Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pancreatitis, Gall Bladder Sugery, Thyroid

TCA

By TCA
in Related Issues & Disorders

Recommended Posts

TCA Contributor
TCA
Posted

My aunt, who I suspect has celiac disease, is in the hospital and very ill. going to have her gall bladder out tomorrow. Has had pancreatitis for about a month now. She's suffered from thyroid issues for over 40 yrs. She had a duodenal ulcer that almost killed her about 30 years ago. She also has fybromyalgia and a host of other problems. she is such a strong person and I'm really concerned. She is opened to being tested, but her dr. doesn't think it's a possibility. I think she's a prime candidate. anyone here know of any papers I can point her to? Thanks for your help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Several of those conditions she has have been linked to Celiac disease. Just do a search in Google for "Celiac disease and thyroid, Celiac disease and ulcers, Celiac disease and fibromyalgia, " etc.

Steve

jesscarmel Enthusiast
jesscarmel
Posted
My aunt, who I suspect has celiac disease, is in the hospital and very ill. going to have her gall bladder out tomorrow. Has had pancreatitis for about a month now. She's suffered from thyroid issues for over 40 yrs. She had a duodenal ulcer that almost killed her about 30 years ago. She also has fybromyalgia and a host of other problems. she is such a strong person and I'm really concerned. She is opened to being tested, but her dr. doesn't think it's a possibility. I think she's a prime candidate. anyone here know of any papers I can point her to? Thanks for your help.

i dont know of any papers but i had pancreatitis in january and from that eventually got my celiac diagnoses. my gastro said its common for undiagnosed celiacs to get pancreatitis. it was the worst thing ever- i was sooo sick. lots of ppl who are celiac have had pancreatitis before. i hope she feels better. tell her to get tested regardless of what her dr thinks. i never thought i would have it in a million years and my gastro told me just to do the test.

- jess

edit- found this

Open Original Shared Link

Open Original Shared Link

Lauren M Explorer
Lauren M
Posted
i dont know of any papers but i had pancreatitis in january and from that eventually got my celiac diagnoses. my gastro said its common for undiagnosed celiacs to get pancreatitis. it was the worst thing ever- i was sooo sick. lots of ppl who are celiac have had pancreatitis before. i hope she feels better. tell her to get tested regardless of what her dr thinks. i never thought i would have it in a million years and my gastro told me just to do the test.

- jess

Oh my Gosh, Jess, your post could have been my own! That is EXACTLY how my diagnosis went! Pancreatitis is the most painful thing I have ever experienced! And as I was getting better (still undiagnosed w/Celiac, mind you), all I ate was graham crackers. I would eat a HALF of a single graham cracker and be sooo bloated and uncomfortable. This went on for awhile, so they eventually did a scope to check my pancreas, which was fine, but then found that my intestines were the issue. They took biopsies, and the rest is history.

Sorry for the life story, I've just never heard of someone who was diagnosed in the same way as I was!!!

- Lauren

georgie Enthusiast
georgie
Posted

That's amazing. I had a severe attack of something that seemed to be either Gall or Pancreatis 2 years ago. By the time I got to a Gastro ( 6 weeks ) I was better again. He didn't do any tests then - as I was OK and just said to come back if it happened again. It was one of the scariest and most painful things I have had go wrong. I would never have connected it with Celiac.

jesscarmel Enthusiast
jesscarmel
Posted
Oh my Gosh, Jess, your post could have been my own! That is EXACTLY how my diagnosis went! Pancreatitis is the most painful thing I have ever experienced! And as I was getting better (still undiagnosed w/Celiac, mind you), all I ate was graham crackers. I would eat a HALF of a single graham cracker and be sooo bloated and uncomfortable. This went on for awhile, so they eventually did a scope to check my pancreas, which was fine, but then found that my intestines were the issue. They took biopsies, and the rest is history.

Sorry for the life story, I've just never heard of someone who was diagnosed in the same way as I was!!!

