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Recently Glutened And Couldn't Believe I Used To Feel This Way All Of The Time.

Sarah8793

By Sarah8793
in Coping with Celiac Disease

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Sarah8793 Enthusiast
Sarah8793
Posted

I 've been gluten free for about 6 months now and have slowly been forgetting how bad I used to feel. I was recently glutened and couldn't believe how terrible (mentally) I felt. I instantly recognized it as how I grew up feeling but now it seemed so much worse because I had lived without this. When I get gluten I get this funky sort of paranoid feeling and I don't feel good being in my own skin. When I was younger I chalked it up to insecurity. Since going gluten free I am gaining confidence! It is so amazing that food can affect us so much. Just wanted to share for those that suffer from a mental standpoint.

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prinsessa Contributor
prinsessa
Posted

I know! I didn't know that all my anxiety could be caused by gluten. Most of it is gone as long as I stay gluten free. I used to sit up nights worrying about one thing I said earlier that day. It was very strange. I can't believe I used to live like that all the time. I was really stressed out. Now when people say "oh I'm so sorry you can't eat (whatever kind of food)" I actually don't feel bad for myself at all (well maybe a tiny bit). I'm just so glad that I figured out what was wrong with me. I don't really miss food that used to make me feel so sick.

Nantzie Collaborator
Nantzie
Posted

Same here. It's not wanting to feel like that that most keeps me on the straight and narrow with gluten-free. I can handle the GI symptoms of getting glutened. I can even handle the pain and mobility issues. But I can't handle that dark cloud that settles over my mind.

I'm blown away too that I was able to live that way for so many years. It's definitely worse because I feel like I'm living totally free, and then get hit by a bus. For all that time before I was just used to getting dragged by the bus all the time. I have found that once I realize that I've been glutened, it makes it better because I can step outside of it. Before, I thought that those were MY thoughts. But now I realize that they aren't.

Nancy

simmadownnow Newbie
simmadownnow
Posted

I've glutened in a minor way from time to time and I can tell the difference but nothing like thanksgiving when I glutened in a MAJOR way. I was sick (like I used to be) for almost three days. At the time I thought it was worth it :P . pfft..Won't be doing that again!

And like you, I can't believe I used to feel like that all the time. I wasted 3 or 4 years trying to find out what's wrong with me and it took a casual friend to tell me about a program she heard on public radio about celiac disease. I don't have celiac disease but I'm certainly allergic to gluten because I went off it immediately and felt better immediately.

jerseyangel Proficient
jerseyangel
Posted
I didn't know that all my anxiety could be caused by gluten. Most of it is gone as long as I stay gluten free. I used to sit up nights worrying about one thing I said earlier that day. It was very strange. I can't believe I used to live like that all the time.

I used to do this, too. I didn't realize, at the time, that it wasn't normal :blink: --I had been that way for so long.

Sinenox Apprentice
Sinenox
Posted

This happened to me recently as well. I had my first attack and I could not imagine that I used to be in that much pain all of the time. It was downright scary. I just wanted to sympathize. The worst part for me is that I it seems so much worse now, and I'm always tempted to think that maybe just keeping up that constant low tolerance was a better idea, since now when I get sick it's like Kryptonite to me. I practically can't function. I worry that one day I may be won over to the idea of just having everything and not being as debilitated when I eat it at all.

Sarah8793 Enthusiast
Sarah8793
Posted
  • Author
since now when I get sick it's like Kryptonite to me. I practically can't function. I worry that one day I may be won over to the idea of just having everything and not being as debilitated when I eat it at all.

Kryptonite is good way to explain it. That is exactly how it seems. I know what you mean about how it seems worse now when you are glutened. I had thoughts similar to yours this last time, except that I was deteriorating rapidly right before going off gluten and I know that for me I would end up with nerve damage or worse if I continued. My blood sugar levels were out of whack. Interestingly, I had my kids tested and they have been gluten and casein free for about 3 months now. They didn't have any digestive symptoms before but now since they are more sensitive, they get digestive symptoms upon being glutened or getting casein. Naturally, at first, I think what have I done to them. But then I quickly come back to the reality that ignoring their intolerances would only put them in the same boat as me when they became adults.

I know! I didn't know that all my anxiety could be caused by gluten. Most of it is gone as long as I stay gluten free.

Yes, me too. Everyone thougt I just needed to find relaxation techniques or medication. Thankfully I never went the med route and now I have no anxiety whatsoever. It really is amazing.

I can handle the GI symptoms of getting glutened. I can even handle the pain and mobility issues. But I can't handle that dark cloud that settles over my mind.

Yes, this is how I feel. I don't get debilitating digestive symptoms, but they are uncomfortable. They don't compare in any way to the mental symptoms. I think the mental is a very big motivator to stay gluten free.

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maribeth Apprentice
maribeth
Posted

I too feel so much better mentally and physically since going gluten-free about 6 weeks or so ago. I had a spell where I was very emotional but I think that was caused by stress at work and I just had to tell myself to slow down and speak up instead of keeping it inside and letting it explode. I'm sleeping a little better and have more energy and don't let things bother me like they used to. I think I have a bit more nself esteem now also. I speak up for myself now. Beth.

sunshinen Apprentice
sunshinen
Posted
I used to do this, too. I didn't realize, at the time, that it wasn't normal :blink: --I had been that way for so long.

Exactly!

jlinc Rookie
jlinc
Posted

Josh.

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