Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How To Find Out If Your Gluten Intolerent?


lyndszai

Recommended Posts

lyndszai Apprentice

I know how to find out if you have celiac but I was just wondering sence they're similar how do you do which is which ? Do they do some alergy test for gluten intolerent .I asked my gi doctor if they could find out but sticking the little needles in you and hes like no .So I was just wondering how they find out .thanks lynds


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Alexolua Explorer

Okay.. this could be wrong, still learning.. so if someone says I am, then I'll bow to them, lol.

But Celiac Disease, by definition I think is when the vili in your small intestines get damaged by gluten. Gluten intolerance is when your body can't tolerant gluten. If you keep eating gluten containning foods while you are intolerant, than you can develope Celiac Disease.

I think that's right. But a lot of people say Celiac Disease for gluten intolerance, since it's basically the same thing sorta. I do so too.

So to more answer your question though, sorry.. I like to think aloud! The way to tell the difference, I think, would be by a biopsy. If it shows damaged, than it's Celiac Disease, if none, than you have a gluten intolerance. Somewhat different, but they have the same treatment, which is a gluten free diet.

Umm.. how to know if you are gluten intolerant? Well, if you stop eating gluten and you get healthy, that's one. Your blood can be tested for gluten anti-bodies, and enterolab can test your stool for anti-bodies, which is more accurate than the blood testing.

Hope this too long post helps! =D

tarnalberry Community Regular

pretty much, if you produce antibodies (IgA and IgG) to gluten, you're gluten intolerant. *technically* you're not celiac unless you've got intestinal damage diagnosed by a biopsy. in the end, we don't treat (think on them) them much differently, since they're treated (dealt with) much the same. ;-)

I should add... just because a blood test doesn't show antibodies, though, doesn't mean you aren't producing them. They simply may not be making it into the bloodstream in high enough quantities for the lab to label you "positive". :-/

GEF Explorer

My understanding is that if you had an allergy to wheat, the doctor could prick you for it. The antibody that he/she would be looking for is IGE... which is a different reaction than intolerance (IGG & IGA). They've still got to prick you for that too... but for some reason they want a whole lot more blood. <_<

I believe some doctors are pushing for a more-broad definition of celiac (gluten intolerance that has led to microscopically visual damage to the small intestine)... to include gluten intolerance. It would certainly end a lot of confusion, push treatment an probably get more mainstream products gluten-free!!! Now..... that would be great!

Gretchen

dmbaird1230 Apprentice

what about the skin prick allergy test, where they prick you with small needles and inject the antibody to see if your skin reacts to it? I had this done and they told me I was allergic to wheat. Does that mean I'm gluten intolerant?

GEF Explorer
what about the skin prick allergy test, where they prick you with small needles and inject the antibody to see if your skin reacts to it........... Does that mean I'm gluten intolerant?

Not necessarily, but don't rule it out. The tests that your doctor would run to rule in/out celiac are for specific antibodies (example: IGG, IGA), which are different from those (IGE) in an allergy. This would require blood to be drawn in much the same way that you would have done for routine blood tests. Really what it all comes down to is how your body is reacting to the foreign substance (gluten in this case)... exactly what part of your immune system has been fighting it.

Allergy and/or intolerance still means to go without it. (in one way or another)

Does that help?

Gretchen

tarnalberry Community Regular

actually, there is one important difference, functionally, in being gluten intolerant or allergic to wheat. if you are allergic to wheat, you do NOT necessarily have to avoid rye, barley, and oats. (it depends on the extent of the allergy... most people allergic to wheat can at least still have oats.) from my understanding, the IgE response (allergy) is to a different protein than the IgA/IgG response (gluten-intolerance), which is what allows for those allergic to wheat to be able to consume things that those who are gluten-intolerant can not.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Nukapai

I hope this is the right place to ask this, but I am faced with the following dilemma:

I now have my first antibody blood test booked for this Friday morning. I managed to stay without my symptoms for 3 days by eating in a very plain way (rice cakes and stuff, no gluten), but yesterday I became "braver" and had some things that I wasn't 100% sure about (chocolate, gluten-free cereal that was still made of various cereals - and salad dressing that listed "flavourings"). This morning I woke up feeling just as awful as I did couple of weeks ago when my symptoms first really flared up. I had a horrible burning sensation in my stomach, diarrhea, burping constantly and felt nauseous. Even water hurt on its way down.

Now - what I'm going through might have nothing to do with celiac disease, but my doctor is entertaining the thought and that's why I have the blood test on Friday.

