Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Had My 1st Follow Up Endoscopy


jkmunchkin

Recommended Posts

jkmunchkin Rising Star

I had my 1st follow up endoscopy yesterday since being dx'd almost a year and a half ago. My doctor wanted to do a colonoscopy at the same time, since I've never had one.

The colonoscopy showed a slight hemroid, no suprise and no big deal. Although the prep was super fun!! I had to go to my primary doctor today for another appointmet (thyroid), and he was making fun of me (in a nice way), that I was so lucky to have a colonoscopy at my age. LOL!

The endoscopy showed definite signs of celiac, but my villi are growing back. The doctor said there were some that were laying down flat, but she expects them to come back aswell. I had total flattening of the villi (doctor said I was one of the more severe cases they've seen when diagnosed), so I have / had a lot of healing to do.

Overall the results where good. She seemed happy with my progress, and almost as importantly I feel great.

I kinda wish I'd been more healed, but I have to remember how bad my damage was to begin with.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I am very glad you're healing, even if it takes quite a while. And you're right, a hemorrhoid is no big deal, knowing that you could have things a lot worse. I hope you keep healing as steadily as you have, and will have complete healing soon!

jerseyangel Proficient

That is really such good news, Jillian! You are well on your way to being completely healed :) I'm glad that you're feeling well--you obviously are doing a great job with the diet.

My colo also showed internal hemorrhoids--I would have never known they were there! :D They are common, and nothing to worry about.

dlp252 Apprentice

Wonderful news!!! :)

Mtndog Collaborator

That's awesome!!!!! Grow villi, grow! :rolleyes:

happygirl Collaborator

Yes, like Bev said, grow villi!

Jillian, happy to hear the good news that you are healing. That is really encouraging!!!!!!!!!! Thanks for posting and letting us know. We all need to hear great news of recovery! :) :)

My colonoscopy showed internal h. as well. We must be special or something!

jkmunchkin Rising Star
That's awesome!!!!! Grow villi, grow! :rolleyes:

LOL!! That was to funny! Thanks for the laugh.

My colonoscopy showed internal h. as well. We must be special or something!

Wait, you mean every 29 year old doesn't have an internal h. and takes a higher dose of calcium daily than a senior citizen!!! Hehe!! (No but seriously, the recommended dose on the bottle says 2 pills a day and my doctor wants me to take 3). What can you do but laugh, I mean none of it is life threatening. There are certainly worse things. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular

Great news!

Mtndog Collaborator
LOL!! That was to funny! Thanks for the laugh.

Wait, you mean every 29 year old doesn't have an internal h. and takes a higher dose of calcium daily than a senior citizen!!! Hehe!! (No but seriously, the recommended dose on the bottle says 2 pills a day and my doctor wants me to take 3). What can you do but laugh, I mean none of it is life threatening. There are certainly worse things. :)

I have those lovely h-things too. Yes, Preparation H...isn't not just for under-eye bags and reducing zits. :P

Jillian- You must teach your villi the ways of the Jedi. They must use the force to grow!

nikki-uk Enthusiast
Yes, Preparation H...isn't not just for under-eye bags and reducing zits. :P

:lol: SSshhh!! We don't want the menfolk to know our secret to everlasting youthfullness!! :lol:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,383
    • Most Online (within 30 mins)
      7,748

    haleyspurlock1
    Newest Member
    haleyspurlock1
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?
    • englishbunny
      I'm upset & confused and really need help finding a new gastro who specializes in celiac in California.  Also will welcome any insights on my results. I tested with an isolated positive for deamidated IGA a few months ago (it was 124.3, all other values on celiac panel <1.0), I also have low ferritin and Hashimotos. Mild gastro symptoms which don't seem to get significantly worse with gluten but I can't really tell... my main issues being extreme fatigue and joint pain. The celiac panel was done by my endocrinologist to try and get to the bottom of my fatigue and I was shocked to have a positive result. Just got negative biposy result from endoscopy. Doctor only took two biopsies from small intestine (from an area that appeared red), and both are normal. Problem is his Physician's Assistant can't give me an answer whether I have celiac or not, or what possible reason I might have for having positive antibodies if I don't have it. She wants me to retest bloods in a month and says in the meantime to either "eat gluten or not, it's up to you, but your bloodwork won't be accurate if you don't" I asked if it could be I have early stage celiac so the damage is patchy and missed by only having two samples taken, and she said doctor would've seen damaged areas when performing endoscopy (?) and that it's a good sign if my whole intestine isn't damaged all over, so even if there is spotty damage I am fine.  This doesn't exactly seem satisfactory, and seems to be contrary to so much of the reading and research I have done. I haven't seen the doctor except at my endoscopy, and he was pretty arrogant and didn't take much time to talk. I can't see him or even talk to him for another month. I'm really confused about what I should do. I don't want to just "wait and see" if I have celiac and do real damage in the meantime. Because I know celiac is more that just 'not eating bread' and if I am going to make such a huge lifestyle adjustment I need an actual diagnosis. So in summary I want to find another doctor in CA, preferably Los Angeles but I don't care at this stage if they can do telehealth! I just need some real answers from someone who doesn't talk in riddles. So recommendations would be highly welcomed. I have Blue Shield CA insurance, loads of gastros in LA don’t take insurance at all 😣
    • trents
      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
    • Levi
      When I was first Dg’d I researched like mad. One thing I remember from then, which may have changed with advancement in medical science, is that Coeliac is a first generation disease which means either you or your husband need be Coeliac for your daughter to have inherited it. Far as I know, and I’m not a scientist just a victim, the amount of gluten (wheat, rye, or barley) one consumes does not cause a person to contract Coeliac Disease. So if neither of you as her biological parents have Coeliac then your daughter cannot pass any blame should she contract this horrific disease.     It’s humbling, and sometimes I believe GOD allows such as these autoimmune diseases for those who need it most. 
    • Lori Lavell
      The body reacts to all grain proteins in all grains from my observation. Call it Gluten, Gliadin, which is what they test for commonly, however, I am Celiac and react with dermatitis herpetiformis to corn and the glutenous protein in it is called Zein. They only test for Gliadin. Testing needs to be updated in my opinion. It only take a small parts per million to continuously create systemic inflammation. This is not productive to healing and all grains contain some for gluten like substance. It's called Molecular Mimicry.
×
×
  • Create New...