Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello - I'm New


Ada

Recommended Posts

Ada Newbie

Hello, I was diagnosed with Celia recently and being trying to be gluten free for 3 weeks.

I thought it would be easier, but it's being hard especially to get use to this diet, especially in

the mornings. I miss my bread and pizza. There're not much choices out there.

How are you guys coping with this?

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Hi Ada, and welcome to this board. I am glad you were diagnosed, as now you can get well. It takes a while to get the hang of the diet, but you'll be fine.

Check out Nini's 'newbie survival kit', it has a lot of valuable information, that will help you know what to eat, what shampoo, conditioner, lipstick etc. is safe and a whole lot more. Here is the link: Open Original Shared Link. Scroll down to the bottom to find the links to the kit.

You can still eat bread and pizza, just gluten-free ones. See if your local grocery store has a gluten-free section, if not, check your health food store. You can also order many things online.

And of course, a lot of food is naturally gluten-free, like meat, vegetables, eggs, fruit, nuts, seeds etc. Why not eat bacon and eggs and a fruit salad for breakfast? Or buckwheat pancakes.

It will get easier, I promise.

happygirl Collaborator

Ada,

Welcome to the board! This can be very overwhelming. Celiac is a strange disease.

Luckily, there are a lot of products out there. Some areas carry more. Where do you live? Do you live near a Whole Foods?

Have you looked online at www.glutenfreepantry.com, glutenfreemall.com, or allergygrocer.com?

Tinkyada rice based pasta is a great gluten free pasta that many on here love, myself included.

Whole foods has a great line of gluten free baked products, including breads, rolls, pizza crusts, etc.

Kinnicknick also has many great gluten-free products.

Check out some of those sites---you will see LOTS of great gluten free brands. Some are better than others...a lot depends on personal preference.

Hope this helps. Let us know specifically what you are looking for and people will chime in with their favorite brands. Let us know if you have questions on things you see!

Laura

Creative-Soul Newbie

Just wanted to say "Welcome!" This will get easier as time goes by and you learn more about the diet and going Gluten free as a whole. You're going to have to be willing to adjust a bit from the onset...that made things much easier for me. What helps the most is concentrating on what I CAN eat, instead of what I CAN"T. And when I get the urge to feel sorry for myself (which still happens sometimes!), I just remember what horrible symptoms I get and/how awful I feel when I eat a particular food... the urge disappears in no time flat!

Guhlia Rising Star

Welcome! As everyone else said, it gets easier over time. Now it's second nature to me. Gluten-filled goodies don't even look good to me anymore. I'd much prefer to eat my fresh baked gluten-free treats. I would definitely recommend getting yourself a few gluten free cookbooks to start out... Don't let a few failed recipes scare you off. I personally recommend Incredible Edible Gluten Free Foods for Kids by Shari L. Sanderson, incredibly easy recipes that turn out incredibly well. I also love The Gluten Free Gourmet Cooks Fast and Healthy by Bette Hagman, this book has the absolute best pizza recipe I've ever found (gluten free or gluten filled). The pizza recipe also makes fantastic bagels, rolls, pizza, and mini pizzas. Yum! You can likely make all of your old recipes gluten free. Whenever it calls for flour, use Bette Hagman's rice flour blend (you'll want to mix this up fresh to save tons of money): 3 parts white rice flour, 2 parts potato starch, 1 part tapioca starch... Add 1 teaspoon per 1 to 1-1/2 cups of flour blend. I still use all my old recipes and just sub this flour blend for all purpose flour. They turn out fabulous AND they don't make me sick like they did pre-gluten-free...

If you're really struggling with the diet, try finding the book Living Gluten Free for Dummies. It's one of those yellow and black dummies books. It has some great information and it's a very easy read, great book.

I also use allrecipes.com and epicurious.com for recipes... They have some naturally gluten free recipes as well as some that I sub gluten free ingredients in.

Someone around here has the list of companies that will list gluten on their labels... Kraft is one of those companies, they will list wheat, barley, rye, or oats on the label. Wal-mart's Great Value brand says "gluten free" right on the container if it's gluten free, they'll even tell you if it's produced in a facility with wheat.

Shopping online will also probably help you greatly in the beginning... I love Kinnikinnick.com for my flours, cookies, and bagels. I use shopbydiet.com for everything else. Try Tinkyada pasta if you're a pasta lover.

Chin up, it'll get easier.

white Newbie
Hello, I was diagnosed with Celia recently and being trying to be gluten free for 3 weeks.

I thought it would be easier, but it's being hard especially to get use to this diet, especially in

the mornings. I miss my bread and pizza. There're not much choices out there.

How are you guys coping with this?

Thanks.

Hi Ada - swelcome!

Playing safe with limited variety was important for my husband. We worried about the variety too but every time he tried something, pain was there. At the beginning we thought we could do this diet, but as time passed we learned that he had to avoid milk/cheese/yogurt, soy, red meat, egg, nightshades...etc. since his intestines were sensitive. So, I tried to create new recipes with only few ingredients.

now, he likes "quinva" and "rice pasta" and never has any pain after eating those.

I believe, when he gets better, variety will be there!

