Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Trying To Do Diet Also! How To Get Others To Understand!


Sage'sMommy

Recommended Posts

Sage'sMommy Newbie

Okay so after reading the Gluten-Free Bible I learned celiac's can lay dormant till you're thirty. Which is a few yrs away for me but some of the milder side effects fit. I won't go into detail but I'd started having problems a lil before become pregnant with Sage, my teeth turning yellow, low immune system, RA, and a few other things. So maybe I'm parinoid but I though hey there's a chance that I could have it, and I don't have the money to get tested. I decided to do the diet and stay strict about it for two weeks and see if it made a difference. This really is not easy, I'm fine when I'm at home with Sage but the other night I went out with my honey for the first time in forever and he picks Cracker Barrel. I don't know if I'm just so new to this that I couldn't find anything but I could not find anything on that menu gluten-free. I know he was just being sweet and I was crazy not to say anything but all I thought was, He won't take me out to eat again if I say anything because he'll think he can't. Sorry, mostly I'm just venting. I'm so new to this that sometimes I just feel really confused. Thanks to everyone for listening.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

Sounds like you very well could have celiac, or be at the beginning of it.

Glad you got a chance to go out with your sweetie. Sorry about the restaurant. :(

wifeandmomofceliac Newbie

Well, Cracker Barrel is certainly not the easiest place, but not the worst, either. Remember, they have breakfast all the time. Think eggs, fruit, grits (double check), bacon, (not the ham, I think). I also think they have a prime rib that may be okay. I am going from memory there. And green beans and corn. Try to focus on the CAN haves, instead of the can nots.

zachsmom Enthusiast

:o

Okay I am new to this too,,, my baby has this,,,

In this web site there is a resturaunt section ... You need to sit at home and look up and investigate resturaunts .. like you do the back of boxes when checking out ingredients.

There are resturaunts that will HELP YOU on your quest. You need to call these places and find out who is able to help you ( accomodate your food diet and prep) and who could ( rather care less if you ate someplace else) there are may places... that can help... you need to log into the section below tis one down a ways .. and see what everyone is saying where to go ... sadly like you have figured ,.,, staying gluten-free is hard work... but it can be done. /// FInding a list of resturaunts ... and say . ah I can go here .. here and here is a great way to start. Disney world can also help if that is a destination. Many places can offer you food .. that is gluten free .. sadly you are going to have to investigate them by probably calling and talking to them .. and then knowing they are safe. He can take you out and you arent home at 12midnight puking because you accidentaly were glutned. it can be doen but go to this websites section on menus and resturaunts... I think that is what it is called ... you will know what Imean when you see it..... good luck

mom2jpb Newbie
Okay so after reading the Gluten-Free Bible I learned celiac's can lay dormant till you're thirty. Which is a few yrs away for me but some of the milder side effects fit. I won't go into detail but I'd started having problems a lil before become pregnant with Sage, my teeth turning yellow, low immune system, RA, and a few other things. So maybe I'm parinoid but I though hey there's a chance that I could have it, and I don't have the money to get tested. I decided to do the diet and stay strict about it for two weeks and see if it made a difference. This really is not easy, I'm fine when I'm at home with Sage but the other night I went out with my honey for the first time in forever and he picks Cracker Barrel. I don't know if I'm just so new to this that I couldn't find anything but I could not find anything on that menu gluten-free. I know he was just being sweet and I was crazy not to say anything but all I thought was, He won't take me out to eat again if I say anything because he'll think he can't. Sorry, mostly I'm just venting. I'm so new to this that sometimes I just feel really confused. Thanks to everyone for listening.

Some of us have some strange stories as to how we came to know we are celiacs. I started the diet because of my autistic son - other parents recommended the diet for him. I did not feel that it was fair to put him on restrictions that I was not on myself. For years I had trouble with abdominal cramps, migraines, arthritis. Five days after stopping gluten, all the symptoms began to clear up. I had one biscuit with gluten (it was supposedly gluten-free) and lost a pint of blood from my colon. Got the blood tests - positive all around. Got the colon biopsy - positive. My son isn't gluten or casein free yet - he splits time between his dad and I. I am hopeful that, after the first of the year, I can get him on the diet. His favorite foods were macaroni and cheese, milk, Cheetos, oatmeal cookies, and pudding cups. Now he gets corn pasta with soy cheese, soy or almond milk, Tings, homemade oatmeal cookies using tapioca flour, and tapioca pudding made with almond or soy milk. As long as the food is in a familiar bag, cup or container, he is fine. He has recently developed a preference for Blue Diamond Almond crackers - he used to eat Ritz from time to time, now he won't touch them. One of my ancestors was a Cherokee medicine man. His method of treating/curing illness - try it, if it works stick with it. I think he would agree with avoidance of gluten. I don't eat it, I'm not sick. I eat it, I'm sick.

