Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Colonscopy Prep Questions Need Help Asap

kara7

Recommended Posts

kara7 Rookie
kara7
Posted

I AM SCHEDULED FOR A COLONSCOPY/UPPER ENDOSCOPY ON THURSDAY. I AM REFUSING TO DO THE GOLITELY PREP AS I GET BLOATED FROM INGESTING EVEN SMALL AMOUNTS OF LIQUID.

I HAVE OPTED TO DO THE FLEET PHOSOPHODA GINGER LEMON FLAVORED AS IT IS A LOT LESS LIQUID(WITHOUT THE CONSENT OF MY DOCTOR). HAS ANYONE EVER HEARD OF ANY ADVERSE REACTIONS TO IT? I FIGURE IT WOULDN'T BE SOLD IN THE PHARMACY IF IT WAS TOO DANGEROUS TO USE.

ALSO, AT WHAT TIME DID YOU START IT AND HOW MUCH WITH EACH DOSE?

THANKS IN ADVANCE FOR YOUR HELP. I SO DESPERATLY WANT TO FIND OUT WHAT'S WRONG WITH ME BUT I AM SO SCARED.

KARA

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Kara:

I am not sure why you don't want to consume liquids to flush out your system. I suppose it does not matter what you flush with as long as it is clear and clean.

I am not up on the procedure that you have chosen, but I would recommend that you choose a time that will flush you clean by the time of your proceedure.

If the GI doc can't have a full view, it will hinder your exam.

Good luck and I hope you have some answers.

Mary Contrary Rookie
Mary Contrary
Posted
I AM SCHEDULED FOR A COLONSCOPY/UPPER ENDOSCOPY ON THURSDAY. I AM REFUSING TO DO THE GOLITELY PREP AS I GET BLOATED FROM INGESTING EVEN SMALL AMOUNTS OF LIQUID.

I HAVE OPTED TO DO THE FLEET PHOSOPHODA GINGER LEMON FLAVORED AS IT IS A LOT LESS LIQUID(WITHOUT THE CONSENT OF MY DOCTOR). HAS ANYONE EVER HEARD OF ANY ADVERSE REACTIONS TO IT? I FIGURE IT WOULDN'T BE SOLD IN THE PHARMACY IF IT WAS TOO DANGEROUS TO USE.

ALSO, AT WHAT TIME DID YOU START IT AND HOW MUCH WITH EACH DOSE?

THANKS IN ADVANCE FOR YOUR HELP. I SO DESPERATLY WANT TO FIND OUT WHAT'S WRONG WITH ME BUT I AM SO SCARED.

KARA

Don't be scared I did it last night and this morning, had the COLONSCOPY/UPPER ENDOSCOPY done at 10 am this morning...and it was a piece of cake..didn't feel or know a thing, they had me totally out...and the stuff you have to drink is not bad at all...I drank the big bottle of stuff at 6 pm last night and then at 7 pm drank one of the little bottles...then at 6 am had another of the little bottles of stuff...you need to be really cleaned out or they might just not even do it.....you need that big bottle of Golightly first or it won't be enough...you have to do what they tell you to do. I had to drink a 10 oz bottle of Magnesium Citrate Oral Solution..I assume it is the same as the Golighty..I thought it tasted pretty good even....the little bottle of stuff are alot worse !!!!
Michi8 Contributor
Michi8
Posted

I have heard some people have better luck using Picosalax (it's much less fluid...and is supposed to taste better.) Talk to your dr to see if she will accept you using it instead of the colyte/golytely prep. I'd hate to see you turned down for the procedure at the last minute if the dr feels you did not prep properly.

Michelle

breann6 Contributor
breann6
Posted

you need to flush clean, and without the liquid you might not get it all out. I did the osmo prep- which allowed me to drink every 15 minutes whatever liquid i wanted with four tabs of osmoprep. it was hard but i just did it. your gonna feel like crap- no matter what prep you do in my opinion. i have done three bowel preps. the osmo prep was the easiest as far as consumption but they all had the same effect....

