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For The "real" Teens


Kassie

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sarahann324 Newbie

i live in PA.

  • 2 weeks later...

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  • Replies 126
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swimchicky Newbie
Yay that's awesome! I'm from the bay area :)

i'm from the bay area too! i never knew there were other celiacs up here! has anyone been to the celiac conference at stanford university? they stopped holding it a few years ago, but it was great while it lasted! also, check out the blog on my profile! (it's a link)

swimchicky a.k.a. tan celiac girl

  • 1 month later...
Yellow Rose Explorer

I'm from Texas originally but I moved to Nebraska four years ago.

  • 2 weeks later...
Angels~Exist Newbie

I'm from Missouri...probably the only one! :lol:

Endevor Newbie

I'm from Wyoming, but go to school in Idaho.

LBethanyC Newbie

I'm from Canada. :).

  • 2 weeks later...
MasterGberry Newbie

I am from LA in California. Anyone else from around here?


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  • 5 months later...
SJR Newbie

Indiana :)

  • 4 weeks later...
flowerpower12 Rookie

I used to live in Idaho!

Thats my home..I'm in OK for now but we're working on getting home..we cant really do that though until I'm better and we find out whats goingon with me..

Im not diagnosed yet but I think I might have it.

Who knows.

Rebecca Madrid Newbie

I'm from Canada. :).

Whereabouts?? I'm from Ontario, but living in Newfoundland for school and was diagnosed about 3 weeks ago.

  • 2 weeks later...
gintare519 Newbie

hi guys. i was just wondering where you guys are all from. everyone seems to be like from the east and i don't know anyone around the west with it. i live in idaho. so where do u guys live? just thought i would ask

~Kassie~

Wisconsin! xD

the cheese state. with lots of bakeries. O.O

  • 1 month later...
B R I A N A Apprentice

Hey,

My names Briana and I'm seventeen.

I'm actually living in the overpopulated Southern California.

I'm planning on going to college in Colorado and I'm also thinking about Idaho.

In addition to celiac disease I have a dairy allergy, am a vegetarian, and have hypoglycemia.

If you ever have any questions or just want to talk feel free.

My email is:

Brii_1992@yahoo.com

Eilidh Newbie

what part of the bay area i am from palo alto. you should join the bay area celiac teens support group!

Hey I'm from B.C. Canada...

Anyone from Canada?

  • 5 weeks later...
Rebecca Madrid Newbie

anyone frommm cannnada?

Ontario you?

Rebecca Madrid Newbie

i'm from canada! ontario

Me too!!

Where in ON?

  • 3 weeks later...
Hineys <3 Newbie

im from tennessee

Tennessee? That's kinda closer to me. I'm from Kentucky and everyone on here seams to be from other side of the continent. lol

Hineys <3 Newbie

Indiana :)

Where about in Indiana? Cuz I live in Kentucky but go to Madison Indiana all the time.

Hineys <3 Newbie

Im from Kentucky and No one besides my family has it around here, and besides my brother, Im the youngest!

  • 3 weeks later...
SoFLO Newbie

My name is Doug. I'm a 19 year old college student living in Miami, FL (lived here all my life). Only one of my family and friends who has celiac, makes it tough.

manpriya Newbie

i am from india.............any teen from india on dis site????????????

zombietommie Newbie

I'm from Western WA just north of Seattle.

I know two celiacs, but I have multiple intolerances/allergy thingies.

eeyore Collaborator

I'm from Raleigh, NC ...

  • 1 month later...
fiwen30 Newbie

19 y/o female from Derby, UK here. Coeliac and non-meat eater. Anyone else in the area?

  • 2 months later...
Mikki.G Newbie

anyone frommm cannnada?

hey im from ontario!! where are you from??

  • 1 month later...
Katah Newbie

Canada, Ontario. :-)

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      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

