Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Becoming Gluten-free Increases Sensitivity?


Shawn

Recommended Posts

Shawn Apprentice

Hi -

I've been off of gluten for 1 and 1/2 months now, and it seems the longer I'm off, the more sensitive I am. The slightest hint of anything makes me itch! And I'm allergic to sulpha drugs (like Dapsone). Any ideas as to what to do? It's so frustrating.

I am trying to be very vigilant (I think). Today I had popcorn at the movies, and made sure that the butter topping was just butter, but I started itching afterwards! From popcorn that must have had a speck of something on it!! That would not have made me itch a couple of weeks ago.

What are your ideas?

Thanks,

Shawn :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ladybugpumpkin Contributor

You may want to contact the company that makes the popcorn. I know that Kerasote theaters in Indiana do not have Gluten Free Popcorn. I contacted the company, and strangely enough...it was the SALT that has the gluten in it...not the butter. He suggested that I call the manager in advance and they could clean the popcorn maker and make some without the salt. However, I don't do that because it seems like a lot of trouble and I'm not sure they'd REALLY clean it anyway. Just a little insight. Hope you figure out what's doing it!

CarlaB Enthusiast
You may want to contact the company that makes the popcorn. I know that Kerasote theaters in Indiana do not have Gluten Free Popcorn. I contacted the company, and strangely enough...it was the SALT that has the gluten in it...not the butter. He suggested that I call the manager in advance and they could clean the popcorn maker and make some without the salt. However, I don't do that because it seems like a lot of trouble and I'm not sure they'd REALLY clean it anyway. Just a little insight. Hope you figure out what's doing it!

Really? I never reacted to Kerasotes popcorn ... I read the popcorn and the butter, but you're right, never looked at the salt they use. It is the salt they use or the salt you can put on it yourself? I THOUGHT I had checked it out there ... I'd read the salt ingredients myself if I still lived there ... I find that one hard to believe ... not that I don't believe YOU, I just am having trouble believing that the person you spoke with knew what they were looking for.

Shawn, your theater has REAL butter??? I know a small, local theater around here that does, but I thought that was pretty rare ... lucky you!!!

I did become hypersensitive to gluten once I got off it. I have had to go to a very simple diet of meat and veggies, with a little fruit for some time. A lot of people need to do this to heal. It might help you for a while .... then you can add things in one at a time and see how you react. Lots of time other sensitivities show up once you eliminate gluten.

Rusla Enthusiast

Theater's have not used real butter for decades. Maybe the staff says that is what it is but it isn't. Their buttered popcorn always made me sick. They refer to it as a butter topping meaning it is not butter. If by some fluke of fate it is real butter you could be reacting to the casein in the butter which, for many Celiacs causes the same reaction as gluten.

Shawn Apprentice

Hi - thanks for your replies. It was indeed real butter (it was an indy theatre and they let me read the ingredients). It had just been popped and smelled irresistible. However, I didn't think of the salt. I definitely reacted to SOMETHING. I'm out in Seattle. You can always come out here for real buttered popcorn. As I said, it was an indy theatre, and they always seem to have "real" ingredients.

Milk products, eh? Never reacted to them before. I feel like miss high maintenance. And I was high maintanance before this whole thing started!

I'll have to pop my own Newman's popcorn next time I go to a movie. Then I'll be safe!

Thanks again,

Shawn

CarlaB Enthusiast

Most theaters don't use real butter, but we have one here in Cincy that does, too. They even charge extra for it. It's worth it, too!! ;)

ladybugpumpkin Contributor

Yeah, the salt thing was a little weird. The person who responded was indeed talking about the salt that is already on the corn...not the kind you add after you get it. He sent me the list of ingredients and while I can't remember exactly what the ingredient was, it was a "no-no" for sure! So, I don't eat the popcorn anymore.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Do you happen to still have the email they sent you?

ladybugpumpkin Contributor

Unfortunately, I don't. Sorry.

CarlaB Enthusiast
Unfortunately, I don't. Sorry.

I was just curious what the questionable ingredient was.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,993
    • Most Online (within 30 mins)
      7,748

    DawnMaureen
    Newest Member
    DawnMaureen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • WildFlower1
      Thanks for your response! Yes, you’re correct that many of my symptoms improved when I went gluten-free, but issues like bone loss, infertility, hair loss, etc., seem to be the ones that haven’t responded. I’ve been on the gluten challenge for almost 7 weeks now, and I’m wondering how long I should continue it before testing again and making a final decision. I understand the benefits of eating gluten-free long-term, but I’m unsure how much longer to stick with the challenge to avoid another false negative celiac blood test.   What I would do differently if the test were confirmed positive is I’d receive a small amount of government help with gluten-free foods as a confirmed celiac. Doctors would be able to rule out further exhaustive testing. I’d also become even more strict about avoiding cross-contamination (for example, when eating at someone’s house, they may say something is safe, but it could have been cross-contaminated with gluten, or when going out to restaurants, they might say it’s fine, but it really isn’t). So, I would be extremely strict with cross-contamination if I were 100% confirmed as celiac, even though I’ve tried to be over the years but still seem to get sick.   Any advice on how long is typically recommended to continue the gluten challenge to avoid a false negative on the celiac blood test would be greatly appreciated!
    • trents
      Okay, it does make sense to continue the gluten challenge as long as you are already in the middle of it. But what will change if you rule it out? I mean, you have concluded that whatever label you want to give the condition, many of your symptoms improved when you went gluten free. Am I correct in that? According to how I understand your posting, the only symptom that hasn't responded to gluten free eating is the bone demineralization. Did I misunderstand? And if you do test positive, what will you do different than you are doing now? You have already been doing for years the main thing you should be doing and that is eating gluten free. Concerning how long you should stay on the gluten challenge, how many weeks are you into it already?
    • WildFlower1
      I mean that I will be re-taking the celiac blood test again while I am currently on the gluten challenge right now, but not sure how many weeks more to keep going, to ensure a false negative does not happen. Thank you.
    • WildFlower1
      Thank you for your help, I am currently in the middle of the gluten challenge. A bit over 6 weeks in. At 4 weeks I got the celiac blood tests and that is when they were negative. So to rule out the false negative, since I’m in the middle of the gluten challenge right now and will never do this again, I wanted to continue consuming gluten to the point to make sure the blood tests are not a false negative - which I did not receive a firm answer for how many weeks total.    My issue is, with these blood tests the doctors say “you are not celiac” and rule it out completely as a potential cause of my issues, when the symptoms scream of it. I want to rule out this 30 year mystery for my own health since I’m in the middle of it right now. Thank you!
    • trents
      I am a male and had developed osteopenia by age 50 which is when I finally got dx with celiac disease. I am sure I had it for at least 13 years before that because it was then I developed idiopathic elevated liver enzymes. I now have a little scoliosis and pronounced kyphosis (upper spine curvature).  All of your symptoms scream of celiac disease, even if the testing you have had done does not. You may be an atypical celiac, meaning the disease is not manifesting itself in your gut but is attacking other body systems. There is such a thing as sero negative celiac disease. But you still have not given me a satisfactory answer to my question of why do you need a differential dx between celiac disease and NCGS when either one would call for complete abstinence from gluten, which you have already been practicing except for short periods when you were undergoing a gluten challenge. Why do you want to put a toxic substance into your body for weeks when, even if it did produce a positive test result for celiac disease, neither you or your doctors would do anything different? Regardless of what doctors are recommending to you, it is your body it is affecting not theirs and they don't seem to have given you any good justification for starting another gluten challenge. Where you live, are doctors kings or something?
×
×
  • Create New...