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Just Want To Help My Boy!

Peta

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Peta Explorer
Peta
Posted

I feel so frustrated!

I think my 10 year old may have celiac.

I took him to the doctor and asked for him to be tested...which she did.

Although the antibodies came back normal, the gene test came back all positive, and his bloodwork has some areas not in normal range.

He was referred to a large hospital for a biopsy. His appointment to discuss and then book this biopsy is not until February. I tried to get it earlier but the hospital states that only my doctor can push things forward.

Now, along with all his other symptoms, he has developed nose bleeds. I looked them up and noticed that they too can be associated with celiac due to lack of Vitamin K.

He is underweight, pale, tummy pains (although not all the time), dry eyes and lips.

I don't want to put him on a gluten free diet before diagnosis as I am not a doctor and do not know that there may not be another problem with him. I don't want to make that decision, and then find out that he had another problem.

Has anyone else had problems with nose bleeds associated with Celiac?

Peta

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Guest nini
Guest nini
Posted

I used to get nosebleeds all the time. And since going gluten-free haven't had them.

Unless they are planning on doing a biopsy (which with inconclusive bloodwork they probably will) and he needs to be eating gluten for biopsy. There is no other medical reason why NOT to try the gluten-free diet. The gluten-free diet can be a very healthy diet and if it helps great, if it doesn't help it won't affect other testing for other health concerns.

My daughters blood work was negative, and we DID NOT do the biopsy, but instead tried the diet and all of her health issues went away very quickly. She was 3 at the time. We suspected Celiac because I had just been positively diagnosed with it.

After all testing is done, try the diet regardless of test results.

plantime Contributor
plantime
Posted

It's the time of year for nosebleeds. My daughter and I get them from the dry air. You might want to try a vaporizer or humidifier, they worked wonders for us. Also, if you think your child is anemic (and your description of him certainly suggests it), you can start him on a vitamin supplement. A liquid one or one that goes under his tongue to dissolve would be easier for his body use. You sure don't need to wait for a test or a doctor to do that, it won't hurt any celiac tests.

Jestgar Rising Star
Jestgar
Posted

Can you ask to have him tested for vitamin deficiencies?

GlutenWrangler Contributor
GlutenWrangler
Posted

February is a while away. It's too bad your son has to spend the holidays suffering. He needs to continue eating gluten for the biopsy to be accurate. If you are going to go ahead with the biopsy, I would talk with your doctor about maintaining your son's health until the day of the biopsy. I agree that testing for vitamin deficiencies might be a good idea. You just don't want to skew the results of the test. Hopefully your doctor will be helpful in this matter. Good luck.

-Brian

Peta Explorer
Peta
Posted
  • Author

Thankyou for your replies.

I have rung and made an appointment with his doctor as I agree that I won't let him go on like this til February. I am insisting that his biopsy be scheduled earlier.

I will ask about the testing for vitamin deficiencies.

I have decided that as soon as he has had his biopsy I will start him on Gluten-free regardless... as you said, it certainly won't hurt and may make a world of difference.

THANKS AGAIN

Peta

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