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New To Celiac......

daltons

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daltons Rookie
daltons
Posted

We just found out earlier this week that my step son has Celiac Disease. We are FULL of questions and I'm hoping that some of you more experienced out there will be able to help us. We are still learning, but is there anywhere online we can go to find a list of brand name products that are gluten free. I don't necessarily mean the products you can find in the gluten free section of the health food store, I mean normal every day products....some of the less obvious ones. We need all the help we can get. My step son is 4 1/2 and he pretty much can't eat anything that he loves anymore. It is going to be a hard transition, as I'm sure you've all experienced. Any advice?

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Lisa Mentor
Lisa
Posted

Yes, we have a wonderful member of this board, who has done a great deal of research on behalf of the new people comming on board. She has created a "newbie survival kit". It will be a gold mind for new celicas.

Please do a search for member's name: "nini", click below her name and you can down load a wealth of information.

flagbabyds Collaborator
flagbabyds
Posted

Many companies have a list of their online products for that company. I know that fritolay has a list and you can also look in the site index (on the left side of the board) they have a list of safe and forbidden ingredients

Nini's survival kit is also very good and I would look into it and talking to Nini.

happygirl Collaborator
happygirl
Posted

Welcome to the board! We are happy you have found this site...is it by far the best resource out there.

Are you looking for specific products ... that might be easier to get you started. Ingredients change at any point, so its hard to put out "lists" per se. Reading ingredient labels will be the best thing you can learn to do, because then you can look at anything and 98% of the time, know if its safe or not.

Check out the book in my signature...it is a wonderful resource. I wish I had it when I was first diagnosed. You can find it on amazon. I refer to it often! He is an expert in the Celiac field.

Good luck, and let us know what we can do! It is a steep learning curve, I won't deny that! But, once you figure it out, then you get a new routine. And we will be here to help!

Laura

daltons Rookie
daltons
Posted
  • Author

Wow, thank you guys for being so helpful! The resources on Nini's website are awesome, I couldn't ask for a better starting point. My step son spends so much time with other members of his family, and they will probably all need to have as much information as possible. You've all been so helpful, thank you so much.

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    • Louise Broughton
      Louise

      By Louise Broughton · Posted

      Thanks. I ve joined coeliac uk but found them particularly unhelpful - they told me to eat gluten for 6 weeks then have an  endoscopy! I m actually a retired hospital dietician so pretty well know what I m doing…… Louise 
    • cristiana
      Louise

      By cristiana · Posted

      You are very welcome.😊  Do keep posting if we can help any further, and also if you aren't a member already I would recommend joining Coeliac UK if only for one year - they produce a very good gluten-free food and drink guide, a printed copy and also an app you can use on a smartphone which I am told is very helpful when one shops. I think the one thing I would say is be extra vigilant when eating out.  Never feel afraid to question the service staff.  I think most of my glutenings have happened away from the home.
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      Louise

      By Louise Broughton · Posted

      Thank you everyone for your super responses. Louise 
    • Savannah Wert
      Hey all!

      By Savannah Wert · Posted

      Thank you! I’m currently the breadwinner as my husband is pursuing a finance degree so the nights that I am at work they can eat whatever my husband makes but when I am home we have gluten free meals and no complaints so far! I definitely don’t have a choice but to switch but I think slowly transitioning my family is good!😀
    • trents
      Hey all!

      By trents · Posted

      Welcome aboard, @Savannah Wert! There usually is a learning curve involved in arriving at a consistently gluten free diet since gluten is found in so many food products where you would never expect it to be. This article may be helpful:  It is good that you have identified some other foods that you cannot tolerate at this point as this is so common in the celiac population and it often goes unaddressed for years. You may find that the lactose intolerance disappears as your gut heals. No guarantee, though. Keep an eye out for the development of celiac symptoms in your children as the likelihood of first degree relatives developing active celiac disease is somewhere between 10% and almost 50%. Yes, the studies on this are all over the map. Is your home gluten free or will you be attempting to avoid CC (Cross Contamination) while fixing gluten-containing foods for your family members? It is always best for everyone in the home to commit to gluten free eating in the home environment when one member has celiac disease. 
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