but still a little off kilter... I've just been drinking lots of water and carrot juice (known intestinal healer) and just trying to remain calm... I was after all way worse back when I was glutening myself on a daily basis before knowing I had celiac's...

but it's just so cool to be able to come on this board and be able to find answers each and every time... you guys are amazing!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ABP2025 replied to ABP2025's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Guidance on next steps after the lab tests

    2. - knitty kitty commented on Debado's blog entry in Debado
      4

      Gluten migranes at night

    3. - dixonpete commented on dixonpete's blog entry in Pete Dixon
      2

      A video with researcher William Parker about Helminthic Therapy

    4. - knitty kitty replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      21

      What should I do with these test results?

    5. - trents commented on Debado's blog entry in Debado
      4

      Gluten migranes at night


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,782
    • Most Online (within 30 mins)
      7,748

    kbarton88
    Newest Member
    kbarton88
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • ABP2025
      After I get the endoscopy done, I’ll try to be in gluten-free diet even if I test negative for celiac disease or NCGS to avoid any complications. It does suck because I love wheat breads and Indian breads like rotis and naans, lol. I guess I have to jump to gluten-free options for those. Again, thanks for all your help.
    • knitty kitty
      @Jack Common, You could do a DNA test to see if you have any of the known genes for Celiac Disease.  If you don't have any genes for celiac disease, look to another source for your health problems.  If you do have celiac disease genes and have improvement on the gluten free diet, you probably have active Celiac.  Further testing would be beneficial. Keep in mind that different gluten containing breads have different amounts of gluten.  Think thick chewy pizza crust and artisan breads, and whole wheat breads for the gluten challenge.  Cookies and pastries do not contain as much gluten.   Since your blood tests were inconclusive, continuing with the gluten challenge may be needed to provoke a stronger autoimmune reaction sufficient for antibodies to get into the blood stream.      
    • dirkmatthews
      I found out I had celiac because of eye problems. I developed an eye irritation that was sensitive to light, pressure, and red. My eye doctor said I had iritis, an inflammation of the iris. The treatment was prednisone drops. This is a common symptom related to ankylosing spondylitis, a form of arthritis that runs in my family. My doctor wanted to start me on immunosuppressants, but I refused due to side effects. I tried a few anti-inflammatory diets and found the specific carb diet helped, which led my doctor to test me for celiac, which was positive. Now I know when I get glutened because I have a flare up of my iritis. I call it my canary in a coal mine. First the eye, then the arthritis flare up begins.  
    • RMJ
      Soap, water and scrubbing won’t “kill” gluten, but it will physically remove it if done well if you also add a thorough rinse step.
    • Jack Common
×
×
  • Create New...