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- Kwinkle posted a topic in Coping with Celiac Disease0I’m so confused…
As I mentioned before I’m pretty new to this. I’m about a month into being completely gluten-free. But I’m still having issues with fatigue, loss of appetite, and gas pain. I’ve started taking the B complex, and was hopeful, but that would help me get past especially the fatigue and the loss of appetite. But now I just read a more recent post where somebod... -
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- RobHicks replied to RobHicks's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease5Weak stomach digestion after undiagnosed celiacs
Thank you. Yeah I avoid lots of foods just wondering if my situation is common. GI doctor I’m seeing now doesn’t think my present situation is related to the celiacs whereas I do. -
- Rogol72 replied to TerryinCO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms14New Guy Here...
I agree. PPI use long term is concerning. I believe a combination of PPI use along with a history of antibiotics for colds and sore throats led me to develop CDiff and Ulcerative Colitis shortly after a minor knee op. Lowering inflammation and bloating through diet can significantly help getting off PPIs in my experience. -
- Celiacandme replied to RobHicks's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease5Weak stomach digestion after undiagnosed celiacs
My gastroenterologist had me incorporate VSL#3 to help with similar issues. It can take a long time to heal. I also found adding kiwi to my diet was soothing to my stomach. For me, it was important to avoid other inflammatory foods. Dairy, corn, etc, were aggravating to my stomach. Bone broth has been another life saver for me over the years. I do know I...
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As I mentioned before I’m pretty new to this. I’m about a month into being completely gluten-free. But I’m still having issues with fatigue, loss of appetite, and gas pain. I’ve started taking the B complex, and was hopeful, but that would help me get past especially the fatigue and the loss of appetite. But now I just read a more recent post where somebody is saying that the B complex is not necessarily good for us? I was very comfortable with the B complex because our bodies shed excess B vitamins. But now I just looked it up and B vitamins can cause gas and bloating. As I mentioned, that’s one of my biggest symptoms, and I also think it’s directly connected to my loss of appetite, which, of course is connected to my fatigue. I’m so confused I don’t really know what to do now? -
Thank you. Yeah I avoid lots of foods just wondering if my situation is common. GI doctor I’m seeing now doesn’t think my present situation is related to the celiacs whereas I do.
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I agree. PPI use long term is concerning. I believe a combination of PPI use along with a history of antibiotics for colds and sore throats led me to develop CDiff and Ulcerative Colitis shortly after a minor knee op. Lowering inflammation and bloating through diet can significantly help getting off PPIs in my experience.
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By Celiacandme · Posted
My gastroenterologist had me incorporate VSL#3 to help with similar issues. It can take a long time to heal. I also found adding kiwi to my diet was soothing to my stomach. For me, it was important to avoid other inflammatory foods. Dairy, corn, etc, were aggravating to my stomach. Bone broth has been another life saver for me over the years. I do know I continue to be sensitive. If I were to have dairy for two days in a row it would be like adding a log to a fire to my sensitive system. I do also have issues with acid reflux though. (Barrett's esophagus) I also stay up after eating. They say to for 3 hours but even 2 is helpful. Keep us posted on how you are. Hope you get some relief soon. -
By Scott Adams · Posted
It’s not uncommon for people with celiac disease, especially those undiagnosed for a long time, to experience lasting digestive issues even after going gluten-free. The damage caused by years of inflammation in the small intestine can sometimes lead to other conditions like delayed gastric emptying (gastroparesis), acid reflux, or food intolerances. Staying upright after eating can help with digestion, particularly if reflux is an issue, as lying down can exacerbate symptoms. Greasy or fatty foods can be harder to digest, especially if your digestive system is still healing or if you’ve developed sensitivities. It’s important to discuss these ongoing symptoms with a gastroenterologist, as there might be additional treatments or dietary adjustments that could help. You’re definitely not alone in feeling like your stomach needs extra care, and hearing others’ experiences can be validating. One thing you should do is look at your diet again, and be sure that it is 100% gluten-free. Choline is a supplement that may help you with your symptoms, so consider this as well. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:
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