Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Family Making Fun Of Us !


Mamato2boys

Recommended Posts

Mamato2boys Contributor

:angry:

I know a couple of you have mentioned before about family not being supportive in one way or another. I have two sisters in law, both in their twenties. They're both VERY aware of the GI issues our son Ryan has had for the majority of his three years on this earth. So when I finally sorted out (on my own, thanks to EnteroLab and no thanks to our GI) what was going on I was ecstatic. I thought our family would be too. We have another family member (related by marriage) who has celiac disease, so the concept isn't new. Anyway, my SIL's have called us "hippies", and yesterday one of them said "I think this no-gluten thing you guys are doing is weird."

:angry:

Well who the hell asked you ?! Pardon my french, but that really irked me. I have to admit, too - it kind of hurt my feelings. I don't want to be perceived as weird. I know that ultimately it really doesn't matter what other people think, and that the fact that going gluten-free is working so well for ALL of us is all that matters. But it still kinda stings. Mostly it hurts me for Ryan. I feel pretty sure the daycare thinks I'm whacko and I dread him getting made fun of when he gets older. I've talked about this before (sorry). He's a sensitive kiddo and kids can be just so darn mean. Right now his classmates think his food looks better than theirs and try to swipe his (which is an issue in and of itself), but it probably won't be a whole lot longer before someone notices he's "different" and teases him.

Family is supposed to be your soft place to fall. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

I'm so sorry that you, and especially your kids, have to put up with this. I don't really have any suggestions, since in-laws can be tricky, but maybe a letter/email to all of them explaining what you just explained in this post. You can emphasize the lack of choice and point out that you will not let them harm your child by not taking his food issues seriously (either by feeding or teasing, and they really should know better).

And don't feel whacko. If Ryan ate dairy at daycare, they would have a serious medical problem on their hands immediately. It's the same with gluten, only they can't see it.

Hang in there. You aren't a nut-job for loving your children.

emcmaster Collaborator
Family is supposed to be your soft place to fall. :(

Yes, they are supposed to, but they often aren't.

I'm very sorry about your troubles. It's frustrating and as much as we sometimes want to beat them over the heads with a 2x4, we can't make people understand nor be sympathetic.

:(

CarlaB Enthusiast

In my case, family has always made fun of me ... this has just given them more material!

Michi8 Contributor
Yes, they are supposed to, but they often aren't.

I'm very sorry about your troubles. It's frustrating and as much as we sometimes want to beat them over the heads with a 2x4, we can't make people understand nor be sympathetic.

:(

Ditto here. Family can sometimes be the most difficult to deal with! You can't choose your family, but you can choose to be amongst understanding and supportive friends. :)

Michelle

Jestgar Rising Star
In my case, family has always made fun of me ... this has just given them more material!

I save mine the trouble and make fun of myself. This way, if I offend myself and stomp off I can always find myself and apologize.

jerseyangel Proficient
In my case, family has always made fun of me ... this has just given them more material!

Me too!

I understand how you feel. I was hurt by how certain family members acted the last time we went home to visit. Strangely, the ones that I though would have something to say didn't--but my sil, who I always thought I was close to acted strangely. I do think that some people have a hard time dealing with illness--and chronic illness, especially.

This is a tough one--lots of feelings at play, etc. I'm so sorry that they spoke to you that way :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast
I save mine the trouble and make fun of myself. This way, if I offend myself and stomp off I can always find myself and apologize.

:lol: I do this, too. At least when I make fun of myself, I know my heart is in the right place!

Jestgar Rising Star

I think, "mama", that a lot of us find that humor makes this easier. Even if it doesn't help you manage your in-laws, it might help Ryan if he can get in the habit of seeing the funny side of things.

rez Apprentice

hopefully they'll come around, good luck!

Mamato2boys Contributor
I save mine the trouble and make fun of myself. This way, if I offend myself and stomp off I can always find myself and apologize.

LOL !!! :lol:

gdobson Explorer

My family thinks I am being over-reactive about food. They try to sneak my son things he can't have - as if to prove me wrong. Luckily, my son turns the offers down. He knows what it's like to be sick. And he wants no part of it. I don't make fun of myself or my son, because I don't want to open the door for them to do. I approach it as serious and I am steadfast. No I can't use your microwave. No thank you, I can't eat that...and so on. I don't pretend or joke about it. It just is.

