Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Wanted To Say Thanks To Everyone For Being So Great!


Sweetfudge

Recommended Posts

Sweetfudge Community Regular

So I've spent some time on another forum (which will remain nameless), and I've shared some personal problems...all I ever seem to get from the people there are criticisms. They just have no regard for how their words make me feel. I'm just happy that I have you all to vent to and help me through my problems in a constructive way! You all rock! ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadian Karen Community Regular

Rant away here, you're safe! It's quite therapeutic, eh? ;)

Hugs.

Karen

TinkerbellSwt Collaborator

Glad you found all of us here, I felt the same way when I first came here. I thought I was the only person in the whole world with this condition. That I was going to wallow in my own self pity for the rest of my life.... boy was I wrong. I dont even think celiac anymore. Its just my way of life now.. it becomes so natural, its like I was never any other way.

The people here are great. Always supportive, no matter what.

VegasCeliacBuckeye Collaborator

Mean people suck!

Our peeps are the greatest!

jerseyangel Proficient

Stick with us, Sweetfudge--you're safe here :)

Ursa Major Collaborator

You're so right about other forums. I've been a member of many forums, for fibromyalgia, Asperger Syndrome (three of those), Tourette Syndrome, and this is the first one where I've really felt safe.

It seemed on other forums, the nice people (or defenseless ones, like me) get bullied until they leave. Here, any bullies that start treating others badly, are made to leave instead. It's a great place to be.

Jestgar Rising Star

I think that ever being so miserably depressed while eating gluten, how could I possibly find anyone else's comments or experiences something to grouch about?? :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sweetfudge Community Regular
I think that ever being so miserably depressed while eating gluten, how could I possibly find anyone else's comments or experiences something to grouch about?? :D

lol!

thanks all! :)

Guest nini

this is a really great site! Thanks to Scott for creating it, and thanks to all the wonderful friends I've met here!

luvs2eat Collaborator

I agree... I've learned so much here and know I can ask anything and get experienced and tolerant answers!!

happygirl Collaborator

just as happy as you are to have us, we are happy to have you part of our family!!!

taweavmo3 Enthusiast

Yep...had a bad experience too on another celiac forum, and now this is the only place I post. The people here are absolutely awesome, I learn something new everyday. Thanks, ya'll!

floridanative Community Regular

I also agree as this type of forum goes, celiac.com can't be beat. Only very few negative people told me some things that thank goodness turned out not to be true. I ignored them and plunged on learing this new way of life. Now I find I don't have time for this board as much so I love listserv since I it's quick and you may be able to help someone and if not you just don't reply. But when you really need help with a product or anything really, someone on this board is likely to be able to, and take the time to help you. Some of the boards out there are so fanatical they are scary. I got some really bad medical advice from several people on such a board. When their advice about exactly what type of supplement to take turned out to be wrong, I left and never looked back.

Though it's been said before - special thanks to Nisla and Patti as they let me know I would be okay when I was so scared in the very beginning. Happy Holidays guys!

Lisa Mentor

Oh yes, it was not so long ago when I was panicked, struggling and clueless about Celiac Disease. This was my first experience on a message board, as many of you remember. Kaitie, celiac3270, Karen, Lynne, Patti, Judy, Mouse, Rachel, richard, Shirley, as well as others, walked me through this maze, and with their help, I found my way out. Many have become dear friends.

I truely could not have become healthy without ALL of you and I give you my thanks. :)

PS: That's about as sappy as I get, so enjoy it. :P

Lisa

grantschoep Contributor

Agreed to the idea "this site is great".

I've been on many other sites. Gluten related and ones that are not. So many of the replies to questions are of the following.

1. You didn't say where you were from. You must say where your from.

2. "Search.... this question has been asked 100 times..."

3. Or simple one off "me too" or "ya that". Yes in away this post is one of those, but it contains more letters that "yea that"

Ahh... I just had to rant.

Lisa Mentor

This is such a great post, I just wanted to bump it up a bit.

