Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Boards

kristers

By kristers
in Coping with Celiac Disease

Recommended Posts

kristers Newbie
kristers
Posted

Hi! I'm new around here and just wanted to introduce myself. Here's my story:

I was diagnosed with IBS four years ago. I had the blood tests done for celiac two years ago, and they were negative. I then figured that gluten must not be the issue, so I kept eating it. My symptoms kept getting worse and worse. I finally reached the end of my rope when I ended up in urgent care about two months ago with excrutiating abdominal pain. After that I started an elimination diet with the help of a nutritionist/herbalist. After cutting out gluten, dairy, sugar and bananas, I feel miraculously better! I've been eating dairy and sugar sparingly and still feel fine. So, looks like I am gluten intolerant/sensitive.

It is incredible to feel almost normal after feeling horrible every day for so long! I guess that's all; just wanted to say hi. :P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Sweetfudge Community Regular
Sweetfudge
Posted

Welcome! Good to have you here! Glad that you're feeling so much better! It's so nice once you finally figure out what's wrong and are able to fix it :)

Guhlia Rising Star
Guhlia
Posted

Welcome! So glad to hear that you're feeling better since going gluten free. If only there were a more accurate test that doctors would do for gluten sensitivity/Celiac Disease...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,411
    • Most Online (within 30 mins)
      7,748
    Beck1430
    Newest Member
    Beck1430
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • ChrisSeth
      Waiting on Blood test results…

      By ChrisSeth · Posted

      Okay thanks Scott. So based on my results will they order more tests to be done? Kind of confused.
    • Scott Adams
      Waiting on Blood test results…

      By Scott Adams · Posted

      Yes, this sounds right. Let us know when you find out your results.
    • ChrisSeth
      Waiting on Blood test results…

      By ChrisSeth · Posted

      Hi thanks for your response! This is the only other info that’s on my test results for the IgA. The initial testing performed in the Celiac Disease Reflex Panel is the total IgA. If the total IgA is <10 mg/dL, the reflex tests that will be ordered are the Tissue Transglutaminase IgG Antibody and the Deamidated Gliadin Peptide IgG Antibody. If the total IgA is >=10 mg/dL, the reflex test that will be ordered is the Tissue Transglutaminase IgA Antibody. Does that give some insight?  following up with my Dr early next week… thanks again.  And I didn’t eat more gluten than usual during the last 6-8 weeks on purpose. Just a normal diet prior to testing. I had gluten everyday for 6-8 weeks though I’m sure.
    • Scott Adams
      Celiac, Fructose and Lactose

      By Scott Adams · Posted

      Have you tried sheep's milk and goat's milk cheeses? After my diagnosis I could not tolerate cow's milk for ~2 years until my villi healed, but for some reason I did not have issues with sheep milk or goat milk cheeses.  I also had temporary issues with chicken eggs, but could eat duck eggs.
    • Scott Adams
      Waiting on Blood test results…

      By Scott Adams · Posted

      This is not a test for celiac disease, but your total IgA levels. This test is usually done with other celiac disease blood tests to make sure the results are accurate. Did they do a tTg-IgA test as well? Were you eating lots of gluten in the 6-8 weeks leading up to your blood tests? This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...