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Organization For Catholic Celiacs


HawkFire

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Open Original Shared Link

Open Original Shared Link

Here is a link to a trifold brochure you may print out and bring to your catholic church. It will assist you in speaking with your priest. It seems helpful for those who wish to continue particpating in catholic ceremony.


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    • Scott Adams
      I'm not making any claims about what your issue is regarding you issue with saltiness, I only wanted to dispel the claim that histamines have a salty taste. Most foods, particularly in the USA, are in fact, too salty. The spike in overly salty foods that has occurred in the USA since the 1950's junk food explosion has caused many foods to be overly salty, and has changed our taste buds to not be able to recognize this. If friends or family visit me from Europe or Asia, some of them notice this right away, but as American junk foods have spread worldwide, less people notice this issue, as it is becoming a worldwide issue.
    • trents
      Welcome to the forum, @KCGirly! From Wikipedia on Semaglutide: "The most common side effects include nausea, vomiting, diarrhea, abdominal pain, and constipation." How much gluten are you consuming daily? Recently revised recommendations are for the daily ingestion of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for at least 2 weeks prior to celiac disease testing, either via blood antibody tests or endoscopy/biopsy in order to ensure valid test results. Your GI doc's instructions barely fit into that time window. I hope it is sufficient to yield valid biopsy results. About your episode(s) after reintroducing gluten on 12/23 after starting a gluten free diet on 11/29. You stated at the outset of your narrative that historically these episodes occurred about every two weeks and that was before you trialed the gluten free diet. I would point out that you had only been eating gluten free for three weeks before the episode on 12/23. So, I'm not sure you can attribute that episode to the return to gluten consumption.  In addition to celiac disease, there is another gluten-related health issue known as NCGS (Non Celiac Gluten Sensitivity). NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten from your life is the antidote for both. Also, can you specify which test or tests for celiac disease were ordered by your GP? There are a number of serum antibody tests that can be run in order to detect celiac disease but many physicians will order the minimum instead of a more extensive panel. What one test misses, another may catch.
    • KCGirly
      Back in September I started Semaglutide for weight loss. Shortly after starting I started having stomach issues - vomiting, diarrhea, red itchy palms and elevated heart rate.  I would have The episodes were every two weeks or so.  I stopped taking the semaglutide, but continued to have episodes.  GP ran bloodwork all normal, including celiac.  Ordered a stomach emptying test it was normal too.  The itchy palms stumped him.  So he ordered blood allergy test all came back normal no allergies. He had me go gluten free 11/29.  Finally got into a GI doc on 12/16.  She wanted me to reintroduce gluten back in my diet on 12/23 and then have scope on 1/8.  Well, 5 days in with gluten, I had an episode. I’m not sure I can keep eating gluten for 10 more days.  I have PTSD thinking about possibly having an episode(s) again.  Anyone going through this? Or have thoughts/suggestions?
    • emily 1
      Very helpful. Oh yes, I am quite fastidious about not falling off the diet. It's just that the list of things I must add to the restrictions seems to grow.   
    • Barcino
      I know this post is old but was wondering if you ever resolved this. My son is in the same situation. Villi healed but gastritis / duodenitis remain and calprotectin elevated. Now testing for crohns which I am freaking out about. 
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