Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For Those Of You Who Have/had Reflux Problems


AliceW

Recommended Posts

AliceW Apprentice

Hi all,

I don't know if any of you remember my previous posts, but I'm in the process of exploring a possible link to gluten for my chronic, severe reflux and gas/bloating/constipation problems.

I was tested by enterolab and my results came back positive for gluten intolerance--Fecal Antigliadin IgA 27 (Normal Range <10 Units), Fecal Antitissue Transglutaminase IgA 33 Units (Normal Range <10 Units), but no malabsorption (Quantitative Microscopic Fecal Fat Score 132 Units [Normal Range <300 Units]).

I'm now pursuing conventional medical testing for celiac disease. I have an appointment with a good GI doc, and plan to request the correct full celiac panel and will ask that the bloodwork be done at an experienced lab. If those results come back positive I will get a biopsy.

However, I have also decided that based on my enterolab results, I want to do a prolonged gluten-free trial diet to see if it will help my symptoms regardless of the results of the conventional testing. So my question is: how did it take for you to see an improvement in your reflux symptoms? If I see improvement I will continue with the diet indefinitely, but if I don't I want to be sure I give it enough time before I decide that it's not helping.

Thanks for any insight you can provide!

Alice


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

I was very ill by the time I was dx'ed and it took at least 6 months for the reflux to subside enough that I didn't have to take prescriptions anymore for it.

marciab Enthusiast

Mine was related to saturated fats like butter and any cooked oil. I don't know why, but these come right back up on me. The buttered popcorn at the movies was the worst. I can have raw healthy fats though like EVOO, flax and grapeseed oil ... who knows ... hope this helps ... marcia

Guest cassidy

It took me about 3 months for my reflux to go away. Now when I'm glutened it lasts for about 3 weeks, my longest lasting symptom.

I stopped taking medicine because it didn't help. I had surgery for reflux as a child and it came back a few years ago, so I really had bad reflux but my aciphex twice a day wasn't working.

I tried apple cider vinegar. I was desperate and gave it a try. I swallowed a couple of tablespoons which was gross, but it went away in like 20 minutes. So, I got some apple cider vinegar tablets. I didn't try this in the beginning when I was just gluten-free because I didn't know about it. Now, when I get glutened I take some of those and they work for several hours at a time. I take more than the bottle says and the health food store said that was ok.

Orange peel tablets where you take one every other day for 10 days didn't do anything for me, I don't recommend those.

Digestive enzymes help some as well.

super-sally888 Contributor

Hi,

I just started gluten free this week and my doctor put me on omeprazole (proton pump inhibitor) for the next month for reflux/hyperacidity. I currently have NO reflux symptoms. This is really good (and probably a result of diet) because previously I was on omeprazole and IT DIDN'T HELP.

I think it would take some time for the reflux to recover... but at least now it is manageable with medication... Will let you know in a month if it really is better. :)

Sally

maribeth Apprentice

I've been gluten free for about a month and have reflux acid but have noticed an improvement in the past week. I don't take losec anymore as I find it didn't really help me anyway.

par18 Apprentice

For me it was pretty much right away (couple of days). Bloating, gas, D and reflux cleared up pretty much together. Maybe the fact that the gut, stomach and esophagus are all connected together has something to do with it.

Tom


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SchnauzerMom Rookie

One of the things that led me to try a gluten free diet was severe acid stomach. I take medicine for it but I would still get sick if I ate a slice of bread or anything else with gluten in it. My stomach is happy now since I've been off gluten but I still have to take the meds. Hopefully in a few months I'll be able to stop them.

Terch Apprentice

Hi,

It's been two months since I have been gluten free and have weaned myself off of Nexium, 40mg. I couldn't go two days without the nexium previous to this. It's been over three weeks since I took my last one and I am doing GREAT!!!!!!!!!!!!!

