Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What's Going On> He's Not Hungry Any More? Is This Good Or Bad?


ARK

Recommended Posts

ARK Apprentice

I THINK, I HOPE that this is a good sign.

Ever since Saturday my 14 yr old has stopped being ravenous from the second he wakes up until he goes to bed.

It has been 4 full days and he has eaten 3 small meals each day with one healthy smoothie for a snack, but only because I wanted him to. I think that even though he isnt hungry, his body needs the nutrition after being sick for so long.

What do yall think?

I m in SHOCK!!

This is the kid who has always been desperately/anxiously hunger - some even though he had a food obsession. If you did ANYTHING in the morning to delay him gettting his cereal (like run out of milk) then there would be utter panic!

Does this mean his intestines are healing? He is feeling better and better each day. We have been gluten free for a week, minus a few slip ups. Gluten lite for a week or so before that. Today he felt SO good! His depression has lifted, and he even played a board game with us at supper which is something he hasnt done in AGES. He never could play without thinking we were all ganging up on him. :blink: Serously, he was so foggy, and depressed, and upset with life that he couldnt play games.

We still dont have our test results by the way!

ARK


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nantzie Collaborator

That's exactly what happened to me after I went gluten-free. I had been constantly hungry for years. After I went gluten-free, my appetite just disappeared. It was actually kind of difficult to eat, so you may need to remind him to eat. Small meals is okay, work with him to keep it balanced. He may forget to eat because he won't be driven by hunger signals like he was used to.

I've been gluten-free since last January, and I still don't have a big appetite, although it has improved. For a while there I was actually getting nauseous when I ate, which was so odd. Nothing sounded good or tasted especially good. I really didn't have much of an opinion about food at all. I started drinking ginger tea and that really helped stimulate my appetite. It helped me get from nauseated to just having a small appetite. So if he ends up just not wanting to eat that may help. Doesn't need to be much. I think I drank one cup of it for three or four days and it helped a lot.

I'm glad he's feeling so much better. It sounds like he's doing great. It's amazing how quick and dramatic the change is isn't it?

Nancy

Kaycee Collaborator

Same thing happened to me too.

Felt so hungry for the last few years, but more or less within a week of being gluten free, the hunger just disappeared. Hunger does not rule my life anymore.

Cathy

ARK Apprentice
Same thing happened to me too.

Felt so hungry for the last few years, but more or less within a week of being gluten free, the hunger just disappeared. Hunger does not rule my life anymore.

Cathy

Thanks so much to everyone who answered - I am so relieved!

That is one of they results of being gluten free that I NEVER EXPECTED.

We've lived with a ravenous kid for 14 years and we were so used to it that we did not realize how bad it really was, and that it was not normal. That is NOT one of the symptoms for which we took him to the doctor.

The very FIRST problem we noticed was depression/irritability/confusion. And that just came on gradually - I wish we had figured it out sooner so he could be happy and healthy sooner.

BUT, I am thankful that our doctor figured it out so fast! We use a homeopathic doctor occasionally, and that is who we went to. If we had gone to our regular MD all he would have done is give us depression pills!

e&j0304 Enthusiast

That is exactly what happened with my dd. That is actually what we did take her to the dr for. She was only 2 years old and was eating CONSTANTLY. She would not play with friends, particiapte in little classes or really do much of anything because she was sad/anxious about when she could eat next. It was a nightmare and before she was diagnosed (by us and ONE helpful dr.) the medical community at a University hospital told us that she had mental problems and needed to be seen by a psychiatrist. Don't forget that my dd was 2-years-old.

I do believe that she had many of the mood problems, depression, anxiety, etc that you describe in your son. I am so very happy that you found your answer. I hope that he is able to live a long healthy life!

Shannon

ARK Apprentice
That is exactly what happened with my dd. That is actually what we did take her to the dr for. She was only 2 years old and was eating CONSTANTLY. She would not play with friends, particiapte in little classes or really do much of anything because she was sad/anxious about when she could eat next. It was a nightmare and before she was diagnosed (by us and ONE helpful dr.) the medical community at a University hospital told us that she had mental problems and needed to be seen by a psychiatrist. Don't forget that my dd was 2-years-old.

I do believe that she had many of the mood problems, depression, anxiety, etc that you describe in your son. I am so very happy that you found your answer. I hope that he is able to live a long healthy life!

Shannon

That IS a nightmare! I'm so sorry you had to go through this with your daughter, and I hope she is feeling lots better now! I believe that our son's problems would have come to a head MUCH sooner had we not been homeschooling him. Simply because he would have been eating way more junk food! The teachers would have pressured us to put him on Ritalin - several doctors told me he had ADHD and we "should" medicate him. We never did though. I wonder if that was all because of the gluten intolerance too?

Ursa Major Collaborator

Sure, ADHD is a known symptom of celiac disease! I wonder how many kids are on Ritalin, that should be on a gluten-free diet instead.

I think one reason your son doesn't feel like eating is, that he was addicted to gluten. It was the addiction that kept him wanting to eat all the time, not normal hunger pangs.

Now that his 'drug' (gluten) is gone, he doesn't know when he is hungry. He has forgotten what normal hunger pangs mean.

The same thing happened to me. When I eliminated gluten a little over a year ago, for a long time I had to remind myself to eat, because I had no idea when I was hungry. Sometimes I'd remember in the late afternoon that I should eat something. By then I'd be feeling sick with hunger, but didn't know why I was sick.

