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Ignorant People


clhsc

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angel42 Enthusiast

I totally understand. I used to bake constantly before I was diagnosed around 1 1/2 months ago. My MIL gave me such a hard time because I didn't bake for Thanksgiving. I told her I would be happy to make something gluten-free. She quite pointedly said "absolutely not" I'm sure I'll get the same hard time for Christmas. I'm just going to make some gluten-free cookies and bring them over and not tell her they are gluten-free. :)

My really sweet boss ordered me a salad from Fatz and went into great detail about NO CROUTONS, NO BREAD... and she requested that they mix it all in a clean bowl! My goodness, I love her!

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Rusla Enthusiast

I would be compelled to sign said person up to bring a large rat poison lasagne. Then I would tell her that gluten and her pasta salad has the same effect on you as that rat poison lasagne would have on everyone else.

tiredofdoctors Enthusiast
I would be compelled to sign said person up to bring a large rat poison lasagne. Then I would tell her that gluten and her pasta salad has the same effect on you as that rat poison lasagne would have on everyone else.

That's the best one yet!!! We had Thanksgiving at my in-laws, and my MIL -- bless her heart -- just doesn't get cross contamination. My SIL, though, does, so she called, asked me about ALL of the ingredients, and made a special dish WITHOUT the cracker crumbs first, then covered it so that I would have SOMETHING to eat. At my mother's, my cousin was getting ready to put rolls in the oven. My aunt asked what a particular dish was, and my mother said, "Oh, that's Lynne's macaroni & cheese." She was standing right by the oven, so I quickly asked, "Is it covered?" No one answered . . . I again, kind of frantically said, "Is my macaroni & cheese covered?" My aunt turned around and said, "What's the big deal . . . there's no flour around here." I said, "Well, those rolls are getting ready to go into the oven, and if even a CRUMB gets into my macaroni & cheese I can't eat it." My aunt did the eye-roll thing. It made me furious, and my mouth just took over my body. I just looked at her and said, "You know, if I was a REGULAR 'stomach' celiac, I would throw up, have diarhhea, things like that. But one crumb of bread means that I will have at least one more brain cell destroyed. If it gets to my brain stem, you guys will have a neice that's a vegetable. On life support. Who's going to decide to pull the plug?" The whole kitchen got VERY quiet (we're talking a really loud family -- my mom & her sisters are LOUD -- not to mention, cousins, etc.) My mother said, trying to smooth things over, "Well, it's covered, so we don't have to worry." THEN, my aunts began to question my mother -- they said, "So it's an allergy?" From the other room, I said, "No, it's an autoimmune disease. Just like Rheumatoid Arthritis or Lupus." Then later on, my dad was trying to tell my uncles about it. They again said, "So, she has an allergy to wheat? My dad didn't quite get it right -- he said, "Oh no -- not just wheat, barley, rye, oats -- or ANYTHING that has it IN it. That's the problem. You don't know all the time if it's in it. It's really frustrating." I just gently said, "Daddy, you forgot the part that it's not an allergy. It's an autoimmune disease." Then he said, "Oh yeah. What happens is . . . . " and went on to describe the whole process of how it destroys the brain. I was impressed -- he's done his homework!

I think it's funny that even RELATIVES would be so callous about a disease that is so devastating. Co-workers -- it's no wonder they're like that. If they only had to live with this disease for two days . . . . .

I'm sorry to hijack the thread with my rant -- just realized I did. It just infuriates me that ANYONE would disregard a disease like this. SIGNED YOU UP TO BRING PASTA SALAD? PUHLEEEEEEEEZE. It would have been fun to have a friend cook some pasta salad and make it taste TERRIBLE. Bet they wouldn't sign you up for it again!!!!!!!

2Boys4Me Enthusiast
My aunt turned around and said, "What's the big deal . . . there's no flour around here." I said, "Well, those rolls are getting ready to go into the oven, and if even a CRUMB gets into my macaroni & cheese I can't eat it." My aunt did the eye-roll thing. It made me furious, and my mouth just took over my body. I just looked at her and said, "You know, if I was a REGULAR 'stomach' celiac, I would throw up, have diarhhea, things like that. But one crumb of bread means that I will have at least one more brain cell destroyed. If it gets to my brain stem, you guys will have a neice that's a vegetable. On life support. Who's going to decide to pull the plug?" The whole kitchen got VERY quiet (we're talking a really loud family -- my mom & her sisters are LOUD -- not to mention, cousins, etc.)

Lynne - you forgot the part where you tell them it's genetic and you got it from one of THEM. Start pointing fingers. "You! Passing out after eating the turkey and stuffing. You're next! This will be you one day!"

Of course you have to do that when your Mom and Dad are not within earshot but I bet you'd feel pretty good. That'd shut them up and stop their eye-rolling. Or would it? :ph34r:

zansu Rookie

Did you ever consider that WHY family are so bad about it. The possibility that they have or will have it? and that they are still in denial?

ajay Newbie
So, we are having a party at work today. Usually we sign up for food to bring and I will bring a big salad for myself and a coworker who have celiac disease. How about this girl signed me up to bring three pounds of pasta salad?

Since when do other people sign you up for what you're going to bring? That alone sounds rude to me.

I know I'm reaching here, but a surprising number of people don't think about food ingredients. It's possible that she didn't realize that pasta is a wheat product. I know that sounds ridiculous, but trust me, I've had people offer things like "Well, obviously I can't make it wioth bread-- should I use a pita pocket?"

Or one sweet waitress who kindly checked the ingredients of a dish and sadly informed me that the dinner rolls had wheat in them. Nice of her to check, but, yeah, I knew that one...

Smooreberry Newbie
Lynne - you forgot the part where you tell them it's genetic and you got it from one of THEM. Start pointing fingers. "You! Passing out after eating the turkey and stuffing. You're next! This will be you one day!"

Of course you have to do that when your Mom and Dad are not within earshot but I bet you'd feel pretty good. That'd shut them up and stop their eye-rolling. Or would it? :ph34r:

I'm crying I am laughing sooooo hard!!! I'm seriously saving this one. I avoided Thanksgiving but this may come in handy if I go home for Christmas. You ladies rock!!


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    • catnapt
      so do you have celiac or not? 🤔 why are your vision issues undiagnosed? 😢 what does your ophthalmologist say?  do you have a serious vit A deficiency? what do you take for it? how long have you had celiac disease and how long did  it take to get a diagnosis?   if you are legally blind there are adaptive devices that will help you. I have vision difficulties as well but did not qualify (at least not yet)   do you have a vit A deficiency? why are you undiagnosed? what does your ophthalmologist say? I have a retinal specialist and he tells me my eye condition can not be fixed- until/unless it gets to the point of where surgery is safer since the surgery can leave me actually blind... so you want to wait til it gets really bad 🤪     I hope you find what works for you.    PS   the medication I started at the same time as the gluten challenge is obvious from the condition it's trying to treat. you can google it 😉 it is not an for any auto immune condition.   
    • knitty kitty
      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
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