Sage'sMommy Newbie

Thank You Everyone For Your Suggestions. They've been really helpful. We recently tried Ihop with the little one in tow and they were amazing. They had no problems working with us, made us an omelite using skillet instead of grill and didn't add any pancake batter. Absolute sweethearts. And the more I'm on this diet the more I'm seeing results, even my faimly say they are seeing them as well. Accidently had some gluten last night and I thought I was going to have to hug a trash can all night. So, I think it's pretty safe to say that Sage got it from me. Once again, thank you everyone. It's always nice to know that your not alone in this. Love and Thanks, Becca

taweavmo3 Enthusiast

I'm in the same boat.....tried the diet before getting tested, and now I'm too scared to even attempt a gluten challenge. My symptoms weren't classic like my daughter's, but I've had various problems ever since I was little. The biggest one being that I have been very anemic for years and years despite taking a ton of iron. My brother is the one with all the gut issues, but he refuses to believe that he has a problem (despite the fact that he vomits and has D on a regular basis..argh). But I digress, lol.

I've been strictly gluten free for over 6 months now, and I don't think I'll ever get tested. I don't want to go back to gluten and risk causing more problems. Plus, I really don't want it on record anywhere due to health and life insurance......I don't know if it would cause any problems, but I'm sure it doesn't help. I get very sick now if I get glutened, so that's enough proof for me.

You can still go out to eat, it just takes some planning ahead of time on your part. Find your local Gluten Intolerance group (GIG.....someone correct me if I'm wrong about the abbreviations) and see if they provide a list of local restaraunts that are celiac friendly. I've also found that the more upscale the place is, the easier it is to eat gluten free, especially if you can talk to the chef. It's great that your IHOP was so easy to accomodate you....that is one place we haven't even attempted yet, I figured it would be impossible!

We have four kids, so going out to eat is really too much hassle these days anyway. But on nights I really don't want to cook, we do Chipotle (just ask them to change their gloves first) or Pei Wei. We also get roasted chickens from Costco which are awesome.

Good luck to you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jess270 replied to AnnaNZ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      29

      Bitters for digestion?

    2. - cristiana commented on Jefferson Adams's article in Origins of Celiac Disease
      7

      Why Bananas No Longer Cure Celiac Disease

    3. - trents replied to Dawn Meyers's topic in Related Issues & Disorders
      23

      Vaccines

    4. - GeoPeanut replied to Dawn Meyers's topic in Related Issues & Disorders
      23

      Vaccines

    5. - trents replied to KRipple's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac or Addison's complications? Can someone share their experience?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,052
    • Most Online (within 30 mins)
      7,748

    Diane Dutra
    Newest Member
    Diane Dutra
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jess270
      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions you describe, flu like symptoms, joint pain, urinary tract irritation, rash, stomach upset, nausea, diarrhoea & fatigue. I had liver pain like you describe, as part of the intolerance is usually a sluggish liver that makes processing all the histamine difficult. There are multiple possible root causes of histamine intolerance, usually it’s a symptom of something else. In my case, leaky gut (damaged gut wall)caused by undiagnosed celiac, but for others it’s leaky gut caused by other things like dysbiosis. Some people also experience histamine intolerance due to mould exposure or low levels of DAO (the enzyme that breaks down histamine in the gut). I’d try a low histamine diet & if that doesn’t improve symptoms fully, try low oxalate too. As others have suggested, supplements like vitamin d, b, l-glutamine to support a healthy gut & a good liver support supplement too. If you’re in a histamine flare take vitamin c to bowel tolerance & your symptoms will calm down (avoid if you find you have oxalate intolerance though). Best of luck 
    • trents
      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    • GeoPeanut
      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease,  and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and  dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with myopathy that has occurred. 
    • trents
      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important) the reference ranges for each test used to establish high/low/negative/positive. Different labs use different rating scales so this is why I ask for this. There aren't industry standards. Has your husband seen any improvement from eliminating gluten from his diet? If your husband had any positive results from his celiac blood antibody testing, this is likely what triggered the consult with a  GI doc for an endoscopy. During the endoscopy, the GI doc will likely biopsy the lining of the small bowel lining to check for the damage caused by celiac disease. This would be for confirmation of the results of the blood tests and is considered the gold standard of celiac disease diagnosis. But here is some difficult information I have for you. If your husband has been gluten free already for months leading up to the endoscopy/biopsy, it will likely invalidate the biopsy and result in a false negative. Starting the gluten free diet now will allow the lining of the small bowel to begin healing and if enough healing takes place before the biopsy happens, there will be no damage to see. How far out is the endoscopy scheduled for? There still may be time for your husband to go back on gluten, what we call a "gluten challenge" to ensure valid test results.
    • kate g
      Ive read articles that there is stage 2 research being conducted for drugs that will limit damage to celiacs through cross contamination- how close are they to this will there be enough funding to create a mainstream drug? 
×
×
  • Create New...