Devastated! Everything's Fine With Me?

[sonja69]

hi nora, thanks for your reply! I am sorry for you, I hope you can fix the problem soon. It's not that bad in my case I think, I did/do not smell the mold and bought something to dry the corner out.

I am posting this because it is probably mold-related.

Have you noticed any reaction to citric acid too?

no, I don't think so. since I almost never eat any fast food, prepackaged, but only pure foods, I seldom come in contact with this. so, I do not know.

gotta run now, good luck with the mold.

where are you from and where are you living? in the u.s.? or scandinavia?

best, Sonja

[nora-n]

I am in Scandinavia. Daughter is diagnosed celiac, and I am gluten-free because of symptoms. Very sensitive to gluten, milk problems getting better now. Was bad. We do not tolerate the wheat starch (labeled gluten-free).

Trying to find out what is safe and what not. Had to change toothpaste for example.

The mold issue is interesting.

No, I can't smell anything from the bathrom nowadays, don't use the shower there.

I had this pressure in my head for two years now but it went away after I removed everything perfumed out of the house. I should have known, I used to do so before.....

nora

[sonja69]

hi nora,

I am cautious abot wheat starch too, so I do not eat it.

the dr called yesterday, the biopsy is fine of course and now I 'have' IBS (it's not the first doctor who said this after testing 2 or 3 things). I do not know what doctors do nowadays, they have no ideas. when there is aproblem it's IBS. whatever, I'll remain glutenfree for a while since I am afraid that things get worse.

the worst thing is, I can not concentrate on my work, on my carreer anymore. I have to find a new job soon, which is partly good, partly bad, but now I do not have the energy. I have this pressure in the upper stomach, which is so nasty and this prevent me from working since it's so annoying and exhausting.

Sonja

[Jestgar]

sonja,

maybe there is something at your work that's making you sick.

[nora-n]

Hi Sonja, you might still be celiac.

My daughter got an official diagnosis of celiac without any positive biopsy or blood tests.

Her symtoms were very clear, and even her graves disease just vanished after going gluten-free. In fact that was what started tha whole thing. She had had her second episode of graves, the first one went away with antithyroid meds, and then she got it the second time. Elaine Moore on the graves (hyperthyroid) forum at thyroid.about.com lists some things that trigger autoimmunity. Gluten is on the list. I told my daughter about this, and she went gluten-free, and her bowel problems of 20 years disappeared (she had problems since being 3) and her graves vanished. There were lots of other symptoms of celiac too, low b-12 needing shots, and much more.

Before the blood tests and biopsy she had been off gluten, and then went back for several weeks. I do not remember how long. It might have been too short a time. The doctor coing the biopsy showed teh other staff the clearly abnormal view of the small bowel. It did look celiac. They took four biopsis byt the people at the lab only looked at two and said normal...one doctor told her afterwards that he know of some real idiots working at labs.

So it depends on the lab people and doctor and luck if you get a diagnosis .

They did not do any antigliadin IgG test on me either, it might have shown something. Maybe.

I had a gene test and am waiting for the result. Have you been offered one?

I am somewhat better off gluten, but I react to milk products too and avoid them. I react to citric acid and probably MSG. Today I had muscle weakness and giddyness which I attribute to some lingonberry sauce, homemade, with a thickener with citric acid in it that I used before....or it might have been the okay gravy which has MSG. Must find out if it was the gravy with the MSG, I will try it again next week....(MSG can be made from wheat ingredients)

I felt like it was when I had low potassium. (low potassium is also a possible sign of celiac)

Other hidden sources are possible. Paper plates for example, have not tried them, but I reacted to stamps with stamp glue.

I am definitely celiac or gluten-sensitive, as I react to even small amounts of gluten and it has been the same for a year or more.

I am doing the yorktest (do a web search) now as I suspect more food intolerances. Gluten , by triggering zonulin, opens the gut barrier and the blood-brain barrier. on the delphi forum someone has posted an experience with other food intolerances making someone quite ill.

Open Original Shared Link

I reacted to bell peppers (paprika) which never caused any problems before.

Open Original Shared Link

The tiredness is better now. Was so tired for some years.

Job: I failed studies.

I hope you find the energy to find a new job.

I grew up in Austria so I know about being foreign in scandinavia. I find it allright.

nora

[sonja69]

sonja,

maybe there is something at your work that's making you sick.

Hi Jestgar,

yeah, I kind of suspect this, since I always feel worse there. but maybe it's because I am sitting there in tighter clothes, since at home I mostly have really casual comfort clothes due to my extended stomach.

