Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Argh... Stupid Toothpaste "glutened" Me!


tarnalberry

Recommended Posts

tarnalberry Community Regular

So I went to the dentist on Monday to check into my teeth being a bit sensitive. (I've always had pretty good teeth, despite not flossing like I should. I've got a whopping two small fillings.) Nothing particularly was wrong, just generally sensitive teeth, so the dentist suggested getting some sensitive-tooth toothpaste and a fluoride rinse. No problem; I checked the ingredients on the Sensodyne toothpaste and the ACT rinse, both looking fine.

Turns out Sensodyne "may contain traces of gluten", and I've had intestinal complaints since last night. (I never do get bad symptoms, mostly just smelly gas this time. Joy.) And today feel cranky and tired and unable to concentrate on anything. (Fairly typical symptoms for me.) I thought it might have been the milk in the omlette I had last night, but ... meh... I just don't know.

So now I'm just going to suck it up and do an elimination diet. It's going to take a while, given how many foods I want to check on, but I'm tired of guessing. Knowing my luck, there will be a bit of guessing afterwards! (I'm not going to bother with going the medical testing route. I've already had allergy tests, and they didn't show anything, so this is more an intolerance issue.)

  • 3 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hthorvald Rookie

Do you know if Colgate is gluten free? I've read the package and I think they're fine, but since you have experience with this, I thought I'd ask.

Racheleona Apprentice

Do you guys know if Jason's all natural toothpaste is gluten free?

lovegrov Collaborator

Sensodyne is most definitely not considered gluten-free. In fact, it's the only toothpaste I know of that has or probably has gluten.

richard

burdee Enthusiast

I also got continually zapped by Sensodyne (recommended by my dentist for enamel erosion sensitivity probably influenced by celiac disease) while I was trying to avoid all gluten for several months. I had used Sensodyne for many years previously. :o I think both Colgate and Crest both have gluten-free varieties, but I couldn't find a combo whitener and sensitive variety in those brands. I ended up getting Tom's of Maine, because their label includes, defines and lists the source for EVERY ingredient in all their toothpastes. Although I purchased and used a separate sensitive toothpaste and a whitener in that brand, I observed I need the sensitive toothpaste less and less the longer I am gluten-free. Another great benefit of going gluten-free! :D

BURDEE

tarnalberry Community Regular

Colgate makes a whitener/sensitivity toothpaste, but as whiteners can INCREASE sensitivity, I had to look hard for one that did NOT contain whiteners. Crest makes one.

  • 2 weeks later...
coin-op Newbie

Don't do toothpaste :) just floss everyday


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Not really an option, coin-op. It definitely doesn't clean as well, across the whole surface of your teeth. (My diet is more varied than yours, so that may be one reason it works well for you.) Besides that, my molars naturally have very deep ridges - an area that flossing cannot get to. If I didn't brush, I would quickly have cavities in those areas, and I've already had two cavities in my life - don't want any more.

burdee Enthusiast

Now I remember why I didn't consider Colgate or Crest, even though both are gluten-free/cf. Both contain sorbitol in their ingredients. For me (and many others) sorbitol causes cramping, bloating, gas and diarrhea, similar to celiac disease symptoms. Tom's of Maine toothpaste did not contain sorbitol. ;)

BURDEE

jendenise Rookie

Um, is sorbitol something those with celiac disease should avoid, or just another thing that anyone could be allergic to? What exactly is sorbitol? I had no idea about it if I should be avoiding it. I use crest w/ cavity protection and a RX flouride paste. I don't have any cavities or any sensitivity, and before I was diagnosed w/ celiac disease I used to eat ice constantly w/o any ill effects on my teeth, according to one of my md's it was because of how severly anemic I was. I definitely don't crave ice like I used to, but still chomp it occasionally and it doesn't bother me. My enamel on my teeth is ok too. But I'm not totally symptom free. I throw up a lot and am naseaus almost every day. If it's because of sorbitol I'm throwing out the toothpaste tonight and going shopping!

burdee Enthusiast

Sorbitol is an artificial sweetener used in many sugar free foods and other products. As such, it's indigestible (hence calorie free), but also causes 'IBS' symptoms (gas, pain, bloating and diarrhea) for many people who consume products containing sorbitol. I first discovered sorbitol problems (cramping pain, bloating and diarrhea) many years ago when I regularly chewed sugar free (sorbitol sweetened) gum. I'm so sensitive that even the slightest bit of sorbitol causes pain and bloating for me. I'm not sure this sensitivity is celiac disease related, since I have heard from MANY people who are sensitive to sorbitol and similar artificial sweeteners (like mannitol). Aspartame and Saccharine do not give me side effects, although other people claim headaches from aspartame.

