Devastated! Everything's Fine With Me?

[nora-n]

Hi Sonja

Sad to hear others have bloated stomachs too and no help.

I am glad to read you tolerated the cream on the pancakes. makes life easier, I mean not having to avoid traces of milk all the time.

I remembered yesterday that there is another homeopathic remedy I can recommend to you, it is made of different house molds. Rhinoplex 8, made in Sweden. You can get it at any pharmacy. Does not cost much. I get great relief from pollen allergy from Rhinoplex 11. I think they changed the name to allerdin, you will have to ask.

One can dissolve one tablet in a bottle of water and sip throughout the day.

I even tried diluting arnica more (I tried arnica to see if my weight went down, found some interesting stuff on a homeopathy forum and they say that arnica helps for insulin resistance and diabetes, and some months on low-carb hardly brought my weight down from about 70 kg. I lost weight immediately on arnica and am 57-58 kg now. Some say one has insulin resistance if the waist measure is above 80 cm as resistin is made in the belly fat. maybe it is true. I dissolved some arnica globules in a bottle of water, and then one has to potenzise it in another bottle, fill it almost up with water and add some from the first one, and then one has to thump the bottle against the other hand ten times, and then you take some of that water into a glass of water......sound more like magic. This is not for your situation, but just a general note on homeoppathic remedies and that they can work.

There is also an interesting thread about different things , amongst them problems with starch digestion and what is the cause (enxymes, that is why the enzymes help with me) at the delphi forum, it is an old thread from 05:

Open Original Shared Link

nora

[nora-n]

Sonja, about the IgG tests for different foodstuffs in Germany, you can read the thread about "Nahrungsmittelunvertr

[nora-n]

Yorktest results are in!!

Still waiting for the paper version with some explanation.

It said avoid YEAST and Kiwi.

Limit (max. twice a week I think) molluscs and soy and some beans.

Nothing in grains or gliadin or milk.

But the yeast reaction probably points to some candida issue, and I think that explains why I react so trongly to citric acid considering what this is made from, and the bathroom mold issue.

Now I will have to try another round of exmykehl and I have some olive leaf capsules in the cupboard and I have read Karen Tripp's candida page which is a good page . Open Original Shared Link

I also know from Mercola's page that virually all corn is infested with mold (and the grains are too, to a lesser degree, and oats even less, and cheese is often infested with mold. The gluten-free mixes and gluten-free crackers here have corn flour in them, and no blood type except A tolerated corn flur anyway.........

Funny thing is I went to a holistic practiotioner (helhetsmedisin) locally here and paid 500 kr only and she right away pinpointed yeast and gluten and some more things and she gave me prescription for the remedies mentioned (one can get them without).

So one can either take this yorktest or go to a holistic practitioner I think, depending on preferences.

I keep reading that IgG antibodies last 180 days, anyone know more?

nora

[Jestgar]

I keep reading that IgG antibodies last 180 days, anyone know more?

I don't know specifically, but numbers that they give are averages for a population. If you could find somewhere that tells you a range of times you'd have a better idea.

[sonja69]

Hi Nora,

I was very busy this week and could not answer or read in the forum. thanks for help and 'congrats' to your test results! now, you are one step further. I thought about that test too, it's possible in sweden but as always more complicated here. and I have to add gluten back if I decide for the test.

it's all so confusing, I run through my life with a bloated stomach for more than 25 years. I am glutenfree since 8 weeks now, it's better abroad, but maybe because I am not eating that much. as soon I try to eat portions like normal people, glutenfree or not, I am bloated. small portions are okay, sometimes it's okay eating low-carb, sometimes I feel good, sometimes so bad for no obvious reason.

It's devastating. before I will have a IgG test, I will try an elimination diet. in one book they wrote that if there are still problems after 2 weeks on a strict diet, it's probably not food related.

I will try that first and then do the test I think. I am not sure if I tolerated the cream on the pancakes, not sure if I tolerate dairy at all, since symptoms can appear up to 72 hours after, and that's why it is so confusing.

first time I had my stomach problems, I was a teenie, it was shortly after my appendix surgery I thought I was a freak, the only one with this and ashamed of anybody to tell. so I avoided eating. in 2002 things started to get really bad and I thought about getting help. then the tests began, the runs to the doctors etc. my food diary, I kept it for more than 5 years now did not tell me anything, but I love milk and tested some surrogates (oat, soy, rice milk), but it is not the same and I gave up. It's kind of denial, since I do NOT want to give up milk. but I have to, I guess.

but I am happy for you that you found THE or one puzzling piece and I am sure you are on the right way and I hope you'll feel and be better soon.!!!

good luck!!

best wishes, Sonja

[sonja69]

hi again!

