Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Anyone Please Help Me Understand Enterolab Results?


gary

Recommended Posts

gary Rookie

A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value

Fecal Antigliadin IgA 32 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 17 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score 481 Units (Normal Range <300 Units)

Fecal anti-casein (cow’s milk) IgA antibody 17 Units (Normal Range <10 Units)

HLA-DQB1 Molecular analysis, Allele 1 06xx

HLA-DQB1 Molecular analysis, Allele 2 06xx

Serologic equivalent: HLA-DQ 1,1 (Subtype 6,6)

Acute/Chronic Colitis Stool Test

Fecal lactoferrin Negative (Normal - Negative)

Also, I went through Enterolab as kind of a last resort to get some answers concerning my health. Can anyone tell me how acurate they think these tests are? Has anyone ever been falsely diagnosed? Can I consider this pretty much a for sure thing? Any responses would be very appreciated. Also, does anyone know if the levels that I have on the tests are pretty high or not too bad? Once again, I would appreciate any input I can get.

Thanks,

Gary


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

As far as your numbers I believe that enterolab says it doesn't really matter if you score 10 or 350. It still means gluten free according to them.

You have an autoimmune reaction as noted by the ttg being over 10. You have mild malabsorption. This could be caused by gluten or dairy. If you eat soy, that could also cause problems.

The dq1 genes are gluten sensitive genes but aren't known as celiac genes (doesn't mean they won't be recognized in the future). They tend toward a more neurological manifestation with the ingestion of gluten.

You need to be gluten and casein free for life.

As far as the validity. I'm not aware of anyone that has had false results. We will know more hopefully once Dr. Fine gets his info published. From what I've read it is a lengthy process but they hope to be published sometime next year.

Nancym Enthusiast

You've definitely got malabsorption and that's probably due to intestinal damage. Next step is to give the gluten-free/CF diet a shot and see how you feel! What've you got to lose?

CarlaB Enthusiast

You need to go gluten-free/casein-free. I didn't eliminate casein in the beginning. Now I'm finding I'm not as sensitive to casein as I am to gluten -- I can eat chocolate and use non-dairy creamer (which has casein), but I was off casein completely before I tested to see if I could tolerate it. In the beginning it seemed I was as sensitive to casein as I was to gluten, but it was always after a lot of it. Now I use it very sparingly, but at least I don't have to worry about cc as I do with gluten.

Go off both for a while, I think you will feel a difference. I have the same genes as you.

LoriBelle Newbie

Hi Gary, Thanks so much for posting your results. I really want to do the Enterolab full panel test - just waiting to be able to afford it - so this is great knowing what you get for your money. BUT, you didn't receive anything else with your results that would explain to you what all that means? I'd hate to think that spending almost $400 gives you a bunch of numbers with no explanation. I'd be lost if I just received that back from them. What in the world does it really tell you?

Maybe I'm missing something here?

AndreaB Contributor

Loribelle,

They do give a detailed description of what various things mean.

Sometimes it's easier to just ask and people like me like to know results of various people anyway, so I don't mind. :)

LoriBelle Newbie
Loribelle,

They do give a detailed description of what various things mean.

Sometimes it's easier to just ask and people like me like to know results of various people anyway, so I don't mind. :)

Oh thanks Andrea! :) I'm relieved to know that. You'll probably see me posting my results one day and asking everyone what they think. :rolleyes:

Lori


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,740
    • Most Online (within 30 mins)
      7,748

    Klsdurbin
    Newest Member
    Klsdurbin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      You are most welcome, Marie.  Thank you for getting in touch, because this sort of post will be seen by other parents who find themselves in this position, I am sure there are many.   And as I say, in the long run, I am sure your daughter will be sorry for what she said.  I remember having a go at my dear Mum when I was in my twenties about something and then apologising, saying, "I don't know how you put up with me."  I can't remember her exact words but it was something along the lines of, "I used to say things like to my Mum.  Now it's my turn [to be on the receiving end]!"    😂  Although it isn't very nice to be on the receiving end, it is good your daughter feels safe to say these things to you. We look forward to hearing from you again in due course.  
    • Wheatwacked
      Are You Confused About Your Celiac Disease Lab Results? Some people test negative but have a positive biopsy, others test positive but negative biopsy.  This is why it can take years and misdiagnosis of other diseases that Celiac Disease can mimic. The above link is a good read with real life examples. Something I find interesting is that in 1980 or so a new diagnosis was created, Non Celiac Gluten Sensitivity, only 10 years after Norman Borlaug won the Nobel Peace Prize for creating our modern wheat and the Green Revolution.    
    • trents
      @Steve-n-Portland, there is a difference in the requirements to use the label "Gluten Free" and the label "Certified Gluten Free". "Gluten Free" is governed by FDA regulations and has a ceiling of 20 ppm. "Certified Gluten Free" is a labeling convention used by the GFCO, an independent international third party certifying group that uses 10 ppm as its standard.
    • trents
      We have had numerous reports from forum participants experiencing gluten reactions from Trader Joe "gluten-free" products. It seems it's not a good place for the celiac/gluten sensitive community to shop.
    • Steve-n-Portland
      Also, a class action lawsuit was launched in 2024 against Trader Joe's re: their " gluten free" everything bagels. They tested at 269ppm. (Personally, I am not sure they will win. The FDA says that the *ingredients* have to be less than 20ppm for a company to label something "gluten-free."  In order to be certified as gluten-free by the GFCO, the *final product* needs to be less than 20ppm. That said, the lawsuit is arguing that most people read that label and assume the final product is safe for people with celiac. Thus, many people were made sick. And being sick can have costly consequences in regard to work or school, depending when one becomes ill.)
×
×
  • Create New...