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    • trents
      @Bebygirl01, if you want to play word games with the term, "gluten", we can do that. The proteins you list in these other cereal grains besides wheat, barley and rye are somewhat different from that found in wheat, barley and rye and, technically speaking, are not "gluten". Technically speaking, "gluten" should only be applied to a particular protein found in wheat, barley and rye. These other cereal grain proteins have their own names (avenin, secalinin, zein, etc). Unfortunately, confusion has been created in popular and pseudo scientific literature by the informal use of the term "gluten" when talking about the proteins found in these other cereal grains such that you sometimes read about "corn gluten", "oat gluten", "rice gluten", etc. But these are actually misnomers, with "gluten" having been added on as an informal appendage to the actual protein names. Having said that, the protein structures of these other cereal grains is close enough to gluten that, for some people, they can cause a celiac type reaction. But this is not true for most celiacs and those who fall into the NCGS category. Apparently, it is true for you. This whole idea that cereal grains are bad for all of us has been popularized by books such as Dangerous Grains for years but it is not a widely accepted idea in the scientific community.
    • Bebygirl01
      On my Celiac journey and discovered I was also reacting to other types of gluten. The FDA in it's finite wisdom only classifies 'wheat, barley and rye' as the gluten's to be considered when a company tests for and stamps their products as gluten free. I am curious as to how many of you are aware of the other types of glutens? And another question to those on a 'traditional' gluten free diet , who are also still sick and struggling, are you also reacting to these other types of gluten as listed below? NOTE:  The new movement if you want to call it that, is now called 'grain free' and that is the true definition of gluten free. I no longer suffer with ataxia, confusion, anxiety, depression, OCD, Insomnia, ADD, acid reflux, dermatitis herpetiformis, migraines, headaches, and weight issues all due to going 'grain free'. I hope to reach as many of you out there that are still struggling and unaware of what might be setting you off such as my most recent glutening was from a vegan supplement that contained 'magnesium sterate' and 'glucose syrup' both of which are from Zien (zane) gluten at 55%. I was covered in sores that were bleeding, I was seeing squigly lines when I was trying to drive, had acid reflux, insomnia, and nightmares all from the gluten in Corn. Here are the other types of glutens that Celiacs and Gluten Intolerant people also react to: Wheat -Alpha Gliadin Gluten- 69% Rye - Secalinin gluten-30-50% Oats-Avenin gluten -16% Barley-Hordein Gluten -46-52% Millet-Panicin Gluten-40% Corn-Zien Gluten -55% Rice-Orzenin Gluten-5% Sorghum-Kafirin gluten-52% and Teff-Penniseiten Gluten 11%.
    • Scott Adams
      I just want to mention again that IF thimerosal is used in a flu vaccine the amount of ethylmercury in a single vaccine dose would be extremely small, typically around 25 micrograms (µg) or less. For context, this is much lower than the levels of methylmercury found in some seafood. Ethylmercury is metabolized and excreted from the body much faster than methylmercury. Its half-life in the blood is about 7 days, compared to methylmercury, which can persist for months. The dose of ethylmercury in vaccines is far below the threshold known to cause toxicity so would not require chelation.
    • knitty kitty
      If you have poor reactions to vaccines, preservatives, sugar alcohols and metals, you may be deficient in Thiamine Vitamin B1.  Thiamine is needed in the immune response and production of antibodies.  Thiamine can be depleted by vaccines if you are already low to begin with due to the Malabsorption of Celiac Disease.  Thiamine can be destroyed by sulfide preservatives in vaccines, which can result in the body's poor response to vaccines.  Thiamine also chelates metals which allows those metals to be removed in the feces.  Chelation removes thiamine from the body, resulting in a state of thiamine deficiency.  Sugar alcohols need to be processed through the liver using thiamine.  Again, if you're low in thiamine as many Celiac are because of the Malabsorption of celiac disease, vaccines can be a tipping point, resulting in a thiamine deficient state. High doses of Thiamine required to correct thiamine deficiency states are safe and nontoxic.  Thiamine has no toxicity level.  Thiamine and the other B vitamins need to be taken together because they interact together to sustain health.   References: https://pubmed.ncbi.nlm.nih.gov/25542071/ https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/
    • knitty kitty
      @Pasballard, Keep in mind those gluten free processed snacks are not required to have vitamins and minerals added to them to replace vitamins lost in processing like gluten containing products.   We need the eight essential B vitamins to turn those carbs into energy to fuel our bodies and make enzymes that sustain life.  Sudden weight gain (or weight loss) can be symptomatic of Thiamine Vitamin B1 deficiency.  Thiamine is the B vitamin with the shortest storage time, and so  thiamine deficiency shows up first with vague symptoms like weight gain or loss, fatigue, not sleeping well, achy or cramping muscles, digestive issues and headaches.   Taking vitamin and mineral supplements helps boost your body's ability to absorb these nutrients which keeps our bodies healthy.  B Complex vitamins and Vitamin D (which regulates inflammation) are usually low in people with Celiac disease.  Talk to your doctor and nutritionist about supplementing.
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