BURDEE

lovegrov Collaborator

Sorbitol is definitely gluten-free and I've never seen any indication people with celiac are more sensitive to it. It does nothing to me. But if it bothers you you certainly need anything else giving you bowel problems.

richard

jendenise Rookie

That's a relief, I kinda like knowing I have some normal stuff. All this gluten-free stuff gets EXPENSIVE! So knowing I don't have to switch dental products is nice.

FreyaUSA Contributor

Jendenise, my daughter (age 6) who has been gluten free for the last couple months used to eat ice all the time, too! I never put this together, but since she's been on this diet, she's stopped. How interesting! :)

On to sorbitol. Sorbitol is a sugar alcohol (which has nothing to do with alcohol, it's a polyol <_< ) but these sweeteners cause MANY people great distress. I frequent a diet board and the numbers that have gastric complaints do to these sugar alcohols is amazing. You can buy candies (russell stover, reeses, etc.) that contain sugar alcohols and pretty much everyone who eats more than a couple have problems (from "just" cramping to all night bathroom marathons.) Jendenise, you may be sensitive to these ingredients. Imo, it wouldn't be farfetched at all. (And, just so you know, Tom's is not more expensive than the others. Thank goodness.)

jendenise Rookie

According to my hematologist the ice obsession comes from being anemic. I guess when you become too anemic your body begins craving ice, and if you aren't able to eat ice you may also start to crave dirt! I couldn't believe it when he explained it to me, I'd never thought being anemic would make me crave ice and never thought about dirt. I've craved ice for years, sometimes all I'd eat was ice as a substitute for meals for days! When I was really little my mom said I ate dirt constantly. I was only diagnosed 2 years ago though, and now I almost never eat ice. (except for today, but that's 'cause I'm bored I think...)

  • 2 weeks later...
bunniegirrl Rookie

hi, i'm new to all of this, and I don't understand why toothpaste matters. As long as you don't swallow any it should be fine shouldn't it? Is there something I'm missing?

:unsure:

tarnalberry Community Regular

It's going into your mouth. Chances are, some of it will be dissolved in the saliva and make it to the digestive tract. If you can taste the mint (or other flavor) in the toothpaste after you've brushed, that's a decent sign. The "rule" is generally anything that goes in the mouth (including licking envelopes) is _definitely_ out.

lovegrov Collaborator

I know of only one toothpaste with gluten so this isn't really much of a concern, but when you brush your teeth and rinse your mouth you always end up swallowing a little whether you know it or not. And once you've rinsed your mouth exactly how can you be sure you got every speck of that residue out of your mouth? It's just not a good idea to put anything containing gluten in your mouth. There are so many toothpastes without gluten why take the chance?

richard

darlindeb25 Collaborator
:o wow--i know i am a little behind in here, but jendenise--my sister and i are both celiacs--i was just reading your email about craving ice and even dirt--this brought back memories--years ago when my sis and i were young :P anyways--my mom caught her eating dirt, repeatedly and i remember her taking judy to the doctor and she was given this special stuff she had to drink everyday--we called it bug juice--WOW, i had never heard the craving dirt--thank god i only craved ice and did i ever need ice--my sis and i used to buy ice and always had a glass full--i was told craving ice is a vitamin defency--memories, i bet she was celiac way back then--wow
  • 5 years later...
HyperGirl Newbie

Apparently soribtol can be grain derived but some toothpastes that have sorbitol have sorbitol that was corn derived.

I'm in the UK and I use Aquafresh Fresh & Minty. I've gotten into bad habits and don't brush my teeth nearly as often as I should! But when I do brush them, it sometimes hurts on the inside of my lip, where you'd get mouth ulcers! And sometimes toothpaste does seem to have caused ulcers. Maybe it's because I sometimes don't brush but I'm always careful/gentle...but now it's like I have to pull my bottom lip out the way so it doesn't hurt/sting when I brush! :o

Is this something sorbitol can do? Apparently Aquafresh is gluten-free, anyone know any more on this? Or if their sorbitol is corn/grain derived?

