Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hi New Here - Wondering About Diagnosis


Jane2007

Recommended Posts

Jane2007 Newbie

Hi all

I am new to this forum and new to a realisation I may be suffering some form of Celiac Symptoms - My history is complicated though, I have always suffered from heartburn and live on antacids, I have diahrea most mornings, and get stomach bloating and cramps - I have been told I had IBS in the past - I am Asthmatic and 4 years ago was diagnosed with Pulmonary Sarcoidosis also an autoimmune disorder. ( which has thankfully cleared up) About 8 years ago I was told I had perncious Anemia and take regular shots of Vit B12 - In the last few years I have noticed the stomach symptoms increasing and my hair is getting thinner and thinner - I am not underweight though quite the opposite after years of steriod medication.

I did have a colonoscope about 8 years ago they were looking for Helicobacter - but they couldn't finish the procedure because I kicked and punched every nurse and Doctor away from me, eventhough I was sedated I think it was because being an Asthmatic I couldn't bear the choking feeling -

I have had tests for overactive Tyroid recently all came back clear - I fear another scope into my tummy, eventhough because of my lung problems I have had two bronchoscopes without any problems. The only other question I have is could you really reach 38 years of age without knowing your were celiac?

It is good to know you are here and I will keep you posted.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

I was diagnosed at age 46 and my father was 70.

richard

Guhlia Rising Star

Yes, as Richard said, it's very possible to only realize you have Celiac Disease later in life. There are many with the disease that never realize they have a problem. If you're really worried about going through another endoscope, you could always skip it and just try the gluten free diet. I never had the scope, though I did have positive bloodwork, and I'm certain that I have Celiac Disease. There isn't a doubt in my mind. I'm glad I didn't put myself through the scope. If they wouldn't have found damage, then I probably would have continued to be in denial and I would probably still be eating gluten to this day.

mamabear Explorer

Hi..I was diagnosed age 50. The average age at diagnosis now is 46 years(!)..+/- 10 years!

Unfortunately American physicians are still unlikely to think of this diagnosis, and only diagnose about 1 in 5000....... :o . So it is very possible to live 38 years and not get "officially"diagnosed.

GlutenWrangler Contributor

At 22, I feel like one of the lucky ones. Doctors are horrible at diagnosing celiac disease. Even gastroenterologists are clueless. If you want an official diagnosis, talk with your doctor and schedule a celiac panel and a biopsy. If the panel comes back negative, the doctor probably won't want to do the biopsy. But you can still have celiac disease with negative test results, so don't let negative results discourage you. If you don't care about having a diagnosis, just go ahead and try to diet. If it helps, you will know that gluten was the cause of your problems. Good luck.

-Brian

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,877
    • Most Online (within 30 mins)
      7,748

    Sasha bul
    Newest Member
    Sasha bul
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      @Mynx, how long have you been gluten-free? I ask because many newly diagnosed celiacs react to many things, and often think their reactions are caused by gluten, when in fact, they are really caused by a combination of a sensitive gut due to damage, as well as additional food intolerance/leaky gut issues to other foods which may be temporary until their villi heal.
    • Scott Adams
      Many major brands of distilled vinegar in the USA, including Heinz white vinegar, are typically made from corn. In the United States, corn is a common and cost-effective raw material used in the production of distilled white vinegar. The process involves fermenting the sugars derived from corn into alcohol, which is then further fermented into acetic acid to produce vinegar. Distillation follows, which purifies the liquid and removes impurities, including any residual proteins or allergens. While the source of the vinegar (e.g., corn) is not always explicitly stated on the label, corn-derived vinegar is widely used in the food industry due to its neutral flavor and affordability. For individuals with gluten intolerance or celiac disease, distilled vinegar made from corn is generally considered safe, as the distillation process effectively removes gluten proteins. However, if you have concerns about cross-contamination or specific sensitivities, it’s always a good idea to contact the manufacturer directly to confirm the sourcing and production practices. Heinz, for example, has stated that their distilled white vinegar is gluten-free and safe for those with celiac disease, but verifying this information can provide additional peace of mind. The belief that distilled vinegar is gluten-free is rooted in the scientific understanding that gluten proteins, which are large and complex molecules, are generally too big to pass through the distillation process. Distillation involves heating a liquid to create vapor, which is then condensed back into a liquid form, leaving behind larger molecules like gluten proteins. However, the concern about cross-contamination arises from the possibility that gluten-containing ingredients may have been present in the liquid prior to distillation. While the distillation process itself is highly effective at removing gluten, the equipment used in production could potentially introduce trace amounts of gluten if not thoroughly cleaned between batches. For most individuals with gluten sensitivity or celiac disease, distilled vinegar is considered safe because the gluten content, if any, is typically below the threshold that would trigger a reaction. However, for those with extreme gluten intolerance or celiac disease, even trace amounts can cause adverse effects. This is why some individuals, like yourself, may choose to avoid commercially produced distilled vinegar and opt for alternatives like apple cider vinegar, which can be verified as gluten-free. The meticulous process of researching ingredients and preparing homemade products, such as ketchup, is indeed challenging but crucial for maintaining health and avoiding gluten exposure. It’s important to note that regulatory standards for gluten-free labeling vary by region, and in many places, products labeled "gluten-free" must contain less than 20 parts per million (ppm) of gluten, which is considered safe for the vast majority of people with celiac disease. Nonetheless, individual sensitivity levels can vary, and your approach highlights the importance of personalized dietary management for those with severe gluten intolerance.
    • Bebee
      I have been diagnosed with Microscopic Colitis (LC) for quite a few years, so I have been gluten-free and DF.  I would like to get tested for Celiac Disease because of the possibility of cross contamination and colon cancer.  And if you were hospitalized and didn't have a celiac diagnosis you could not get gluten-free food, I don't know if that is true or not.  Also because there is chance of colon cancer so I want to know if I have Celiac Disease and need to be on very restrictive diet.  The only testing I did was a sigmoid scope and Enter Lab but no gene testing.  I know I can go back to eating gluten for a few months, but I would worry you would have to stay home for the few months while getting gluten.  What other options do I have?  Should I do the gene testing?  Maybe through Entero Lab?  Any other tests?  How important is it to have Celiac diagnosed? Thank you! Barb
    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
×
×
  • Create New...