I could not imagine what this can be, I have my own office, and I never drink water or coffee from there.

mysterious.

thanx, Sonja

[sonja69]

hi nora,

th

[nora-n]

Hi Sonja.

I did read on the yorktest, it seems better than the skin prick tests and there are several abstracts in pubmed about IgG testing. I read some articles about conventional allergy testing and conventional testing is quite inaccurate. I read about Dr. Vera Stejskal and her work with better testing.

I am hypothyroid too (another autoimmune thing, related to HLA DQ )

Some people on the hypo forums react very badly to fillers that are supposed to be safe and have to try different meds with different fillers (a zonulin thing, opening up the gut barrier? Open Original Shared Link )

I also bumped into postings by some that are allergic to corn. A real eye-opener. I waws just thinking about gluten and milk before that....Open Original Shared Link So other allergens can be making us sick too.

Ibuprofen also is said to open the gut barrier.....

Dr. Fasano says that close to 40% are prone to get gluten intoolerance . This abstract Open Original Shared Link says that gliadin elevates zonulin in everyone. Zonulin opens the gut barrier.

I will eliminate what they say on the yorktest and see what happens. I will stay gluten-free.

Here one more about normal biopsies, but being celiac:

Open Original Shared Link

nora

[nora-n]

Sonja,

the cheapest ricecakes here (Euroshopper) have probably no traces of gluten.

On the package they list:

"may contain traces of milk, sesame and celery"

So I assume no gluten is processed in the same room...

Do you have a boyfriend that eats gluten? you can get glutened by kissing him....

nora

[sonja69]

hi nora,

thanx for all answers and comments!

I just don not mind to cut out more food, I just cannot imagine, why I am good in germany, and as soon I am here, I am bad again. does not make sense unless there were some hidden gluten sources. i just could blame the grinded coffee, the rice cakes I ate before (the producer claimed that they have gluten traces) or the cat food. but these are only traces and why should it be in coffee??? and the cat food - only traces. I quit the rice-cakes a week ago, but still have problems. cannot think of other traces, I ckecked everything I eat and my cosmetics.

I was in germany in many gluten-homes, but I do not know if the problems I had there occasionally were trace-related problems. cannot remember.

today I cleaned the whole flat, washed the curtains and all textiles i could wash, because of the mold spores.

felt really bad the last days, bloated and always nauseous.

my husband lives in germany, so here in sweden I am gluten-kiss free )

thanx for the tip with the rice-cakes, I will try them!!

have a nice sunday,

best wishes,

Sonja

[nora-n]

Thanks, Sonja.

Yesterday I tried changing the harddisk in an old toshiba laptop. (It was actually easy because one just needs to open a thing on the side) . After turning the thing upside down several times, I noticed there were losts of crumbs falling out of the keyboard.......CRUMBS!

I think the people here maybe were onto something when they suggest that it might be the mold you react to.

I notice that lots of people on the forums have changed to gluten-free pet food.

I think I read somewhere that coffe can have traces of gluten, but do not remember where....

I have some rice flour from nutana, and it says clearly that it can be cc'd. I think the last pack I bought has some gluten cc. I will have to try and see. I do that by eating only meat and vegetables and and then I try the suspect food item......

Several peopel on the forums have posted that their kids get ill by sitting on a desk where some other kid has eaten oat meal cookies or gluten. But you have been in gluten houses in Germany and did tolerate gluten houses and sofas. (sofas and couches and steering wheels are other sources of gluten)

I did get some gluten a couple of weeks ago, I notice by neurological symptoms, like not being able to read unless I find some glasses, and lots of typos when typing, and I am not sure of where I have my feet. I also got this raw crack above my left ear. .....

Most celiacs do not get symptoms I think and have to avoid CC and read labels only.

I hope it helped washing the curtains and everything else.

greetinga, nora

[sonja69]

hi nora, thanx for the wishes.

we'll see.

at my work place I cleaned up the desktop and keybord immediatly by going glutenfree.

