Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Healing Process...


MauriceGreene

Recommended Posts

CarlaB Enthusiast

Helena, she sounds a lot like me. :unsure: I feel better off gluten, but I think the sensitivity is because of the Lyme, which can make you sensitive to many things.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roxanna Newbie
Yeah, I would say I am just about where you are. Although, I did feel great fairly soon, within 3-6 months. So I know how good it CAN be, now I just have lots of not-so-great/bad patches I assume are from mistakes.

But I also think some of the fatigue and other stuff is candida related. When I first started the gluten-free diet, I was also on a lot of probiotics because I had just destroyed myself with antibiotics for sinus infections (every other month). When I stopped taking the probiotics, things got worse again. So I did a spit test and sure enough, I still had too much candida. I read an Italian study that linked candida overgrowth with celiac. They talked as if treating candida should be part of the initial celiac healing process. I have not been able to find anything else talking about a connection though, but you might want to see if candida could be part of the problem.

I can't help but think that your problem may be the fact that you already have damage done from eating gluten all these years. If the damage is already done there is no going back. I have heart problems, high blood pressure, seizures, osteoarthritis, eschemia in the brain, severe chronic asthma, etc. I am tired and sleepy a big part of the time. I have severe reactions to a lot of meds. so I can't take meds to help me much. Of course a lot of meds have glutten in them. So maybe the gluten problem has already damaged you to the point that you can't fix it now. Sorry to tell you bad things like this. It is just a guess on my part for you. I know it is most of my problem. Roxy B)

CarlaB Enthusiast
I can't help but think that your problem may be the fact that you already have damage done from eating gluten all these years. If the damage is already done there is no going back. I have heart problems, high blood pressure, seizures, osteoarthritis, eschemia in the brain, severe chronic asthma, etc. I am tired and sleepy a big part of the time. I have severe reactions to a lot of meds. so I can't take meds to help me much. Of course a lot of meds have glutten in them. So maybe the gluten problem has already damaged you to the point that you can't fix it now. Sorry to tell you bad things like this. It is just a guess on my part for you. I know it is most of my problem. Roxy B)

Have you been tested for Lyme? People with celiac tend to get better once they go gluten-free. Some damage is irreversible, but much of it gets better. Arthritis is a BIG symptom for those with Lyme ... actually the other problems are, too, since it affects all bodily systems.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Karen Chakerian's topic in Coping with Celiac Disease
      2

      Getting rid of the belly bloat

    2. - knitty kitty replied to SaiP's topic in Related Issues & Disorders
      18

      Dangerously underweight, Perfect gluten free and insomnia

    3. - trents replied to SaiP's topic in Related Issues & Disorders
      18

      Dangerously underweight, Perfect gluten free and insomnia

    4. - trents replied to Karen Chakerian's topic in Coping with Celiac Disease
      2

      Getting rid of the belly bloat

    5. - Karen Chakerian posted a topic in Coping with Celiac Disease
      2

      Getting rid of the belly bloat


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,446
    • Most Online (within 30 mins)
      7,748

