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New Mexico Celiac Support Group

Rad3737

By Rad3737
in Meet Up Room

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Rad3737 Rookie
Rad3737
Posted

Just discovered a vital Gluten Intolerance Support Group in the Albuquerque area. The contact person is: Marilyn Johnson at marilynyj@comcast.net. Annual dues are only $10.00.

Dianna

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    • trents
      6 week challenge; How much gluten?

      By trents · Posted

      Okay, then. It definitely looks like TTG-IGA to me and your score far exceeds the 10x or greater that is becoming the new standard for official celiac disease diagnosis criteria without biopsy.  Talk to your physician about this.  
    • Pinkdoglady
      6 week challenge; How much gluten?

      By Pinkdoglady · Posted

      Thank you the reference range was 0.1 to 3.9
    • trents
      6 week challenge; How much gluten?

      By trents · Posted

      Do you have a reference range for the Serum Tissue Transglutimate? Different labs used different reference ranges so just giving the raw score of >100 is necessarily helpful. And the terminology they employed for that one is unusual. So, I'm not sure if they are referring to what we call "total IGA" or what we abbreviate normally as TTG-IGA? I think it is the latter and the "greater than" symbol suggests it exceeded the scale they were using. If I'm correct in this assumption, that is a very strong indicator of celiac disease and may qualify you for an official diagnosis without an endoscopy/biopsy. It is becoming increasingly common in Europe and the UK to declare an official diagnosis of celiac disease when the TTG-IGA score is 10x normal or greater. But that aside, your endomysial antibody IGA is positive and that is the most accurate test available for celiac disease. It's a more expensive test to run and isn't run as often as it used to be. It has largely been replaced with the TTG-IGA. There is no question in my mind that you have celiac disease. You might want to confer with your physician for greater clarity as well as options.  
    • trents
      TTG-IGA Question

      By trents · Posted

      Welcome to the forum, @alannahP! Excellent question but I don't know that I have ever seen any TTG-IGA score be "0". But then again, I only see TTG-IGA scores of people who have celiac disease. It would be interesting to know if people who don't have celiac disease would necessarily have a "0" TTG-IGA score or if a very low TTG-IGA score is normal for non celiacs. In other words, is a little TTG-IGA antibody count normal as part of the total IGA antibody immune spectrum? We also know that elevated TTG-IGA scores can be caused by some other health issues since it is less than 100% specific. I would be careful here not to obsess over this.
    • Pinkdoglady
      6 week challenge; How much gluten?

      By Pinkdoglady · Posted

      Hi my blood result were Ser Tiss transglutimate >100 for the endomysial antibody lga is just says positive I don’t know how celiac this makes me    
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