I am glutenfree now for 48 days, and except the germany time, I feel like always. bloated, nauseuos. a little better, since now more headaches, but this might have other reasons, might be a coincidence. the nausea has actually got worse since coming back from germany.

could not find glutenfree catfood so far.

if you only eat meat and veggies, what do you have for breakfast?

from the age about 16 until a few years ago, when I was around 34, I managed to keep my stomach under control by eating as little as possible, since soon I ate something, my abdomen extended tremendously and I found/find it so embarrassing that I begin eating first in the afternoon/evening, especially in summer, when it was warm and I had not many clothes to cover. So as I got older and wiser (haha) I thought that might be unhealthy and changed my eating habitats, since I thought maybe after a while, it will be normal like normal people. but nope, as soon I eat something I swell up. no workouts for the abdominal helped during the years. now, I cannot and will not starve myself anymore, so I am bloated and pregnant most of the time, although I did not eat much. but the worst problem is the pressure on the upper stomach area, it feels like someone is pushing from inside. this is 'new', started a few years ago, along with the watery stool (which changed to fatty after cutting out lactose) and the wind. since autumn I am always bloated (without eating/drinking anything), and very often nauseous. I had bloodpressure and bloodsugar problems, which are better now since gluten-free.

so, is it possible that a lot of other intolerances developed within these few years only by eating as a normal human being and that the got actually worse since last autumn?

I told that since I have to go on elimination diet, I have no other chance, it will either be okay, i.e. I will finally find out what's troubling me or I'll give up.

do you or anyone else have some tips what one can eat in the morning?

thanks in advance and sorry for moaning, I feel very depressed and angry today, since I am sooo 'pregnant' again, although I hardly ate something yesterday and nothing today so far.

thanx and best for all,

Sonja

[nora-n]

Sonja, I eat more like Atkins.

I have either an omelet with three eggs and maybe bacon in the morning, and some raw vegetables for the gut bacteriae. They need some roughage several times a day and are important.

Or, I have a can of tuna, drained. Some veggies.

I have some gluten-free wasa knekkebr

[sonja69]

hi again!

before all my problems got really bad (some years ago) I ate a various diet. now I am always afraid of eating something, I might react to something.

I mostly eat 2 hard eggs and 2 rice cakes every morning. coffee with lactosefree milk (but after today oatmilk)

meat and rice/potatoes/gluten-free pasta (rarely) and some lettuce, brokkoli, spinach for lunch

sometimes gluten-free bread or gluten-free oats with yoghurt (will change it to oatmilk now)

bananas as snacks

chicken/fish, veggies, rice or nothing for dinner.

dark chocolate, herbal tee, sometimes white wine and water.

not very various, I know, but I kind of lost interest in eating and cooking. I used to be a hobby chef and create the most delicious dishes, but it's kind of hard to deal with food now.

best, Sonja

[nora-n]

Hi Sonja

I think it is wise to remove the milk and yoghurt. About 75% of celiacs and most IBS do not tolerate y milk and lactose. I stopped the milk already in 1992, and I found out from trying that the so-called lactosefree milk was only lactose reduced. The yoghurt also had too much lactose. I did tolerate soem ice cream and milk creamer powder. Until last year when i got those celiac symtome, then I had to remove all traces of milk. I had to run fast to the toilet onece when I had some scrambled eggs wchich probably had some milk.

My daughter has a proven allergy to milk (the protein part) and that is why I tried without any milk. I even reacted to the traces in chocolate (dark cooking chocolate and dark dessert chocolate) . I got the plamil kind which is trace-free.

Now I tried some pure goat cheese, the cream cheese varieant, chevre just to watch what happened, and I only got slightly bloated. But that was after being gluten-and milk free for 7-8 months. I tried some co's cream cheese one too, and took 5 lactase tablets. More bloated. ( I wanted to test if I got ather symptoms like nevrological or tiredness. My daughter sleeps for a whole day after accidentally getting some casein, and is tired for two weeks afterwards).

So I stay away from milk and cheese (hard cheese has some lactose too, it might be too much for you and me, we will have to try some time or another....)

Ther is alos the possibility of fructose malabsorption and things like that, it may cause alot of bloating. Very commin in IBS. D a web search on fructose malabsorption. There are even lots of hits on thyroid and fructose.

Another thing I tried now: I had some gas each evening the last three weeks. I had some combizym tablets in the cupboard, and tok one for dinner now for three days, and the gas and bloating are mostly gone. Maybe you can try it? I got them without presciption at the apotek.

nora

[sonja69]

hi nora,

it's almost now a thread for you and me

but I am so happy to talk to you and get some input.

are you actually fine now or do you have still troubles? hopefully, I can 'help you back' some day...

I have/had milk for my whole life and I read about foods you are craving much can be the culprits. I really do like milk in the coffee and love cheese, thus I was pleased that there is really lactosefree milk and cheese available here (Valio, a finnish brand has lactosefree and l-reduced products). well, anyway, there's no need for adult mammals for milk actually.

