Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fyi... Benefiber NOT gf anymore


MySuicidalTurtle

Recommended Posts

MySuicidalTurtle Enthusiast

My Mom uses Benefiber and on the new one she bought it says:

Ingredients: Wheat dextrin

Gluten Free (less than 10ppm gluten)

What is this about?!?!? I told her not to take it but what should she do? I thought dextrin from corn was okay but dextrin from wheat is not.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guhlia Rising Star

I wouldn't take it. Even if she doesn't get a reaction from it, the low levels of gluten may add up and cause damage (if they don't just cause the damage immediately). I would definitely steer clear.

debmidge Rising Star

We ran into this situation last week and didn't know what to make of it. We used to buy it before this "re-formulation".

My understanding is this is how they classify foods as gluten-free in Europe - so many parts gluten per million or something like that.

Despite this, we are not purchasing the new Benefiber. Does anyone know of a substitute (other than Metamucil)?

MySuicidalTurtle Enthusiast

What I don't get is how the ONLY ingredient is wheat dextrin and how that would be too little to cause a reaction.

Judyin Philly Enthusiast

HI all

This freaked me out so i went and got my old bottle of the power..it said ingred...partially (?) such tiny print can't read that word but after that word is --hydolyzed guar gum (100% natural fiber) and it expired 6/06 so there must me a new formulation as was stated above.

I'd love to hear if anyone called the company. i know the pills were not gluten-free when i started back in june of 05.

judy in philly

debmidge Rising Star

I wrote to Novartis today about this topic (their website did not have an email address - only mail address & phone number) and stated that I understand that to them that 1 part of gluten to 1,000,000 parts of the whole is considered gluten free, but to us it's still unacceptable. I told them to visit our message board and view what people with celiac disease say about products which have wheat/gluten as ingredients.

Advised them that some people with celiac rely on these type of products for most of their fiber. And that we will not buy a product which states GLUTEN FREE when wheat is a component.

So I suppose they'll respond shortly with a form letter.

Now we are looking for substitute products.

Judyin Philly Enthusiast

dEB, THANKS FOR WRITING THE COMPANY!

JUDY


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
AmandaD Community Regular

I just got my most recent newsletter from local celiac group. I guess Benefiber will no longer be gluten-free.

Budew Rookie

Thanks for the heads up. I guess I wil be looking for Guar Gum at the health food store from now on.

AmandaD Community Regular

Yeah, I guess they're going to start putting "wheat dextrin" in it from now on...

  • 2 weeks later...
debmidge Rising Star

Benefiber now uses wheat starch in their formula. They claim it's gluten free as it's so many small parts per million. We reject this and no longer will buy Benefiber as we feel that the old formula served its purpose and no changes were needed.

We have been calling Novartis Home Health (manufacturer) and writing to them to state our decision and feelings on this.

Has anyone else been affected by this change and have you contacted Novartis as well?

For us this is a serious change as my husband cannot eat fruits and vegetables and relies almost solely on fiber supplements for his fiber.

  • 2 years later...
Hdugas Newbie

I was diagnosed three years ago as an asymptomatic celiac patient. My father has celiac and so the whole family was tested, but I have never had bad symptoms; maybe one or two times in my life. Even so, I've been gluten free since my diagnonsense, as I call it, and honestly feel fine.

I started a weight loss regime this year and included Benefiber to ensure that I got enough fiber. I have not had any reactions, but then again, I didn't have any after defiantly driving through Arby's and wolfing down a Beef and Cheddar with curly friends either.

Further, my dad has typical symptoms and he takes Benefiber as well. As in all things related to a gluten free diet, I say test it out for yourself.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,210
    • Most Online (within 30 mins)
      7,748

    Sharon Camden
    Newest Member
    Sharon Camden
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
    • trents
      Jason, I have a bone to pick with your terminology. There is "gluten intolerance" which I believe is synonymous with celiac disease and then there is "gluten sensitivity" which comes from Non Celiac Gluten Sensitivity or NCGS for short. It is true, however, that there is still a lot of inconsistency in the use of these terms.
    • Liquid lunch
      I can’t say this will work for everyone but for me the difference is incredible so might be worth trying. I’ve never been diagnosed celiac but via an elimination diet I realised I can’t eat any lectins, gluten soy and oats are particularly problematic. If I eat them I’m in bed for a week, then heavy bleeding and extreme pain for another, followed by a third week of bleeding on and off. My skin was a mess and it snowed when I brushed my hair. Since taking reishi and cordyceps mushroom tincture I can’t believe the difference, I’ve had a lot of help from this site so I want to return the favour. I took the tincture for my guts but the most apparent effect is that I feel like my brain works again, I can’t begin to describe how wonderful it is to be able to achieve basic things, I’ve barely been able to organise getting out of bed for so long, it feels like I haven’t been hit over the head with a mallet for the first time in years. Then I glutened myself, not necessarily gluten as so many things wipe me out but definitely ate something I shouldn’t have, I took a treble dose of the tincture and almost immediately felt much better so continued with the increased dose and three days (not weeks) later was back to feeling great, no bleeding involved. My skin is better than I can remember it ever being, I feel great 😊. I spend £1.50 a day on these but it’s worth every penny, I hope this helps someone else out there reading this. I wish I’d known about them 20 years ago. best wishes everyone 🍄 
    • Scott Adams
      Given your history of a high TTG (167) that decreased to 16 on a gluten-free diet, along with genetic confirmation of celiac disease, it’s likely the negative biopsy is a false negative due to not eating gluten before the endoscopy. Gluten is necessary to trigger the intestinal damage seen in celiac disease, and avoiding it can lead to healing and a normal biopsy despite ongoing immune activity (reflected in your still-elevated TTG). The inflammation observed during the endoscopy (“diffuse moderately erythematous mucosa”) could be residual damage, mild ongoing inflammation, or another condition like peptic duodenitis, but it’s consistent with celiac disease in context. Continued positive blood markers suggest ongoing gluten exposure, possibly from cross-contamination or hidden sources. Strict adherence to a gluten-free diet and follow-up testing are key to managing symptoms and reducing inflammation. Discuss these findings with your doctor to confirm the diagnosis and refine your dietary approach. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Yes, it sounds like great progress, but what was the time frame between the two endoscopies? 
×
×
  • Create New...