Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Get A New Gi Doc?


Helena

Recommended Posts

Helena Contributor

My GI doc is a lot better than others I've heard about. He suggested testing for celiac within the first few minutes of the appointment although my symptoms were mild----he ordered a blood test then and there but warned me that it would not be accurate because I was on a virtually gluten free diet already. After I was on gluten for awhile for testing purposes, he recommended cancelling the biopsy (long story here) and affirmed my decision to go gluten free (especially after the blood tests were more positive when he repeated them.)

So far so good. But now it doesn't seem to me that there is much of a point in going to follow up appointments. I was surprised that he didn't order tests for nutritional deficiencies---I asked my family doctor to do that for me. She didn't order the tests for the fat soluble vitamins, however. I later asked my GI doctor about those tests specifically--he did order some tests but not for vitamins A and D like I expected.

I'm not sure I even need to worry about nutritional deficiencies at this point because all of the tests (including the bone densitrometry) have come back normal. But I'm not sure what the point is to go to follow up appointments if they just consist of him asking me how I'm doing. ?? How experienced can he be with celiac patients if he doesn't test them for nutritional deficiencies after diagnosis?

Then again, I don't want to go to someone else who insists on me having the biopsy . . .


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

my gi didn't have me do any follow up with him, I do all my follow ups with my primary care dr.

Mountain Mama Rookie
my gi didn't have me do any follow up with him, I do all my follow ups with my primary care dr.

Same here. He sent me a letter that states I have celiac in case I need it for traveling or something and he called me a few times and told me to follow up with my reg dr. She tested my iron and vit d and stuff and told me to take perscrip iron and come back for a blood test in 3 mos.

Guest cassidy

If you are concerned about specific tests you could always call and leave a message for the nurse who can ask the doctor about it. I wouldn't see the point of going back if he is just going to check up on you.

My doctor didn't order an additional tests at all either. I wanted to get pregnant and asked if there was anything that we had to check and he said no, so I guess most people don't commonly test you for things.

Helena Contributor

Thanks for the replies. It makes me feel better knowing that other GI doctors don't tend to order these tests either. I do tend to rely on specialists rather than my family doctor . . . especially now that I don't have one (I moved recently--there aren't any doctors taking patients in the area.)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,138
    • Most Online (within 30 mins)
      7,748

    kfkynett
    Newest Member
    kfkynett
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sh00148
      Thank you. That’s all really helpful. I think it must have been something she ate as the poo colour has settled now.    Starting to see improvements in her tummy, slowly but surely!
    • Yaya
      I take all vitamins and supplements.  My cardiologist has me taking B12 5,000 once per weeks.  He gives me complete blood work every 6 months.  He's still building my D levels which is now in 60s.  He wants them in low 80s.  I take 5,000 IU's daily.  With this dosage I've gone from 42 to 65 over a period of about 5 years.  It builds very slowly.   As far as iron, I take a double dose of gentle iron with C on an empty stomach on alternate nights.  Yes, iron is a component for many of us with RLS, but mostly "brain iron" that in some people may require iron transfusions.   
    • trents
      The positive DGP-IGA indicates the possibility of celiac disease. It is typical for someone who does have celiac disease to have some antibody tests be negative and others positive. This is not unique to celiac disease diagnosis. It is why doctors typically run many tests when seeking diagnosis of a suspected disease.  The DGP-IgA test is considered to have high sensitivity and specificity. In general, the DGP-IgA test has been reported to have a sensitivity ranging from 75% to 95% and a specificity ranging from 90% to 100%. Overall, the DGP tests, including DGP-IgA and DGP-IgG, exhibit a sensitivity of approximately 85-95% and a specificity of about 95-98%. The above paragraph is taken from this article which gives an overview of the various tests that can be run for celiac disease and their reliability: What symptoms are you experiencing?
    • trents
      Check Costco's store brand.
    • trents
      Yes, get serum antibody testing done for celiac disease. You could also have NCGS (Non Celiac Gluten Sensitivity). NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten from your life is the antidote for both.
×
×
  • Create New...