Although I do not understand why I am always better abroad (germany, US) and I drink milk in the coffee there too.

I know about the fructose problem, but the swedish doctors don't. that's one problem. the other problem is that I tested it several times by myself and I never got clear results. (I dilute 25g fructose in water and drink it on empty stomach, that's how the drs do. I could not notice any strange effects). but I don't eat much fruits, sweets or high-fructose veggies anyway. there's a forum in germany dealing with several kinds of intolerances/allergies and it's very good. helped me a lot!

I do have almost never diarrhea, only big stomach, bloated, the gas is reduced since glutenfree, but still there and my skin problem. The biggest problem for me is feeling stuffed (although I am hungry) and this huge stomach after eating. there's is water in my intestines, I can hear it, which is a hint to food intolerance (I recently bought 5 books on it and get more and more understanding and knowledge).the problems here are always enhanced here at work or at home in sweden. weird!!!

sounds inetresting with the drug combizym, I've never seen this here. only dimethicon and this won't help and Lefax, available in germany, helps only a little.

but of course I am more keen about finding the cause for my problems. I certainly will search after this drug this afternoon.

tomorrow I will made a trip to S

[nora-n]

Yes, looks like we have our own thread here

Have a nice time skiing!

Here is snow now too, but it is cold.

Combizym stops the bloating in my stomach, it is just enzymes. Maybe I have not-so-much stomach acid, or something autoimmune going on, very many with autoimmune thyroid disease (the most common kind) have some stomach autoimmunity but they do not test for that. (I think it is possible in Germany) If there is some acid or enzymes missing, one will get gas and food intolerances according to some people. Could make sense. The combizym helps in that way.

Do you routinely test for thyroid? like every three-four years?

Yes, I read german, and I have looked a couple of times at the forum you mention. (libase)

Yesterday I got the gene test back, I am not DQ2 or DQ8....I phoned the lab to hear how they test, if they know if I am DQ1 for example, but she said they do not test for all DQ's, but it could be possible they knew if I am DQ3 maybe. I should ask my doctor to write to them.

There are lots of people on the net with DQ1 and diagnosed celiac, so not being DQ2 or 8 does not exclude celiac.....

I will get the results from the IgG food test soon.

Dr. Hadjivassiliou writes that those with nevrological symptoms have antigliadin antibodies, IgA or IgG. The doctor did not test for IgG to Antigliadin as this is only done when total IgA is low.

Anyway, I was glutenfree for too long a time, and back on gluten too short a time, and I do not know how many false negatives there are with the Ttg tests here. (I read elsewhere that they sent blood samples of biopsy diagosed celiacs to 20 different labs and that the results varied widely, some labs only had positive results for 50% of celiacs, some 5%. )

My daughter who had been celiac since childhood, had negative tests when she was 26.....(but she had been gluten-free for three months and then on gluten for 6 weeks). That makes sense if the cutoff is too high.

nora

[sonja69]

hi nora,

my two days with my friends were very nice. although I had troubles with no bowel movements, I was NOT bloated and felt good. of course I ate only gluten-free and lf. NO stuffed feeling, NO bloating, no nausea.

today, I was here for one evening and night, I had diarrhea, I am bloated to hell and the whole night I was so nauseaous and was vomiting.

It's bewitched here, but at least I know, it's probably not gluten, milk or whatever, it's my flat. I still have troubles to believe, what is poisoning me or that something in the water or the mold can actually make me bloated, but overnight my stomach grew about 10 cm despite bm and only a tiny dinner last night.

I do not get it. I will try now to buy bottled water for cooking and drinking. If this won't help, it's mold or something else.

So, today I am really sick again.

I could not find combizym yet, have to look again.

thanks for help,have a nice day!

Sonja

[nora-n]

Hi Sonja,

I think it is a good sign you were fine while away....maybe it is your lat after all.

I had to take out all shampoos etc to get better, with me it was perfume that was making my sinuses red and infalmed and caused a pressure in my head. I did not contiume nursing school because of that. And I have to insist to get the upstairs bathroom fixed, since mold can do a lot of harm.....

There is a test, but it costs money, one places a box in the house which is then analyzed. But you are moving soon anyway, I think I remember you said that.

