Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused


Amooliakin

Recommended Posts

Amooliakin Apprentice

I read two things that seem to contradict each other. I'm wondering if they are both true but for different people.

One said that it is common to go gluten-free for a few years as a kid, then let gluten back in the diet with no symptoms. The book was explaining that no symptoms does NOT mean no Celiac disease. But I had not heard before of symptoms disappearing with age.

On the other hand, I hear a LOT from people who had less symptoms BEFORE going gluten-free and who find that after they have gotten all gluten out of their bodies they have a much STRONGER reaction to even tiny amounts.

So which is true?

Or can it be both?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

I believe it is both.

It makes sense because they describe celiac as a medical chameleon. Some people are 100% asymptomatic, others are debilitated and have every symptom, and most fall somewhere in between.

So yes, it is possible to have reactions sometimes, and others not. But, like you said, the lack of symptoms does not mean celiac is not there (proof: Asymptomatic celiacs with completely blutned villi)

And yes, some people who get gluten out get increasingly sensitive (I am a lucky one of those people).

mommida Enthusiast

Both are true.

In the old days, they thought children outgrew Celiac because the symptoms lesson.

Since going gluten free my symptoms of accidental glutening have been worse in my opinion. (To explain all of that would be TMI.)

L.

happygirl Collaborator

isn't it interesting what docs "used" to know...

Nantzie Collaborator
  happygirl said:
isn't it interesting what docs "used" to know...

Are you suggesting that leeches AREN'T gluten-free??? :lol:

I'm going to have to rethink my HMO...

B)

But seriously folks...

I think I read the same book. They said that during adolescence that the symptoms can lessen. I think at this point they're not sure if it's a true remission, where no celiac or intolerance is present and no damage is being done at all, or if it's still damaging you, but just not showing outward symptoms.

Nancy

Saz Explorer

I've never been somone to get sick on just a piece bread, however even I have always had my limits.

When I was younger my limit was a lot less than what was since I was prolly about 14, howver even I have been able to eat more gluten in my teens, I most def still have limits.

From what I have read tho, this doesn't mean its not hurting you - I think it is much like a smoker, Just because it doesnt effect you immediately doesn't mean that it is not doing any damage.

I have heard of people who are allergic to gluten but after following a gluten free diet for a year or so can eat it again and they don't have problems.

almostnrn Explorer
  mommida said:
Both are true.

In the old days, they thought children outgrew Celiac because the symptoms lesson.

Since going gluten free my symptoms of accidental glutening have been worse in my opinion. (To explain all of that would be TMI.)

L.

I had a clinical intstructor in nursing school try to tell me that this was the case with her. How do you correct your professor and the keeper of your clinical grade?! I tried to test the waters and she wouldn't hear of it...there was no way she could be wrong and her student was right. I let it go quickly, lol. Although that does explain a lot of her mental instabilities! :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

Danna Korn has mentioned "the honeymoon phase" in her book Kid's with celiac disease. There are other documented sources out there.

Wait until your grade is in, set in stone, and then drop off an information packet to this "teacher". ;)

L.

Amooliakin Apprentice

I know I am going off the topic now... but you bring up an interesting phenomenon. Now that I know about celiac, and we are taking care of our daughter in the right way, I find there are SO MANY adults who I meet who think they outrgrew celiac years ago, or their adult kids did, etc. They do not want to hear differntly - and I don't know them well enough to tell them the truth. I wish there was one simple booklet that I could hand out instead of trying to explain it or refer them to books they don't want to read or web sites they don't think they need....

Tim-n-VA Contributor

Doesn't some of the confusion come from the fact that you can outgrow an allergy and a wheat allergy could have very similar outward symptoms to celiac?

Lisa Mentor
  Tim-n-VA said:
Doesn't some of the confusion come from the fact that you can outgrow an allergy and a wheat allergy could have very similar outward symptoms to celiac?

Yes, most likely. Some many out grow an allergy, but an intolerance, never. <_<

lindalee Enthusiast

I was a celiac baby and thought I outgrew it until this year. I don't understand why symptoms are hidden. I have heard that smoking hides the symptoms.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,222
    • Most Online (within 30 mins)
      7,748

    Anica
    Newest Member
    Anica
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Ryangf
      I haven’t had any noticeable reactions to salt so I will continue using it. I think I just freaked out when I realized this but it doesn’t cause me any discomfort- so thanks!
    • plumbago
      Ok, thanks. I'm so glad to hear you are in the hands of a dermatologist. I hope he/she has given you 1) a diagnosis; and 2) a plan of care with a couple of options so that you have buy-in and comfort with it. I have some ideas, but not having seen the abscesses or you in person, it doesn't really make sense for me to kind of ... speculate further. But your question was regarding gluten, and you've gotten a couple of other follow up questions and answers that are good, including the idea to keep a food diary. Let us know if we can help further or answer any other questions. I'm sorry you're going through this, it sounds very painful.
    • LookingForAnswers101
      @plumbago They appear as boils. They are big, like the size of a nickel--quarter, and they hurt when I touch them. I have gone to the same derm for them over and over and she thinks my body is colonized by a bacteria, but even after using hibiclens all over my body they come back.
    • Scott Adams
      Welcome to the gluten-free community! It’s great to have you here. While gluten sensitivity or celiac disease can indeed cause skin issues, such as dermatitis herpetiformis (a blistering rash), abscesses in areas like the lower buttocks or thighs are less commonly linked directly to gluten. However, chronic abscesses could be a sign of an underlying immune or inflammatory condition, which might be worth discussing with a healthcare professional. Some people with gluten-related disorders also experience secondary issues like bacterial overgrowth or immune dysregulation, which could potentially contribute to recurrent infections. It’s always a good idea to explore all...
    • trents
      You say you have gluten sensitivity? Have you been officially diagnosed with celiac disease or do you refer to NCGS?
×
×
  • Create New...