I am on an elimination diet now, a rare/few foods elimination diet. today it's the 3rd day, and I quit diary since last friday.

I ate the last days: lamb, porc, beef, sweet potatoes, parsnips, buckwheat, millet, zucchini, cocos milk, sunflower seeds and it's oil foor cooking, pumpkin seeds, hazelnuts, pears, bananas, tea, water.

all these foods I did eat in the past, but very rarely.

now I am constantly bloated for the last days, despite I did not eat anything the last hours (in the morning). my stool is watery.

I know that it can be worse first and then maybe be better again, but I am wondering if this is normal?

I have had reduced gasses the last 7 month I guess, even before being glutenfree and they are also reduced now. my nausea had been better since last week and I feel more energy. note: this was before starting the elimination diet.

before all got going really up and down last october/november, I often had good days without gas, nausea or tiredness. I actually had never diarrhea, only watery stool sometimes, sometimes fatty and always stinky (sorry).

BUT: I always have a big belly, it's quite big in the morning and grows during the day along with eating. if I don't eat, my stomach will be slightly flatter, if I eat (and not the portions like 'normal' people, but smaller), it grows. and this I have for approx. 24 years now. no food - relatively flat stomach, food -pregant!!

WHAT ON EARTH IS THIS FOR A SYNDROME!!!!!!!!!!

maybe the-must-not-eat-but-if-you'll-have-big-belly-as-punishment-syndrome.

I often felt and feel so. I did not do anything really bad in my life.

even a big glass of water can make my stomach grow, I don't get it.

has anybody else this problem?

i just want a normal life in a normal body like everybody else (and I don't mind being glutenfree, dairy free or whatever, but I want a solution!).

sorry, for being a baby, but after 2 decades I am almost convinced that I have to live with this and never find a solution. and other people won't even understand the problem.

sorry,

Sonja

[nora-n]

Hi Sonja!

Well, I got glutened by some chocolate whci had some starch but was lited as not containing gluten on the website...Smash was the name. I think I will complain to the company. I had only been eating the organic gluten--and milkfree chocolate before, and will stick to that I think, as the others are not good about cc or the ingredients themselves.....

Elimination diet, sounds logical.

Now you did react to something maybe, maybe not .

Have you trid different brands of shampoo and soap and toothpaste, just to check?

Someone posted on the delphi or the braintalk forum about that.

I had to change toothpaste as my throat hurt more and more.

I read some kid reacted to coconut. (salicylates?)

And Mercola writes there are two kinds of coconut milk, the fresh kind and the kind made from dried coconuts, the latter often has mold.....

And someone else reacts to sesame.

I would suggest you ask a friend to do the muscle testing, like you do in kinesiology, the friend presses down the arm while you hold the suspected food or vitamin.

Or, you can go to a helhetsterapeut who does that. Much cheaper than the blood test.

In Germany they have the immuno 300 blood test, by the way.

Try the ordinary elimination test? The one where yu start on rice and a vegetable only?

Dogtorj writes that pigs and chicken should not be grain-fed either, only animals which ferment the food like cows etc. (a bit far off)

Maybe you should try to avoid the foods listed as avoid in the blood type diet as well? Just thinking.

Another thing to try is TFT, like on Mercola's site, Open Original Shared Link all the way to the bottom, or go to the emofree site and sign up for the free course, and they will send you the link to the pdf. I just did and they do not bombard me with mails to buy something. www.emofree.com

I had wondered if there was something causing me not to get better, as I am not working now. I had been thinking of trying a psychologost at the school, but I think that this EFT might be much better in finding what causes me not to get better.. It is all about the flow of the chi, and I looked up all the tapping points in a acupuncture book I have and the EFT tapping places are the acupuncture meridian end points. In the acupuncture book they also explain that if the Qui is disrupted in one place things happen. The EFT is designed to balance Chi and to unblock the things hindering you.