There is ahomeopathic mold medicine, it is german and called exmykehl. We can get it without prescription from the pharmacy here. It is not generally known. Not much info on it. I did try it last year, and strange things happened, my scalp stopped itching, my face was not oily, my ears did not itch. The symptoms did return after a while. Maybe I should try another course. It is in the form of suppositories.

You could try them too, and if it helps then you have pinpointed the problem....about 200 kroner in the pharmacy, they have to order them probably. Usually one takes citrokehl drops at the same time.

It will confirm if you react to mold and have to move.

Somewhere there are webpages that say that all celiacs get candida. Or, there are some pages that say that all suffering from candida are gluten intolerant.

I think other people have more input on this. It is interesting.

nora

[ArtGirl]

Hi Sonja,

I've been reading along.... just haven't posted since I haven't anything to add to the discussion. But, still, wanted to learn how you're doing.

I'm blown away about the effect your flat has on your health. I sure hope you can move very soon and then you can feel good all the time.

[sonja69]

hi nora,

thanks for your feedack!! I am really sorry for you that you had to give up school and so on.

yeah, it's weird that being away from home has this effect, or I am just distracted from my problems? do not know, I will do some research and see if I can find this medicine. maybe one can order it from the internet.

I also know about the candida problem, but I do not really believe in that especially not that wen I am away I am not changing my diet a lot. usually I eat more unhealthy stuff being away on holidays. and I cannot imagine, that candida can be switched of and on within hours. and I had some weeks on nystatin (anti-candida drug) with a special diet, did not help.

saturday we found a coffeehouse with glutenfree pancakes I was really happy and I enjoyed them with cream and jelly and a caffe latte (and lactaid) and everything was fine. I was not nauseous teh whole weekend (I thought about diary being the culprit).

today I am feeling better, but still bloated like hell. I hope the bottled water will have some effect.

I do not really like to move, but maybe I have to, since I will be unemployed to and I now trying to get a new job. I am an aquatic ecologist, so I can end up everywhere, we will see what life gives me

and I found some glutenfree cat food, but only the not-dry one. my cat loves dry food, but I cannot find glutenfree. but, we were out for dinner on friday, I lived in a glutencontaminated house and it was fine.

hi artgirl,

thanks for your wishes and interest. it seems to be my flat being really bad to me, although I love living here. so sad.

do you also have problems despite glutenfree?

thanks for support, it feels really good knowing not to be alone!!

best,Sonja

[ArtGirl]

hi artgirl,

do you also have problems despite glutenfree?

I did, but have pretty much found out what all my food allergies are that have been giving me problems. When I don't eat them, I'm real good.

I do have a sensitivity to high electromagnetic frequencies which limits the time I can spend in front of a computer screen. Before I found out what was the problem, I felt sort of ill and dizzy, I had a lot of brain fog and difficulty thinking clearly - and my short-term memory nearly left me so that I wasn't sure 10 seconds after I put my keys in my purse whether I'd left them in the car... that sort of thing. It was real scarry until I found out what was causing all this. The "cure" is to limit my exposure to the high EMFs. [normal is 20mH - electronic devises are 60mH - my brain no longer sorts this out].

It's a real adventure in detecting all the things that affect us humans in this industriial, technological world. Everyone's different, but everyone is affected to some degree. Most of the time our bodies adjust. When they don't.... we are in BIG trouble!!!

I hope you are able to get better soon.

[Guest celiacbuzzroom]

