Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Was Thinking What If We Had A Manners Book


i canary

Recommended Posts

i canary Rookie

I was listening to NPR today and this guy who wrote a Holiday manners book got me wound up. There was one segment where he advises that even if it kills you eat it. If you want to hear for yourself it is the Morning Edition for Friday 11-17-2006.

Anyway, it got me to thinking. What if we came up with our own manners book. Covering such topics as: how to tell folks who don't get it - I can't eat that and won't; Overcoming Southern manners (I'm from the South - The older generation of women think it is polite to keep offering something to eat even though you have refused several times - even explaining why I won't doesn't stop them) ; Eating at work ; Dealing with office functions ; How to bring your own food without upsetting anyone....

Do you have any topics to add? Better yet do you have any good advise?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kaycee Collaborator
even if it kills you eat it.

If that was not so serious, I would be laughing at that comment.

It has never really been a problem for me to not to accept anything. Being a bit overweight, I think people probably think I am on a diet, so it is no big deal to them.

But I would like to learn some manners. A couple of months ago I was at a function where we could help ourselves. I put some peas on my plate, then instantly realised they had been minted, as I had had a problem with mint flavoured peas a few months back, I was a bit weary of them, so I put them back in the serving dish. I know that was not the right thing to do, and an elderly lady besides me told me I should've just left them on my plate and not eaten them. So I guess I was wrong and should've grabbled another plate instead and started again.

Eating at work is never a problem the only thing that gets me is people forever telling me how healthy my salad looks.

Dealing with office functions/morning teas was not easy. At the start it was quite emotional, as I would looke at the whole spread, and there would be nothing to eat. But now I usually have my own supply of frozen muffins in the work freezer and heat as needed.

Sorry I have not been much help, but I think respect for everybody else is a priority, and if someone does not want to eat, so be it.

Catherine

Nantzie Collaborator

That sounds like a great idea. Tips on how to get through the gluten-free lifestyle politely, but firmly.

One of the things I do is ooh and ahh over the homemade gluten stuff that family members make and bring to BBQ's and stuff. They know I can't eat it, but knowing that I appreciate their hard work makes for a much easier and more relaxed time.

The last time we had a family get-together my FIL had made an apple pie. I admired it and told him how great it looked and smelled. I even asked him what he did to make the crumb topping, what kind of apples he used, etc. In the process of discussing that I was able to tell him in passing that I use different types of flour blends for different things, and I could use a mix for the crust. It gave him more information on how easy it is for me to substitute a few things and make something gluten-free.

It also subverts that uncomfortable thing where people feel like they have to offer you some to be polite. If you ask them a bunch of questions about their recipe or tell them how great it smells, they'll forget about offering it most of the time and even if they do offer, they don't ask more than once.

I think putting other people at ease is a big thing. If you don't they just get uncomfortable and don't know what to do. I don't want non gluten sensitive people in my family to think they can't bring cookies just because I can't eat them. My cookies are just as good. AND they have the added benefit of not making my stomach hurt. I'll take mine ANY day.

Nancy

Nooner Newbie
There was one segment where he advises that even if it kills you eat it.

I haven't listened to the segment, but I'm a Miss Manners junkie, and I don't think any etiquette guru means this literally. I can't count the number of times I've smiled while choking down something with walnuts (which I CAN'T STAND) so as not to offend a host... But gluten or other intolerances/allergies are different, in my opinion. I can just hear Miss Manners saying, "Gentle Reader, Miss Manners would never expect a guest to jeopardize one's life!"

That said, I think you have a great idea about compiling some gluten free etiquette tips! As Nantzie said, how to get through a gluten free lifestyle, politetly but firmly. I've only been gluten free for a few months, and don't have much experience handling social situations, restaurants, holidays, family, etc. I have my hubby's work-related holiday party coming up, and I would love more advice on how to deal. I know this all has been covered in other threads, but a comprehensive list, like the newbie thread, would be great.

~Li

i canary Rookie

I like what you had to say Catherine. Wish more folks had the respect to let each individual decide for themself whether they are going to eat something or not.

Nancy, I hadn't thought of talking about the food the cook made. It make sense that it puts them at ease. I've been so busy thinking of how to get out of there without getting sick that it didn't occur to me. I'm going to try that next time.

(This is my third attempt at this post - for some reason it isn't going thru)

Rusla Enthusiast

Well, how I handle it is I say, "I am sorry but I have a very severe deadly allergy to that wheat glutens which include, rye, oats, barley and malt."

I also have a deadly allergy to wasps, hornets and bee's and would most certainly not put myself in a postion where I would have to enter a room full of them so, to me wheat is no different.

zansu Rookie

I've also gotten over the "go last" thing if it's a buffet. I head straight to the front of the line and serve myself from the dish I brought (and any from trusted sources) joking about getting there before the crumbs do. Nobody really minds, but it goes against everything my grandmother taught me!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sweetfudge Community Regular

I agree with the comforting of other people. I have always loved to cook, even before going gluten-free, so I am very interested in how other people make dishes. I usually try and find out what special ingredients were used, and make a comment as to how I could attempt to copy the dish gluten-free. People love praise for their food, so I let them know how wonderful everything looks and smells.

I think that if you are dealing with a hostess or someone who is insistant on you taking something, see if you can just take but not partake. I pick things up with napkins when I can, so I don't have to touch and get crumbs on myself. Then, distracting them by asking about the recipe, or something else, is a good way to take the focus on them wanting you to try the food. Then, discreetly dispose. I read this in a magazine for avoiding holiday weight gain, and put a gluten-free twist to it.

If you can't distract the host, let her know how sick it would make you to eat the food, that you would not be able to enjoy the function, and see if that works. If not, just tell 'em you'll probably clog their toilet :lol:

When people don't take my explanations seriously, I tell them that it would be the same thing as feeding me rat poison....I don't know that it would really be the same, but that usually gets the point across :)

I'll have to think on this and see if I can come up with more ideas....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,955
    • Most Online (within 30 mins)
      7,748

    JodyBledsoe
    Newest Member
    JodyBledsoe
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.