Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

More Questions


lilmama

Recommended Posts

lilmama Apprentice

Ok I'm still trying to take in as much as possible. I bought 2 boxes of Vans waffles, they say they are wheat free and gluten-free. Upon further reading I find they have been processed on or by machines that have wheat products. So techinally they most likely have be glutenated, right? Best to avoid them? You have to look hard for this warning.

Is oat flour ok? I read it MIGHT contain low levels to no levels gluten in it depending on where is was processed. I have a box of Captain Crunch and was wondering if that is a ok cereal to eat.

Also I'm trying to explain to hubby how this really works. He is trying very hard to help me find foods we can all eat. Chinesse food , I said no he said well the fried rice would be ok. I found out last night no fried rice after stomach pains and a major headach this morning. He is really shocked in how many things have wheat.

So far in the way of foods I have found that Walmart brands(not all) are gluten-free

I can eat bacon,grits,milk,chips,fruits canned or fresh,veggies, meats potatoes, found some dried magos and craisins.

Still looking for snack ideas. ANy suggestion would be great.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sunshinen Apprentice

Fried rice would be bad because soy sauce is usually made from wheat. There are gluten-free soy sauces, and PF Changs is one of the best restaurants with a gluten free menu (IMHO).

Oat flour is probably contaminated because many places that process oats process wheat and often is grown on fields that have grown wheat, leaving some wheat growing alongside the oats. I would suggest avoiding oat flour altogether at first and then after you heal try to find some brands that you are okay with if you still want to try it.

This is my personal take and I suspect many would disagree. If it says gluten free, I eat it. If they have put this label on it, I assume they wash down the equipment before switching products. For now, you might want to avoid it, and then as you heal start to see if you can tolerate it or not.

Snacks: fresh fruit and vegies; apple slices/cellery and peanut butter (if you are tolerating nuts); tortilla chips and salsa/guacamole (homemade or check ingredients); homemade nachos (if tolerating milk); kinnikinnick muffins/donuts/etc; boiled eggs; deviled eggs; sliced salmon (or other meat) on rice crackers

kbtoyssni Contributor

I would not eat oats or oat flour. Most oats are contaminated. There is also some debate about whether oats do damage to celiacs - it seems that some do and some don't. So even if you got gluten-free oats you might react to them.

If you are looking for take-out type food, I suggest Thai food (rice noodles), Mexican (corn tortillas), Indian.

mamaw Community Regular

I think the only way to be totally gluten-free without any worries would be to wash all cooking items in scalding soapy hot water. And from there cook everything that goes into your mouth. I truly think it is very hard not to get a crumb from somewhere or to breathe in ....

Everyone of us react differently to foods,soaps & shampoo, so what fits one may not fit all... I know many will not eat oats because of cross contamination. I eat the gluten-free oats with no problems but I eat only 1/2 cup at a time a couple times a week.Being a new person trying to figure out this diet I would not eat oats at first..

Some snacks we like are Glutino pretzels, Doritos ranch chips, popcorn,gluten-free crackers with peanut butter.gluten-free pretzels with a melted hersey kiss then another top pretzel ( good for the holidays& quick).ANd of course veggies,dip & jerky.Bagged potato skins are usually gluten-free too.

good luck

mamaw

CarlaB Enthusiast

I eat Van's waffles. Neither my daughter nor I have a problem with them.

Restaurants are very difficult because of contamination issues. But, in your case, with the fried rice, it was the soy sauce. Learn from that -- you can't just be "pretty sure" something is okay! You must be positive!!

I only eat at restaurants that have gluten-free menus because they are better equipped to avoid contamination. Many times you can go to a restaurant and something looks safe, but it's not because of contamination. My son worked at a tea shop -- the sandwiches and salads were made at the same station. You would think their salads would be gluten-free, but if you saw their kitchen, you would know they are not.

I do have a couple exeptions -- I eat Chick-fil-a's grilled chicken salad and waffle fries. I also eat Skyline Chili on a potato (local Cincinnati chili).

Guest cassidy

I'm not sure how long you have been on the diet, but it seems like you are still figuring things out, and it takes a while. I would recommend starting with a more basic diet for two reasons. If you stick to veggies, fruits, meats, rice - things that are naturally gluten-free, you don't have to worry about labels and your healing body doesn't have to worry about harsh processed foods.