I worry about my son being teased, too. I have offered to bring treats to school for everybody and talk to his class if it is necessary. But so far it has not been. My son (who is now 9) approaches it seriously also. Sure he would like to go to Pizza Hut. But he just says that my pizza is great and it doesn't give him a stomachache.

So far. So good.

mommida Enthusiast

I thought this would be the perfect oppurtunity to tell all of you - with the Celiac gene, it has been renamed as "my" gene. (According to my mother-in-law) It is not the "Celiac gene" it is Laura's side of the family gene. :P

Thank you for letting me get that off my chest! ;)

Family can be the best or worst part of Celiac.

L.

Mamato2boys Contributor
I thought this would be the perfect oppurtunity to tell all of you - with the Celiac gene, it has been renamed as "my" gene. (According to my mother-in-law) It is not the "Celiac gene" it is Laura's side of the family gene. :P

Thank you for letting me get that off my chest! ;)

Family can be the best or worst part of Celiac.

L.

Well, THAT'S friendly ! :blink::huh:

So, are we all to blame you for our troubles, then ?? :lol:

Guest AutumnE
In my case, family has always made fun of me ... this has just given them more material!

Me too, Our family always shunned us. They were really wild, us not so much and for some reason that offended them even though we never said a word about it. I was the first one with asthma in the extended family and because they couldnt smoke in my mom and dad's house they stopped coming to mine and my sister's birthday party. It made me feel horrible as a kid but as I grew up I realized I wasnt missing anything ;)

Im sorry your going through it, I know how it feels.

Mamato2boys Contributor
Me too, Our family always shunned us. They were really wild, us not so much and for some reason that offended them even though we never said a word about it. I was the first one with asthma in the extended family and because they couldnt smoke in my mom and dad's house they stopped coming to mine and my sister's birthday party. It made me feel horrible as a kid but as I grew up I realized I wasnt missing anything ;)

Im sorry your going through it, I know how it feels.

See, I just don't get that kind of attitude. I would think that people would be more like "hey - if you feel better, then more power to ya !" Maybe it's fear ? Maybe people are afraid of being "converted" - we're a bunch of brainwashers, ya know. <_<;)

Any suggestions on a response to the "hippie" or "weird" comments ? I like being sarcastic and want to get the point across without being a b*tch about it.

weathertopmama Rookie

Oh, mamato2boys, that is just awful.

My family seems a little skeptical (they have always thought I was strange and somewhat hypochondriac...typical for a celiac who goes for 15 years without a prior diagnosis!) I was always trying this or that 'health' diet to feel better.

And now all 4 of my children have a disease requiring a special diet? I think they find it hard to believe.

Tell you what, though...the minute somebody disrespected my health or my child's health, that would be the end. I would politely excuse ourselves and have a good long cooling off period. These children need to know and believe that this diet is part of their life for their entire life. Undermining and doubting from relatives may make them more likely to neglect their health down the road. IMO

But it sounds like others have had success with just blowing them off and trying to laugh about it! Probably the best way to go about it (((hugs)))

CarlaB Enthusiast
Any suggestions on a response to the "hippie" or "weird" comments ? I like being sarcastic and want to get the point across without being a b*tch about it.

Dress like a hippie next time you see them!

Tell you what, though...the minute somebody disrespected my health or my child's health, that would be the end. I would politely excuse ourselves and have a good long cooling off period. These children need to know and believe that this diet is part of their life for their entire life. Undermining and doubting from relatives may make them more likely to neglect their health down the road. IMO

But it sounds like others have had success with just blowing them off and trying to laugh about it! Probably the best way to go about it (((hugs)))

No, laughing about it hasn't worked. As I mentioned, there was already an incredible amount of disrespect to me years before this ... I eventually had to have an extended, possibly permanent "cooling off period". I just don't think it's good for the kids to witness the ridicule .... the last thing I want my daughters to do is stay in an abusive, insulting relationship out of some sense of obligation. Okay, my situation was extreme ... I'll spare you the details.

Mamato2boys Contributor
Dress like a hippie next time you see them!

LOL :lol:

Probably too subtle for them. :D I'm breastfeeding, attachment parenting, babywearing....so they'd probably think it's just par for the course ! :lol:

Dress like a hippie next time you see them!

