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Blisters

wowzer

By wowzer
in Dermatitis Herpetiformis

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Lemontree Newbie
Lemontree
Posted
Before I was diagnosed, I would get the itchy blisters on my fingers and on the inside of my forearms.

Now, when glutened, I get a few around my mouth--they do hurt, but are nothing compared to the huge ones I used to get on my chin.

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Lemontree Newbie
Lemontree
Posted

I have heard that JerseyAngel and Mouse had DH blisters on their fingers.

My blisters started on 5/14/07 with what I thought was a spider bite (looked like a spider bite and itched) by late day it had a small group of blisters on it. By the next day my fingers itched on the opposite hand, then both hands. Every day they would alternate which hand, always middle and ring fingers. They itched before they errupted- I knew when it was coming. My hands burned and felt electric, I kept them over the Air conditioner while driving and held onto frozen corn at home. My doctor gave me a progesterone shot 5/19/07 and said it was Poison Ivy. I tried to tell him that this was no poison Ivy and the blisters came semetrically one at a time (this did not matter to him). The blisters healed, but more itchy spots occured on my legs and hips these just had itchy areas that turned into little red/pink dots. (on both sides, but the right more than the left).

Since my blisters are gone is it too late to get tested?

Does anyone else know about this electric tingly feeling (burning stopped) in fingers and when will it go away!

little d Enthusiast
little d
Posted
hi i get this itchy thing on my hands and feet, look like white calusus and itch and hurt like crazy, i also get this zitty looking thing on my legs and the back of my knees and elbows, lookls like little white zits, no fluid though, and last night they looked like little ingrown hairs. what is this? itches like crazy especially the ones on the back of my knees? any help would be great.

what you are describing the pimple like thing on you knees could be karatosis piolarsis. I have it all over my body. had it since I was little

I am right now expreriancing on my left hand which it comes and goes for as long as I can remember it will also go to my right hand too but for now on my left. It is itchy for sure and I do have blisters which have gone done quite a bit since I took a shower before coming to work but is still there. Yesterday I had to look at my hand where the blisters are and it felt like I had some kind of bug crawling on me it felt wreid. So I made a doc appointment with my primary doc also to get a check up because it has been a year since I had any blood work done so hopfully he can look at it and tell me which im sure he won't be able too, because he didn't know what celiac disease was last year when I told him that I had a problem (to get a referral and all)

Donna

DebNC84 Apprentice
DebNC84
Posted
Sounds like DH to me Lynne. My face is a mess because that is the main place I break out with it and I hate it. I want to walk around with a bag over my head because I look like a leper.

one word.... RETIN-A

little d Enthusiast
little d
Posted
one word.... RETIN-A

sorry cant use that i get hives with that

donna

jmd3 Contributor
jmd3
Posted
Okay, I have asked this question probably too many times before, but I have had a new experience with it. I developed what looked like the beginning of chicken pox (only smaller) on three spots of my leg -- all in close proximity. It was after I accidentally consumed gluten in generic antibiotics I was given. They itched like CRAZY -- because they started "popping", I covered them with a Tegaderm dressing to keep the fluid from moving to other areas. Now I'm left with some mild scars (I scar pretty badly anyway). The dermatologist said that it sounded like DH, but would have to biopsy them when they're active. Given that I'm gluten-free, I'm hoping it doesn't happen again! Is this what DH is like, though?

Any help would be greatly appreciated!

Thanks,

Lynne

I had a scar on my hand from a gluten antibiotic IV - SINCE Dec.

Mine has just gone away since I started watching like a hawk with what I was putting on my skin at all times. I am only using botanically based lotions that are gluten-free.

Watch carefully what you are putting on your skin...anything from hand cream to soap, could be just about anything affecting you that has gluten in it that is geting through your skin. Watch your labels, call the companies - they like to say they don't add any gluten - but then when you ask about the products they get from other companies they add into the product the story changes, they can't be sure, or they say they don't regularly test for gluten. Be safe, check everything and then stay with what works!! ( Mineral oil and petoleum may make you smoother, but it is actually harmful)

  • 7 months later...
oldskool Newbie
oldskool
Posted

Oh my $&@*!

Could this be it! You all have no idea what I have been living with and going through the past year of my life.

Long story short, since last January I was under extreme stress and trauma and had a bit of a breakdown due to a very sad event and a short while later I broke out in this painful rash that seemed like blisters almost all over my face and it was pretty much symmetrical.

I have been on Minocycline, Doxycycline, Bactrim DS, Accutane and various topicals that help to keep it somewhat at bay but it is still there and flares viciously from time to time and is the worst burning I have ever felt.

Nothing works on these blisters/lesions and they sting something awful.

The doctors do not know, have been told possibly shingles, but prednisone and valtrax did nothing.

I also get these sores in my mouth on my tongue.

I was diagnosed with Celiac through symptoms as a child and put on a gluten free diet for 6-8 months which cleared symptoms. Symptoms included, stop in bone growth and weight gain, diarreah, terrible blistery rash on my rear end, all at the age of 10 months.

Since my symptoms seemed to go into remission, the doctor introduced gluten back into my diet at 2 years and watched me unti lI was 10 to make sure growth etc. were normal and they were.

If this is what I am dealing with you have no idea how happy I will be (sounds funny doesn't it). I have tried every medication possible (although not dapisone) and none have cleared things, they always come back in the same area, terrible burning and I get the creepy, crawly, stinging feeling a day before so I know its coming.

If it is all gluten I will be so happy because I will be able to eat the correct diet and rid this terrible blistery pain for good!

What do you think of my situation...possible? I can answer further questions and details if that helps anyone.

I already started to cut back on Gluten and see the Gastro in 2 days. SHould I keep eating the Gluten now so if/when they do a biopsy they will be able to tell?

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