Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Irregular Cycle


Alison

Recommended Posts

Alison Rookie

Has anyone experienced really long menstrual cycles? I was on the pill for many years and then was diagnosed with celiac. I went gluten free and then a few months later went off the pill. I didn't have my period for a few months and had to take progesterone to get it started. Now I get it only about every 37 days (sometimes longer, sometimes shorter) and it is barely there. I am curious if this happened to anyone and if you ever got regular and/or pregnant?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shelagh-e Newbie

have you tended to be anemic along with being celiac? I am- and once I started taking daily iron supplements, everything straightened out....

healthy1 Newbie

I have the opposite problem, I get it 2x a month for about 9 days each time, I was always regular until my last child, it took about 16 months to become regular again, then when I went gluten-free, it is all crazy again, I don't even know when to expect it anymore, or how long it will last, and when I do have it, it comes and goes 2 days here, then gone a day or 2, for about 9 days. I haven't asked my dr. about it yet, but will next time I see him. anyone experience this before?

gf4life Enthusiast

Alison, I was wondering how long you have been gluten-free, as well as off the pill? I took birth control pills for about 5 years and then stopped taking them. I didn't have a period for about 6 months and then had one about every two months and then they slowly worked their way to somewhere around a month(give or take a week). I got pregnant about two years after I stopped taking the pill, and after I resumed mentruation following the pregnancy I have been regular (every 27-29 days). This was all before I knew I had celiac disease and before I even knew what gluten was. I have heard that gluten can mess with your cycle, and I think it did for me, until after my first pregnancy, now I think it just makes my headaches and cramps worse during my period. Gluten free is the best way to live! And although I feel tired all the time on gluten I have never once tested anemic, only borderline, when I'm pregnant.

Mariann

tarnalberry Community Regular

I do FAM, so I chart, and know when I ovulate. Honestly, if I accidentally ingest much gluten in the few days before I ovulate, my body goes "hey, there, I don't like poison" and holds off on the ovulation - thus delaying my period. (Kinda annoying... really...)

Tiffany

  • 3 weeks later...
njlawtonuk Newbie

hello

:rolleyes:

i'm new to this board. when reading your comments a question popped into my head.

are you sure your pill is gluten free? have you checked the ingredients? i phoned the company in the end to absolutely be sure before i started taking it.

hope this helps. n.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jess270 replied to AnnaNZ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      29

      Bitters for digestion?

    2. - cristiana commented on Jefferson Adams's article in Origins of Celiac Disease
      7

      Why Bananas No Longer Cure Celiac Disease

    3. - trents replied to Dawn Meyers's topic in Related Issues & Disorders
      23

      Vaccines

    4. - GeoPeanut replied to Dawn Meyers's topic in Related Issues & Disorders
      23

      Vaccines

    5. - trents replied to KRipple's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac or Addison's complications? Can someone share their experience?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,052
    • Most Online (within 30 mins)
      7,748

    Diane Dutra
    Newest Member
    Diane Dutra
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jess270
      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions you describe, flu like symptoms, joint pain, urinary tract irritation, rash, stomach upset, nausea, diarrhoea & fatigue. I had liver pain like you describe, as part of the intolerance is usually a sluggish liver that makes processing all the histamine difficult. There are multiple possible root causes of histamine intolerance, usually it’s a symptom of something else. In my case, leaky gut (damaged gut wall)caused by undiagnosed celiac, but for others it’s leaky gut caused by other things like dysbiosis. Some people also experience histamine intolerance due to mould exposure or low levels of DAO (the enzyme that breaks down histamine in the gut). I’d try a low histamine diet & if that doesn’t improve symptoms fully, try low oxalate too. As others have suggested, supplements like vitamin d, b, l-glutamine to support a healthy gut & a good liver support supplement too. If you’re in a histamine flare take vitamin c to bowel tolerance & your symptoms will calm down (avoid if you find you have oxalate intolerance though). Best of luck 
    • trents
      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    • GeoPeanut
      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease,  and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and  dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with myopathy that has occurred. 
    • trents
      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important) the reference ranges for each test used to establish high/low/negative/positive. Different labs use different rating scales so this is why I ask for this. There aren't industry standards. Has your husband seen any improvement from eliminating gluten from his diet? If your husband had any positive results from his celiac blood antibody testing, this is likely what triggered the consult with a  GI doc for an endoscopy. During the endoscopy, the GI doc will likely biopsy the lining of the small bowel lining to check for the damage caused by celiac disease. This would be for confirmation of the results of the blood tests and is considered the gold standard of celiac disease diagnosis. But here is some difficult information I have for you. If your husband has been gluten free already for months leading up to the endoscopy/biopsy, it will likely invalidate the biopsy and result in a false negative. Starting the gluten free diet now will allow the lining of the small bowel to begin healing and if enough healing takes place before the biopsy happens, there will be no damage to see. How far out is the endoscopy scheduled for? There still may be time for your husband to go back on gluten, what we call a "gluten challenge" to ensure valid test results.
    • kate g
      Ive read articles that there is stage 2 research being conducted for drugs that will limit damage to celiacs through cross contamination- how close are they to this will there be enough funding to create a mainstream drug? 
×
×
  • Create New...