(they also mention that allergies or food can hinder you from getting better, and often gluten and milk are the culprits....)

nora

[Jestgar]

Hi Sonja

I only check in on you occasionally but I agree with Nora. Start with just rice and maybe one vegetable that you are sure causes you no problems. Eat only that for a week and see if you feel any different. If you feel better quickly add one simple thing and eat these three things for three days, if you still feel better, add one more thing for three days. If you feel bad remove the thing that made you feel bad and don't add anything else until you feel better again.

[nora-n]

Also, there is an iteresting post about a speech Dr. Fine made at a meeting:

Open Original Shared Link

."......Dr. Fine's diet: Eliminate gluten, dairy, added yeast, soy, corn, eggs, nuts(if a problem), all grains, legumes and nightshades. He soaks nuts in water in a glass container to make them more digestable. He eats non-acid fruits, soaked nuts, a colorful array of fruits and veges, good fats such as avacado, (I don't remember if he uses olive oil) wild salmon and organic turkey. He recommends eating foods in their natural state - in other words, if you steam veges, leave them crisp. He drinks filtered water from a glass container. His recommendation is to eat every 2-3 hours and eat small amounts. When I was at his symposium in 2005 this is how he fed us.

We should always be aware of how we feel after we eat. How do you feel minutes after eating something? hours later? a day later?

He talked breifly about fibromyalgia. Said it is a problem of fat malabsorption. He said something about calcium binding fat(I think) and something about oxalates. (I really should have asked a couple of questions).

Chemical sensitivities - most people with this problem will do better eating organic foods.

He likes garlic, ginger and tumeric.

He spend some time talking about the mind-body-life connection and this needs to be balanced for optimal health. ........................"

another interesring post:

Open Original Shared Link

nora

[sonja69]

hi you all!

thanx for your answers! i started with the elimination diet as recommended in some books: the rare/few food diet, where you can eat things you did not eat often in the past or not at all and cut out the obvious culprits like dairy, corn, soya, nightshades, peanuts etc. this makes sense to me.

thus i do not eat rice (and nightshades, milk, soya etc.) since i ate it every day, sometimes twice in the past month. but i increased my (allowed) fruit intake over the last days, although i never eat fruit that much except bananas and maybe the watery stool is the result of that. i thought about that and detect that in germany i almost never ate fruit, not because i do not like it, but more instinctively since i am afraid of fructose intolerance.

this morning i had a smoothie instead of quinoa-, millet-, buckwheat porridge and (of course) my stomach is quiet now. typically. maybe it's all in my head.

i know you all mean well, but i am quite down right now. but i definetly will check out all possibilities and i will look on the website, but now i have to go step by step. first this diet to the end, although if there's no difference by the end of the week i will try something else. first a fructose-free diet maybe and a low-carb diet (which worked always quite well for me).

then i decided to make a stool analysis, a candida test and finally the foodscan allergy and intolerance test (IgG &IgE), although i can't imagine that there'll be anything coming out for me like 'you are intolerant to bananas or milk or whatever and when you cut them out you'll fine'. this would be a dream, but i had to fight always in my life, why should this be easy?

then i'll take antibiotics (as soon i can find some good) and L-glutamine.

i think this will take about 6 months. i hope something comes out. if not, i'll give up.

sorry, not my best days...but thanks to you for all support, i really appreciate it!!!!!!!!

best, Sonja

[Jestgar]

OK, no advice.

HUGE HUGS!!!!!

Hang in there

[sonja69]

THANKS

[nora-n]

Hi

I think it is a good idea to try things like you started now, could be fruit and carbs intolerance due to gluten intolerance like the SCD people say (enzyme stuff)..... (you mean probiotics, don't you?)

Hope it all works out for you!

Greetings

nora

[sonja69]

hi nora,

yeah, of course probiotics not antibiotics (that would be really bad). too much in my head now, sorry.

SCD people say (enzyme stuff).....

would do you mean by that? what's SCD?

I thought about that and if I am abroad I usually tend to eat not much fruit, but at work and home I always eat bananas and sometimes apples (we get it for free at work), it's a good snack to take it with you. but when I am in germany, I am on vacation, so I often eat much less healthy, mean less or no fruit at all. When I am at home I tend to eat more chocolate in the evening, especially in winter. and I always made good experience when I was on a low-carb trip...

I hope you feel better, you got glutened from chocolate? there's starch in there?. it should not be in there, but the damned industry. I love the Lindt chocolate sort Madagascar, it's so good, milk and glutenfree. hope I can eat it soon....