Kaycee Collaborator

This place is awesome, I have had experiences elsewhere where I was belittled and made to feel I was making everything up. I felt I had to keep on defending myself.

But here I can just say as much or as little as I want without getting the third degree. It is very therapeutic to just sit and type, it makes me feel better.

The best part, as far as my family is concerned, as I have become a bit obssessed with coeliac, is that I don't bore them to tears with it.

Cathy

jesscarmel Enthusiast
Agreed to the idea "this site is great".

I've been on many other sites. Gluten related and ones that are not. So many of the replies to questions are of the following.

1. You didn't say where you were from. You must say where your from.

2. "Search.... this question has been asked 100 times..."

3. Or simple one off "me too" or "ya that". Yes in away this post is one of those, but it contains more letters that "yea that"

Ahh... I just had to rant.

i had the same experience and laughed when i read the thing about "say where you are from" i also hated how you HAD to say "eating out is risky" everytime you mentioned a restaurant!! lol

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,383
    • Most Online (within 30 mins)
      7,748

    haleyspurlock1
    Newest Member
    haleyspurlock1
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?
    • englishbunny
      I'm upset & confused and really need help finding a new gastro who specializes in celiac in California.  Also will welcome any insights on my results. I tested with an isolated positive for deamidated IGA a few months ago (it was 124.3, all other values on celiac panel <1.0), I also have low ferritin and Hashimotos. Mild gastro symptoms which don't seem to get significantly worse with gluten but I can't really tell... my main issues being extreme fatigue and joint pain. The celiac panel was done by my endocrinologist to try and get to the bottom of my fatigue and I was shocked to have a positive result. Just got negative biposy result from endoscopy. Doctor only took two biopsies from small intestine (from an area that appeared red), and both are normal. Problem is his Physician's Assistant can't give me an answer whether I have celiac or not, or what possible reason I might have for having positive antibodies if I don't have it. She wants me to retest bloods in a month and says in the meantime to either "eat gluten or not, it's up to you, but your bloodwork won't be accurate if you don't" I asked if it could be I have early stage celiac so the damage is patchy and missed by only having two samples taken, and she said doctor would've seen damaged areas when performing endoscopy (?) and that it's a good sign if my whole intestine isn't damaged all over, so even if there is spotty damage I am fine.  This doesn't exactly seem satisfactory, and seems to be contrary to so much of the reading and research I have done. I haven't seen the doctor except at my endoscopy, and he was pretty arrogant and didn't take much time to talk. I can't see him or even talk to him for another month. I'm really confused about what I should do. I don't want to just "wait and see" if I have celiac and do real damage in the meantime. Because I know celiac is more that just 'not eating bread' and if I am going to make such a huge lifestyle adjustment I need an actual diagnosis. So in summary I want to find another doctor in CA, preferably Los Angeles but I don't care at this stage if they can do telehealth! I just need some real answers from someone who doesn't talk in riddles. So recommendations would be highly welcomed. I have Blue Shield CA insurance, loads of gastros in LA don’t take insurance at all 😣
    • trents
      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
    • Levi
      When I was first Dg’d I researched like mad. One thing I remember from then, which may have changed with advancement in medical science, is that Coeliac is a first generation disease which means either you or your husband need be Coeliac for your daughter to have inherited it. Far as I know, and I’m not a scientist just a victim, the amount of gluten (wheat, rye, or barley) one consumes does not cause a person to contract Coeliac Disease. So if neither of you as her biological parents have Coeliac then your daughter cannot pass any blame should she contract this horrific disease.     It’s humbling, and sometimes I believe GOD allows such as these autoimmune diseases for those who need it most. 
    • Lori Lavell
      The body reacts to all grain proteins in all grains from my observation. Call it Gluten, Gliadin, which is what they test for commonly, however, I am Celiac and react with dermatitis herpetiformis to corn and the glutenous protein in it is called Zein. They only test for Gliadin. Testing needs to be updated in my opinion. It only take a small parts per million to continuously create systemic inflammation. This is not productive to healing and all grains contain some for gluten like substance. It's called Molecular Mimicry.
×
×
  • Create New...