No, laughing about it hasn't worked. As I mentioned, there was already an incredible amount of disrespect to me years before this ... I eventually had to have an extended, possibly permanent "cooling off period". I just don't think it's good for the kids to witness the ridicule

Yeesh. That's awful. :(

My SILs think they're being funny and I really don't get the sense that they're TRYING to be hurtful, but they are. :unsure: My husband thought I was being extreme too - until he tried the diet and almost IMMEDIATELY saw a huge difference in how he felt. Now he's on the bandwagon right with me. :)

CarlaB Enthusiast
LOL :lol:

Probably too subtle for them. :D I'm breastfeeding, attachment parenting, babywearing....so they'd probably think it's just par for the course ! :lol:

On top of that, I home schooled, too!!! Until I didn't have the energy for it anymore.

If you didn't bathe for a week, the hippie thing might not be too subtle.

Guest AutumnE
LOL :lol:

Probably too subtle for them. :D I'm breastfeeding, attachment parenting, babywearing....so they'd probably think it's just par for the course ! :lol:

I relate to this sooo much. Im a attachment parenting, babywearing, cosleeping mama, who doesnt wear makeup and rarely wears hairspray. Im the oddball in the family for sure :rolleyes:

For some reason it bothers them and cant wrap their minds around us making different choices. Since we have had to mostly shop organic it sent it over the edge with them, We rarely get invited to my inlaws house anymore since I bring mine and my daughter's food and it bothers them for us not to eat their food :rolleyes:

ETA- We plan on homeschooling too!

Mamato2boys Contributor
On top of that, I home schooled, too!!! Until I didn't have the energy for it anymore.

If you didn't bathe for a week, the hippie thing might not be too subtle.

That's wonderful about the homeschooling. I don't think I have the patience for that one - I definitely admire people that do, though.

LOL ewwwww !!! I think my coworkers would probably protest to that one. :lol:

shayesmom Rookie
Any suggestions on a response to the "hippie" or "weird" comments ? I like being sarcastic and want to get the point across without being a b*tch about it.

"Well....we can't ALL be twinkie-eating lemmings!" :D

"Don't worry, when you're older and incapacitated from eating junk, I'll pick you out a good nursing home and visit at least one a decade!"

Or how about the obvious...."I didn't realize that you had recently graduated from medical school and had any grasp of gluten sensitivity and intolerance?"

"Were you blind and deaf for the past 3 years and are trying to make up for it by proving you're not dumb as well? Cuz...it's not working. And I know my kid, my husband and myself well enough to KNOW when we are feeling and doing better. We are definitely doing better on the diet"

Heather, I just don't know what to tell you. And sarcasm only gets you so far. You can think all of the things above, but saying them won't necessarily gain you acceptance or even tolerance. And being nice about it gets you some temporary cooperation and then some backstabbing when you aren't looking. Family should be your soft spot to fall. And usually they are. But people get really defensive when it comes to food. Call it a survival instinct, call it fear. It will eventually get better....just not anytime soon.

In the meantime, you do have every right to protect your son and keep family from labeling him. Every person has their own set of limitations. For Ryan, it's food. For another child, it could be school or sports or something similar. You may need to gently remind the relatives that with each negative comment, they are taking away a piece of Ryan's health (emotional) and happiness. Adults should be able to control themselves and not be hurtful through the guise of social ineptitude. They need to understand that they DON'T understand. Their opinions don't count. Ryan's response to the diet does. End of story.

I hope that you find a way to balance this soon. Try not to let it get you down. They will eventually come around. It just sucks going through all of this in the meantime! You KNOW that I feel for you on this. I go through it regularly too. But it has been getting better....except for that one crazy aunt who just CANNOT stop talking! :rolleyes:

Michi8 Contributor
LOL :lol:

Probably too subtle for them. :D I'm breastfeeding, attachment parenting, babywearing....so they'd probably think it's just par for the course ! :lol:

Yeesh. That's awful. :(

I got the granola label for all of those things (breastfeeding, attachment parenting, babywearing) plus sleeping with my baby...and when I had a home waterbirth, it was just over the top. Everyone talked about me and my "dangerous" choices behind my back, including my mother. I've also got the hypocondriac label, not to mention being the only one in the family willing to discuss anything of any substance. ;)

Michelle

Mamato2boys Contributor
"Well....we can't ALL be twinkie-eating lemmings!" :D

"Don't worry, when you're older and incapacitated from eating junk, I'll pick you out a good nursing home and visit at least one a decade!"