I don't know if the brand is available in Norge, but Ritter Sport chocolate has a lot of sorts without gluten (i do not know if you can read german, there are no infos in english). these are glutenfree:

Ritter Sport 100g

Alpenmilch

Dunkle Voll-Nuss

Eierlik

[diamondheart]

Hi Sonja,

I don't know if you are still reading this thread, but it sounds like to me that you have leaky gut syndrome. This was the case with me. It started with gluten being a problem seven years ago. At one point, I was not eating gluten, dairy, corn, soy, nuts and seeds, and quinoa. It was a pretty restricted diet. Actually, I pretty much eat this way now even though I've had treatment. There are some people who react to more foods than I do. This is not normal!! I think it's good to first identify what your body is reacting to, and stop eating those things. An IgG test is helpful, but not perfect. Working with a health care practitioner who can use applied kinesiology or BioSET to diagnose sensitivities is helpful too. Then, once you have eliminated the foods you are reacting to, you can start looking for the causes of your leaky gut. Get tested for yeast and bacterial dysbiosis. Test your house for mold if you think that's a problem. Multiple things could be going on.

Claire

[CMCM]

Hi Sonja,

Just a few comments from my own experiences.

I had a hard time isolating problems at first. When I first went gluten free the change was huge, but not 100%. I still had dairy problems, and that took maybe a year to go away for me. I've read that eating gluten when you are intolerant can actually lead to a lot of intolerances including carbohydrate intolerance as well. Being free from gluten long enough, and in my case, avoiding ALL the problem things as much as I could for many months, finally led to a sort of overall healing, I think.

Now I can have dairy and other carbs without much problem, although I keep it limited, and I don't eat much of anything on an everyday basis. It's good to rotate foods around, no matter what the food.

With me, occasionally reactions were quite quick, within an hour to 3 hours, but more often, it was the next day or even 2 days later that things caught up with me.

I can say in the beginning that keeping a very limited and siimple diet was helpful, very helpful. I got things calmed down, found just a few foods that totally agreed with me, and then added things in carefully.

Hi !

thanks again. it's all so confusing and today I really feel like crap. it's getting worse and worse...

no, of course I'll never leave my cat...He's my everything I bought some gloves to handle the catfood and triy to remember washing my hands after cuddling.

yes, I had a mold problem, but I think I have fixed it and find it hard to believe that bloating and gasses comes from mold.

and it does not seem to be the problem, since I got originally the idea of having problems with gluten through cutting out carbohydrates from my diet when I tried the Atkins diet. I felt really fine everytime I cut the carbs out (3 times), although I ate lactosefree cheese, milk, yoghurt... So, everytime I cut them out I felt fine but after reintroducing them, the problems were back. after some research I tried it with glutenfree.

in germany, I was 80% better, but I had bad days too, of course. but I thought I am on the right track but no I am a little in doubt, and I don't have a diagnosis either.

I got more and more sensitive, so I think I have to cut out diary, and these glutenfree surrogates like bread, pasta etc. and hope it'll be better.

this is so tricky, you have to be careful about everything, how can I ever be sure, that there are no traces of gluten in e.g. buckwheat or millet or rice. or teabags, can they contain gluten?

best, Sonja

[nora-n]

Sonja, SCD = The Specific carbohydrate Diet, there are several websites about it, heard about it on the crohns-colitis newsgroup.

As you are officially diagnosed with irritable bowel disease now, it might be worth checking...

Some celiacs react very much to bananas. I had some reactions to bananas last summer, but now after some months gluten-free they are okay.

I also reacted very much to sweet bell peppers and mustard. Had noreaactions to anything except milk before, then glutenand mustard and peppers and chili and citric acid and bananas. Something sure is wrong.

And my constant burning in the skin is totally gone after going gluten-free. Must be DH. Doctor refused to send me to specialist.

And, I lost 13 kg after going gluten-free.

The chocolate had some crisp salty maize cones inside them, Nidar Smash. I emailed them and they researched and answered quickly, there should be no gluten in it, except there is a small chance of cc with the smash bars as they are in a plant that has wheat.

I might email them back and thank them and write that it might have been bread crumbs in a jar of honey that glutened me. I might try the chocolate again and see if I still get glutened because they were so nice and answered me promptly........

Good luck with trying to omit the bananas and apples for a while to see what happens.....