    Gilly B
    Newest Member
    Gilly B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @Karen Chakerian, We need more information, please.   What homeopathic remedies or medications are you taking now?  Do you still have the blood pressure and other symptoms?  What is included in your diet currently?  Dairy? Oats?  Processed gluten free foods?  Vegetarian?  Other food allergies?  Do you take vitamins?  When gluten is removed from the diet, the body stops making the anti-gluten antibodies that are usually measured in blood tests used to diagnose Celiac disease.  To measure the anti-gluten antibodies, you would have to consume 10 grams of gluten (4-6 slices of bread or equivalent) per day for a minimum of 2 weeks or longer.   A DNA test which looks for the most common genes for Celiac Disease may be a less invasive avenue to pursue.  Has your doctor checked you for nutritional deficiencies? Glad you're here!
    • knitty kitty
      @SaiP, Insomnia is listed as one of the side effects of Loratadine.   Niacin B3 in the form Tryptophan, Pyridoxine B 6, Folate B 9, Cobalamine B12, Magnesium, and Thiamine B 1 are needed to produce the sleep hormone melatonin.  Insomnia can also be caused by low Vitamin D and low Vitamin A.   A strict gluten free diet can be low in essential  vitamins.   Gluten containing products are required to replace vitamins lost in processing and milling.  Gluten free processed foods are not required to have vitamins added.  White rice is not a good source of B vitamins.  Brown rice is little better.  Exposure to light (even grocery store lights) and heat (during transportation) can destroy B vitamins.   B vitamins are easily lost in urine and diarrhea because they are water soluble.  If you have had diarrhea longer than two weeks, you are probably low in B vitamins.  Fat based vitamins, like Vitamins D and A, can be low due to fat malabsorption in Celiac disease, too.   Damaged villa in Celiac Disease do not absorb B vitamins and fat based vitamins and minerals well.  Supplementing with essential nutrients while villi heal boosts the ability to absorb essential vitamins and minerals.  Vitamins are stored and utilized inside cells.  Blood levels are not accurate measurements of vitamin deficiencies.  You can have normal blood levels while having deficiencies inside cells.  The brain orders cells to release their stores so the brain and heart can keep functioning.  This results in normal blood levels, but vitamin deficits inside cells.   Your indulgence in a little bit of bread is providing some, but insufficient amounts, of vitamins needed to make sleep hormone melatonin while keeping your inflammation and histamine production high.   In addition to a B Complex, I took 1000 mg of tryptophan before bed to correct my insomnia caused by high histamine levels.  Correcting my Vitamin D level to between 75-100 nmol/ml helped as well.  Also Passion flower extract is helpful in falling asleep quickly.   Please stop eating gluten bread as this will keep your autoimmune response triggering and your antibody levels won't go down and your histamine levels will stay up as well.   Celiac is a marathon, not a sprint.  P.S. I wanted to reiterate that insomnia and weight loss are symptoms of Thiamine deficiency.  Benfotiamine is a form of thiamine that promotes intestinal healing.  Thiamine is water soluble and nontoxic even in high doses.  High doses are needed to correct thiamine deficiency. All mitochondria in cells utilize thiamine.  The World Health Organization says to take 500 - 1000 mg per day of thiamine and look for health improvement.  Diets that are high in carbohydrates like rice and gluten require more thiamine.  For every 1000 calories from carbohydrates, we need 500 mg more thiamine.  Thiamine is found in meat.  Few veggies contain thiamine. Can you rise from a squat without assistance?  This is the field test for thiamine deficiency used by WHO.  If you cannot rise easily from a squat you may be thiamine deficient.
    • trents
      Earlier, you mentioned the possibility of adding in sweet potatoes. Have you tried that? Have you tried sourdough bread? Some people with celiac disease claim they can eat sourdough without a gluten reaction. The fermentation process alters the protein somewhat.
    • trents
      Welcome to the forum, @Karen Chakerian! So, for the sake of clarity, you have self-diagnosed yourself as having celiac disease but are not officially diagnosed by medical testing. Is this correct?
    • Karen Chakerian
      I’m 70 years old and have RA for 25 years. I’d never had digestive issues or even heard of celiac until 2 months ago.  6 years ago I started having serious diarrhea, dropped what little weight I had,  became very exhausted, developed rapid onset blood pressure and other symptoms. I went to the doctor for an unrelated matter and even with my records he told me they have ‘pills’ for all those things; which I turned down and sought to deal with this with homeopathic remedies.  Mid October 2024 my guts hurt terribly and started to swell. My massage therapist asked about celiac and I started to do research on it. It absolutely fits all the symptoms so I’ve been gluten free since 2 days before Thanksgiving but the huge gut persists. Thankfully the pain and cramps are gone. I look like a 90# pregnant skeleton.  I’m exhausted and looking for some encouragement from the tribe. I have good days and bad. I know living with an autoimmune disease sucks but this is even worse than the RA. 
×
×
  • Create New...