~breann

BFreeman Explorer
BFreeman
Posted
I AM SCHEDULED FOR A COLONSCOPY/UPPER ENDOSCOPY ON THURSDAY. I AM REFUSING TO DO THE GOLITELY PREP AS I GET BLOATED FROM INGESTING EVEN SMALL AMOUNTS OF LIQUID.

I HAVE OPTED TO DO THE FLEET PHOSOPHODA GINGER LEMON FLAVORED AS IT IS A LOT LESS LIQUID(WITHOUT THE CONSENT OF MY DOCTOR). HAS ANYONE EVER HEARD OF ANY ADVERSE REACTIONS TO IT? I FIGURE IT WOULDN'T BE SOLD IN THE PHARMACY IF IT WAS TOO DANGEROUS TO USE.

ALSO, AT WHAT TIME DID YOU START IT AND HOW MUCH WITH EACH DOSE?

THANKS IN ADVANCE FOR YOUR HELP. I SO DESPERATLY WANT TO FIND OUT WHAT'S WRONG WITH ME BUT I AM SO SCARED.

KARA

Kara, a co-worker and I both had this procedure last week (not for celiac reasons) and both did the Fleet thing. It is like drinking liquid salt. It is supposed to start working in 30 minutes to two hours, and then six hours after the first one you take a second one. In my friend's case, it worked in 30 minutes; in mine, it took twelve hours from the first bottle (so I was up all night). I really think you need to follow what the dr. told you or get his/her blessing on a change. The prep is a hard thing to go through to then have the procedure cancelled.

jerseyangel Proficient
jerseyangel
Posted

Hi Kara,

My husband did the Phospho-soda. I mixed it for him with gingerale, and I believe (if I remember correctly) he took some every 20 minutes. He also had to take Dulcolax before bed that night,

As for the exact directions, didn't your doctor give you a printed sheet with exactly what they want you to do? If you're not completely cleaned out, they may not be able to complete the procedure. This happened to the man who was there right before my husband. The doctor and nurses were not happy with him at all....

I did the "Golightly" (which is a misnomer :o ). That seemed a lot more difficult and time consuming than the Phospho.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JoeB Apprentice
JoeB
Posted

Kara -

I've had a couple of colonoscopies. I used the gallon jug the first time and that wasn't a lot of fun. The second time, I used prescription pills. I don't recall what they were called, but I remember I had to take about 3 dozen pills over 2 to 3 hours. The pills are bigger than vitamins, so they may be difficult for you to swallow. I also remember that I had to drink about 8 ounces of water with each dose, so you would still need to drink a lot of fluid. Overall, though, I would highly recommend the pills over the jug.

Don't worry about the test. I had to get my teeth cleaned today and that was much more uncomfortable that the colonscopy!

breann6 Contributor
breann6
Posted

how did it go? hope all went well...

~breann :)

kara7 Rookie
kara7
Posted
  • Author
how did it go? hope all went well...

~breann :)

Well..... I gave up on the colonscopy prep. Couldn't do it. I did have the upper endoscopy done. It was a freaking nightmare. I can remember the whole thing. I gagged and dry heaved and I even think puked the whole time. I have a horrible sore throat still and I had it done at 8am this morning. My doctor said that everything looked normal. He did do some biopsies. It's sad that I wish something was wrong just so that I had an answer. Thanks for asking me how it went.

Kara

breann6 Contributor
breann6
Posted
Well..... I gave up on the colonscopy prep. Couldn't do it. I did have the upper endoscopy done. It was a freaking nightmare. I can remember the whole thing. I gagged and dry heaved and I even think puked the whole time. I have a horrible sore throat still and I had it done at 8am this morning. My doctor said that everything looked normal. He did do some biopsies. It's sad that I wish something was wrong just so that I had an answer. Thanks for asking me how it went.