I'm still in the process of getting diagnosed so I'm wondering if I've just found another piece of "evidence" :P

Ooh and something else - Listerine mouth wash (the green one) makes my mouth sting/tingle, within a few seconds my mouth is in pain! It doesn't seem to cause ulcers or any other symptoms though...so maybe that is just normal with some mouth washes and I'm being fussy...hmm =\

MaryJones2 Enthusiast

I'm not sure about the UK but gluten in toothpaste is not an issue in the US. This thread is 6 years old and I think there was a lot of discussion about Sensodyne toothpaste back when this thread originated - I'm not sure if it was every concretely proven to contain gluten.

Celiacs have loads of dental problems so it could just be your mouth adjusting to your dietary changes.

tarnalberry Community Regular

Whether it did or not at the time, Sensodyne has since then said that their toothpaste *is* gluten free. Old threads on gluten-free status are definitely not trustworthy.

ravenwoodglass Mentor

Apparently soribtol can be grain derived but some toothpastes that have sorbitol have sorbitol that was corn derived.

I'm in the UK and I use Aquafresh Fresh & Minty. I've gotten into bad habits and don't brush my teeth nearly as often as I should! But when I do brush them, it sometimes hurts on the inside of my lip, where you'd get mouth ulcers! And sometimes toothpaste does seem to have caused ulcers. Maybe it's because I sometimes don't brush but I'm always careful/gentle...but now it's like I have to pull my bottom lip out the way so it doesn't hurt/sting when I brush! :o

Is this something sorbitol can do? Apparently Aquafresh is gluten-free, anyone know any more on this? Or if their sorbitol is corn/grain derived?

I'm still in the process of getting diagnosed so I'm wondering if I've just found another piece of "evidence" :P

Ooh and something else - Listerine mouth wash (the green one) makes my mouth sting/tingle, within a few seconds my mouth is in pain! It doesn't seem to cause ulcers or any other symptoms though...so maybe that is just normal with some mouth washes and I'm being fussy...hmm =\

Have you tried changing toothpastes? It may not be a gluten issue but a sensitivity to some other ingredient. If you can't find a toothpaste that doesn't bother your mouth baking soda works well. I can't use a mouthwash that contains any alcohol. I use Act mouthwash in the no alcohol formula. That doesn't sting my mouth like listerine or other alcohol based ones.

HyperGirl Newbie

I wondered if it was alcohol related as the one my mum got has alcohol in. I've heard other "bad" things about alcohol in mouth washes (not sure what exactly though) so it's a shame I wasn't there when she bought it!

I actually need to get some more toothpaste soon so it could be a chance to try a different one. I've looked at some online and a lot of them say they don't intentionally add gluten but they may have traces due to handling etc. Maybe I'll pop into the dentist and ask?

ravenwoodglass Mentor

I wondered if it was alcohol related as the one my mum got has alcohol in. I've heard other "bad" things about alcohol in mouth washes (not sure what exactly though) so it's a shame I wasn't there when she bought it!

I actually need to get some more toothpaste soon so it could be a chance to try a different one. I've looked at some online and a lot of them say they don't intentionally add gluten but they may have traces due to handling etc. Maybe I'll pop into the dentist and ask?

Are you still eating gluten? If you are you may be having a reaction to gluten rather than the toothpaste. Some of us will get mouth ulcers. So it may not be the toothpaste that you are reacting to but instead the toothpaste aggravating the mouth sores.

If you can get Tom's of Maine there that companies toothpaste is gluten-free and they clearly list the sources of every ingredient on the label. Nice for those of us who have other sensitivities.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Thoughtidjoin's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Dried Chickpeas

    2. - knitty kitty replied to Thoughtidjoin's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Dried Chickpeas

    3. - trents replied to Thoughtidjoin's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Dried Chickpeas

    4. - Scott Adams commented on Scott Adams's article in Origins of Celiac Disease
      7

      Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)

    5. - Thoughtidjoin posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Dried Chickpeas

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,431
    • Most Online (within 30 mins)
      7,748