SchnauzerMom Rookie

Hi, I'm glad you joined us. My hubby and I have been gluten free since the middle of October. We weren't diagnosed with celiac but we discovered that gluten is definitely a problem for both of us. We both feel so much better without it. We loved breads and most baked things. I'm learning to make things with alternative flours. The taste is different from wheat flour but it's still good and getting better. An acquired taste, I think. I like quinoa, amarath, sorghum and tapioca flours the best so far. Brown rice flour and potato starch are good too. I have a gluten free cookbook but I have discovered that I can still use my old receipes. In fact, I like them better than the gluten free cookbook.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mary Contrary Rookie

Hi and I'm really new to this too...and my H is just awesome, he just goes along with whatever I cook and is more than willing to make adjustment so i don't have to try and make two dinners, we are both pretty much on our own for breakfast and lunch, but dinner is a big deal for us.

It hasn't been too hard, been doing it for 2 months now...and I'm going to try making a gluten free pizza as soon as my digestive problems settle down..tomato sauce plays hell with my bowels at the mo, must be too much acid..and good god, I won't be eating popcorn again anytime soon either.:rolleyes:

Creative-Soul Newbie
Hi and I'm really new to this too...and my H is just awesome, he just goes along with whatever I cook and is more than willing to make adjustment so i don't have to try and make two dinners, we are both pretty much on our own for breakfast and lunch, but dinner is a big deal for us.

It hasn't been too hard, been doing it for 2 months now...and I'm going to try making a gluten free pizza as soon as my digestive problems settle down..tomato sauce plays hell with my bowels at the mo, must be too much acid..and good god, I won't be eating popcorn again anytime soon either.:rolleyes:

Hi, Mary! Glad to have you here as well. You are so fortunate to have a spouse that is so supportive of you! You are doing the right thing in taking it slow and allowing your system to heal first before tackling more complex/processed foods; it's best to keep things as simple as possible at first. Good luck with everything, and feel free to ask away if you need to! It's also great to go through all of the older posts...I find most of the answers to the questions that I have (that is, if you have the time to) that way.

Mary Contrary Rookie
Hi, Mary! Glad to have you here as well. You are so fortunate to have a spouse that is so supportive of you! You are doing the right thing in taking it slow and allowing your system to heal first before tackling more complex/processed foods; it's best to keep things as simple as possible at first. Good luck with everything, and feel free to ask away if you need to! It's also great to go through all of the older posts...I find most of the answers to the questions that I have (that is, if you have the time to) that way.

thank you so much, I have been checking out many topics..some make me laugh and some almost make me cry...but it is wonderful to know there are so many of us out here with the same problems...I just figure it isn't a life threatening disease if one takes care of themself...so I know I'll adjust...but I sure found out I need to stay away from peanuts for awhile...Good Lord !!! :rolleyes: ate some last night and am paying dearly for it today...

grannynanny Rookie

PEANUTS????????????????????!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

daffadilly Apprentice

Peanuts - for some weird reason I cannot eat roasted canned peanuts - they make me sick every time. BUT I have no problems with my Smuckers All Natural Peanut Butter. I have a lot of food allergies, so I usually accept these things & go on. I can eat all other kinds of roasted nuts with no problems, so I do not know what the problem with peanuts are. I think maybe mold, cross contamination or golly who knows what!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,843
    • Most Online (within 30 mins)
      7,748

