Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab Test--should I Do It?

Ksmith

Recommended Posts

Ksmith Contributor
Ksmith
Posted

Hey everyone! So my mother really wants me to "get tested" for celiac...I already know that i have it and have been gluten free for a couple years now. However, she must think that I am either not well enough educated on it and should talk with a specialist about my diet and she thinks that I need to "be tested." I think she's afraid that I'll end up with cancer, etc... That said, I am UNWILLING to start eating gluten again for the sake of getting tested. How do you guys think I should appease her...get the enterolab? Go talk to a specialist? What do you think? Thanks so much!

~K

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

I'd just tell her that the cancer risk is only raised for a celiac who is not gluten-free. Find something in writing that says it, so it's not just you, but a reputable source. If you don't need more proof, I'd just leave it at that. I don't believe Enterolab will be effective after two years of gluten-free eating.

If you're healthy, I'd leave well-enough alone!

Guhlia Rising Star
Guhlia
Posted

I totally agree with Carla. The amount of damage that you would do to your intestines in the 2-6 months you would need to consume gluten to have a test show up positive just isn't worth it. If you already know you have Celiac then there's no need to further push the issue. Are you still having symptoms? If so, perhaps that's why she wants you to get tested. Us mothers are programmed to be kind of a pain when it comes to our kids' health. We always want what's best for them.

Ksmith Contributor
Ksmith
Posted
  • Author
I totally agree with Carla. The amount of damage that you would do to your intestines in the 2-6 months you would need to consume gluten to have a test show up positive just isn't worth it. If you already know you have Celiac then there's no need to further push the issue. Are you still having symptoms? If so, perhaps that's why she wants you to get tested. Us mothers are programmed to be kind of a pain when it comes to our kids' health. We always want what's best for them.

Yes...I still am having some health problems, but nothing like how it was when I was eating gluten. I think I may have to quit the dairy...also I have kinda bad hypoglycemia that I'm trying to get under control. Thanks for the advice you guys!

AndreaB Contributor
AndreaB
Posted

Enterolab says their tests are good for about 1 year gluten free, so that would do you no good.

You may want to try an elimination diet or get IgG intolerance testing done just to give you something to go by. They are always accurate but would give you a starting point.

sunshinen Apprentice
sunshinen
Posted

Wow, so great to see someone who wants you to be tested to know more about it rather than to be tested because they don't believe you need to be on the diet.

It is recommended that celiacs have follow up tests to make sure that you are successfully healing. In this sense it might be smart to either go to a GI specialist or Enterolab. Since Enterolab seems to be the more sensitive test and many doctors will want you to do a challenge, Enterolab may be the way to go. If talking to a specialist is important, then try to find a celiac specialist who won't insist you do the challenge and is willing to just make sure that you are healthy now.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,740
    • Most Online (within 30 mins)
      7,748
    Mark Barbosa
    Newest Member
    Mark Barbosa
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Gluten Free Daily Vitamins for Kids w/ Celiac

      By Scott Adams · Posted

      I haven't heard of them before, but a significant portion of dietary supplements are produced by a handful of large contract manufacturers. These companies have the facilities, expertise, and certifications to produce supplements at scale, making them attractive partners for brands that don’t have their own manufacturing capabilities. I doubt Forvia manufactures them directly, so it is hard to know if they are just doing clever marketing to a certain malabsorption crowd, or they actually have unique product.
    • Scott Adams
      Not sure if this is Celiac or just a gluten-free intolerance

      By Scott Adams · Posted

      That’s an interesting observation! The timing you mention does raise questions about the relationship between modern wheat varieties and the emergence of Non-Celiac Gluten Sensitivity (NCGS). Norman Borlaug’s work on high-yield, disease-resistant wheat during the Green Revolution significantly increased global food production, but it also led to changes in the composition of wheat, including higher gluten content to improve baking qualities. While NCGS was formally recognized as a condition in the 2010s (https://bmcmedicine.biomedcentral.com/articles/10.1186/1741-7015-10-13 and https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3820047/) , it’s important to note that the awareness and diagnosis of gluten-related disorders have evolved over time. Some researchers suggest that modern wheat breeding practices, along with changes in food processing and gut health, may contribute to the rise in gluten sensitivity. However, the exact mechanisms behind NCGS are still not fully understood, and it remains a debated topic in the scientific community. It’s also worth considering that increased awareness and improved diagnostic tools have played a role in identifying conditions like NCGS that may have existed but were previously unrecognized. The interplay between genetic, environmental, and dietary factors makes this a complex issue, and more research is needed to fully understand the connections.
    • Scott Adams
      Trader Joe's strikes again

      By Scott Adams · Posted

      Here is a recent reply to a Celiac.com email asking for comment about gluten contamination detected in their bakery products: You can read more about it in this thread:  
    • trents
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By trents · Posted

      @Marie70, it is very important that your daughter not begin experimenting with eating gluten free until all testing for celiac disease is complete. Doing so will invalidate the testing. Normally, the testing involves two stages. The first stage is blood antibody testing as per the article linked by Scott above. As you can see from the article, there are a number of tests that can be ordered when diagnosing celiac disease but most physicians will not order a complete panel. At the very minimum, your daughter should request two antibody tests, "total IGA" and "tTG-IGA". The tTG-IGA is considered the centerpiece of celiac disease testing but if total IGA is low (i.e., if she is IGA deficient), this will result in an artificially low tTG-IGA score and possibly a false negative. Many general practitioners are not very knowledgeable about celiac disease testing so we have found we have to be a little assertive in order to get proper testing done. I don't know under the relational circumstances how much input you will have with your daughter about these things but I thought I'd pass the info on to you anyway. The second stage of celiac disease testing involves an endoscopy with biopsy of the small bowel lining which is then sent to a lab for microscopic analysis. This checks for damage to the small bowel lining and is confirmation if any of the blood antibody tests are positive. It is also considered to be the gold standard of celiac disease diagnosis. Again, should her antibody testing be positive, your daughter would still need to be consuming gluten until after the endoscopy/biopsy is complete.
    • Klsdurbin
      Did I outgrow celiac

      By Klsdurbin · Posted

      No!!! Celiacs disease does not go away. You can’t outgrow it, and if all proper diagnostic procedures (blood test and endoscopy) were followed when you were 8, it’s almost impossible to be mis-diagnosed.    stoms and reactions to gluten do change over time, but the fact you have celiacs does not.    I think that a lot of people misunderstand that the goal to managing your celiacs is to eventually test negative for celiacs. This does not mean it went away, it means that your gluten-free diet is working and you’re no longer producing the anti-bodies that will wreak havoc on your health.    if you can access the medical records from when you were 8 and have a GI doctor review them, I would highly recommend you do this. 
×
×
  • Create New...