Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Nervous About Eating


Marlene

Recommended Posts

Marlene Contributor

Hey,

I have always been such a nervous person -- I think it's just another symptom of being gluten intolerant. Anway, after I started having episodes of D at rather "awkward moments" (before going gluten free) I have developed a real fear and nervousness about eating. When I am at home and I know I'll be there for a few hours, I am fine. However, if I have to eat and then go out right after or if I eat at someone else's home (even though it's gluten free food which I brought along myself), I end up with cramps and sitting on the can. Thankfully I don't get D hardly at all anymore but it's still rather urgent. I also have this at work which really sucks. I can eat something for supper at night at home and be fine with it, the next day I'll take the leftovers to work. When lunch time rolls around, I get really nervous about eating and of course, it hits my stomach like a brick. This is so bizarre because I know it's gluten free and I should be fine with it. I really want to get over this nervousness about eating because it makes my life miserable. Does anyone else have this? If so, how do you deal with it? I'm hoping that as time goes on and I get less and less bathroom episodes, I will be able to relax when it comes to eating. Any advise would be appreciated.

Thanks!

Marlene


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest cassidy

I would honestly recommend getting some help to deal with this.

I have had a similar problem where I don't like to eat - I think because it always used to make me sick that I just learned to associate eating with feeling sick and that doesn't appeal to me. I've never actually made myself nervous to the point of making myself sick. It really does make sense and there may be some books out there that can help you re-train your mind not to get nervous about eating since you are eating safe foods now.

I also had an issue with anxiety before going gluten-free. I went on xanax because I didn't know about gluten and I was very anxious. The xanax really helped and I only need it now when I'm glutened and get those same anxious feelings. That may be another option to help you calm down so you don't make yourself sick why you are trying to help your mind calm down.

Hope you get it under control soon and things get easier!

Looking for answers Contributor

I know exactly how you feel. I had similar issues that I had to work through after dealing with D for so long. However, my husband was more in line with how you're feeling. He used to have urgent D attacks all the time. It got to be so that he would have anxiety attacks when he felt "trapped" without an escape route to the restroom. This affected us both tremendously. We used to have Disneyland Annual passes but had to give them up because he couldn't STAND the thought of being trapped on a ride or in line.

My husband went gluten and dairy free. We now eat mostly organic and unprocessed foods. Since switching our diets, his D attacks are over. He also religiously take accidolphlus and digestive enzymes and can attest to how beneficial they are for him.

Take one step at a time and learn to talk over your negative mind talk (if that makes sense). My husband used a trick I learned to manage anxiety and that is to continually replace your negative thoughts with rationally thoughts, such as "What's the worse that can happen..." kind of thing. He's been able to overcome it. But if you're not able to, please reach out for help. You don't want this to snowball into something worse.

Also to help control anxiety, we both take a high dose of Omega 3's, calcium, vitamin C and B. See if they help you as well. We noticed the most difference with Omega 3's, so we buy the large quantity from Costco, because they can get expensive otherwise.

Sorry to ramble! Good luck and feel free to PM us if you need anything. We've been there!

key Contributor

I have been having a somewhat similar experience. I am scared to eat, because I feel yucky so much of the time. I am scared to go in the car or to other's homes, because I have the bathroom urgency. I absolutely HATE it. I feel like it is controls my life. I haven't been to church in three weeks, don't want to travel for holidays and don't ever want to eat out.

I would definitely use some of the ideas the person before you suggested. I try and talk myself out of it and that it is irrational. I have three kids with me all the time too and get nervous when driving places. THis is SO not like me either. I have always been very social and confident. I also weaned off Lexapro very abruptly and I think this was causing some panic attack symptoms (racing heart, shakes, etc), because it has been a month now and I am not having the panicky feelings very often or to the degree they were.

If you are worried while eating and worrying your food will make you sick, then it probably will. I would definitely reach out to someone if it doesn't get better. I can relate in some ways. I think you will get better as you heal and don't have D anymore.

Hope you feel better soon,

Monica

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.