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How To Teach My Family(and Myself) What I Can Eat


Bronwen

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Bronwen Newbie

Im having trouble telling my family and friends(and myself).Is there a good list somewhere I can printout for help buying groceries that I can post on the fridge for them. "Dont buy products containing....Buy this instead..." kinda thing. My poor boyfriends clueless.My parents are useless and Im not sure who to believe. Glutens in this but not in this?but have heard differently from different sources.

Im dairy/soy/gluten free officially as of today


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Mamato2boys Contributor
Im having trouble telling my family and friends(and myself).Is there a good list somewhere I can printout for help buying groceries that I can post on the fridge for them. "Dont buy products containing....Buy this instead..." kinda thing. My poor boyfriends clueless.My parents are useless and Im not sure who to believe. Glutens in this but not in this?but have heard differently from different sources.

Im dairy/soy/gluten free officially as of today

That's a tall order, but not impossible. I myself am avoiding dairy, soy, glutens, and eggs. The simplest thing to do at first is to eat just basic, whole foods. Meats, veggies, fruits. Getting into the habit of reading labels (and decoding them) can be a little overwhelming at first.

Ursa Major Collaborator

Bronwen, check Nini's newbie kit, it has a whole lot of useful information. Open Original Shared Link Scroll down to the bottom to find the links.

KimG Rookie
Im having trouble telling my family and friends(and myself).Is there a good list somewhere I can printout for help buying groceries that I can post on the fridge for them. "Dont buy products containing....Buy this instead..." kinda thing. My poor boyfriends clueless.My parents are useless and Im not sure who to believe. Glutens in this but not in this?but have heard differently from different sources.

Im dairy/soy/gluten free officially as of today

Ursela,

Welcome to the "special club" as my daughter puts it.....she has celiac disease and is 11. She was diagnosed in early July and I talked to friends and family members about this until i was blue in the face. It has not been until her article came out on Nov. 19 in our local paper (has now gone out to over 3,800 newspapers in the USA and still on the wire!) that close friends and family members understood REALLY what i went through with her!!! Please read the article if you have not seen it before and share it with them......they will have a better understanding.

Next, there is not a "simple" list......ever! I was totally overwhelmed in the beginning. Go out and get the book "Living Gluten Free for Dummies" by Danna Korn. It is probably one of the best over-all and easiest books to understand along with easy basic recipes. This helped me more than any other reading material....like i said, it gets overwhelming so try to keep it simple to start with.

Then...find a support group in your area......where are you from? I 'm sure there are folks on this message board that can help direct you in the area.

Here's the link to the article......enjoy! We are getting such pos results from it, but mostly it has helped my friends to understand so much MORE!

Leaving the disease behind

Kim Guthrie goes through several knives making toast for her family in

the morning. And she has to use two toasters. “I also have to use two

different tubs of butter,” she said.

The sender says:

To read the rest of the story, go to

Open Original Shared Link

email: kdzbgone@sbcglobal.net

Best of luck,

Kim

Ursela,

Welcome to the "special club" as my daughter puts it.....she has celiac disease and is 11. She was diagnosed in early July and I talked to friends and family members about this until i was blue in the face. It has not been until her article came out on Nov. 19 in our local paper (has now gone out to over 3,800 newspapers in the USA and still on the wire!) that close friends and family members understood REALLY what i went through with her!!! Please read the article if you have not seen it before and share it with them......they will have a better understanding.

Next, there is not a "simple" list......ever! I was totally overwhelmed in the beginning. Go out and get the book "Living Gluten Free for Dummies" by Danna Korn. It is probably one of the best over-all and easiest books to understand along with easy basic recipes. This helped me more than any other reading material....like i said, it gets overwhelming so try to keep it simple to start with.

Then...find a support group in your area......where are you from? I 'm sure there are folks on this message board that can help direct you in the area.

Here's the link to the article......enjoy! We are getting such pos results from it, but mostly it has helped my friends to understand so much MORE!

Leaving the disease behind

Kim Guthrie goes through several knives making toast for her family in

the morning. And she has to use two toasters. “I also have to use two

different tubs of butter,” she said.

The sender says:

To read the rest of the story, go to

Open Original Shared Link

email: kdzbgone@sbcglobal.net

Best of luck,

Kim

Oooppps! I'm sorry i got your name wrong!....please forgive me, i was looking at the last poster's name!....best, Kim

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    • Jess270
      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions you describe, flu like symptoms, joint pain, urinary tract irritation, rash, stomach upset, nausea, diarrhoea & fatigue. I had liver pain like you describe, as part of the intolerance is usually a sluggish liver that makes processing all the histamine difficult. There are multiple possible root causes of histamine intolerance, usually it’s a symptom of something else. In my case, leaky gut (damaged gut wall)caused by undiagnosed celiac, but for others it’s leaky gut caused by other things like dysbiosis. Some people also experience histamine intolerance due to mould exposure or low levels of DAO (the enzyme that breaks down histamine in the gut). I’d try a low histamine diet & if that doesn’t improve symptoms fully, try low oxalate too. As others have suggested, supplements like vitamin d, b, l-glutamine to support a healthy gut & a good liver support supplement too. If you’re in a histamine flare take vitamin c to bowel tolerance & your symptoms will calm down (avoid if you find you have oxalate intolerance though). Best of luck 
    • trents
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    • GeoPeanut
      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease,  and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and  dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with myopathy that has occurred. 
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      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important) the reference ranges for each test used to establish high/low/negative/positive. Different labs use different rating scales so this is why I ask for this. There aren't industry standards. Has your husband seen any improvement from eliminating gluten from his diet? If your husband had any positive results from his celiac blood antibody testing, this is likely what triggered the consult with a  GI doc for an endoscopy. During the endoscopy, the GI doc will likely biopsy the lining of the small bowel lining to check for the damage caused by celiac disease. This would be for confirmation of the results of the blood tests and is considered the gold standard of celiac disease diagnosis. But here is some difficult information I have for you. If your husband has been gluten free already for months leading up to the endoscopy/biopsy, it will likely invalidate the biopsy and result in a false negative. Starting the gluten free diet now will allow the lining of the small bowel to begin healing and if enough healing takes place before the biopsy happens, there will be no damage to see. How far out is the endoscopy scheduled for? There still may be time for your husband to go back on gluten, what we call a "gluten challenge" to ensure valid test results.
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