I had a negative biopsy for celiac, and no bloodworkdone but I am having an amazing dietary response to being gluten, soy and lactose free. I wish you luck, and hope that you find some relief with the diet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to emily 1's topic in Coping with Celiac Disease
      6

      Black Pepper Reactions

    2. - dixonpete commented on dixonpete's blog entry in Pete Dixon
      8

      A video with researcher William Parker about Helminthic Therapy

    3. - Mari replied to dlaino's topic in Coping with Celiac Disease
      6

      Coping with celiac

    4. - trents replied to Tyoung's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Increasing symptoms after going gluten free

    5. - Tyoung posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Increasing symptoms after going gluten free


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,002
    • Most Online (within 30 mins)
      7,748

    Paula Tyree
    Newest Member
    Paula Tyree
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Emily, What you described is very similar to what I experienced in coping with Celiacs. I think my first symptoms started when I was about 3 and I wasn't diagnosed until I was almost 70. I got along OK util I was about 30  when I began to have more problems that the Drs thought was an autoimmune problem that they couldn't identify. Then I worked in medical labs in Bolivia for 8 months and returned to the US with more problems such as sensitivities to chemicals and increasing food intolerances. I had always had canker sores in my mouth and nose but have not had any now  since I went strictly gluten free. Before I was gluten-free I became very sensitive to hot peppers and then I could not eat anything spicy such as cinnamon, turmeric or black peppers. I have not eaten any nightshades for years. No corn or soy.  My diet now is lamb stew with rice, squash, green beans, chard, kale, collards with salt. Then eggs , chard, spinach, black beans, summer squash, asparagus, rice and salt. I eat peanuts for snacks. I have been eating nuts but may have to stop. Coconut is OK but too much sugar is not.  I am very cautious about adding back foods to my diet but hope to add back small amounts of turmeric. Take care.
    • Mari
      mcg Vit. B12Hi dlaino  - You mentioned that you are now feeling sick all the time. If this is making you miserable you might want to go to your health provider, describe what you are feeling and your symptoms so that theySome of the people here can give you useful advice about taking supp;ements and the amounts you could take to improve your overall health. I have increased my Vit. B12  can help you figure out what is happening. Just because you have gluten intolerance does not mean that your current problems are related to that. Some of the people here can give you useful advice about supplements and how much to take for improved health. I recently upped my Vit. D3 from 50 mcg to 150 mcg and now take either 500 mcg or 1000 mcg of vit. B12 sublingual daily instead of once a week.                                    Take care
    • trents
      Welcome to the forum, @Tyoung! It is possible that you are experiencing some kind of gluten withdrawal but I would thing that would have started to subside by now. There are a couple of possibilities that come to mind. One is the polysaccharide ingredients that are typically found in prepackaged "gluten-free" wheat flour facsimile foods. If you read the ingredient lists of such foods you will usually find things like guar gum and xanthan gum. Their function is to give the product a texture similar to wheat flour but they are hard to digest and give many celiacs digestive issues. I mention this not knowing if you are relying on prepackaged gluten free food items to any extent or are just choosing carefully from mainstream naturally gluten free food items. Another is that your body is just going through adjustment to a major dietary change. Wheat is a significant component to the typical western diet that supplies certain nutrients and some fiber that has now been withdrawn suddenly. Are you experiencing any constipation? Also be aware that foods made from gluten-free flour are typically devoid of nutritional value. Wheat flour is mandated by government regulations to be fortified with vitamins but gluten-free flours are not. It can be smart to compensate for this with vitamin and mineral supplements. Still another possibility is that in addition to being gluten intolerant, your also have other food intolerances. One small study found that 50% of celiacs reacted to dairy like they do gluten. That number may be on the high side in reality and more research needs to be done. However, it is true that dairy intolerance is very common in the celiac community. Another common "cross reactive" food is oats. There are certain foods whose proteins closely resemble gluten and cause the same reaction. About 10% of celiacs react to the protein "avenin" in oats like the do the protein gluten. You might try eliminating dairy and oats for a few weeks and see if your symptoms improve.
    • Tyoung
      Before my diagnosis I would consider myself pretty much asymptomatic other than a few flare ups of what I previously thought were ibs symptoms. After having iron deficiency as well I had a positive blood test and EGD. I have now been gluten free for about a month but my symptoms have gotten worse. I now have bloating, acid reflux, and pain in the upper abdomen on and off most days. I am pretty positive I am not being glutened as we overhauled our whole house to be gluten free and haven’t eaten out since the diagnosis. Has anyone else experienced a worsening of symptoms after going gluten free? Will it subside? Or is there something else I should be concerned about. Thank you! 
    • RMJ
      That is strange.  Other pages talk about testing. The one thing I like about GFCO is that the handbook for their certification process is available on their website.  I may not agree with the whole process, especially the reduced testing, but at least I can see what the process is. I wish the other certifying organizations would publish their processes. GFCO 2024 manual
×
×
  • Create New...