Kara

i know- i felt the same way. its awful feeling terrble with no answer and no end in sight. its not that you want this disease, its that you want an answer so that you can feel better NOW. My first endoscopy I didn't fall out either. It was awful. I didn't gag that much though- they sprayed the back of my throat twice so i wouldn't keep gagging...that helped then pushed something in my iv that helped. i fell a sleep right after they said all done. I woke up at home. don't remember a thing in between. I hope your throat feels better, drink something warm.

Even if the biopsy comes back negative- i would try the diet just to see how you feel if you haven't already. Give it a few months and see....Did you have positive blood test?

~breann

happygirl Collaborator
happygirl
Posted

it sounds like they did not give you enough medication---you should not have been that 'awake' at all. I have had four and have never been that awake. they are supposed to sedate you which 'puts you to sleep'.

i'm sorry that you had such a bad experience!!!!!!! :(

Michi8 Contributor
Michi8
Posted
Well..... I gave up on the colonscopy prep. Couldn't do it. I did have the upper endoscopy done. It was a freaking nightmare. I can remember the whole thing. I gagged and dry heaved and I even think puked the whole time. I have a horrible sore throat still and I had it done at 8am this morning. My doctor said that everything looked normal. He did do some biopsies. It's sad that I wish something was wrong just so that I had an answer. Thanks for asking me how it went.

Kara

I'm sorry you had that experience. It sounds like they didn't give you much (if any) sedative. I had mine done two weeks ago, and was pretty much knocked out from the sedative (fell asleep quickly and don't remember a thing...like I was in a time warp!) Take care of yourself...I hope your throat feels better quickly, and that you get some concrete answers from your test.

Michelle

kara7 Rookie
kara7
Posted
  • Author
Well..... I gave up on the colonscopy prep. Couldn't do it. I did have the upper endoscopy done. It was a freaking nightmare. I can remember the whole thing. I gagged and dry heaved and I even think puked the whole time. I have a horrible sore throat still and I had it done at 8am this morning. My doctor said that everything looked normal. He did do some biopsies. It's sad that I wish something was wrong just so that I had an answer. Thanks for asking me how it went.

Kara

All of my blood tests have been negative. My B12 and vitamin A are both low. I just feel deep down that wheat is my problem. I have so many of the symptoms, it's almost frightening. I have decided that no matter what the biopsies say, I am going to try my hardest to go gluten free. Convincing my husband is another thing. He just thinks that I am full of crap. (not literally :P ) Last night I seperated everything in the cupboard, putting all things containing wheat at the bottom. Eventually I don't want any gluten in the house, as I have a little problem with will power.

Thanks for all of the kind words.

Kara

  • 1 year later...
RN2009 Newbie
RN2009
Posted
All of my blood tests have been negative. My B12 and vitamin A are both low. I just feel deep down that wheat is my problem. I have so many of the symptoms, it's almost frightening. I have decided that no matter what the biopsies say, I am going to try my hardest to go gluten free. Convincing my husband is another thing. He just thinks that I am full of crap. (not literally :P ) Last night I seperated everything in the cupboard, putting all things containing wheat at the bottom. Eventually I don't want any gluten in the house, as I have a little problem with will power.

Thanks for all of the kind words.

Kara

Hi. Kara. I was wondering if you were ever checked for pernicious anemia? With pernicious anemia you have a B12 deficiency caused by the gastric mucosa(in the stomach) not secreting intrinsic factor. So vitamin B12 cannot be absorbed. Pernicious anemia is diagnosed with:

~low serum B12 levels

~Symptoms: sore tongue, anorexia, abdominal pain, nausea, vomiting, and neuro changes

~Positive Shilling Test

If your doctor did not perform the Schilling Test then he did not rule this out.

If you hadn't been diagnosed with anything I hope this helps!