My question is: what should I eat between now and the blood test? Right now I don't feel like I can eat *anything* and the thought of risking another attack like this morning scares me - I wouldn't be able to return to work from my sick leave if I allowed myself to get like that again. I am due to go back to work on Thursday.

If I just eat non-gluten stuff between now and Friday's test, will it affect the test? How long do the antibodies stay in the system and how likely is it that they'll show up in the blood even if I don't eat gluten right before?

dmbaird1230 Apprentice

The tests that your doctor would run to rule in/out celiac are for specific antibodies (example: IGG, IGA), which are different from those (IGE) in an allergy.

I came out positive for the wheat allergy (skin prick test) and I also was positive for the IGG antibody.

tarnalberry Community Regular

nukapai, you DO need to be eating gluten before your test. hopefully the days you have been gluten-free won't affect the test, but two weeks of being gluten-free did affect mine.

Guest Nukapai
nukapai, you DO need to be eating gluten before your test. hopefully the days you have been gluten-free won't affect the test, but two weeks of being gluten-free did affect mine.

I was afraid of this... I'm not sure if I can go to work if I've eaten gluten... if that's what's causing this. Whatever I'm going through is pretty debilitating: I've had burning pain and nausea all day, burping even though I haven't eaten anything since last night ... and passing some blood in my stools :(

Well, it remains to be seen. I need to just hold on.

Alexolua Explorer

Nukapai, the only thing I can think of saying that might offer some help, if you can't bear to stay on gluten.. and it messes up your test results, is try to get tested through enterolab.com.

They check stool for anti-bodies, and check for genetic markers too. And you can be off gluten for awhile, and not mess up the anti-body test. The only problem is insurance most likely won't cover it, and not many doctors would accept their testing.

But some of us here have gone that route, when our doctors didn't seem to be much help, or our tests didn't come out well.

Guest Nukapai
Nukapai, the only thing I can think of saying that might offer some help, if you can't bear to stay on gluten.. and it messes up your test results, is try to get tested through enterolab.com.

They check stool for anti-bodies, and check for genetic markers too. And you can be off gluten for awhile, and not mess up the anti-body test. The only problem is insurance most likely won't cover it, and not many doctors would accept their testing.

But some of us here have gone that route, when our doctors didn't seem to be much help, or our tests didn't come out well.

Thanks for the tip. I'm in UK though, so I suspect I'd need to find a UK alternative. I am sure there is one. I'll see how Friday's results turn out (although I've been told I have to wait a month for them, which is going to be annoying and awkward) and if they show negative or inconclusive, I will see if I can have tests done privately.

Alexolua Explorer

Hmm.. not sure then if you could use them then if yer in the UK offhand. You could try emailing them to ask, in my experience they are quick in responding.

Though hopefully your tests come out positive, would make things easier.. umm.. yeah, I'm still not use to wishing positive test results on someone yet, lol.. sorry. =)

ryeanddiet Rookie

Hi Nukapai,

I assume today you're having your tests so this may be late but may offer some consolation if you are concerned about the results.

I was gluten-free for 3 months before my blood tests and still showed positive anti-bodies.

good luck!

Guest Nukapai
Hi Nukapai,

I assume today you're having your tests so this may be late but may offer some consolation if you are concerned about the results.

I was gluten-free for 3 months before my blood tests and still showed positive anti-bodies.

good luck!

Yeah, had the test today - they took three vials of blood :blink:

Thanks - your story reassures me. :)

I don't really know WHAT to hope for - I guess a positive result would be a mixed bag, on the other hand, I would have to give up my favourite foods, but on the other hand, I would be free from so much .... and my life would improve immensely.

It'll take 10 days for the results, so in the meantime, I am just going to try gluten-free and see how I feel.

Mydnyt Newbie
I know how to find out if you have celiac but I was just wondering sence they're similar how do you do which is which ? Do they do some alergy test for gluten intolerent .I asked my gi doctor if they could find out but sticking the little needles in you and hes like no .So I was just wondering how they find out .thanks lynds

He told you it can't be determined by a blood test?! essentially you're testing for the same thing as for celiac

If the antibodies (IgG/IgA) indicate an intolerance to gluten, then how can raised levels of this NOT let you know?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,978
    • Most Online (within 30 mins)
      7,748