Yes, I can read german, grew up in Vienna.

nora

[sonja69]

Hi Sonja,

I don't know if you are still reading this thread, but it sounds like to me that you have leaky gut syndrome. This was the case with me. It started with gluten being a problem seven years ago. At one point, I was not eating gluten, dairy, corn, soy, nuts and seeds, and quinoa. It was a pretty restricted diet. Actually, I pretty much eat this way now even though I've had treatment. There are some people who react to more foods than I do. This is not normal!! I think it's good to first identify what your body is reacting to, and stop eating those things. An IgG test is helpful, but not perfect. Working with a health care practitioner who can use applied kinesiology or BioSET to diagnose sensitivities is helpful too. Then, once you have eliminated the foods you are reacting to, you can start looking for the causes of your leaky gut. Get tested for yeast and bacterial dysbiosis. Test your house for mold if you think that's a problem. Multiple things could be going on.

Claire

hi Claire!

yeah, i am still reading but was soo buisy with all: work, my mother-in-law died, depression and this constantly thinking about what to eat and what not.

thought about leaky gut too. but i do not really know where to start. why am i bloated for 25 years only because i am eating?

whatever, i ordered a allergy profile test which tests both IgE and IgG of 140 foods, spices and airborne allergens. i hope i will get it this week so i have some answers before eastern.

the elimination diet didn't help. i saw no improvement after 10 days, but maybe i had the wrong foods. in several books about that, not being relieved or almost symptomfree after this time, the problmes might not be related to food intolerance, but the period might be too short whatever.

yeah, multiple things, I hope i can find the solution this year.

thanks, best, Sonja

[sonja69]

Hi Sonja,

Just a few comments from my own experiences.

I had a hard time isolating problems at first. When I first went gluten free the change was huge, but not 100%. I still had dairy problems, and that took maybe a year to go away for me. I've read that eating gluten when you are intolerant can actually lead to a lot of intolerances including carbohydrate intolerance as well. Being free from gluten long enough, and in my case, avoiding ALL the problem things as much as I could for many months, finally led to a sort of overall healing, I think.

Now I can have dairy and other carbs without much problem, although I keep it limited, and I don't eat much of anything on an everyday basis. It's good to rotate foods around, no matter what the food.

With me, occasionally reactions were quite quick, within an hour to 3 hours, but more often, it was the next day or even 2 days later that things caught up with me.

I can say in the beginning that keeping a very limited and siimple diet was helpful, very helpful. I got things calmed down, found just a few foods that totally agreed with me, and then added things in carefully.

hi CMC,

thanks for sharing your experiences. it's so tricky and frustrating. some days I can have fruits or veggie, some days not, pure fruit sugar did not cause any problems in the first 24 hours, and then of course, i ate a lot of other stuff afterwards, so how will I ever know? i do not understand, how other peoples came to conclusions with their food diary, because the reactions can be up to 72 hours later and within this time everybody has eaten a lot of things.

and then in germany, it's fine despite milk & cheese every day, and sweets (it was xmas) and some fruits. aaaaaahhhhhh

best, Sonja

[sonja69]

Sonja, SCD = The Specific carbohydrate Diet, there are several websites about it, heard about it on the crohns-colitis newsgroup.

As you are officially diagnosed with irritable bowel disease now, it might be worth checking...

Some celiacs react very much to bananas. I had some reactions to bananas last summer, but now after some months gluten-free they are okay.

I also reacted very much to sweet bell peppers and mustard. Had noreaactions to anything except milk before, then glutenand mustard and peppers and chili and citric acid and bananas. Something sure is wrong.

And my constant burning in the skin is totally gone after going gluten-free. Must be DH. Doctor refused to send me to specialist.

And, I lost 13 kg after going gluten-free.

The chocolate had some crisp salty maize cones inside them, Nidar Smash. I emailed them and they researched and answered quickly, there should be no gluten in it, except there is a small chance of cc with the smash bars as they are in a plant that has wheat.

I might email them back and thank them and write that it might have been bread crumbs in a jar of honey that glutened me. I might try the chocolate again and see if I still get glutened because they were so nice and answered me promptly........

Good luck with trying to omit the bananas and apples for a while to see what happens.....

Yes, I can read german, grew up in Vienna.

nora

hi nora!!

