Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Remote Control


Noel1965

Recommended Posts

Noel1965 Apprentice

Would love to get some feedback on this thought : I eat popcorn etc when watching tv. My family could eat anything from chips to a sandwich while watching tv. We all use the remote to change the channels and do not wash our hands at that time. Do you think this could be a factor in cc? Ditto for the computer keyboard....I don't eat the computer but my daughter does......

I was also wondering if that bottled antiseptic hand cleaner ( not sure what they are called) would work to get rid of gluten - it could be left on the coffee table.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Michi8 Contributor
Would love to get some feedback on this thought : I eat popcorn etc when watching tv. My family could eat anything from chips to a sandwich while watching tv. We all use the remote to change the channels and do not wash our hands at that time. Do you think this could be a factor in cc? Ditto for the computer keyboard....I don't eat the computer but my daughter does......

I was also wondering if that bottled antiseptic hand cleaner ( not sure what they are called) would work to get rid of gluten - it could be left on the coffee table.

It could be a factor in cc. However, I doubt that hand cleaner would do the job...it kills germs, but doesn't actually wash anything off your hands.

Michelle

Noel1965 Apprentice

Michi8 - Thanks for confirming my thoughts on the hand washing - didn't think that stuff would do the trick!

Guhlia Rising Star

Before we all went gluten free, I used to keep containers of baby wipes around the house. Also, gluten items were limited to the kitchen and everyone had to wash their hands after eating. I would recommend doing the wipe thing. It's easier than washing your hands non-stop.

kabowman Explorer

I am very cautious about touching anything that the rest of the family will touch. Such as, I use the remote, wash my hands before I eat, touch the joint pantry handles, wash my hands before cooking or eating, etc.

I have not told my family about this yet, I keep this one to myself but they do wash their hands before touching dishes and pots and pans etc. but not for all the outside stuff. I think that would be going a little too far in my expectations, which are pretty high already.

I don't think I could get them to do it without thinking about it and then I could get sick, thinking they were being careful but teens just don't always think that much!!!!

teebs in WV Apprentice

Here's another one - what about ice cubes? We have an ice maker but it is internal. I am sure that other ice cubes get touched besides the ones that are actually making it into someone's glass. I cringe every time someone reaches for the ice. I am about ready to quit using it.

MauriceGreene Rookie

too pedantic imo. Assuming that your remote control is not made out of carpet, how will you get cross contaminated. The only way I see it happening is if gluten gets stuck in the cracks and then falls out ( I dont see how this could happen) onto your hand then you shove your hand in your mouth.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chrissy Collaborator

i think you could drive yourself nuts worrying about every possible thing that people "might" have contaminated with gluten.some obsessive compulsive people become so worried about contracting germs that they will wear gloves constantly. you don't want to become like that.

daffadilly Apprentice

well you do not have to worry about it for it to make you sick. Those of you that are not super sensitive will probably not understand or believe it . It is only those of us that can walk past a bakery & get sick on the fumes, that really get it. & believe me it is really an awful way to be. It is about like the peanut allergy, some react worse than others. & if someone eats peanuts & breathes on a peanut sensitive person, they are sick... or dead.

Nantzie Collaborator

I'm pretty sensitive too. I had a problem getting glutened after my MIL stayed with my kids while we were out of town. She was using hand lotion with gluten in it and doing stuff like doing the dishes and putting them away. I was getting glutened by anything she would have touched, like the silverware (for pete's sake). I had to re-wash all the silverware and no more glutening. :rolleyes::rolleyes::rolleyes: It took me over a week to figure out what it was.

Over the last year, and the first six months of being the only one gluten-free in my house, I just eventually developed a habit of washing my hands before I put anything in my mouth. Now, even with a 98% gluten-free house, I still find myself washing my hands when I don't necessarily need to anymore.

Nancy

Guest cassidy

Who knows if that could make you sick, but why chance it. I wash my hands before I touch any of my food or touch my mouth. I feel like this puts me in control and I don't feel paranoid about touching the remote or other things because even if there is gluten on my hands I'm pretty confident that I won't put it in my mouth.

