Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oh Man Another Major Tantram From My 2 Yr. Old!


Electra

Recommended Posts

Electra Enthusiast

I'm trying to get her ready for the dr's appt today and she is IRATE!! She hasn't even eaten today, but I gave her gluten yesterday trying to evoke an attack because I'm hoping to get her tested today. She's screaming bloody murder flailing her body about on the floor as if she's having a seizure (but she's conscious)!! She won't let you talk to her, look at her, or go near her or she screams even loader and gets more upset. She just is not like this (or didn't used to be) and I need to get her out of this house to the dr's!! Man this is just not something I can emotionally handle right now UG!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

hang in there, God, I remember those tantrums well... my daughter's were terrible... remember to breathe and at the Dr. appt. PLEASE tell them about these tantrums and that you KNOW they are linked to her diet and you'd like to try a dietary trial as you suspect gluten. I wish I'd just done the dietary trial FIRST with my daughter instead of prolonging the agony by going to see specialists who didn't believe me...

taweavmo3 Enthusiast

Oh yeah, those tantrums are still fresh in my mind too. I remember trying to describe them to the pedi one time, and he thought I was just talking about a run of the mill tantrum and started in on all the normal ways to diffuse them. It's very hard to convey exactly how bad they are!

We still have some days like that, and Emmie's almost 5. Although, we found out this summer that she also had urinary reflux, so I think that's the problem now. She still has tantrums where we have to physically stand by her just to make sure she doesn't hurt herself or one of the other kids. She'll pull her hair, bite her arm, throw anything within reach, etc. But thank goodness they don't happen that often anymore.

Good luck, hang in there, and just know that after you start the diet things will start improving!

Fiddle-Faddle Community Regular

For what it's worth, when my daughter threw tantrums, I would take her into my walk-in closet, close the door, and sit in the dark holding her until she stopped--which sometimes felt like forever, but each time was less. The quiet, the dark, and Mommy holding her seemed to make a lot of difference.

She needed a lot of verbal preparation for everything, including the closet. Some children have a lot of trouble with transitions, especially when it doesn't involve getting their own way, and telling them in advance what will be happening, when, and why can make a lot of difference, even when there are other factors, like gluten. This also helps with those children who are just going through a control-freak stage, too.

Staying calm and quiet yourself in these situations is extremely difficult, but very important, both for your sanity and hers!

When you are on your way to an appointment and she loses it, you might just strap her (screaming) into the car seat, even if she is still in pajamas. Pack everything you think you might need (change of clothes, her favorite teddy, breakfast and a drink for her, etc.). Sometimes a favorite compact disc in the car can help, too.

I hope your doctor is cooperative (some of them throw tantrums, too! ;) ), and that going off gluten resolves everything.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,350
    • Most Online (within 30 mins)
      7,748

    JohannesW85
    Newest Member
    JohannesW85
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Itsabit
      Hi. Yes. I’m awaiting my Biopsy results. I had B12 and other labs drawn on Mon, including Thyroid levels, as I am on Levothyroxine for radiation-induced hypothyroidism. Those levels should indicate any iodine issues. We had discussed the urine iodine, but he went with the thyroid instead. We’ll see.  I never had any of those Pellagra skin changes, or Casal’s necklace. Just itchiness in the supraclavicular hollows on both sides of my neck, and the anterior aspect as my neck radiation site.  The hollows had no changes until I scratched them, then I got the rash on those areas like the ones I have now scattered in different areas, usually on both sides with the exception of my anterior thighs. My right is affected, my left isn’t. I am 70 and have all my teeth as well - amazingly after having had max dose radiation in 2002. 😂 Unfortunately, because of long term changes in my oral mucosa because of it I can’t use mouthwashes - even non-alcohol ones, as they all burn my mouth like fire. Toothpastes burn as well, but not nearly as bad. I have an electric toothbrush but it is getting more difficult to use due to increasing trismus. Some days I cannot open my mouth wide enough to get the electric brush between my back teeth, so on those days I use a regular one. Gotta do what you gotta do.  Thank you for your input. Any insight I can get into this is appreciated. So, for now it’s the waiting game for test results, then we can form a treatment plan going forward. 
    • James47
      Hiya..I was 48 when diagnosed two years ago and I was in right bad way but strict gluten-free diet you will recover I promise x
    • James47
      Hi everyone I'm James, I hope you are all feeling well??. Accidentally had gluten at weekend and I've had severe diarrhea since sat night. My question is ,the longer someone like myself has been following a strict gluten-free diet will the exposure to gluten be lot more extreme as body now has been free of it well over a year ? Any information be much appreciated and any tips on how to stop the constant diarrhoea I have currently also be appreciated guys x
    • Cathijean90
    • Wheatwacked
      I use Listerine.  Rinse first to soften the tarter, then brush with Oral B electric toothbrush super sonic.  The $15 ones at the supermarket.  At 73 I still have all my teeth.  While a blood test can measure iodine levels, it's not the most accurate method for assessing iodine status, and urinary iodine excretion is considered a better indicator.  Have any of your dermatologists ever done a biopsy for dermatitis herpetiformis?  I may have missed it.  Note the similarity of Casal's necklace to one of your symptoms. Pellagra rash is a characteristic skin manifestation of niacin (vitamin B3) deficiency. It typically presents as:  Erythema: Red, sunburned-like areas of skin, often on the face, neck, arms, and legs.  Scaliness: Dry, flaky skin that may become thickened and crusty.  Hyperpigmentation: Darkened patches of skin, particularly in sun-exposed areas.  Casal's necklace: A dark, pigmented band around the neck.  I am currently taking these} Vitamin D 10,000 IU (250 mcg) DHEA 100 mg 500 mcg Iodine  10 drops of Liquid Iodine B1 Thiamin 250 mg  B2 Riboflavin 100 mg B3 Nicotinic Acid 500 mg 4 times a day for hyperlipidemia. B5 Pantothenice Acid 500 mg Vitamin C 500 mg     Selenium 200 mcg  Several times a week
×
×
  • Create New...