I recently read about the SCD, just by coincidence, but I am not sure, if this is good for me, since there's a lot of fruits & veggies involved. since i get very gassy after them, i am not sure. but i ate rarely fresh fruits and veggies, maybe it's just temporarily, since a lot of people get gasses in the first time. or it's fructose, but i am uncertain about that too. i understand that real celiacs have/could have problems with many foods due to their damaged villi, but it seems so, that if you are allergic/intolerant to one item, it won't stop. it goes on and on with more and more foods.... but I hope you'll feel fine/better now with cutting out the culprits!

I ordered a big allergy profile test, testing IgE & IgG on 140 foods and airborne allergens. I hope I'll get it this week.

the elimination diet was a 'flop' or i was too impatient. i got really gassy after two days and after 10 days although restricting the fruit, my symptoms were still there. they are supposed to go away and then you can reintroduce foods again. i never came to this stage...

i am extremely bloated since 3 days now and I do not know why. i couldn't go to work last monday because I did not find any clothes to fit. I didn't fit into one single trousers. lucky as i am I can work from home, sitting there in an old pyjama trousers. it has to stop one day, it drives me crazy, but maybe i am....

I think I go to germany over eastern, so maybe i can get an appointment for fructose, sorbit and histamine testing and have some relieve of the symptoms, because I will be fine in germany hehe.

i wish i could take time off to focus on either this or time off in my head and body to focus on my work, although I am alone, no kids, I feel it exhausting to take care of so many things at the same time, especially with this much work i have right now.

do you have access to the Ritter Sport chocolate in Norge? it's really good, although I had only the Bitter-Nuss and the Marzipan.

best wishes and have a nice day!!

Sonja

[sonja69]

hi!

back again and bloated as usual

yesterday I finally managed to give some blood for my IgE and IgG food antibody testing and now it's waiting, waiting...

I begged the nurse to handle the blood samples accurately and send them back to the lab as soon as possible according to their instructions. this test costs almost a 1000 $ so far and I really hope they won't mess up.

The only thing I did not follow in the instructions was to eat wheat/gluten 24 h before the sample was taken, since I was afraid of really bad symptoms. and the results are negative anyway (had 3 IgG and tTg test alsready and biopsie - all negative). After I ordered the tests I read a lot negative about it so I think I will also end up with some confusing results of the type: I am allergic to artichokes or something like that. I cannot remember having them tried once in my life...we will see

nora, I read me into the SCD topic and it occurs to me that I might have some issues with my small intestine flora, or may have SIBO. So I decided to give the diet a try since it sounds reasonable that starch is hard to digest and other disaccharides too.

so yesterday I was in the kitchen the whole day to prepare food for the initial days. chicken soup with plain chicken and mashed carrots as well as plain hamburger, eggs and some kind of cheese cake (yummy) are allowed. as well as honey, which is life saving, since I am in love with sweets at the moment.

we'll see, its my first day and unfortunatly I am really hungry!!! well I can lose some pounds, I gained three kilos within 5 days (!! where are they from?!) and now I do not fit in any jeans. all far too tight and they bump my big belly out so I look like a four-tit-woman.

it's not funny, however.

wish you all the best,

Sonja

[JEM123]

hi all!

had my biopsies (gastroscopy, colonoscopy) yesterday and everything looks fine. the sample results will be coming in january, but my intestines look fine and the whole blood work panel said that I am the healthiest person on earth!!

except for some increased white blood corpuscles (??).

yeah, I am so fit and healthy and feeling great with

- gas (flatulence)

- distented abdomen/bloating

- headaches

- abnormal stools (fatty, floating, with air, sometimes watery)

- no energy

- eczema in the face

- hairloss

I am really devastated, I wish I had a diagnosis (on something, all test are always fine) since friends and family will think I am insane, when I will be glutenfree volontary out of the blue.

and I am so pessimistic about it, I doubt it will help. sorry, but I think it's kind of punishment and I am afraid I have to stick with this problem forever....

Sonja

Hi Sonja,

I am of the understanding that most damage caused by gluten is found in the upper intestines. An upper endoscopy is usually the "golden diagnosis". My blood test results the first time around came back negative, my gastro doc saw blunting of my villi through the endoscopy. He retested my blood and this time sent it to a specialized lab in California...Prometheus Labs. Those results showed a positve diagnosis for celiac disease. I believe there are only 5 labs in the U.S. specialized for this kind of diagnosis. I had 5 of the 7 symptoms you describe and after going gluten free those subsided. If I should get glutened for some reason those symptoms come back full force for at least a week or more. Sad to say but many doctors in the U.S. are not on top if celiac disease yet, unlike doctors in other countries. Press on for more further blood testing but make sure you are eating gluten before you go get tested.