    MoxyMaySunshine
    Newest Member
    MoxyMaySunshine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Soleihey
    • Scott Adams
      It's possible he's in the early stages of celiac disease, and it has been caught before villi damage. The blood test results so far do indicate possible celiac disease, as well as his strong family history of celiac disease. If his symptoms get better on a gluten-free diet this would be another strong indication. Personally I think it's definitely better to proceed on the safe side and go gluten-free, rather than to risk severe villi damage and all that comes with it.
    • Dora77
      For some context: I have type 1 diabetes (T1D) (since 11 years) and celiac disease(since 4 years) For about a year now, I’ve been experiencing permanent floating and undigested stools. I’ve had a pancreas elastase test done. The first result was extremely low at 44, but a second test came back at 236. My doctor said that since one result is normal, it rules out pancreatic insufficiency because, according to them, elastase levels would always stay low if that were the issue. However, could the 236 have been a false result? My doctor also thinks I don’t have pancreatic insufficiency because I’m able to gain weight. I also get hgh injections as my bone age is younger than my real age, this also contributes to weight gain, so I dont know if weight gain can rule out malabsorption. But maybe if I had real malabsorption I wouldnt gain any weight even with hgh? For celiac, I’m on a gluten-free diet, but there might b small cross-contamination from things like pepper labeled as “may contain gluten.” or sausages which dont have gluten ingredient but say may contain. My doctor said that small amounts like this wouldn’t harm me and even mentioned that an occasional small exposure to gluten may not do much damage (which seems questionable since I thought even tiny amounts could be harmful). She also said that when Im older (Im m17) I could try eating small amounts of gluten and do antibody blood tests to see if I can tolerate small amounts or not. For reference, I’m asymptomatic when it comes to celiac, so I have no idea if I’ve been “glutened” or not. My first concerning celiac blood test was semi high IgA, then 3 months later we did a check up and my IgA was high so it was confirmed celiac. Since than I’ve had celiac antibody tests done yearly to see how my diet is going, and they’ve been negative, but I’ve heard those aren’t always reliable. I’ve never had a follow-up endoscopy to confirm healing. I also always kept eating „may contain gluten“ food. (I live in Germany so I dont know if „may contain gluten“ is as risky as in the usa but I suppose both are as risky) These stool issues started around the same time I was doing excessive heavy lifting at the gym. Could stress or lifting have triggered this, or is that less likely since the symptoms persist even after I stopped lifting? Occasionally, I’ll feel very mild stomach discomfort, but it’s rare and not severe. My doctor (also a dietist) said floating, undigested stools could still be “normal,” but that doesn’t seem realistic to me. Could this be impacting my vitamin or protein absorption? I also did a fructose intolerance breath test and had a high baseline of 20 ppm, but it never increased—only decreased over time. I fasted for 12 hours and didn’t eat fructose beforehand, but my stomach didn’t feel completely empty during the test. Could this mean the test was inaccurate? For lactose intolerance, I did the breath test but only fasted 10 hours and had eaten lactose prior because I wasn’t aware of the proper diet restrictions. My results were: 14, 12, 15, 25, 35, 40, 40 ppm—which would be considered positive. But given that I didn’t fast long enough or follow the right diet, could this result be unreliable? Has anyone else dealt with similar symptoms? What ended up being the cause for you? And sorry for the long text!
    • TerryinCO
      The Docs' and NP haven't committed to Celiac determination yet but say go gluten-free diet because...  And I have with improved physical results - feeling better; overall functions better, and more energy.  Still 10 pounds down in weight but I still have BMI of ~23.  It's been just over a month now gluten-free diet.  I'm fortunate I get along with diary/milk well and most other foods. I wanted ask about this site's sponsor, gliadin X.  If this is legit, seems like a good product to keep on hand. Though it says it's only a safety for incidental gluten contact - not a substitue for gluten-free diet. What's your input on this? This may be sensitive subject since they're a sponsor. I've used resources here and other sites for information, gluten-free food/product lists. So thank you for all that support. That's it for now - Stay warm...  -2F this morning in Colorado!
    • cristiana
      I did suffer with gastric symptoms before diagnosis, but got all sorts of weird and wacky symptoms after going gluten free.   Things got much better once my antibodies fell to normal levels, but it took years (please don't panic, many people's go to normal levels relatively quickly when following a gluten-free diet). Causes of the symptoms you mention that I also experienced were iron supplements, a temporary dairy intolerance (this is common in coeliacs and should pass when your gut heals properly), and eating oats, as mentioned above.  Other symptoms I got were musculoskeletal pain after diagnosis, but again, once my coeliac blood tests were normal, I had no more pain. I did notice patterns emerging in foods that I reacted to and learned to steer clear of them, then gradually reintroduced them when my gut healed, such as soya, pure oats and dairy products.    You might like to keep a food diary. Cristiana
×
×
  • Create New...