Since you have non-gluten-free family members I don't think you can expect them to not eat gluten in front of the tv or computer (not saying you are trying to get them to do this). It would be nice if family members understood and just said they would be happy to make sure they didn't get you sick, but I don't think that is real world.

My gluten-free mom was down this weekend. She lives alone so her house is completely gluten-free. She started to make a sandwich directly on the counter and I had to remind her to be careful. She suggested that we have a gluten-free counter top and a gluten coutertop. In theory it sounds good, however, my husband didn't like the idea and I'm pretty sure would forget about it in a few days so I would still have to wipe down an area to make my food.

Maybe this is a good lesson for non-gluten-free kids. They can learn compassion and caring for other people. Some husbands could use learning that lesson as well.

kabowman Explorer

I agree with the sensitivity issue - I have gotten sick off putting my gluten-free safe dressing into a microwave right after (not letting it air out for a minute) someone cooked popcorn - no corn, soy, dairy, etc for me so I am very careful and nobody in our house has ever had an issue with me insisting I cook my food first in the oven, microwave, etc. It is just safer.

I also try not to obsess (do not have OCD) but you watch the kids eating their chips, knowing they will make you sick and handling the remote, you just have to wonder, and NOT take that risk because the next day you are sick, will you remember the remote as a possible point of contamination? I won't...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,311
    • Most Online (within 30 mins)
      7,748