- Lauren

hi lauren

that is so crazy. i was sooooooooo sick i thoughi would die from the pancreatitis. i also only ate crackers and pasta when i was trying to heal. my mom feels so bad she was feeding me "poison". i was only getting mildly better so i begged my dr to refer me to a gastro. when i got there he immediatly guessed celiac and that was it. since then my dad has also been diagnosed. its nice to know someone else has the same story :)

Jess

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,794
    • Most Online (within 30 mins)
      7,748
    MarciO
    Newest Member
    MarciO
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Manaan2
      Hidden Gluten in distilled vinegar

      By Manaan2 · Posted

      Hi Trents-Thanks for reading and sharing insight.  We need all the help we can get and it's super appreciated.  She is currently dairy, soy and oat free and those have mostly been completely excluded from her diet since the diagnosis (we tried going back on dairy and oats at different times for a bit, didn't see a significant difference but have now cut out again just to be extra safe since her issues are so persistent.  We did cut eggs out for about 3 months and didn't notice significant difference there, either.  The only one we haven't specifically cut out completely for any portion of time is corn, however, we've kept it minimal in all of our diets for a long time.  She definitely goes 3-4 weeks without any corn products at times and still has issues, but I'm guessing that's not long enough to confirm that it isn't causing issues.   We could definitely try to go longer just to double check.  Thanks again!   
    • Jordan23
      Potato Intolerance

      By Jordan23 · Posted

      Ok so know one knows about cross reactions from yeast,corn, potatoes, eggs, quinoa ,chocolate, milk, soy, and a few more I forgot.  There all gluten free but share a similar structure to gluten proteins. I use to be able to eat potatoes but now all of a sudden I was stumped and couldn't figure it out when I got shortness of breath like I was suffocating.  Then figured it out it was the potatoes.  They don't really taste good anyways. Get the white yams and cherry red 🍠 yams as a sub they taste way better. It's a cross reaction! Google foods that cross react with celiacs.  Not all of them you will cross react too. My reactions now unfortunately manifest in my chest and closes everything up . Life sucks then we die. Stay hopeful and look and see different companies that work for you . Lentils from kroger work for me raw in the bag and says nothing about gluten free but it works for me just rinse wellllll.....don't get discouraged and stay hopeful and don't pee off god
    • K6315
      Newly gluten free… withdrawal?

      By K6315 · Posted

      Hi Lily Ivy. Thanks for responding. Did you have withdrawal? If so, what was it like and for how long?
    • trents
      Can I trust the gluten free label if a product was made in a facility that also processes gluten?

      By trents · Posted

      Welcome to the forum, @Doris Barnes! You do realize don't you that the "gluten free" label does not mean the same thing as "free of gluten"? According to FDA regulations, using the "gluten free" label simply means the product does not contain gluten in excess of 20 ppm. "Certified Gluten Free" is labeling deployed by an independent testing group known as GFCO which means the product does not contain gluten in excess of 10 ppm. Either concentration of gluten can still cause a reaction in folks who fall into the more sensitive spectrum of the celiac community. 20 ppm is safe for most celiacs. Without knowing how sensitive you are to small amounts of gluten, I cannot speak to whether or not the Hu Kitechen chocolates are safe for you. But it sounds like they have taken sufficient precautions at their factory to ensure that this product will be safe for the large majority of celiacs.
    • Doris Barnes
      Can I trust the gluten free label if a product was made in a facility that also processes gluten?

      By Doris Barnes · Posted

      Buying choclate, I recently boght a bar from Hu Kitchen (on your list of recommended candy. It says it is free of gluten. However on the same package in small print it says "please be aware that the product is produced using equipment that also processes nuts, soy, milk and wheat. Allergen cleans are made prior to production". So my question is can I trust that there is no cross contamination.  If the allergy clean is not done carefully it could cause gluten exposure. Does anyone know of a choclate brand that is made at a facility that does not also use wheat, a gluten free facility. Thank you.
×
×
  • Create New...