My case at hand. I first had facial numbness in about 3 weeks after having numerous teeth extraxted April 2003. By May 2003 I had the numbness in the face. I had left eye almost closing on me, scalp numbness and headaches. By August 2003 I was having the vertigo stronger. I had some back in May 2003 and that was being dizzy and not the vertigo that affects the eyes, but it happened August 2003. I asked my MD's to help figure any of this out and they do not treat dental related issues. I had to mention dental because that was the only thing new that I had done. That involves health. but the MD's would not help me. I finally got to a MRI and a nerve conduction study and she felt maybe bulging discs causing at that time spine pain, muscles were weak and my ability to hold myself up was being affected by September 2003 thru January 2004. I was then bound to my home with bedridden vertigo, headaches, back pain, neck pain, shoulder pain on the left arm. After the 4 more, I was not able to stand up at all times. I had a balance problem. I had mind blowing headaches. I saw my MD's and all they did was Toradol shots for a past treatment that I got for Fibromyalgia. I am told that is why my sudden health sprialed down. I knew I was being neglected. This is all I had from the medical community. I even saw the Dental Surgeon who extracted my teeth when I first got the face numbness and told him I am dizzy some. He would not help either. I even tried to sue him for this, but this State of Oregon would not allow me to get past the first depositions. My lawyer even walked out on me. I had no Neurologist connecting the dots to the dentist. Enough of that. I lived on Vicodin and moved on to Percacets. I had stiff legs at times. My skin was always numb and tight muscles. My reflexes were out of control. Thru the last part of 2003-August 2005 I had no insurance. My office visits and meds were on me. I asked my MD's monthly to help me more and to get me to any specialist, but they would not do that referral. I asked my doctor to at least run this information by a specialist. I waited for 3 months and no answer from him. I asked again and he told me that he talked with specialists and they will not see me. I had to ask if a specialist would see me myself!!! I asked them to get my records and they told me that my MD"s would not send them. I gave them my permission to get them and then, that specialist told me that he sees nothing on my spine to help me. Rember, he saw nothing!!! I will get back to this one later. After I got the insurance, all my MD's would do is send me to Rehab. Ok, enough of that I said because it is not telling me anything. I am a wreck. No one knows why. They feed me pills and evn had me reach to use Methadone. I tried it for one week and could not cope and saw the MD's again, claiming that I am in terrible pain and please stop this madness. Nope, all they could do is pills. I was told to sign a contract that I would not use the Methadone to kill myself!!! Is that sick or what? To me, this is not doctoring. It is harming me. Rember their oath, 'FIRST DO NO HARM? Well that have, but for not let's go on. By January 2006 I was thinking, this has to stop, so I called the ENT office, complaining with all of this and they set me an appointment. His brain scan showed no MS or any Tumors. He wanted me to see a New Neurologist. By March I see this new Neurologist and he starts me on B12 shots and Folic Acid. He did bloodwork and he told me that I had high antibodies!!! So, it had to be gluten allery. Months and months of B12 & folic Acid and then I stopped those. I found out that I should have the Endoscopy to know for sure and to get that done was a fight. The Gastro doctor did the test and his own bloodwork---well, all I had was gastristis. He told me that I can eat normal, but use the Lomotil for the slowing down of the bowels. By the way, September 2004, I almost had quit walking. I moved by shuffling my feet and mostly in bed with pain. I had to have my daughter move in to help me. Ok, back to the New Neurologist. By September 2006 he had me see a Pain Specialist. I had 2 sessions of epidurals. Here it is January 2007 and I am still the same. Yes, it did give me a window of time with hardly any extreme pain, but I still do not walk hardly. Oh, back in June of 2005, I did see a Gastro doctor for daily diahrrea. He did the colonscopy and all was ok. He had me take pills to slow the bowels down. I also saw my MD's and they gave me even more pills to slow the bowels down. Weird. Pills and no medical honesty to help me. Back to the other dental event in June 2005. I had even more bad teeth problems at that date and had one more removed and then one root canal. I had 3 infections also. I had a abcess on my stomach skin, getting huge with pain and that was infected. They left that on my stomach for 9 months before taking it out. Another infection. Ok, after filling in all of this detail, I am back to the Pain Specialist. I am in daily pain, no more pills since October 2006. I am now seeing a Gynecologist for abdominal adhesions. I also see the Gastro doctor again in Febuary. I also will try to see the pain specialist again late Febuary. I bloat up. I have gas. I have all the body pain. I do not walk, I can't eat normal!!!! I have diahrrea. Just had to let anyone see the madness of my life.

[sonja69]

hi celiacbuzzroom,

I am really sorry for you,your life is really hell, mine is a piece of cake against it.

have you tried going glutenfree? you may try an allergy test or intolerance (IgG) test (www.yorktest.com , I do not know if this is available in the US) or elimination diet. doctors can be so ignorant or have no knowledge about that.

take your faith in your own hands. cut out most common allergens: wheat (gluten), diary, eggs, soy, nuts...

sorry, cannot help you more!

good luck,best wishes,

Sonja

[nutralady2001]

Hello Sonya I have recently joined this forum, I did the gluten challenge and was amazed at the difference.

One thing came to mind reading your symptoms and I am so sorry I don't have time now to read all the thread I'll go back and do that later. So if this has already been mentioned I'm sorry

Anyways you can see from my sig that I am hypo/Hashi's as well. I was wondering if you have had thyroid fucntion tests done, specifically TSH, Free T3 and Free T4 oh and antibodies . If you have what were the results?

A lot of your symptoms also fit into the hypo profile and hypo/Hashi's and Celiac/GI quite often co-incide.