It is somewhat better now, but I still have to pay attention to needing to eat.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sophiekins Rookie

My family never really noticed that I was eating vast quantities of food - as both of my sisters have hyperactive metabolisms and eat positively enormous quantities of food though they are both slim and healthy. . .with the two of them at home we go through eight loaves of bread, two pounds of cheese and at least ten litres of milk in a week - but they did notice that I virtually stopped eating after I was diagnosed celiac. Six years later, I still have to eat to a timetable because I don't notice my body's hunger signals. Large meals make me feel mildly unwell, but if I don't eat regularly enough, I get vicious migraines. So I started calorie counting (me! never-on-a-diet-in-my-life me counts calories!) and took a nutrition class to make sure that the meals I am eating are large enough and properly balanced. I still make mistakes - particularly after I've been glutened (remember that any meal with enough gluten to make you sick is a meal you might as well not have eaten for all the benefit your body got, so you have to eat more the next couple of days), but I find that an apple and a couple of small squares of chocolate (or raisins) is a good catch if I'm about to lose it. When I've forgotten to eat for too long, I don't want to eat and can become nauseous if I try and force it, so I start with a glass of diluted apple juice (one part juice to three parts water) or, in a pinch, a teaspoon of sugar dissolved in hot water, and after about half an hour, I follow it up with something plain, like brown rice with milk, peanut butter and celery, or baked/boiled/mashed potato with broccoli or sweet pepper.

Speaking of which, I'd probably better go and eat. . .as I think my last meal was lunch, and it is well past dinnertime!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,740
    • Most Online (within 30 mins)
      7,748

    Mark Barbosa
    Newest Member
    Mark Barbosa
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I haven't heard of them before, but a significant portion of dietary supplements are produced by a handful of large contract manufacturers. These companies have the facilities, expertise, and certifications to produce supplements at scale, making them attractive partners for brands that don’t have their own manufacturing capabilities. I doubt Forvia manufactures them directly, so it is hard to know if they are just doing clever marketing to a certain malabsorption crowd, or they actually have unique product.
    • Scott Adams
      That’s an interesting observation! The timing you mention does raise questions about the relationship between modern wheat varieties and the emergence of Non-Celiac Gluten Sensitivity (NCGS). Norman Borlaug’s work on high-yield, disease-resistant wheat during the Green Revolution significantly increased global food production, but it also led to changes in the composition of wheat, including higher gluten content to improve baking qualities. While NCGS was formally recognized as a condition in the 2010s (https://bmcmedicine.biomedcentral.com/articles/10.1186/1741-7015-10-13 and https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3820047/) , it’s important to note that the awareness and diagnosis of gluten-related disorders have evolved over time. Some researchers suggest that modern wheat breeding practices, along with changes in food processing and gut health, may contribute to the rise in gluten sensitivity. However, the exact mechanisms behind NCGS are still not fully understood, and it remains a debated topic in the scientific community. It’s also worth considering that increased awareness and improved diagnostic tools have played a role in identifying conditions like NCGS that may have existed but were previously unrecognized. The interplay between genetic, environmental, and dietary factors makes this a complex issue, and more research is needed to fully understand the connections.
    • Scott Adams
      Here is a recent reply to a Celiac.com email asking for comment about gluten contamination detected in their bakery products: You can read more about it in this thread:  
    • trents
      @Marie70, it is very important that your daughter not begin experimenting with eating gluten free until all testing for celiac disease is complete. Doing so will invalidate the testing. Normally, the testing involves two stages. The first stage is blood antibody testing as per the article linked by Scott above. As you can see from the article, there are a number of tests that can be ordered when diagnosing celiac disease but most physicians will not order a complete panel. At the very minimum, your daughter should request two antibody tests, "total IGA" and "tTG-IGA". The tTG-IGA is considered the centerpiece of celiac disease testing but if total IGA is low (i.e., if she is IGA deficient), this will result in an artificially low tTG-IGA score and possibly a false negative. Many general practitioners are not very knowledgeable about celiac disease testing so we have found we have to be a little assertive in order to get proper testing done. I don't know under the relational circumstances how much input you will have with your daughter about these things but I thought I'd pass the info on to you anyway. The second stage of celiac disease testing involves an endoscopy with biopsy of the small bowel lining which is then sent to a lab for microscopic analysis. This checks for damage to the small bowel lining and is confirmation if any of the blood antibody tests are positive. It is also considered to be the gold standard of celiac disease diagnosis. Again, should her antibody testing be positive, your daughter would still need to be consuming gluten until after the endoscopy/biopsy is complete.
    • Klsdurbin
      No!!! Celiacs disease does not go away. You can’t outgrow it, and if all proper diagnostic procedures (blood test and endoscopy) were followed when you were 8, it’s almost impossible to be mis-diagnosed.    stoms and reactions to gluten do change over time, but the fact you have celiacs does not.    I think that a lot of people misunderstand that the goal to managing your celiacs is to eventually test negative for celiacs. This does not mean it went away, it means that your gluten-free diet is working and you’re no longer producing the anti-bodies that will wreak havoc on your health.    if you can access the medical records from when you were 8 and have a GI doctor review them, I would highly recommend you do this. 
×
×
  • Create New...