Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

More Questions


lilmama

Recommended Posts

lilmama Apprentice

Ok I'm still trying to take in as much as possible. I bought 2 boxes of Vans waffles, they say they are wheat free and gluten-free. Upon further reading I find they have been processed on or by machines that have wheat products. So techinally they most likely have be glutenated, right? Best to avoid them? You have to look hard for this warning.

Is oat flour ok? I read it MIGHT contain low levels to no levels gluten in it depending on where is was processed. I have a box of Captain Crunch and was wondering if that is a ok cereal to eat.

Also I'm trying to explain to hubby how this really works. He is trying very hard to help me find foods we can all eat. Chinesse food , I said no he said well the fried rice would be ok. I found out last night no fried rice after stomach pains and a major headach this morning. He is really shocked in how many things have wheat.

So far in the way of foods I have found that Walmart brands(not all) are gluten-free

I can eat bacon,grits,milk,chips,fruits canned or fresh,veggies, meats potatoes, found some dried magos and craisins.

Still looking for snack ideas. ANy suggestion would be great.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sunshinen Apprentice

Fried rice would be bad because soy sauce is usually made from wheat. There are gluten-free soy sauces, and PF Changs is one of the best restaurants with a gluten free menu (IMHO).

Oat flour is probably contaminated because many places that process oats process wheat and often is grown on fields that have grown wheat, leaving some wheat growing alongside the oats. I would suggest avoiding oat flour altogether at first and then after you heal try to find some brands that you are okay with if you still want to try it.

This is my personal take and I suspect many would disagree. If it says gluten free, I eat it. If they have put this label on it, I assume they wash down the equipment before switching products. For now, you might want to avoid it, and then as you heal start to see if you can tolerate it or not.

Snacks: fresh fruit and vegies; apple slices/cellery and peanut butter (if you are tolerating nuts); tortilla chips and salsa/guacamole (homemade or check ingredients); homemade nachos (if tolerating milk); kinnikinnick muffins/donuts/etc; boiled eggs; deviled eggs; sliced salmon (or other meat) on rice crackers

kbtoyssni Contributor

I would not eat oats or oat flour. Most oats are contaminated. There is also some debate about whether oats do damage to celiacs - it seems that some do and some don't. So even if you got gluten-free oats you might react to them.

If you are looking for take-out type food, I suggest Thai food (rice noodles), Mexican (corn tortillas), Indian.

mamaw Community Regular

I think the only way to be totally gluten-free without any worries would be to wash all cooking items in scalding soapy hot water. And from there cook everything that goes into your mouth. I truly think it is very hard not to get a crumb from somewhere or to breathe in ....

Everyone of us react differently to foods,soaps & shampoo, so what fits one may not fit all... I know many will not eat oats because of cross contamination. I eat the gluten-free oats with no problems but I eat only 1/2 cup at a time a couple times a week.Being a new person trying to figure out this diet I would not eat oats at first..

Some snacks we like are Glutino pretzels, Doritos ranch chips, popcorn,gluten-free crackers with peanut butter.gluten-free pretzels with a melted hersey kiss then another top pretzel ( good for the holidays& quick).ANd of course veggies,dip & jerky.Bagged potato skins are usually gluten-free too.

good luck

mamaw

CarlaB Enthusiast

I eat Van's waffles. Neither my daughter nor I have a problem with them.

Restaurants are very difficult because of contamination issues. But, in your case, with the fried rice, it was the soy sauce. Learn from that -- you can't just be "pretty sure" something is okay! You must be positive!!

I only eat at restaurants that have gluten-free menus because they are better equipped to avoid contamination. Many times you can go to a restaurant and something looks safe, but it's not because of contamination. My son worked at a tea shop -- the sandwiches and salads were made at the same station. You would think their salads would be gluten-free, but if you saw their kitchen, you would know they are not.

I do have a couple exeptions -- I eat Chick-fil-a's grilled chicken salad and waffle fries. I also eat Skyline Chili on a potato (local Cincinnati chili).

Guest cassidy

I'm not sure how long you have been on the diet, but it seems like you are still figuring things out, and it takes a while. I would recommend starting with a more basic diet for two reasons. If you stick to veggies, fruits, meats, rice - things that are naturally gluten-free, you don't have to worry about labels and your healing body doesn't have to worry about harsh processed foods.

I would definitely stay away from oats. I believe there are two companies that make oats that are ok. They are grown in states that don't grow wheat so there is no cc. I wouldn't think captain crunch is made with those oats, so I would avoid it.

As far as eating things that are produced in the same facility/same lines as gluten - that is a personal choice. I am extremely sensitive and unfortunately have found that I usually get sick if I don't eat things from a dedicated facility. It isn't that I want to be so strict, I just get sick if I'm not. I'm sure you will figure out soon enough how sensitive you are and if you can handle things that may have a bit of cc. Also, some companies are very good about avoiding cc so even if there is gluten around you may find that everyone seems to be able to tolerate that product. I don't eat waffles so I don't know about those.

I snack on cheese - cracker barrel and land o lakes makes little individually wrapped cheese "bars" that are good. I usually also eat fruit. Lay's stax are ok so I eat those if I want some salty chips.

lilmama Apprentice

I've been on the diet the 27 of Nov(I think) I'm still learning alot about foods. I did receive an email back from the makers of Capt crunch and they told me their products arent safe for those who can't tolorate gluten. They did tell me that Aunt Jemima Syrups were safe to use. I've order a few boxes of bread mix and waiting for it to arrive. I miss my breads in my meals.

I'm back to basic as my gma use to call it. (fruits,veggie and gluten free dairy) I want to thank everyone for their help in guiding me threw the diet. I would be so lost w/out ya'lls help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,097
    • Most Online (within 30 mins)
      7,748

    Brandonh20s
    Newest Member
    Brandonh20s
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Kwinkle
      Thank you, Trents- are there any safe alternatives?
    • Scott Adams
      I agree with @trents, it's not typical for gluten exposure to cause symptoms as delayed as a week or two after ingestion. In most cases, reactions to gluten occur within hours to a few days, depending on individual sensitivity and how much gluten was consumed. The delayed symptoms you describe—stomach cramping in the mornings and flaky stool—might suggest that something else is contributing to your discomfort. Cross-contamination is a common challenge, especially when dining out, and it's great that you're doing your best to stay gluten-free. However, the inconsistency of your symptoms and the long delay between exposure and reaction could warrant further investigation. It's possible that another gastrointestinal condition, such as IBS, a food intolerance, or a reaction to something else in your diet, might be contributing to your symptoms. You might consider keeping a detailed food and symptom diary to identify potential patterns or triggers. Additionally, consulting your gastroenterologist could provide clarity. They may suggest testing to rule out other issues, such as small intestinal bacterial overgrowth (SIBO), microscopic colitis, or other sensitivities. If you suspect cross-contamination is a significant issue, you could also ask for follow-up bloodwork (e.g., tTG-IgA) to check if your antibodies are elevated, which might indicate ongoing gluten exposure.
    • Scott Adams
      Good to know, here is their website: https://polly-o.com/
    • Scott Adams
      No cure so far, and a treatment might still be years away. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Scott Adams
      I'm not sure the article would be misleading, as it offers many different avenues to pursue for those with ongoing symptoms. The recommendation to keep a food diary and remove common food intolerance triggers would be a good way to discover issues with casein/milk, especially if you added that back to your diet after a couple of months and your symptoms returned. Many additional food intolerance issues can be permanent in some people. 
×
×
  • Create New...