Lori

nursing student at UK

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,216
    • Most Online (within 30 mins)
      7,748
    cboling
    Newest Member
    cboling
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      @Milarynn,  Welcome to the forum!   Many undiagnosed, untreated Celiac Disease patients have vitamin and mineral deficiencies.  Be sure to have your Vitamin D level checked.  Vitamin D helps prevent bone loss, including loss from the jaw and teeth.   Magnesium and calcium are both important to bone health as well.  Magnesium helps keep the calcium from leaving your bones.  Magnesium helps make life sustaining enzymes with Thiamine Vitamin B1.  Low Magnesium and/or low Thiamine results in muscle cramping.   Thiamine deficiency is found in Pre-diabetes and Diabetes.  Poor absorption of the eight water soluble B vitamins and Vitamin C are found in Celiac Disease.  Insufficient Vitamin C can cause poor oral health, resulting in poor gum health such as receding and bleeding gums.  Vitamin C is needed to fight bacteria that cause plaque which causes cavities.  Vitamin C helps rebuild tooth enamel.   I've had jaw muscle cramping, TMJ problems, tooth loss and gum problems.  Do talk to your dentist about having Celiac Disease.  Practice good oral hygiene.  I'm also Diabetic and take Benfotiamine (a form of Thiamine) that helps regulate blood glucose and heal the intestines. Do keep us posted on your test results and your progress!
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Milaryrnn, your post is confusing. First, your celiac disease antibody testing is negative. By any chance had you already been on a gluten free diet before the blood draw for these tests was done? That would result in negative antibody testing even if you had celiac disease. Or, had you previously been diagnosed with celiac disease and had the antibody testing done to check for compliance with the gluten free diet? Second, DNA testing cannot be used to confirm celiac disease. 40% of the general population has the genetic potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. It takes both the genetic potential and some triggering biological stress event in order to develop active celiac disease. Otherwise, the genes remain inactive. High lipase levels would indicate some problem with your pancreas. 
    • More2Learn
      Celiac Maybe a Possibility?

      By More2Learn · Posted

      Thanks, yes, I've gone back and forth.  There is a lot of autoimmune disease in my family, so primarily I was thinking a real diagnosis might be helpful for other family members -- especially as I have two young biological nephews.  I feel like I am at a crossroads, where if I'm going to test now would be the time, since I've been in a less-than-perfect eating period.  I'm either going to just going to use what I've learned in these last few months to purposely never cheat again (obviously there is the accidental glutening situations) or test first, and then do that.  I don't need an official diagnosis so much that if I'm doing well I'm going to sabotage that by then starting to eat gluten again. I'm so glad you said this.  Even from what I've read so far, it makes sense to me that this is a misconception.  But growing up with all kinds of allergies, I can see how, as for the general population it's just easier for everyone to simplify it down to a type of "allergy," people would assume this.  It's just how most people look at allergies and diets and gluten avoidance has been painted as both.  I even see it in my journey to date, when I say I want a gluten free selection at a restaurant and I am asked "is it an allergy?" and it is so much easier just to say yes (even if the answer is actually well, no, it's autoimmune).  Because the "yes" answer is the "this is serious" answer.
    • Milarynn
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Milarynn · Posted

      Hello. I recently had an endo/colonoscopy and my GI Dr found lymphocytes in my stomach and small intestine. My TTG Ab, IgA was <2 (normal), GLIADIN (DEAMINATED) IGA at 5 (negative), and IgA at 237 (normal). However, a Lipase test revealed my levels were through the roof at 201, 3x above normal. My GI doctor ordered a dna test to confirm Celiac Disease. An A1C test was also done and I am pre-diabetic. When I got home from work today, I started to feel sever cramping in my jaw muscles. I started to have jaw muscle cramps in the the last year. Not to mention, even with good oral hygiene, I have rapidly developed periodontal disease. I did have a small amount of gluten, thinking it wouldn’t harm much but I was sadly mistaken. DNA results should be back in 2 weeks. 
    • kopiq
      starting to heal, vitamin d deficiant but cannot tolerate vitamins. what to do? also multiple ongoing issues.

      By kopiq · Posted

      I also have food particles left on toiet paper when i wipe and my stool is light yellow not absorbing fats. I urinate about 15 times a day and have very sticky snot,dry throat.
×
×
  • Create New...