:lol:

I like both of those. I know that you of all people know exactly what I'm talking about. The funny thing is, the one that told us yesterday that we were weird, fessed up in the next breath to "trying" the diet and said she "didn't feel any different" so she figures she isn't "allergic" to glutens. :huh:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Confused about HLA-DQ Celiac gene test result

    2. - Scott Adams replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Confused about HLA-DQ Celiac gene test result

    3. - Aretaeus Cappadocia replied to Thoughtidjoin's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Dried Chickpeas

    4. - ainsleydale1700 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Confused about HLA-DQ Celiac gene test result

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,434
    • Most Online (within 30 mins)
      7,748

    LexiBusch
    Newest Member
    LexiBusch
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @ainsleydale1700! First, it is very unlikely, given your genetic results, that you have celiac disease. But it is not a slam dunk. Second, there are some other reasons besides having celiac disease that your blood antibody testing was positive. There are some diseases, some medications and even (for some people) some foods (dairy, the protein "casein") that can cause elevated celiac blood antibody test scores. Usually, the other causes don't produce marginally high test scores and not super high ones. Having said that, by far, the most common reason for elevated tTG-IGA celiac antibody test scores (this is the most common test ordered by doctors when checking for celiac disease) is celiac disease itself. Please post back and list all celiac blood antibody tests that were done with their scores and with their reference ranges. Without the reference ranges for negative vs. positive we can't tell much because they vary from lab to lab. Third, and this is an terrible bum steer by your doc, for the biopsy results to be valid, you need to have been eating generous amounts of gluten up to the day of the procedure for several weeks.  Having said all that, it sounds most likely that you have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. The two share many common symptoms but NCGS is not autoimmune in nature and doesn't damage the lining of the small bowel. What symptoms do you have? Do you have any blood work that is out of norm like iron deficiency that would suggest celiac disease?
    • ainsleydale1700
    • Scott Adams
      HLA testing can definitely be confusing. Classic celiac disease risk is most strongly associated with having the full HLA-DQ2 or HLA-DQ8 heterodimer, which requires specific DQA1 and DQB1 genes working together. Your report shows you are negative for the common DQ2 and DQ8 combinations, but positive for DQB102, which is one component of the DQ2 pair. On its own, DQB102 does not usually form the full DQ2 molecule most strongly linked to celiac disease, which is likely why your doctor said you do not carry the typical “celiac genes.” However, genetics are only part of the picture. A negative gene test makes celiac disease much less likely, but not absolutely impossible in rare cases. More importantly, both antibody testing and biopsy are only reliable when someone is actively eating gluten; being gluten-free for four years before testing can cause both bloodwork and intestinal biopsy to appear falsely negative. Given your positive antibodies and ongoing symptoms, it may be reasonable to seek clarification from a gastroenterologist experienced in celiac disease about whether proper gluten exposure was done before testing and whether additional evaluation is needed.
    • Aretaeus Cappadocia
      I agree with your post and have had similar experiences. I'm commenting to add the suggestion of also using nutritional yeast as a supplement. It's a rich source of B vitamins and other nutrients, and some brands are further supplemented with additional B12. I sprinkle a modest amount in a variety of savory recipes.
    • ainsleydale1700
      Hi, could someone help me understand the result of my gene test? DQ2 (DQA1 0501/0505,DQB1 02XX): Negative DQ8 (DQA1 03XX,DQB1 0302): Negative The patient is positive for DQB1*02, one half of the DQ2 heterodimer.  The doctor said I don't have Celiac genes.  I asked him to clarify about my positive DQB1*02, and he said it's a gene unrelated to Celiac.  I have all the symptoms and my bloodwork is positive for antibodies, despite being on a gluten-free diet for the past 4 years.  He also did a biopsy but told me to continue a gluten-free diet and not eat gluten before the biopsy.  Based on the gene test and biopsy (which came back negative) he ruled out Celiac, leaving me very confused.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.