    SWilson
    Newest Member
    SWilson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, Linda! Many on this forum can sympathize with you. It can be extremely difficult to get reliable information about gluten when it comes to meds, supplements and oral hygiene products. This is especially true since so much of this stuff is generic and comes from over seas. I will deflect with regard to your question about meds and oral products but take you in another direction. Have you tried a low iodine diet. Iodine is known to exacerbate dermatitis herpetiformis and some find that a low iodine diet helps reduce the number of outbreaks. By the way, have you had your celiac antibodies retested recently? If they are elevated that might be a clue that you are getting gluten in your oral hygiene products or meds.
    • Itsabit
      Hi. I’m 70 years old, and a 22 year survivor of head and neck cancer treated with chemo-radiation, which resulted in non-existent submandibular salivary glands and extreme dry mouth and altered oral mucosa. I have been using dry mouth toothpaste, Rx oral dentrifices and moisturizers for years.  I’ve recently been diagnosed with severe celiac dermatitis herpetiformis. I was being treated with oral Dapsone, but it was not effective and I developed some serious side effects. So, the medication was stopped and I was started on Doxycycline (another antibiotic) for inflammation. I’ve been using Rx Betamethasone steroid ointment with little to no effect. I have tried every oral and topical antihistamine treatment available OTC. None have touched this horrible relentless itching. That is my history.  Now to my question. Does anybody know about gluten free toothpastes and mouth moisturizers? I ask because a very common dry mouth brand stated to me that they were indeed gluten free. But as I am not getting any better with my dermatitis herpetiformis, I was wondering if I was getting glutenized some way other than diet as  I have been following a strict clean gluten free diet, but I am not seeing any improvement at all. So, I started looking up the toothpastes and moisturizer ingredients individually and nine (9) of the eleven (11) or so listed showed up as   containing gluten or that may have gluten! Am I getting glutenized orally by these products?  As an aside, I checked on my favorite lavender scented baby lotion which is supposed to be gluten free, but many of those ingredients when investigated separately, show they  do contain or may contain gluten as well. I stopped using the lotion. But I cannot forgo my dental care. I was unable to get any information from the manufacturer of my current brand of chewable multivitamins either. They told me to check with my doctor. If THEY don’t know what’s in their product, how do they think a PCP will?  In light of all this, I am confused and angry that I might keep getting contaminated with gluten through products I am using that are supposedly gluten safe. *I should also state that I have a nickel allergy since I was about 12-13 years old. And I developed a contact allergy to latex (gloves) when I was a student nurse at 19 years old.  I know and I’m sorry that this is so lengthy. I’m trying to do everything I can to combat this condition, and I’m feeling very confused, anxious and angry about not getting adequate information as I try to educate and advocate for myself. I’m hoping someone here is more knowledgeable than me of how to navigate through all of this. Can anyone offer any advice?  Thank you for your time.  Respectfully,  Linda
    • trents
      Welcome to the forum, @Cathijean90! I went 13 years from the first laboratory evidence of celiac disease onset before I was diagnosed. But there were symptoms of celiac disease many years before that like a lot of gas. The first laboratory evidence was a rejected Red Cross blood donation because of elevated liver enzymes. They assume you have hepatitis if your liver enzymes are elevated. But I was checked for all varieties of hepatitis and that wasn't it. Liver enzymes continued to slowly creep up for another 13 years and my PCP tested me for a lot of stuff and it was all negative. He ran out of ideas. By that time, iron stores were dropping as was albumin and total protein. Finally, I took it upon myself to schedule an appointment with a GI doc and the first thing he did was test me for celiac disease. I was positive of course. After three months of gluten free eating the liver enzymes were back in normal range. That was back in about 1992. Your story and mine are more typical than not. I think the average time to diagnosis from the onset of symptoms and initial investigation into causes for symptom is about 10 years. Things are improving as there is more general awareness in the medical community about celiac disease than there used to be years ago. The risk of small bowel lymphoma in the celiac population is 4x that of the general population. That's the bad news is.  The good news is, it's still pretty rare as a whole. Yes, absolutely! You can expect substantial healing even after all these years if you begin to observe a strict gluten free diet. Take heart! But I have one question. What exactly did the paperwork from 15 years ago say about your having celiac disease? Was it a test result? Was it an official diagnosis? Can you share the specifics please? If you have any celiac blood antibody test results could you post them, along with the reference ranges for each test? Did you have an endoscopy/biopsy to confirm the blood test results?
    • Cathijean90
      I’ve just learned that I had been diagnosed with celiac and didn’t even know. I found it on paperwork from 15 years ago. No idea how this was missed by every doctor I’ve seen after the fact. I’m sitting here in tears because I have really awful symptoms that have been pushed off for years onto other medical conditions. My teeth are now ruined from vomiting, I have horrible rashes on my hands, I’ve lost a lot of weight, I’m always in pain, I haven’t had a period in about 8-9 months. I’m so scared. I have children and I saw it can cause cancer, infertility, heart and liver problems😭 I’ve been in my room crying for the last 20minutes praying. This going untreated for so long has me feeling like I’m ruined and it’s going to take me away from my babies. I found this site googling and I don’t know really what has me posting this besides wanting to hear from others that went a long time with symptoms but still didn’t know to quit gluten. I’m quitting today, I won’t touch gluten ever again and I’m making an appointment somewhere to get checked for everything that could be damaged. Is this an automatic sentence for cancer and heart/liver damage after all these symptoms and years? Is there still a good chance that quitting gluten and being proactive from here on out that I’ll be okay? That I could still heal myself and possibly have more children? Has anyone had it left untreated for this amount of time and not had cancer, heart, fertility issues or liver problems that couldn’t be fixed? I’m sure I sound insane but my anxiety is through the roof. I don’t wanna die 😭 I don’t want something taking me from my babies. I’d gladly take anyone’s advice or hear your story of how long you had it before being diagnosed and if you’re still okay? 
    • trents
      Genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out and also to establish the potential to develop celiac disease. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop it. To develop celiac disease when you have the genetic potential also requires some kind of trigger to turn the latent genes "on", as it were. The trigger can be a lot of things and is the big mystery component of the celiac disease puzzle at this point in time with regard to the state of our knowledge.  Your IGA serum score would seem to indicate you are not IGA deficient and your tTG-IGA score looks to be in the normal range but in the future please include the reference ranges for negative vs. positive because different labs used different reference ranges. There is no industry standard.
×
×
  • Create New...