Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cnn Special On Celiac Tomorrow ?


Judyin Philly

Recommended Posts

Judyin Philly Enthusiast

HI ALL

JUST GOT THIS ALERT ON GOOGLE..

Quote:

Here is advance notice that CNN will be doing a live television broadcast on celiac disease this coming Monday:

CNN Newsroom with Heide Collins

Monday, November 13

11:30 am EST

ANYONE KNOW ANYTHING ABOUT IT?

HOPE IT'S TRUE

JUDY


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 114
  • Created
  • Last Reply
happygirl Collaborator

hadn't heard anything, but that is great! I'll be at home, watching!

thanks, judy!

jerseyangel Proficient

Wow Judy--thanks for letting us know--I'll be watching. (Gotta write myself a note....) :D

Canadian Karen Community Regular

Thanks Judy!

E-mail me a reminder - I don't want to miss it!

Hugs.

Karen

jaten Enthusiast

That's great! Gonna set the DVR :)

Judy, how do you have your Google Alerts set so that you received this? I just started Google Alerts today, and I think I set it for keyword: Celiac, and "news" as the media I am interested in.

Thanks for the info!

Judyin Philly Enthusiast

YOU KNOW--I HONESTLY CAN'T REMEMBER HOW I DID IT!!!

celiac3270 TAUGHT ME THE FIRST TIME AND JEN VAN DID IT FOR ME THE LAST TIME MY EMAIL CHANGED.

MAYBE SOME ONE KNOWS HOW IT WORKS.

SORRY

JUDY

Canadian Karen Community Regular

They just mentioned it on CNN! They will be having an expose on Celiac Disease this morning!!!!

They just said that they want people to e-mail their questions now to cnn regarding celiac disease!! They also said they will be talking to a leading doctor in celiac disease!

Can't wait!

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadian Karen Community Regular

cnnnewsroom@cnn.com

They said that's where you send your questions too...... if anyone is interested.

Karen

Guest nini
cnnnewsroom@cnn.com

They said that's where you send your questions too...... if anyone is interested.

Karen

but I already know it all... why would I need to ask any questions??? LOL!!!! ;)

jerseyangel Proficient

:lol: Nini--you're funny! I'll bet we could contribute a thing or two B)

I'm so excited about this--I set the TIVO, but of course plan to watch it live.

It's still 11:30--right Karen?

Guest nini
:lol: Nini--you're funny! I'll bet we could contribute a thing or two B)

I'm so excited about this--I set the TIVO, but of course plan to watch it live.

I've got the vcr set to record it... Hubby said I should e-mail them and ask about the conspiracy theory of since all wheat is technically genetically modified and the Catholic church only accepts wheat in the host, is the Catholic church behind keeping Celiac under wraps??? LOL...

I told him, uh no... that's just silly...

Lisa Mentor

:( I have a funny feeling that it's going to get bumped :(

at least at the 11:30 seg.

Lisa Mentor
:( I have a funny feeling that it's going to get bumped :(

at least at the 11:30 seg.

Just heard a bleep, and very glad to be wrong. :D

Nantzie Collaborator

This is SOOO cool!!

Lisa Mentor

Celebrity on Board!!!!! Yes

Canadian Karen Community Regular

Awesome! She stated she has celiac disease! Finally, we have someone coming out to say they have it! Hurray!

Karen

Corkdarrr Enthusiast

I thought they did a pretty good job - I'm happy the CNN news anchor has Celiac!

(Not happy that she has it, but happy that someone in the media spotlight came forward and talked about their own experiences!)

jerseyangel Proficient

That was great!!! My husband just happens to be home today, and he thought so, too.

I love how Heidi said that now they will scream it out so people will know about this. Wow :D

Judyin Philly Enthusiast

just watched and it was good. sounds like she might be doing more on this since she has it herself.

wish they'd addressed the 'over-weight' w/ celiac part.

Lisa, were there to be additional segments you know about?

judy

Corkdarrr Enthusiast

I do think the picture of the third world child was dramatically unnecessary...I wish they'd focused more on all the different symptoms and how they manifest themselves. But I'm glad they talked about misdiagnosis and how slack this country's physicians are.

Skipping class today was totally worth it to hear about Celiacs on a major news network! :P

Deej Newbie

This was a very refreshing experience. It seemed to me that Heide and her physician are determined to bring this to the public's attention (and keep it there!). I was so gratified that he had the statistics about how many of us are misdiagnosed (and for so many years!). It was also important that they focussed on the damage that can be done by not being compliant. Bravo to CNN!

Guest nini

It was good, any publicity is good, but Peter Green is one that still sticks to the biopsy as gold standard, AND he stated equivocally that if you get hives from gluten you can't have Celiac, that is just not true. Also, I wish they had done more about the obesity aspect.

Nantzie Collaborator

Wow!!! The only thing I didn't like was Dr. Green saying it was the gluten-free diet was difficult. I don't think it is at all, as long as you eat at home. I guess it might be different for someone like the anchorwoman, who I"m sure was used to eating out quite a lot.

Maybe we can get her to do a segment in the future on all the yummy gluten-free foods out there.

Other than that, I thought it was amazing.

Nancy

Lisa Mentor
just watched and it was good. sounds like she might be doing more on this since she has it herself.

wish they'd addressed the 'over-weight' w/ celiac part.

Lisa, were there to be additional segments you know about?

judy

Don't think so Judy, I just thought it might get bumped for this live news conference.

L

AmandaD Community Regular

Guys - I missed it - who was the celeberity with celiac?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,019
    • Most Online (within 30 mins)
      7,748

    allis
    Newest Member
    allis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      I also have experienced this from time to time.  It seems to tie in with episodes of IBS, eating too much fibre but also because I have issues with my pudendal nerve - perhaps some sort of inflammation.  Not fun at all when it strikes.
    • trents
      Do the skin care products that give you a rash list wheat as an ingredient or are you assuming from your reaction that they contain gluten? It is possible that not only do you have celiac disease, which is not an allergy but an autoimmune disorder, but that you also have a wheat allergy.
    • allis
      Thank you, I’m very happy to be here!! Yes, lately I get rashes and itching when I accidentally use topical skin products with gluten in them. I got a bad rash around my hairline after unknowingly using glutenous hairspray, and a near-full-body rash with a sea salt spray that I guess I rinsed off insufficiently in the shower. Neither looked like typical dermatitis herpetiformis to me based on the posts I’ve read here—both were just large patches, red and slightly raised, with no blisters to speak of. At least yet. The sea salt spray was used yesterday and I noticed the itching this morning, with the rash forming obviously by this afternoon and evening. 
    • Sarah Marie
      Thanks so much for your thorough reply! I was able to schedule with the local pediatric gastroenterologist who specializes in celiac but we have to wait 3 months to see her. 
    • trents
      Sorry, meant to type "or dermatitis herpetiformis for short". What? Every time I try it, the abbreviation for this skin condition is converted to the full length term. I'm trying to type "D" followed by "H". 
×
×
  • Create New...