    Dave162
    Newest Member
    Dave162
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      If a package of dried chickpeas or lentils says “may contain” or “may have been cross contaminated,” that usually means they were processed in facilities that also handle wheat, barley, or rye. The concern is not gluten dissolved on the surface like dust that can simply be rinsed away, but small fragments of gluten-containing grains that may be mixed in during harvesting, storage, or packaging. Rinsing and sorting can reduce surface flour and remove visible stray grains, and many people do this successfully, but it does not guarantee that all gluten contamination is eliminated. Some limited testing has shown that naturally gluten-free grains and legumes can contain measurable gluten when cross-contact occurs in shared facilities, which is why manufacturers use precautionary labeling. The seriousness depends on the individual: for someone with celiac disease, even small amounts of gluten can trigger intestinal damage, so choosing certified gluten-free legumes is the safest option. Manufacturers are not necessarily being overly cautious; they are often acknowledging real cross-contact risk in complex agricultural supply chains.
    • knitty kitty
      Welcome,  While picking through chickpeas and lentils I have found little pebbles and on occasion, a kernel or two of wheat.  Farm equipment and transport trucks are used to harvest different crops.  It would be really expensive to have separate trucks and packaging lines for each crop.   I have found sorting or picking through the peas or lentils along with a good rinse sufficient to make them safe for me.  Do remember that lentils and such are high in carbohydrates.  Eating a diet high in carbs can lower thiamine B1.  Good sources of Thiamine and other B vitamins are meats.  Extra thiamine is needed for tissue repair to grow the villi back and recovery from malabsorption.  Low thiamine symptoms (gastric Beriberi) are very similar to symptoms of a glutening.  Try adding thiamine hydrochloride or Benfotiamine and see if you still react to chickpeas and lentils the same way. Supplementing with extra thiamine is safe and nontoxic.   Best wishes.
    • trents
      Welcome to the celiac.com community, @Thoughtidjoin! I would think so, yes. But you need to realize that cross contamination studies with lintels have shown the real problem isn't only coming in contact with gluten containing grains in processing but in the actual mixing in of cereal grain seeds in significant quantities with the lentils. I think it was a study done by Gluten Free Watchdog I'm thinking of but they did an actual count of the seeds in a purchased mainline food company bag of lintels and found something like 20% of the content was wheat seeds. So, you'd better do some sorting first.
    • Thoughtidjoin
      Can I wash gluten off dried chickpeas or green lentils when the packet says “may have been cross contaminated?” Has there been any research into this?  If so what are the results? If no research has been done why not? I am getting mixed advice from different sources, how serious is this or are the food manufacturer being over cautious? Many thanks Catherine
    • catnapt
      I've got some lab work results going back to 2010, various MRIs and CT scans and ultrasounds. I discovered two things that MIGHT be of interest to the GI doc tell me what you think? one is the results to an abdominal CT scan with contrast in 2013 that includes this:  "there is some thickening seen in the second and third portions of the duodenum"    Since this CT scan was for left lower quad pain, it was not followed up on   Then in May of 2024 I saw a foot specialist for problems with my feet. Some of that pain is due to a very obvious deformity of both of my legs- the right worse than the left. The dr suggested that my symptoms sounded like an auto immune condition (???) and I thought he was nuts but he ordered some lab work- it came back negative except for a weak positive on one test HLA-B27 and there was a follow up test recommended but that was never ordered and this dr gave me a useless Rx for custom insoles which he refused to address - and my calls to his office were never returned.   At that time I was having all over joint pains, plus some numbness in my feet (also stiffness) and some burning pain in my toes- esp the big toe on the right foot (the more deformed side of my body)   The last time I was eating any appreciable amount of gluten containing foods was in the period of Nov 2024 to around sometime in the summer of 2024. I regularly ate a barley soup that I loved and had subs and pizza and toast etc. I was no longer eating wheat pasta, had already switched to brown rice pasta but otherwise I had not yet made a clear connection between what I was calling 'refined grain products' and any symptoms that I had. And the symptoms were vague and could be attributed to other things.   I was referred to a neurologist in late 2023 for symptoms  of confusion/disorientation, that included loss of balance that I attributed, in part, to the inability to feel where my feet were. Some symptoms such as high spikes in blood pressure (some close to 200 over 100! scary stuff) were later determined to be due to covid or long covid (also had loss of sense of smell and taste)    I had periods of dizziness that did NOT include any spinning sensations, it was more of a feeling of lightheadedness as if my mind would go blank- very strange, never really got any answers about that but that eventually went away so not worried about that   WHAT OTHER THINGS from my past records might be good for the GI dr to know? I had my very first Vit D test done in 2023 and it was low at 23, supplements have gotten that up in the range of adequate but values varied up and down... most recent test was Nov 2025 and it was 45ish I think. That's on a min of 5000Ius per day (there are some fortified foods I eat sometimes that have added vit D)   I thought my serum calcium ran on the low side but it turns out that the reference ranges have changed for the labs that I use- one changed their RR back around er, 2014 I think? so I have no clue how to compare the results before and after those changes   calcium has never been below normal and most of my blood work looks "normal" except during illness or other issues like if I'm in afib- blood work looks insane LOL    I don't know what to make of all this but it sure will be nice to get some answers!         
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.