    Chanwill
    Newest Member
    Chanwill
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Dawn Meyers
      Hi I have celiac disease and the dermatitis herpetiformis rash Also other autommune diseases.  I have had bad side effects to all the vaccines I have had and now my Doctor wants me to have the pneumonia vaccine.  I am concerned because of some of the bad side effects I have had in the past example Hep B after shot couldn't  move arm for several months.  Flu shot and COVID was sick right after shot. Told not to get anymore. My lung is inflamed and have a cough I can't seem to get rid of. Very concerned 😟. 
    • knitty kitty
      @Manaan2,  I'm so happy to hear you're going to try thiamine and magnesium!  Do let us know the results!   You may want to add a B 50 Complex with two meals of the day to help boost absorption.  Thiamine interacts with each of the other B vitamins which are all water soluble.   When supplementing magnesium, make sure to get sufficient calcium.  Calcium and magnesium need to be kept in balance.  If you choose a calcium supplement, take two hours apart from magnesium as they compete for absorption.  Take Calcium with Vitamin D.  Vitamin D helps calm the immune system.   For pain, I use a combination of thiamine, B12 Cobalamine, and Pyridoxine B6.  These three vitamins together have analgesic effects.  My preferred brand is "GSG 12X Takeda ALINAMIN EX Plus Vitamin B1 B6 B12 Health Supplementary from Japan 120 Tablets".  Alinamin is another form of thiamine.  It really is excellent at relieving my back pain from crushed vertebrae without side effects and no grogginess.   Look into the low histamine version of the Autoimmune Protocol Duet (Dr. Sarah Ballentyne, a Celiac herself, developed it.)  It really helps heal the intestines, too.  It's like a vacation for the digestive system.  Add foods back gradually over several weeks after feeling better.   I'm so happy to have pointed the way on your journey!  Let us know how the journey progresses! P. S. Add a Potassium supplement, too.  Potassium is another electrolyte, like magnessium, that we need.
    • Manaan2
      @knitty kitty I can't thank you enough!  My husband and I already started looking into those supplements.  We definitely plan to give it a try.  We've been against the Miralax since it was originally advised by PCP, but because of the level of pain she experienced on a daily basis, we decided to try it.  We've made many attempts to gradually decrease but due to her pain and related symptoms, we've kept her on it while trying all sorts of other dietary adjustments pre and post diagnosis specific to food; so far none of those efforts have made a significant difference.  I will definitely share how she's doing along the way!
    • BIg Nodge
      Hi, I have recently embarked on the gluten-free journey. I have what to me seems like a somewhat confusing set of test results and symptoms. I have been impressed by the accumulated knowledge and thoughtfulness as I browse this forum, so I figured I'd make a post to see if anyone can offer any insight. I know there are many posts like this from new users, so I have tried to do my baseline research first and not ask super obvious questions.  I'm 43, overall very healthy. No history of gluten sensitivity or really any of the classic GI symptoms. About three years ago I started to experience intermittent bouts of fatigue, chills/cold intolerance, and shortness of breath/air hunger (sometimes feels like a hollowness in my chest, hard to describe). The symptoms over time have become fairly significant, though not debilitating, I am able to exercise regularly and am fairly physically active, continue to perform well at work. But for example I have gone from someone who consistently ran hot, was always cranking the a/c, to someone who wears a down vest inside at work in winter and get chills if the a/c even blows on me in summer. I get tired and lose energy even when getting decent amounts of sleep, and have to have my wife take over on long drives that I could previously handle with no problems. More generally when I am experiencing these symptoms they seem to crowd out space in my mind for focusing on my family, my hobbies/activities etc, I sort of withdraw into myself.   I happened to be experiencing these symptoms during an annual physical with my PCP a few years ago, he observed post nasal drip and suggested it was allergies and that I treat it with claritin. At first it seemed to respond to claritin (though not zyrtex), but over time I became unsatisfied with that answer. There didn't seem to be any seasonal rhyme or reason to my symptoms, and I felt like I was on an endless loop of taking claritin, then stopping, not being sure if it was even making a difference. I did eventually get allergy tests and found modest allergies to dust and pollen, which didn't feel like a smoking gun.  I then started seeing a natural medicine doctor who was much more willing to explore my symptoms via testing. The first thing that came back abnormal was elevated thyroid peroxidase antibodies/TPOs, 137 IU/mL vs a reference range of <9. At the same time my thyroid panel showed normal thyroid hormone levels. So it appears my immune system is attacking my thyroid even though it is working fine. I got a thyroid ultrasound at the time, it was clear, but with some abnormalities such that they suggested I get is scanned again in a year. These are certainly risk factors for a thyroid autoimmune disease, though my thyroid seems to be working fine for now.  From here my doctor considered celiac due to the murky thyroid/celiac links, so we did a panel. Results were as follows: TT IGA <1 U/ml, TT IGG <1 U/ml, deamidated gliadin IGA 24.6 U/ml, deamidated gliadin IGG <1 U/ml, IGAs 170 mg/dL. Readings greater than 15 considered high by my lab for the first four, my IGAs are within reference range. So basically just the deamidated IGA popped, but my IGAs are normal. I also notice on the tests that my thyroglobulin was high, 86.7 ng/ml vs a range of 2.8 - 40.9.  My doctor suggested that it certainly wasn't conclusive for celiac, but it was possible, and likely that I have some sort of gluten sensitivity. She suggested going gluten free and seeing how I felt as opposed to doing a biopsy. The best theory I can come up with is perhaps I am a silent celiac or just have a gluten sensitivity that doesn't produce immediate GI symptoms, but is still doing damage and over time has caused leaky gut. So now gluten is getting into my blood, and my immune system is attacking it but also mistakingly attacking my thyroid.  So that's what I did, went gluten free in October. It's been about four months, and I am really not feeling any difference. I still get the same symptoms that come and go. My bowel movements may be a bit more regular, but it was never a major issue before so I would consider that a minor improvement. I know that it can take a while to see improvements, and I am going to remain gluten-free and see how I feel. But I am definitely questioning whether I really understand what is going on, and am open to any thoughts or suggestions from the forum. Sometimes I wish I just went ahead with the biopsy before going gluten-free. While I would certainly be down to start drinking IPAs again ahead of a biopsy, you know, for science, I feel like at this point I would be throwing away four months of work and am better off staying the course and seeing what happens. But I'm really not sure.  I know there is a lot of thyroid knowledge on these boards, along with the celiac expertise, so I'm curious if this resonates with anyone's experience. And I'm interested in what sort of timelines people have experienced in terms of feeling improvements for some of these non-GI symptoms like chills, SOB, brain fog etc. Thanks in advance. 
    • cameo674
      Does it taste like black licorice?  It said it was chewable.  I do not like that flavor.     Since the burn at the back of my throat is there everyday, I usually only take something when it is unbearable and keeping me from ADL especially sleep.  
×
×
  • Create New...