Listed below are the three tests that confirmed my celiac disease:

Anti-Gliadin Antibodies (AGA), IgG and IgA

Anti-Endomysial Antibodies (EMA), IgA.

Anti-Reticulin Antibodies (ARA), IgA.

Good luck and let us know what happens!

[nora-n]

I ordered a big allergy profile test, testing IgE & IgG on 140 foods and airborne allergens. I hope I'll get it this week...............

do you have access to the Ritter Sport chocolate in Norge? it's really good, although I had only the Bitter-Nuss and the Marzipan.

Hi

Sorry for the loss of mother-in-law.

What test did you order? They have some interesting tests in Germany, even one with 300 foodstuffs.

And there is one where they use a drop of the food and a drop of the blood and they watch and see if something happens.

I saw Ritter chocolate at the airport last week, I live close by. They even have american hershey chocolate there.

I react much less to traces og milk now and I think I tolerate some peppers again, all this because of being gluten-free for some months now. Good.

Have a nice trip to Germany for Easter holiday!

Here the snow is melting these days.

Something else:

The other things I am reading these days are about mycobacteriae, like in www.marshallhelp.com and the forum in www.roadback.org is quite interesting onn diet issues. I have this IgG reaction to yeast and there is some kind of connection to cfs. I found some of those links at Karen Tripp's candida page.

nora

[sonja69]

Hi Sonja,

I am of the understanding that most damage caused by gluten is found in the upper intestines. An upper endoscopy is usually the "golden diagnosis". My blood test results the first time around came back negative, my gastro doc saw blunting of my villi through the endoscopy. He retested my blood and this time sent it to a specialized lab in California...Prometheus Labs. Those results showed a positve diagnosis for celiac disease. I believe there are only 5 labs in the U.S. specialized for this kind of diagnosis. I had 5 of the 7 symptoms you describe and after going gluten free those subsided. If I should get glutened for some reason those symptoms come back full force for at least a week or more. Sad to say but many doctors in the U.S. are not on top if celiac disease yet, unlike doctors in other countries. Press on for more further blood testing but make sure you are eating gluten before you go get tested.

Listed below are the three tests that confirmed my celiac disease:

Anti-Gliadin Antibodies (AGA), IgG and IgA

Anti-Endomysial Antibodies (EMA), IgA.

Anti-Reticulin Antibodies (ARA), IgA.

Good luck and let us know what happens!

hi Jem123,

thanx for your answer! I already had three blood tests and a biopsy, all were negative. I am still searching for answers as you can read in the whole thread if you have time.

that dr are useless to ca. 95% seems to be a global problem: I experienced it in germany and sweden, where I live, and read alot of stupid things and bad experineces from people in the U.S. or UK.

my symptoms did not go away, sometimes the bloating is weaker, but if I think about all the poop, I can count good days on my two hands, mean good days, where I am feeling good and had very few symptoms within approx. 25 years.

but I am glad for you that you found the solution of your problems!!

take care!!

best wishes, Sonja

[sonja69]

hi nora,

thanks for the kind words.

the test I ordered was a Food Antibody profile assessment from Scandlab, Stockholm. 140 foods and additional spices and veggies will be tested on both IgG and IgE. and pollen and other airborne stuff. it was very expensive but this way I do not have to make an appointment for testing possible IgE issues.

I had to give 4 blood samples since the tests will be done with 4 ml serum each. I only hope the lab did it right!!!!!!!!!!!!!

I think your healing is on the way!!! )

thus you might be able to enjoy mor foods soon, I am very glad for you!!

here's also melting times. it's a mess!! I work in Uppsala and its just like the whole city is covered with grey mashed-potatoes-like snow. urrg!! I live at the countryside and there it's much nicer still. hope, spring will come soon, tired of winter. but the good news is that it's already light at 6.30 a.m. and it's getting dark later.

thanks for the tips with the bacteria. the SCD aims to kill overgrowth and nasty bacteria too. it's my third day now and my intestines are grumbling and i had a lot of gas. i'll give it a try for some days but I think I have some issues with fructose, although I did not eat much honey (which is allowed).

but I definetly have the wrong flora in my bowel, I wouldn't feel at home either, when I was a good bacteria had to live in there.

I'll check out the websides, thanx!!!! hope the spring comes to you soon!!!

best, Sonja