I would definitely stay away from oats. I believe there are two companies that make oats that are ok. They are grown in states that don't grow wheat so there is no cc. I wouldn't think captain crunch is made with those oats, so I would avoid it.

As far as eating things that are produced in the same facility/same lines as gluten - that is a personal choice. I am extremely sensitive and unfortunately have found that I usually get sick if I don't eat things from a dedicated facility. It isn't that I want to be so strict, I just get sick if I'm not. I'm sure you will figure out soon enough how sensitive you are and if you can handle things that may have a bit of cc. Also, some companies are very good about avoiding cc so even if there is gluten around you may find that everyone seems to be able to tolerate that product. I don't eat waffles so I don't know about those.

I snack on cheese - cracker barrel and land o lakes makes little individually wrapped cheese "bars" that are good. I usually also eat fruit. Lay's stax are ok so I eat those if I want some salty chips.

lilmama Apprentice

I've been on the diet the 27 of Nov(I think) I'm still learning alot about foods. I did receive an email back from the makers of Capt crunch and they told me their products arent safe for those who can't tolorate gluten. They did tell me that Aunt Jemima Syrups were safe to use. I've order a few boxes of bread mix and waiting for it to arrive. I miss my breads in my meals.

I'm back to basic as my gma use to call it. (fruits,veggie and gluten free dairy) I want to thank everyone for their help in guiding me threw the diet. I would be so lost w/out ya'lls help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - fritz2 replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      13

      Question

    2. - trents replied to Nikki03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Confused about test results.

    3. - Nikki03 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Confused about test results.

    4. - trents replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      13

      Question

    5. - fritz2 replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      13

      Question


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,767
    • Most Online (within 30 mins)
      7,748

    Sharon Bing
    Newest Member
    Sharon Bing
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.2k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • fritz2
      So what relieves the joint pain?
    • trents
      Welcome to the forum, @Nikki03! What was the other result from the other physician's lab work? The test result you report in your post is not a celiac disease diagnostic test. It is a test for IGA deficiency. It is also known as "total IGA". There are other IGA antibody tests that are used to diagnose celiac disease but if you are IGA deficient, their scores will be artificially low. Obviously, you are not IGA deficient so if there were other IGA antibody tests run they should be trusted as accurate unless you had been on a gluten free or reduced gluten diet before the blood sample was taken. So, if you have other test results, please post them along with (this is important) their reference ranges. Raw test scores without reference ranges are not necessarily helpful as different labs used different reference ranges. Here is an article that describes the various antibody tests that can be ordered when checking for celiac disease: As you can see, there are IGA tests and there are IGG tests. What are your symptoms? There is another gluten disorder known as Non Celiac Gluten Sensitivity (NCGS) that shares many GI symptoms with celiac disease and is 10x more common than celiac disease. There are no tests for NCGS so celiac disease must first be ruled out by formal testing.
    • Nikki03
      I had celiac labs done and got two different result from two physicians. I have tons of celiac symptoms and suspected it for a while now but this has me so confused can you help?    my labs results read as follows  immunoglobulin A QN =419 which was off the chart high but everything but that was in normal range.               Thanks sincerely confused!   
    • trents
      As I mentioned above, NCGS stands for Non Celiac Gluten Sensitivity. Celiac disease and NCGS share many of the same GI distress symptoms but NCGS does not damage the lining of the small bowel as does celiac disease and is not an autoimmune condition, as is celiac disease. NCGS is 10x more common than celiac disease but there are no tests for it. Celiac disease must first be ruled out. We actually know much more about celiac disease than we do about NCGS. Some experts believe NCGS can be a precursor to celiac disease. The only known antidote for either is total abstinence from gluten. Joint pain is a well-established symptom of celiac disease, one of the more than 200 symptoms on a growing list. And many of them present as non-GI related.
    • fritz2
      Well, as much pain as gluten has caused in the past, there's no way in hell I'm taking gluten on purpose.  What is NCGS?  And are there any remedies to quickly get over the swollen joints? My joints are swollen and hot to the touch and hurt.  For about two weeks they were too painful to even think about using them.  Six weeks later, I still can barely use my hands.  I struggle to get a bottle cap unscrewed they hurt so badly.  Edema in my legs and the knees hurt to walk.  And that was probably a minor exposure as the wheat was listed towards the end of the "contains" list in very fine print we couldn't read without a magnifying glass.
×
×
  • Create New...